Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 4201–4225 of 4332 publications
What are Palliative Care Physicians for Adults Taught on Palliative Care for Children? Paediatric Aspects in Palliative Care Curricula for Adults
BACKGROUND: Children suffering from life limiting diseases are frequently cared for by adult palliative care teams due to missing paediatric structures in that field. However it is questionable whether palliative care curricula for physicians comprehensively c…
What are the limits of parental authority? Pediatric bioethics and the law
Objectives * Distinguish between the "best interest standard" and "the harm principle" in the evaluation of familial medical decision making in pediatrics and analyze the strengths and weaknesses of each. * Identify key legal cases in pediatrics and explain th…
What do we know about pediatric palliative care patients who consult the emergency department?
Objective: To determine the characteristics of pediatric palliative care (PPC) patients' emergency department (ED) visits. Methods: This was a five-year retrospective chart review in a tertiary care pediatric university-affiliated hospital. Patients were eligi…
"when i heard palliative care, i heard hospice": Parents' experiences with pediatric palliative care consultation in the neonatal intensive care unit
Objectives * Describe the role of pediatric palliative care consultation in the neonatal intensive care unit (NICU) setting. * Describe parent experiences with a pediatric palliative care consultation in the NICU and implications for practice and further resea…
When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care
BACKGROUND: Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the heterogeneity within …
When to say when: Helping the team and family recognize when death is inevitable after pediatric bone marrow transplant
Objectives * Gain an understanding of complex prognostication following complications of pediatric bone marrow transplant (BMT). * Gain skills for communicating the reality of poor likelihood of survival with a cure-oriented team and family following pediatric…
Why Palliative Care for Children is Preferable to Euthanasia
Recent laws in Europe now allow for pediatric euthanasia. The author reviews some rationale for caution, and addresses why ensuring the availability of pediatric palliative care is an important step before allowing pediatric euthanasia.
"You Know the Medicine, I Know My Kid": How Parents Advocate for Their Children Living With Complex Chronic Conditions
Caring for a child with a chronic condition has received considerable attention in the pediatric health literature. Today, approximately 1 out of 5 North American children are diagnosed with a chronic condition that requires parents to become caregivers and ad…
Young children's ability to report on past, future and hypothetical pain states: a cognitive developmental perspective
Children are at times asked by clinicians or researchers to rate their pain associated with past, future or hypothetical experiences. However, little consideration is typically given to the cognitive-developmental requirements of such pain reports. Consequentl…
Challenges and opportunities to advance pediatric neuro-oncology care in the developing world
PURPOSE: As the morbidity and mortality associated with communicable diseases continue to decrease in the developing world, the medical burden of childhood cancer continues to expand. Although international aid and relief groups such as the World Health Organi…
Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach
BACKGROUND: Models of palliative care need to address the unmet needs of children, young people and families.
OBJECTIVE: To undertake an integrative review to identify the key elements of optimal paediatric palliative care from the perspectives of children and…
Emotional nursing labour in the childcare at the end-of-life and their family: A sistematic review
We intend to present a systematization of scientiic evidence about the emotional labour of nurses in the process of childcare in the end-of-life and their family. It was performed a literature search in the databases CINAHL, Medline, Psychology and Behavioral …
End-of-life care in a regional level IV neonatal intensive care unit after implementation of a palliative care initiative
OBJECTIVE: We hypothesized that the implementation of a neonatal palliative care initiative will result in improved markers of end-of-life care. STUDY DESIGN: A retrospective and prospective chart review of neonatal intensive care unit deaths was performed for…
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
OBJECTIVE: To examine the opinions of a perinatal health team regarding decisions related to late termination of pregnancy and severely ill newborns. MATERIALS AND METHODS: An anonymous questionnaire was administered to physicians, social workers, and nurses i…
Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study
CONTEXT: Pediatric palliative care randomized controlled trials (PPC-RCTs) are uncommon.
OBJECTIVES: To evaluate the feasibility of conducting a PPC-RCT in pediatric cancer patients.
METHODS: This was a cohort study embedded in the Pediatric Quality of Life an…
Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
REVIEW QUESTION/OBJECTIVE: The objective of this review is to identify and synthesize the best international qualitative evidence on healthcare users' experiences of communication with healthcare professionals about children who have life-limiting conditions. …
Impact of a palliative care program on end-of-life care in a neonatal intensive care unit
OBJECTIVE: Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit. STUDY DESIGN: Retrospective study comparing infant deaths before and after implementation of a Palliative Care Program comprise…