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Everything on the hub tagged Community: researchers, groups, current studies, resources and published literature together.

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Jolanta

Shooting Star Children's Hospices · United Kingdom

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Published literature

Accessibility, utilisation and acceptability of a county-based home care service for sick children in Sweden

Castor C, Hallstrom I, Landgren K, Hansson H · Scand J Caring Sci · 2019

Adult specialist palliative care services caring for children in the community: a scoping review

McDonnell M, Connolly M, Bell M, Lawler F · BMC palliative care · 2025

Advance care planning and the parental geographical background in pediatric palliative home care: a retrospective chart review.

Dinkelbach L, Galushko M, Oommen-Halbach A, Felek M, Dechert O, Trocan L, Janßen G · European journal of pediatrics · 2022

A Framework for Pediatric Intensivists Providing Compassionate Extubation at Home

Woodruff A, Bingham S, Jarrah R, Bass A, Nageswaran S · Pediatric Critical Care Medicine · 2021

Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study

Verberne L, Kars M, Schouten-van Meeteren A, Bosman D, Colenbrander D, Grootenhuis M, van Delden J · European Journal of Pediatrics. · 2017

All‐cause mortality rates and home deaths decreased in children with life‐limiting diagnoses in Denmark between 1994 and 2014

Lykke C, Ekholm O, Schmiegelow K, Olsen M, Sjøgren P · Acta Paediatrica · 2018

An 8-Week Community-Based Resilience Group Intervention for Chinese Parents Who Lost Their Only Child: A Two-Armed Pragmatic Waitlist-Control Trial

Wang A, Zhang W, Li H, Guo Y, Yu N, Zhang J · Psychological Trauma: Theory, Research, Practice & Policy · 2025

An exploratory study of the feasibility and acceptability of a digital storytelling intervention in paediatric palliative care in Ireland

Safarifard R, Molati A, Corcoran Y, Kiernan G, Courtney E, Mitchell J, Akard T, Lambert V · Journal of Pediatric Nursing · 2026

A Parent's Perspective on Systemic Gaps in Supporting Complex Pediatric Care at Home

Cole A · Journal of Patient Experience · 2025

A pilot study of the effectiveness of home teleconsultations in paediatric palliative care

Bradford N, Young J, Armfield N, Bensink M, Pedersen L, Herbert A, Smith A · Journal of Telemedicine & Telecare · 2012

A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden

Castor C, Hansson H, Landgren K, Kristensson Hallstrom I · Pediatric Blood and Cancer · 2018

Attitudes and Experiences of Community Palliative Care Nurses Regarding Pediatric Home-Based End-of-Life Care: A Statewide Survey

Helyar M, Eamens M, Coombs S, Smeal T, Mherekumombe M, Jaaniste T · J Palliat Care · 2024

A Virtual Children's Hospice in Response to COVID-19: The Scottish Experience

Ellis K, Lindley L · Journal of Pain & Symptom Management · 2020

Being There: Danish Nurses' Lived Experiences of Companionship With Families in Home-Based Paediatric Palliative Care in Regional Settings

Alm A, Beck M · Scandinavian journal of caring sciences · 2026

Bringing Home to the Hospital: Development of the Reflection Room and Provider Perspectives

Vesely C, Newman V, Winters Y, Flori H · Journal of Palliative Medicine · 2017

Cameroonian context of pediatric palliative care: Ethnanalysis of child diseases

Belika L, Makak S, Ongotsoyi A · Medecine Palliative · 2017

Cardiopulmonary resuscitation in pediatric patients under palliative home care - A multicenter retrospective study

Schneck E, Janßen G, Vaillant V, Voelker T, Dechert O, Trocan L, Schmitz L, Rohde M, Sander M, Hauch H · Frontiers in Pediatrics · 2022

Caregiver Preferences for AI-Supported Telemedicine in Pediatric Palliative Care: A Discrete Choice Experiment

Godoy Junior C, Penarrubia-San-Florencio L, Ricart S, Vilarrubi S, Roure M, Ruiz-Herguido C, Valls-Esteve A, Pilli L, Uyl-de Groot C, Redekop W, Kirsten van Deen W · Journal of palliative care · 2026

