Published literature
A 15-year experience in pediatric palliative care: a retrospective hospital-based studySchiavon M, Lazzarin P, Agosto C, Rusalen F, Divisic A, Zanin A, Mercante A, Mirisola V, Papa S, Giacomelli L, Benini F · BMC palliative care · 2024
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, BelgiumFriedel M, Gilson A, Bouckenaere D, Brichard B, Fonteyne C, Wojcik T, De Clercq E, Guillet A, Mahboub A, Lahaye M, Aujoulat I · BMJ Paediatrics Open · 2019
Adaptation of Pediatric Palliative Care Groups to Metabolic Diseases: Beyond the PathwaysSpolador G, Polastrini R, Zoboli I, Henrique A, Freitas E, do Nascimento A, Monti F, Pugliese C, Kok F, Barbosa S, Bueno C · Annals of Pediatrics · 2025
A Dutch paediatric palliative care guideline: a systematic review and evidence-based recommendations for symptom treatmentvan Teunenbroek K, Mulder R, Ahout I, Bindels-de Heus K, Delsman-van Gelder C, Galimont-Collen A, de Groot M, Heitink-Polle K, Looijestijn J, Mensink M, Mulder S, Schieving J, Schouten-van Meeteren A, Verheijden J, Rippen H, Borggreve B, Kremer L, Verhagen A, Michiels E · BMC Palliat Care · 2024
African Hospital-Based Paediatric Palliative Oncology Care Independent of Economic Indicators: An International Society of Paediatric Oncology (SIOP) Global Mapping Programme SurveyMauree A, Myezo K, Ranasinghe N, Challinor J, Bandini R, Burns K, Eyal K, Downing J, Pritchard-Jones K, Bouffet E, Geel J · Pediatric blood & cancer · 2025
A multicountry assessment in Eurasia: Alignment of physician perspectives on palliative care integration in pediatric oncology with World Health Organization guidelinesEhrlich B, Movsisyan N, Batmunkh T, Kumirova E, Borisevich M, Kirgizov K, Graetz D, McNeil M, Yakimkova T, Vinitsky A, Ferrara G, Li C, Lu Z, Kaye E, Baker J, Agulnik A · Cancer · 2020
A Nationwide Study to Evaluate Accessibility to Specialized Pediatric Palliative Care in Italy-Patients, Needs, and Critical Issues: The PalliPed StudyBenini F, Mercante A, Di Nunzio S, Papa S, Agosto C, Albanesi B, Amarri S, Avagnina I, Barbugian E, Basile R, Bellagamba O, Bellini F, Beltrami C, Bignamini E, Bolognani M, Campagna M, Carraro C, Catalano G, Catalano I, Celentano L, De Marinis M, De Tommasi V, De Zen L, Divisic A, Dolcini A, Fasson A, Franchi F, Ghiraldo G, Giacomelli L, Grigolon E, Iadelica A, Lazzarin P, Maghini I, Manfredini L, Marinetto A, Mazzoni E, Michelotto E, Mirone R, Molinaro G, Moliterni P, Moro N, Orofino R, Paone G, Pellegatta F, Peruselli C, Piccolruaz U, Raspi M, Roverato B, Salata M, Santini A, Schiavon B, Soffritti S, Taucar V, Thaler M, Tornesello A, Uez F, Vaccher S, Vezzoli C, Zanin A, Ziggiotto S · Journal of Palliative Medicine · 2024
A new palliative and pain educational model for pediatric residentsBenini F, De Zen L, Amarri S, Bignamini E, Bolognani M, Catalano I, Jankovic M, Manfredini L, Salata M, Zanin A, Corsello A, Barbi E, Marseglia G, Baraldi E · Italian Journal of Pediatrics · 2025
Assessing the palliative care needs of children with cancer and their families in tertiary care centres in India: A multicentre observational studyVerma V, Rao K, Ghoshal A, Bhat K V, D H, Sanian A, Mishra A, Sakpal A, Bagalkote M, Sravani B, Iyengar A, Mudaliar S, Palat G, Dinand V, Salins N · Palliative Care and Social Practice · 2026
