Published literature
Caring for Critically Ill Children With Suspected or Proven Coronavirus Disease 2019 Infection: Recommendations by the Scientific Sections' Collaborative of the European Society of Pediatric and Neonatal Intensive CareRimensberger P, Kneyber M, Deep A, Bansal M, Hoskote A, Javouhey E, Jourdain G, Latten L, MacLaren G, Morin L, Pons-Odena M, Ricci Z, Singh Y, Schlapbach L, Scholefield B, Terheggen U, Tissières P, Tume L, Verbruggen S, Brierley J · Pediatr Crit Care Med · 2021
Challenges and Incentives for Integrating Person-Centred Outcome Measures Into Routine Paediatric Palliative Care: Health, Social Care and Commissioner PerspectivesScott H, Coombes L, Braybrook D, Roach A, Harardottir D, Bristowe K, Ellis-Smith C, Chambers L, Bluebond-Langner M, Farsides B, Murtagh F, Harding R · Palliative Medicine · 2022
Development and Execution of a Pediatric Hospice and Palliative Medicine Fellowship in Latin AmericaMartinez-Jimenez S, Gradick K, Guarda J, Irwin L, Garcia-Quintero X, Rassam R, Cowfer B, Madni A, McNeil M, Montufar S, Moreira D, Antillon F, Delgado-Corcoran C, Pinargote Pico V, Rivas S · Journal of graduate medical education · 2026
Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countriesNamisango E, Bristowe K, Murtagh F, Downing J, Powell R, Atieno M, Abas M, Ali Z, Luyirika E, Meiring M, Mwangi-Powell F, Higginson I, Harding R · Palliative Medicine · 2022
Guidelines regarding ineffective maintenance of organ functions (futile therapy) in paediatric intensive care unitsBartkowska-Śniatkowska A, Byrska-Maciejasz E, Cettler M, Damps M, Jarosz K, Mierzewska-Schmidt M, Migdał M, Ożóg-Zabolska I, Piotrowski A, Rawicz M, Świder M, Tałałaj M, Zielińska M · Anaesthesiol Intensive Ther · 2021
Increasing Pediatric Palliative Care Consultation for Patients with Heart Disease and Prolonged Cardiac Intensive Care StayHeadrick A, Wawrzynski S, Moore J, Winder M, Masih J, De Leon Jauregui M, Flaherty B, Moresco B, Millar M, Codden R, Moore D, Delgado-Corcoran C · Pediatric Quality & Safety · 2025
Oral morphine versus transmucosal diamorphine for breakthrough pain in children: methods and outcomes: UK (DIPPER study) consensusHarrop E, Liossi C, Jamieson L, Gastine S, Oulton K, Skene S, Howard R, Johnson M, Boyce K, Mitchell L, Jassal S, Anderson A, Hain R, Hills M, Bayliss J, Soman A, Laddie J, Vickers D, Mellor C, Warlow T, Wong I · BMJ Support Palliat Care · 2021
Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practiceTooten S, Hermens R, Verhoeven M, Vierhoven E, Boulakhrif F, Reintjes J, Willemsen M, Aris-Meijer J, Fahner J, Engel M, Kars M, Ahout I, Deuning-Smit E · BMC Palliative Care · 2026
Retrieval-Augmented Generation (RAG) AI for End-of-Life Support in Pediatric HCT: Bridging Information Gaps for Patients and Caregivers on Palliative CareSiddiqui K, Al-Musa A, Alsaedi H, Ghemlas I, AlAnazi A, Al-Ahmari A, Ramiz S, Sadler K, Virk T, Ayas M, Khan S · Transplantation and Cellular Therapy · 2026
Symptom management care pathway adaptation process and specific adaptation decisionsVettese E, Sherani F, King A, Yu L, Aftandilian C, Baggott C, Agarwal V, Nagasubramanian R, Kelly K, Freyer D, Orgel E, Bradfield S, Kyono W, Roth M, Klesges L, Beauchemin M, Grimes A, Tomlinson G, Dupuis L, Sung L · BMC cancer · 2023
The Bucharest international European Society for Organ Transplantation consensus on paediatric controlled donation after circulatory determination of deathWeiss M, Siebelink M, Cavazzoni E, Figini M, Kazzaz Y, Nadalin S, Nakagawa T, Scales A, Dominguez-Gil B, Oniscu G, Cillo U, Martin D · Transplant International · 2026
The DIGNITAL StudyRodriguez A, Smith J, Tatterton M, McSherry W, Kellehear A, Yaziji N, Villa-Uriol M, LanFranchi V, Watts L · Palliative Medicine · 2022
Translating Research to Action: The Development of a Pediatric Palliative Cancer Care Advocacy Tool in EurasiaEhrlich B, Yakimkova T, Batmunkh T, Mishkova V, Movsisyan N, Kirgizov K, Borisevich M, Kizyma R, Graetz D, McNeil M, Vinitsky A, Smelov V, Corbex M, Lam C, Kaye E, Baker J, Agulnik A · JCO Glob Oncol · 2022
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholdersScott H, Coombes L, Braybrook D, Hardardottir D, Roach A, Bristowe K, Bluebond-Langner M, Fraser L, Downing J, Farsides B, Murtagh F, Ellis-Smith C, Harding R · Palliative Medicine · 2024
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