Resources
Guidance, toolkits & recorded talks
Practical material for children's palliative care research: templates, toolkits, and trainings to support rigorous research, curated from within and outside children's palliative care. Looking for published papers instead? Those are in Publications.
Links marked external lead to material published by other organisations. ICPCN collects them because our members have found them useful; listing them is not a review or an endorsement, and ICPCN isn't responsible for their content.
Tools, templates & guidance
The CoPPAR Toolkit is a set of resources that brings together advice and best practice for conducting research in the children’s palliative care sector.
Australia Centre for Research Excellence Toolkit
Find definitions to some of the more specialised language and acronyms used in health, social care and public health research.
What is an implementation science question?
This toolkit is designed to help you conduct an implementation research (IR) project through a standard process so that you have high quality results that are reliable.
This toolkit for researchers, policymakers and program implementers working in low- and middle-income countries (LMICs) provides resources to further implementation science, and strengthen stakeholder interactions, community participation and dissemination.
How we get “what works” to the people who need it, with greater speed, fidelity, efficiency, quality, and relevant coverage.
Skills & training
This tutorial is suitable for students and professionals in higher education (especially post-graduate students and early-career academics and librarians) who would like to learn the basics of writing a grant proposal to receive funding for an activity or project.
This course aims to give researchers and members of ethics committees confidence in thinking through the challenges of carrying out research with children and young people.
This short tutorial assists researchers to summarise existing research findings such as articles, theses or conference papers into an accessible form to be read by non-specialists.
El curso busca proporcionar conocimientos fundamentales sobre investigación en salud, incluyendo aspectos científicos, éticos, epidemiológicos, estadísticos y operativos, para que los participantes puedan comprender, integrarse y contribuir de manera responsable en proyectos de investigación.
Cost-effectiveness analysis methods for evidence-based public health resource allocation decisions
Researcher Academy helps strengthen your knowledge by providing free access to a wide range of e-learning resources, thoughtfully designed to help you at every stage of your research journey.
This e-Learning resource will guide the development of a dedicated “Ethics section” of the protocol in which these Essential Elements are addressed or cross-referenced to other sections of the protocol.
The purpose of this guidance is to encourage protocol authors to address ethical issues in the design of studies, documenting their rationale, in a section of the protocol easily understood by review boards and investigators.
This is an online self-study tutorial geared towards research scholars and early career researchers who (a) work in social science and health disciplines, and (b) would like to develop strong fundamentals in carrying out research.
We created this open-access online programme to help you address complex health challenges linked to non-communicable diseases (NCDs), wherever you are.
Good data management is key to maintaining, processing, analysing and storing high quality data. This course provides an overview and guide to this important element of the research process and is aimed at everyone involved in clinical research.
The course provides an introductory overview aimed at everyone involved in clinical research and focuses on the main areas of why and how clinical research is carried out, the importance of ethics in research, and an outline of the five main clinical study designs.
This course provides an overview and guide to data management and is aimed at everyone involved in clinical research.
This course places informed consent within its historical context and outlines the regulations, guidelines and processes which arose from this background.
In this course, you will gain a comprehensive introduction to the core principles of statistics and their practical applications in research.
This is a short learning pathway to acquire the skills necessary to publish or advise on publishing research using Open Access (OA).
The online tutorial is designed for any researchers who want to improve their critical thinking skills, regardless of the subject of their studies.
This course helps you to think about how to use research to create change and contribute to policy.
Research is a vital ingredient for improved global health, and scientifically sound and ethically appropriate research is especially important in resource-poor settings where the need for locally applicable research findings is so great.
This tutorial is designed to help anyone looking for information online to develop skills in defining a search strategy and conducting searches efficiently.
El presente curso aborda los fundamentos conceptuales y los parámetros técnicos de esta técnica, finalizando con la aplicación práctica de un caso concreto para el análisis de la distribución espacial de la capacidad instalada en salud.
This course aims to give you basic and practical guidance in data management and sharing.
his short course is aimed at all those carrying out clinical research and explores the main factors which affect and influence the development of a valid research question.
This course is designed to guide researchers through the basic stages and concepts surrounding the creation of a protocol.
In this course you will discover, through real-world examples, what ethics means, why it's important, whose responsibility it is, what happens if ethical issues are ignored, and how to be an ethical researcher.
Research hubs & networks
The Asia Pacific Hospice Palliative Care Network (APHN) Research Committee welcomes opportunities to collaborate on research initiatives that advance palliative care across the region.
The aim of the EAPC RN is to encourage, facilitate, collaborate, and enhance palliative care research throughout Europe.
The knowledge hub offers an up-to-date overview of ongoing and completed studies in palliative care in the Netherlands.
The Advancing the Science of Palliative Care Research across the Lifespan (ASCENT) Consortium is a national research initiative focused on providing resources, expertise, and coordination across institutions to advance innovative, high-quality research for those living with serious illness and those who care for them.
Supporting development of United Kingdom researchers in palliative and end of life care through events, networking and collaborations.
Through regular communication, researchers share their findings and knowledge with others around the country. This network allows researchers to access more patients than are available in any one children’s hospital and enables larger studies to take place in multiple hospitals
More resources
Trends is a monthly newsletter featuring a curated list of paediatric palliative care research and expert commentaries.
Recorded talks
Sessions on choosing a methodology, the practical realities of research in low-resource settings, and lessons from studies that have already been through it.
Justin Baker, Julia Downing, Eve Namisango, Hal Siden, Maryam Rassouli, Krithika Rao, Veronica Dussel, Rima Saad Rassam, Ané Buchner · October 2026
Callie Daniels-Howell, Ximena Garcia-Quintero · May 2026
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