Caregiver priorities and healthcare outcomes in a pediatric home care service for children with medical complexity: a quasi-experimental study

Kim K, Kim E, Seo H, Gong M, Lee H, Kwon S, Choi E · European Journal of Pediatrics · 2026

Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations

Schuetze D, Ploeger C, Hach M, Seipp H, Kuss K, Bösner S, Gerlach F, van den Akker M, Erler A, Engler J · Palliat Med · 2021

Centering Community Voices: Evaluating Stakeholder Engagement in Pediatric Palliative Care Research

Murray C, Walker E, Savage M, Johnson K · Journal of Pain and Symptom Management · 2025

Challenges and dilemmas in providing continuous pediatric palliative care in Varazdin County - two narrative case presentations

Dumbovic N, Martinec I, Vincek J · Paediatria Croatica · 2025

Challenges, Benefits, and Future Directions of Pediatric Home-Based End-of-Life Care: A Qualitative Study

Jaaniste T, Helyar M, Eamens M, Smeal T, Coombs S, Mherekumombe M · Journal of palliative care · 2025

Challenges following hospital discharge for children with medical complexity

Musial A, Butts B, Loechtenfeldt A, Herrmann L, Schmidlin E, Kelley J, Hail T, White C, Thomson J · Hospital Pediatrics · 2020

Collaboration of an Obstetrical Residency Program With a Community Hospice/Bereavement Agency to Implement an Obstetrician Specific Educational Curriculum to Improve Care to Bereaved Families and Support Staff During Difficult Delivery Situations

Parker K, Gerken K, Huckaby A, Gutek A, Freytag A, Buderer N, Rice M, Craig M, Cacciotti M, Stausmire J · American Journal of Hospice & Palliative Medicine · 2026

Community-based pediatric palliative care: a systematic review of structures, processes, and outcomes

Acuna-Caicedo S, Gonzalez-Brossard A, Perez-Gonzalez L, Arcia-Galvez M, Sanchez-Cardenas M · Jornal de Pediatria · 2026

Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life

Wang Y, Ferreira E, Savageau J, Beitman A, Young M, Gabovitch E, Merriam G, Jozan A, Padgett K, Bateman S · Journal of palliative medicine · 2023

Community-Based Provider Concerns About Pediatric Hospice and Palliative Care

Weaver M, Chana T, Fisher D, Hawley B, Lindley L, Smith S, Ware A, Torkildson C · Journal of pain and symptom management · 2026

Community health workers in palliative care provision in low-income and middle-income countries: a systematic scoping review of the literature

MacRae M, Fazal O, O'Donovan J · BMJ Global Health · 2020

COMMUNITY PAEDIATRIC MEDICATION LISTS FOR CHILDREN WITH COMPLEX AND PALLIATIVE CARE NEEDS

Gaskell C, Crampton R, Martin A, Heckford E, Williams A, Wiltshire S, Taylor S · BMJ Paediatrics Open · 2025

Community Palliative Care Nurses' Challenges and Coping Strategies on Delivering Home-Based Pediatric Palliative Care

Chong L, Abdullah A · American Journal of Hospice & Palliative Medicine · 2017

Community palliative care nurses’ challenges and coping strategies on delivering home-based pediatric palliative care: A qualitative study

Chong L, Abdullah A · American Journal of Hospice & Palliative Medicine · 2017

Community Resource Connection for Pediatric Caregivers with Unmet Social Needs: A Qualitative Study

Vasan A, Darko O, Fortin K, Scribano P, Kenyon C · Acad Pediatr · 2021

Consultation patterns before and after embedding pediatric palliative care into a pediatric hematology/oncology clinic

Greenmyer J, Ngo T, Smith M, Collura C, Schiltz B, McCarthy S · Pediatric Blood and Cancer · 2023

Cost Implication of a Community-Based Pediatric Palliative Care Program

Wang Y, Yang W, Young M, Padgett K, Gabovitch E, Zhang N, Zhang J, Bateman S · Journal of Palliative Medicine · 2026

Decisions around long-term ventilation for children: Perspectives of directors of pediatric home ventilation programs

Edwards J, Morris M, Nelson J, Panitch H, Miller R · Annals of the American Thoracic Society · 1539