Assessment of physician perceptions of pediatric palliative care for children with cancer in Latin America.McNeil M, Ehrlich B, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gomez Garcia W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Baker J, Agulnik A · Journal of Clinical Oncology · 2021
Assessment of the Implementation of Pharmacogenomic Testing in a Pediatric Tertiary Care SettingCohn I, Manshaei R, Liston E, Okello J, Khan R, Curtis M, Krupski A, Jobling R, Kalbfleisch K, Paton T, Reuter M, Hayeems R, Verstegen R, Goldman A, Kim R, Ito S · JAMA Network Open · 2021
Association of Religious and Spiritual Factors With Patient-Reported Outcomes of Anxiety, Depressive Symptoms, Fatigue, and Pain Interference Among Adolescents and Young Adults With CancerGrossoehme D, Friebert S, Baker J, Tweddle M, Needle J, Chrastek J, Thompkins J, Wang J, Cheng Y, Lyon M · JAMA Network Open · 2020
Barriers to the early integration of palliative care in pediatric oncology in 11 Eurasian countriesEhrlich B, Movsisyan N, Batmunkh T, Kumirova E, Borisevich M, Kirgizov K, Graetz D, McNeil M, Yakimkova T, Vinitsky A, Ferrara G, Li C, Lu Z, Kaye E, Baker J, Agulnik A · Cancer · 2020
Benefits of Respite Services on the Psycho-Emotional State of Families of Children Admitted to Hospice Palliative Care Unit: Preliminary Study on Parents' PerceptionsHizanu Dumitrache M, Boeriu E, Tanasescu S, Balan A, Oprisoni L, Popa M, Gutu C, Vulcanescu D, Bagiu I, Bagiu R, Dragomir T, Boru C, Avram C, Duceac L · Healthcare (Basel) · 2024
Bereavement in paediatric oncology: programme evaluationPodda M, Nigro O, Barretta F, Schiavello E, Grampa P, Luksch R, Terenziani M, Ferrari A, Casanova M, Spreafico F, Meazza C, Biassoni V, Chiaravalli S, Bergamaschi L, Colombo V, Puma N, Gattuso G, Sironi G, Clerici C, Lombardi M, Forzini G, Massimino M · BMJ Supportive and Palliative Care · 2026
Burnout and posttraumatic stress in paediatric critical care personnel: Prediction from resilience and coping stylesRodriguez-Rey R, Palacios A, Alonso-Tapia J, Perez E, Alvarez E, Coca A, Mencia S, Marcos A, Mayordomo-Colunga J, Fernandez F, Gomez F, Cruz J, Ordonez O, Llorente A · Australian Critical Care · 2018
Canadian surveillance study of complex regional pain syndrome in childrenBaerg K, Tupper S, Chu L, Cooke N, Dick B, Doré-Bergeron M, Findlay S, Ingelmo P, Lamontagne C, Mesaroli M, Oberlander T, Poolacherla R, Spencer A, Stinson J, Finley G · PAIN · 2021
Cannabis-based products for pediatric epilepsy: An updated systematic reviewElliott J, DeJean D, Clifford T, Coyle D, Potter B, Skidmore B, Alexander C, Repetski A, Shukla V, McCoy B, Wells G · Seizure · 2019
Caregiver Preferences for AI-Supported Telemedicine in Pediatric Palliative Care: A Discrete Choice ExperimentGodoy Junior C, Penarrubia-San-Florencio L, Ricart S, Vilarrubi S, Roure M, Ruiz-Herguido C, Valls-Esteve A, Pilli L, Uyl-de Groot C, Redekop W, Kirsten van Deen W · Journal of palliative care · 2026
