Children's palliative care research, worldwide

Find the research, the researchers, and the way forward.

Children's palliative care research is done in small teams, far apart, often with nobody nearby who has done it before. This hub is where the field can see itself: the people, the studies already running, the literature, and practical help with doing the work well.

Try:qualitative research in sub-Saharan Africa children with cancer neonatal palliative care consent and ethics

No account needed to look around. Search, read profiles, browse studies and open the guidance freely. You only sign in to be listed yourself, to add a study, or to message another researcher — and even then it's an email address, no password.

New here? Start here Meet the community

What brings you here?

I need someone who has done this beforeSearch the directory by topic, method, country and career stage, and see who is open to mentoring or collaborating. Message them through the hub; addresses stay private.Find a researcher →Is someone already doing this?The studies directory shows work in progress, not only work published — so you can avoid duplicating a study, or ask to join one that is still recruiting.Browse current studies →What does the evidence already say?ICPCN's curated library of published children's palliative care research, filterable by region, country, clinical focus and methodology.Search the publications →I know what to ask, but not howConsent templates, authorship agreements, recorded talks on choosing a method, and the best guidance published elsewhere, gathered in one place.Open the resources →I'd like to talk to peopleWorks-in-progress sessions where half-finished is the point, one-to-one support, and a WhatsApp community across every WHO region for the questions in between.Join the community →Where is this work being done?The groups and institutions active in the field, by country, focus and method — which is also the clearest picture anyone has of where the capacity isn't yet.See the research groups →

Why a hub at all

So the same study isn't run three times

Small fields duplicate work not through carelessness but through invisibility. A directory of studies in progress — not only of published papers — is the cheapest fix there is, and it turns a near-miss into a collaboration.

So nobody is the only one

In most countries a handful of people do this work; sometimes one. Finding the others — by method, by condition, by language, by country — is the difference between a stalled idea and a study that happens.

So the evidence isn't only from wealthy countries

Most children needing palliative care live in low- and middle-income countries; most published research does not come from them. Making that capacity visible, and backing the people building it, is the point of the whole exercise.

More on how the hub is run and reviewed is on the about page.

Coming up

Sept

Research Student Support Group

Mon, 14 Sep 2026 12:00 UTC · Online (Teams)

An open space to share and receive support, advice, and community among fellow research students in children's palliative care.

Sept

Methodology Webinar

Wed, 16 Sep 2026 12:00 UTC · Online (Teams)

A webinar from experts on an in-depth methodology

Full calendar →

Join the WhatsApp community

Quick questions, in-search-of posts and connections between sessions: the fastest way into the network, and the easiest thing to do today.

Join on WhatsApp What to expect

Be findable

Part of what this hub is for is showing where research capacity exists, and where it doesn't — which only works if the people doing the work are on it. A profile takes under five minutes, you control what is visible, and ICPCN reviews every one before it appears.

Create your profile About the hub Tell us what's missing