Delivering Hospital-Based Pediatric Palliative Care: The Symptoms, Interventions, and Outcomes for Children With Cancer in Bangladesh

Doherty M, Power L, Thabet C · JCO Glob Oncol · 2020

Developing Community-Based Palliative Care for Children: A Community Case Study from an Urban Informal Settlement in Bangladesh

Chowdhury M, Bezzahou M, Khanom M, Doherty M · Health Serv Insights · 2023

Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa

Naicker S, Richter L, Stein A, Campbell L, Marston J · BMC Palliat Care · 2016

Discharge Communication Practices for Children With Medical Complexity: A Retrospective Chart Review

Rush M, Herrera N, Melwani A · Hosp Pediatr · 2020

Encouraging Family Physicians to Fill the Gaps in Hospice and Palliative Care for Children

Fan J, Kilpatrick L · Am Fam Physician · 2022

Enhancing Community Education on Family Caregiver Well-being Through Partnership

Bakula D, Crump N, Smith T, Goodwin E · Pediatrics · 2025

Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain

Birnie K, Killackey T, Backlin G, Gavin F, Harris C, Jordan I, Kim L, Marianayagam J, Swidrovich J, Lalonde C, Tunji-Ajayi L, Oberlander T, Kirby-Allen M, Lambert S, Siden H, Swidrovich J, Noel M, Lalloo C, Stinson J · Healthcare Quarterly (Toronto, Ont.) · 2022

Establishment of Specialized Pediatric Palliative Home Care in the Medical Valley of the European Metropolitan Area Nuremberg

Hebert S, Gravou-Apostolatou C, Rascher W · Klinische Padiatrie · 2017

Evaluation of paediatric palliative care ambulance plans: A retrospective study

Wan J, Vaughan A, Shepherd E, Coombs S, Trethewie S, Jaaniste T · Journal of Child Health Care · 2024

[Evaluation of Specialised Paediatric Palliative Home Care in Lower Saxony, Germany - A Qualitative Study on Parents' Perspectives]

Kremeike K, Mohr A, Nachtmann J, Reinhardt D, Geraedts M, Sander A · Int J Neurosci · 2016

Experiences of family caregivers of children with cancer while receiving home-based pediatric palliative care in Indonesia: a qualitative study

Effendy C, Uligraff D, Sari S, Angraini F, Chandra L · BMC Palliative Care · 2022

Expert survey on coverage and characteristics of pediatric palliative care in Europe - a focus on home care

Wager J, Kubek L, Brenner M, Calmanti S, Doyle C, Lovgren M, Kreicbergs U, Kremer L, Le Moine P, Robert G, Schuiling-Otten M, Schroder-Back P, Verhagen E, Zernikow B · BMC Palliative Care · 2022

Exploring parents' perspectives on health technology to support communication in home-based pediatric palliative care: a qualitative study

Martinsen L, Holmen H, Steindal S, Winger A · BMC palliative care · 2026

Facilitating home birth in perinatal palliative care: A case report

Bertaud S, Kirven R, Kirven T, Harrop E, Crudgington A, Wilkinson D · Palliative Medicine · 2024

Factors Associated with Use of U.S. Community-Based Palliative Care for Children with Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review

Boyden J, Curley M, Deatrick J, Ersek M · J Pain Symptom Manage · 2017

Family and healthcare professionals' perceptions of a pilot hospice at home programme for children: a qualitative study

Brenner M, Connolly M, Cawley D, Howlin F, Berry J, Quinn C · BMC Palliat Care · 2016

Family experiences of paediatric palliative care during hospital-at-home: a systematic review

Kirakosyan V, Daneshgar-Pironneau S, Bacqué M · Archives de Pediatrie · 2026

Family experiences with palliative care in freestanding paediatric hospices: a scoping review

Dorman J, Raffin Bouchal S, daSilva Curiel K, Miller M · BMJ Support Palliat Care · 2022

Feasibility and Acceptability of a Digital Storytelling Intervention in Paediatric Palliative Care: A Small-Scale Pilot Study in Ireland

Safarifard R, Molati A, Kiernan G, Corcoran Y, Courtney E, Mitchell J, Akard T, Lambert V · SSRN · 2026

Free and Appropriate: Navigating School Integration for Pediatric Patients Receiving Palliative Care or Hospice