Center, Gestational Age, and Race Impact End-of-Life Care Practices at Regional Neonatal Intensive Care UnitsFry J, Matoba N, Datta A, DiGeronimo R, Coghill C, Natarajan G, Brozanski B, Leuthner S, Niehaus J, Schlegel A, Shah A, Zaniletti I, Bartman T, Murthy K, Sullivan K, Asselin J, Durand D, Dykes F, Evans J, Padula M, Pallotto E, Grover T, Piazza A, Reber K, Short B · Journal of Pediatrics. · 2019
Characteristics and outcomes of coronavirus disease 2019 (COVID-19) in critically ill pediatric patients admitted to the intensive care unit: A multicenter retrospective cohort studyAlfraij A, Bin Alamir A, Al-Otaibi A, Alsharrah D, Aldaithan A, Kamel A, Almutairi M, Alshammari S, Almazyad M, Macarambon J, Alghounaim M · J Infect Public Health · 2020
Characteristics of adolescent and young adult patients with cancer receiving home-based palliative care: A retrospective study at a single centerWatanabe H, Watanabe A, Fujikawa K, Furuya M, Goto H, Iida A, Kosugi Y, Kumagai Y, Murakami A, Sakuma E, Takagi K, Kawauchi J, Gyoda Y, Watanabe J · Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
Characterization of Death in Infants With Neonatal SeizuresLemmon M, Bonifacio S, Shellhaas R, Wusthoff C, Greenberg R, Soul J, Chang T, Chu C, Bates S, Massey S, Abend N, Cilio M, Glass H · Pediatric Neurology · 2020
Children and adolescent solid tumours and high-intensity end-of-life care: what can be done to reduce acute care admissions?Podda M, Schiavello E, Clerici C, Luksch R, Terenziani M, Ferrari A, Casanova M, Spreafico F, Meazza C, Biassoni V, Chiaravalli S, Puma N, Bergamaschi L, Gattuso G, Sironi G, Nigro O, Massimino M · BMJ Support Palliat Care · 2021
Children and adolescents with cancer assisted in a Support Institution in Juiz de Fora, Minas Gerais, Brazil - Preliminary studyChagas P, Marques R, Goretti P, Castilho J, El'corab B, Costa M, Taroco A, Oliveira I, Costa H, Fronio J · Developmental Medicine and Child Neurology · 2021
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needsAmarri S, Ottaviani A, Campagna A, De Panfilis L, Cortina I, Sani E, Bertolini P, Bianchi E, Caldarelli V, Poggi G, Riva M, Locatelli C, Melchionda F, Mondardini M, Soffritti S, Mazzoni E, Serra L, Gulmini L, Bertelli S, Fornaro M, Magistà A, Gabriele C, on behalf of Emilia Romagna paediatric palliative care working group · Italian Journal of Pediatrics · 2021
Clinical spectrum of children receiving palliative care in Malaysian HospitalsChong L, Khalid F, Khoo T, Teh S, Kuan G, Abdul Manaf A, Alias E, Chieng C, Razali H, Ong G, Hedra Z, Abdul Shukor I, Wong J · Medical Journal of Malaysia · 2017
COVID-19 in pediatric cancer patients in a resource-limited setting: National data from PeruMontoya J, Ugaz C, Alarcon S, Maradiegue E, Garcia J, Diaz R, Zapata A, Chavez S, Morales R, Ordonez K, Hernandez E, Reano R, Gutierrez C, Vargas M, Sanchez K, Valdiviezo C, Maza I, Rojas N, Moore C, Leon E, Vasquez L · Pediatric Blood & Cancer · 2021
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort studyKorzeniewska-Eksterowicz A, Brzezinska O, Dryja U, Matczak D, Sopilnyak A, Szuszkiewicz E, Przysło Ł, Szmyd K, Jabłońska K, Krych P, Wojtków-Zielińska A, Wąsińska E, Niedźwiecki M · Palliative Medicine · 2024