Maxwell E, Satty A, French C, Purol N, Ullrich C · Journal of Pain and Symptom Management · 2024

From the C-Suite to the Living Room Couch: Making the Case for Home-Based Pediatric Palliative Care

Lastrapes K, Bell L, King Q, Spilman C, Frenchman E · Journal of Pain and Symptom Management · 2026

Growing Symbiotic Local Partnerships to Nurture Quality Pediatric Hospice Care in Rural Regions: Companion Planting

Weaver M · JAMA Pediatr · 2018

Gulburra (to understand): Aboriginal Ability Linker’s person-centred care approach

Gibson C, Chatfeild K, O’Neill-Baker B, Newman T, Steele A · Disability and Rehabilitation · 2021

Healthcare personnel's perspectives on health technology in home-based pediatric palliative care: a qualitative study

Schroder J, Riiser K, Holmen H · BMC Palliative Care · 2024

Healthcare utilization and costs of pediatric home mechanical ventilation in Canada

Nonoyama M, Katz S, Amin R, McKim D, Guerriere D, Coyte P, Wasilewski M, Zagorski B, Rose L · Pediatr Pulmonol · 2020

Health Technologies and Infrastructures for Supporting Home-Based Pediatric Palliative Care: Scoping Review

Steindal S, Winger A, Riiser K, Bjornerud E, Chen W, Holmen H · Journal of Medical Internet Research · 2025

Help Is a Phone Call Away: A 24-Hour Nurse-Led Pediatric Hospice Clinical Care Line

van Breemen C, Liversidge S, Zeng C, Zheng J, Andrews G · Journal of Palliative Medicine · 2026

Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications

Boyden J, Hill D, LaRagione G, Wolfe J, Feudtner C · Children · 2022

Home care needs of paediatric palliative patients perceived by professionals: A grounded theory

Santana-Medina J, Rodríguez-Suárez C · Enferm Clin (Engl Ed) · 2023

Home mechanical ventilation for children with severe neurological impairment: Parents' perspectives on clinician counselling

Bogetz J, Munjapara V, Henderson C, Raisanen J, Jabre N, Shipman K, Wilfond B, Boss R · Dev Med Child Neurol · 2022

Hospital, hospice, or home: A scoping review of the importance of place in pediatric palliative care

Walker M, Nicolardi D, Christopoulos T, Ross T · Palliat Support Care · 2023

How can telehealth be used to enhance the quality of care in home-based pediatric palliative care: protocol for a systematic literature review

Adlung C, Niehot C, van Capelle C · medRxiv · 2025

"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Hospice Home

Shaw T, Berkel C, Bernatavicius W, Berger K · J Palliat Med · 2022

Impact of an outpatient palliative care consultation and symptom clusters in terminal patients at a tertiary care center in Pakistan

Rafaqat W, Syed A, Ahmed I, Hashmi S, Jabeen I, Rajwani S, Qamar U, Waqar M · BMC palliative care · 2023

Implementing Education for Community Adult Hospice Nurses to Expand Pediatric Hospice and Palliative Care

Wenzel S · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2026

Increasing Access to Care: Designing a Blended Curriculum to Educate Adult Hospice Nurses in Caring for Pediatric Patients

McDonald P, Abdallah S, Lyons L, Fisher D · Nursing Forum · 2024

Integrating Pediatric Palliative Care into the School and Community

Davis K · Pediatric Clinics of North America · 2016

Intersectoral collaboration in home-based end-of-life pediatric cancer care: A qualitative multiple-case study integrating families' and professionals' experiences

Hammer N, Hansson H, Pedersen L, Abitz M, Sjøgren P, Schmiegelow K, Bidstrup P, Larsen H, Olsen M · Palliative Medicine · 2023

Investigation of Modifiable Variables to Increase Hospice Nurse Comfort With Care Provision to Children and Families in the Community: A Population-Level Study Across Tennessee, Mississippi, and Arkansas

Kaye E, Gattas M, Kiefer A, Reynolds J, Zalud K, Li C, Lu Z, Baker J · Journal of Pain and Symptom Management. · 2020

"It's the fear of the unknown" clinicians' perceptions on paediatric compassionate transport to preferred place of death: A qualitative descriptive study

Rowe J, Hawley M, Bloomer M, O'Neill J · Australian Critical Care · 2026

"Let's bring her home first." Patient Characteristics and Place of Death in Specialized Pediatric Palliative Home Care

Bender H, Riester M, Borasio G, Fuhrer M · J Pain Symptom Manage · 2017

Loading phenobarbital in paediatric home-based terminal care: A case series

Kelly J, Griffin K, Vemuri S, Sacks B, Lee S · Palliative Medicine · 2026

Mechanical ventilation in children with life-limiting conditions

Gaboli M, Pecellin I, Garrido M, Cantero E, Carro C, Rodriguez L, Valencia J · European Respiratory Journal · 2016

Monitoring of physiologic features and treatment aspects of children on home invasive mechanical ventilation

Chawla J, Tan H · Pediatr Pulmonol · 2024

Opportunities for Palliative Care in Public Health

De Lima L, Pastrana T · Annu Rev Public Health · 2016

Outpatient liaison palliative care for children: Two Years' Experience of Non-profit Charitable Organization

Minaeva N, Islamova R, Bazhenova M · Voprosy Sovremennoi Pediatrii - Current Pediatrics · 2020

Outpatient Pediatric Palliative Care Development: Guidance on Building Sustainable Programs

James C, Mothi S, Miller E, Kaye E, Morvant A, Stafford C, Autrey A · Journal of Palliative Medicine · 2024

Paediatric Palliative Care following Hospital discharge: Prevalence and factors associated with non-continuity of palliative care for children with cancer in Busoga sub-region-eastern Uganda; A mixed methods study

Ajambo M, Rujumba J, Mwaka S, Nyanzi J, Nalwanga D, Balagadde J · medRxiv · 2025

Palliative care at home with low resources by a hospice center, Dhaka, Bangladesh

Kabir M, Masud Z, Khan Z, Hossain M · Journal of Pain and Symptom Management · 2016

Palliative care for children in the community with static neurological conditions-are we getting it right?

Williams M, Ruck K, Hayman L · Archives of Disease in Childhood · 2016

Palliative care interventions used by village health volunteers in Thailand

Jordan S, Nilmanat K, Duffus Y, Campbell C · International Journal of Palliative Nursing · 2025

Palliative care provision for children in general practice: A retrospective cohort study

Engel M, Grant M, Kleiboer A, de Graaf E, Teunissen S, Kars M · Palliative & Supportive Care · 2026

Palliative care training programmes for community volunteers working with children and their families: a scoping review

Ontrakrai N, Bailey C, Valler T, Neilson S · Frontiers in public health · 2025

Parenting Process in Paediatric Palliative Care for Children With Cancer During Hospitalisation at Home: A Qualitative Study of the Maternal Experience

Kirakosyan V, Plichart M, Laradji F, Bacque M · Scandinavian journal of caring sciences · 2025

Parents spend an average of nine hours a day providing palliative care for children at home and need to maintain an average of five life-saving devices

Lazzarin P, Schiavon B, Brugnaro L, Benini F · Acta Paediatr · 2017

Partnering with Payers to Meet the Needs of Pediatric Palliative Care Patients (FR473)

Cunningham M, Williamson S, Baker J, Pennington K, Young A, Bolick R, Norton C · Journal of Pain and Symptom Management · 2018

Partnership working between hospice and children's community nursing teams

Bennett H, McCarthy L, McKinnon S · Nurs Child Young People · 2016

Pediatric End-of-Life Care in Rural America: A Systematic Review

Stone W, Keim-Malpass J, Cozad M, Fornehed M, Lindley L · Am J Hosp Palliat Care · 2021

Pediatric home-based hospice and palliative care: a scoping review

Davis E, Grossoehme D, Ajayi T, Baker J, Hinds P, Humphrey L, Jarrell J, Thienprayoon R, Friebert S · BMC palliative care · 2026

Pediatric Home Hospice as a National Service in Israel

Duchin O, Mayan I, Biran O, Geva Robinson S, Sabar R · Journal of palliative medicine · 2025

Pediatric Neuropalliative Medicine Clinic: Five-Year Data Characterizing a Novel Model of Outpatient Care

Treat L, Silveira L, Ess K · Annals of the Child Neurology Society · 2026

Pediatric out-of-hospital deaths following hospital discharge: a mixed-methods study

English L, Kumbakumba E, Larson C, Kabakyenga J, Singer J, Kissoon N, Ansermino J, Wong H, Kiwanuka J, Wiens M · Afr Health Sci · 2016

Pediatric Palliative Care Consultation in the PICU Following Out-of-Hospital Cardiac Arrest: Analysis of the U.S. Pediatric Health Information Systems Database, 2013-2023

Gouda S, Snaman J, D'Anna R, Upham E, Dahlberg S, Rosenberg A, DeCourcey D · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2026

Pediatric palliative care in kelantan: A community engagement model

Taib F, Rostenberghe H, Muhammad N · Bangladesh Journal of Medical Science · 2016

Pediatric Palliative Care Utilization Following Out-of-Hospital Cardiac Arrest at a Large US Quaternary Hospital

Gouda S, Upham E, D’Anna R, Dahlberg S, Snaman J, Rosenberg A, DeCourcey D · Children · 2026

Pediatric Palliative Symptom Categories for (e)PROM in specialized pediatric palliative home care

Hocher R, Ruthke N, Busse T, Ghori S, Krumpelmann S, Messerschmidt C, Nathrath M, Vaillant V, Voelker T, Voelzke A, Zimmermann J, Deckers M · Journal of pain and symptom management · 2026

Perceptions of Interprofessional Practitioners Regarding Pediatric Palliative Transports

Swasey H, Morrill D, Mott S, Engstrand S, Connor J · Am J Crit Care · 2024

Pilot Study of a Bereavement Referral Program for Parents Following Perinatal Death

Michelson K, Hayes A, Barrera L, James K, Miller C, Guzman Z, Torres N, McNicholas A, Becker A · Journal of Pain and Symptom Management · 2026

Provider-Prioritized Domains of Quality in Pediatric Home-Based Hospice and Palliative Care: A Study of the Ohio Pediatric Palliative Care and End-of-Life Network

Thienprayoon R, Mark M, Grossoehme D · J Palliat Med · 2017

Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice Nurses

Kaye E, Gattas M, Kiefer A, Reynolds J, Zalud K, Li C, Lu Z, Baker J · Journal of Pain and Symptom Management · 2018

Psychological distress and social support among community paediatric palliative care programme caregivers: longitudinal analysis

Wong E, Au-Doung P, Chu Y, Wong S, Li C, Cheung Y · BMJ supportive & palliative care · 2023

Quality of care metrics contributing to the development, implementation, and evaluation processes of telehealth solutions in home-care settings for paediatric palliative care: protocol for a systematic literature review

Adlung C, Niehot C, van Capelle C · BMJ open · 2026

Realities of Home Care System for Children with Medical Complexity (CMC): A Qualitative Study of Parent Perspectives Experiences, Barriers, and Alternative Models

Tay J, Rapoport A, Ta J, Crawley J, Kichler J · Home Health Care Management & Practice · 2025

Rearranging the toes on my baby: Full-time physicians making routine visits as part of the hospice home care team

Von Gunten C · Journal of Pain and Symptom Management · 2016

Redefined Boundaries: When Palliative Care Hits Home

Jonas D · Journal of Palliative Medicine · 2017

Study protocol: evaluation of specialized outpatient palliative care (SOPC) in the German state of Hesse (ELSAH study) - work package II: palliative care for pediatric patients

Ulrich L, Gruber D, Hach M, Boesner S, Haasenritter J, Kuss K, Seipp H, Gerlach F, Erler A · BMC Palliat Care · 2018

Subcutaneous Drug Administration in Pediatric Palliative Home Care: A Multicenter Prospective Study

Riva de la Hoz B, de Miguel M, Gorbe C, Tristancho-Perez A, Garcia-Palop B, Corro B, Nogue-Pujadas E, Bosch-Peligero M, Zurbano R, Yunquera-Romero L, Garcia-Lopez I · Journal of Pain & Symptom Management · 2026

Symptoms and management of pediatric patients with incurable brain tumors in palliative home care

Kuhlen M, Hoell J, Balzer S, Borkhardt A, Janssen G · European Journal of Paediatric Neurology · 2016

Telemedicine in children with medical complexity on home ventilation during the COVID-19 pandemic

Onofri A, Pavone M, De Santis S, Verrillo E, Caggiano S, Ullmann N, Cutrera R · Pediatric Pulmonology · 2021

Te Whare Kaiao-an Indigenous-informed paediatric palliative care framework for Aotearoa New Zealand

Aburn G, Moeke-Maxwell T, Gott M, Drake R, Raphael D · The New Zealand medical journal · 2026

The Effects of Chronic Disease on Ambulatory Care–Sensitive Hospitalizations for Children or Youth

Phillips C, Truong C, Kum H, Nwaiwu O, Ohsfeldt R · Health Services Insights · 2019

The Emotional Experience of Caring for Children in Pediatric Palliative Care: A Qualitative Study among a Home-Based Interdisciplinary Care Team

Rico-Mena P, Gueita-Rodriguez J, Martino-Alba R, Castel-Sanchez M, Palacios-Cena D · Children · 2023

The Home-based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of psychometric properties

Boyden J, Ersek M, Widger K, Shea J, Feudtner C · Journal of pain and symptom management · 2024

The impact of home-based physical rehabilitation program on parents' experience with children in palliative care: a qualitative study

Rico-Mena P, Palacios-Cena D, Martino-Alba R, Chocarro-Gonzalez L, Gueita-Rodriguez J · European journal of physical and rehabilitation medicine · 2019

The integration of palliative care in Dr Congo "a Model of Sustainability": A field study

Mubeneshayi Kananga A · Journal of Global Oncology · 2018

The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment

Autrey A, James C, Mothi S, Stafford C, Morvant A, Miller E, Kaye E · Journal of pain and symptom management · 2023

The Paediatric Palliative Care Unit has been transformed into Home Care Unit during the COVID-19 pandemic. Is this transformation for the foreseeable future?

del Villar Guerra P, Martinez Florez A, Catalina Fernandez C, Cancho Candela R, Centeno Malfaz F · Anales de Pediatria · 2022

The role of hospice in the transition from hospital to home for technology‐dependent children—a qualitative study

Price J, McCloskey S, Brazil K · Journal of Clinical Nursing · 2017

The role of hospice in the transition from hospital to home for technology-dependent children-A qualitative study

Price J, McCloskey S, Brazil K · Journal of Clinical Nursing · 2018

The Spirit of "Ubuntu" in Children's Palliative Care

Marston J · Journal of Pain and Symptom Management · 2015

The use of telemedicine for home-based palliative care for children with serious illness: a scoping review

Miller K, Baird J, Lira J, Herrera Eguizabal J, Fei S, Kysh L, Lotstein D · J Pain Symptom Manage · 2020

Towards a public health approach for palliative care: an action-research study focused on engaging a local community and educating teenagers

Martins Pereira S, Araujo J, Hernandez-Marrero P · BMC Palliat Care. · 2018

Unused opioids following palliative care for children at home: A missed opportunity for opioid stewardship?

Rapoport A, Navarro L, Bordman W, Mallen J, Nelson K, Widger K, Williams R, Mc Donnell C · Journal of pain and symptom management · 2025

Use of Telehealth in Pediatric Palliative Care

Winegard B, Miller E, Slamon N · Telemed J E Health · 2017

Use of the interRAI PEDS HC in children receiving home care in Ontario, Canada

Thorburn-Winsor E, Doherty M, Jones A, Vadeboncoeur C · BMC health services research · 2022

Using mobile phones, WhatsApp and phone interviews to explore how children's hospice nurses manage long-term relationships with parents: a feasibility pilot

Jane Brimble M, Anstey S, Davies J, Dunn C, Jones A · Nurse Res · 2022

"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation

Shipman K, Mercer A, Raisanen J, Jabre N, Vo H, Miles A, Shepard J, Henderson C, Boss R, Wilfond B · Journal of Palliative Medicine · 2023

When Technology Fails: Community-Based Pediatric Hospice

Ryan J, Haas K, Kramer N, Vizzachero N, Butler S, Waechtler E · Journal of Pediatric Nursing · 2016

Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand

Nuchprayoon I, Chamnanprai S, Raksrithong T · Pediatric Blood and Cancer · 2018

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