Customised pediatric palliative care: Integrating oncological and palliative care prioritiesPodda M, Schiavello E, Visconti G, Clerici C, Armiraglio M, Casiraghi G, Ambroset S, Grossi A, Rizzi B, Lonati G, Massimino M · Acta Paediatrica, International Journal of Paediatrics · 2021
Customized pediatric palliative care: Integrating oncological and palliative care prioritiesPodda M, Schiavello E, Visconti G, Clerici C, Armiraglio M, Casiraghi G, Ambroset S, Grossi A, Rizzi B, Lonati G, Massimino M · Acta paediatrica (Oslo, Norway : 1992) · 2020
Death and Cardiac Disease in Pediatric Hospitals and the Role of Subspecialty Palliative CareMoynihan K, Cashen K, Daughtrey H, Delgado-Corcoran C, Robinson L, Ting J, Flores S, Beshish A, Chlebowski M, Batsis M, Pryce P, Asfari A, Sznycer-Taub N, Karki K, Wakeham M, Ohman R, Shutes B, Narasimhulu S, Schramm J, Strelow F, Reddy R, Loomba R, Wong J, Werho D, Capone C, Schneider J, Leong K, Kulikowska A, Elgersma K, Prentice E, Reddy C, Leopold S, Mills K, Mastropietro C · Pediatrics · 2026
Death and Dying in Hospitalized Pediatric Patients: A Prospective Multicenter, Multinational StudyNicoll J, Dryden-Palmer K, Frndova H, Gottesman R, Gray M, Hunt E, Hutchison J, Joffe A, Lacroix J, Middaugh K, Nadkarni V, Szadkowski L, Tomlinson G, Wensley D, Parshuram C, Farrell C · J Palliat Med · 2021
Death One Hour After Terminal Extubation (DONATE): A Multisite Cohort StudyWinter M, Zhou A, Laksana E, Aczon M, Ledbetter D, Avesar M, Fainberg N, Hsu S, McCrory M, Morrow K, O'Brien C, Pringle C, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, Wetzel R · Critical Care Medicine · 2024
Death One Hour After Terminal Extubation in Children: Validation of a Machine Learning Model to Predict Cardiac Death After Withdrawal of Life-Sustaining Treatment in a Multicenter Cohort, 2009-2021Winter M, Zhou A, Laksana E, Aczon M, Ledbetter D, Avesar M, Burkiewicz K, Chandnani H, Fainberg N, Hsu S, McCrory M, Morrow K, Noguchi A, O'Brien C E, Ojha A, Pringle C, Ross P, Shah J, Shah S, Shpaner L, Siegel L, Tripathi S, Wetzel R · Pediatric Critical Care Medicine · 2025
Decision-making at the limit of viability: Differing perceptions and opinions between neonatal physicians and nursesBucher H, Klein S, Hendriks M, Baumann-Holzle R, Berger T, Streuli J, Fauchere J, Philipp M, Roland N, Renate I, Mathias N, Liliane S, Brigitte S, Kai R, Riccardo P, Matthias R, Magali C, Ulrike S, Gudrun J, Ruth D, Jean-Claude F, Barbara D · BMC Pediatrics · 2018
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based studySurkan P, Sakyi K, Strobino D, Mehra S, Labrique A, Ali H, Ullah B, Wu L, Klemm R, Rashid M, West K, Christian P · Ann Epidemiol · 2016
Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnessesAng F, Cheung Y, Gandhi M, Malhotra R, Ostbye T, Malhotra C, Chow C, Chong P, Amin Z, Tan T, Finkelstein E · Journal of Patient Reported Outcomes · 2025
Early mortality in children with acute lymphoblastic leukemia in a developing country: the role of malnutrition at diagnosis. A multicenter cohort MIGICCL studyMartin-Trejo J, Nunez-Enriquez J, Fajardo-Gutierrez A, Medina-Sanson A, Flores-Lujano J, Jimenez-Hernandez E, Amador-Sanchez R, Penaloza-Gonzalez J, Alvarez-Rodriguez F, Bolea-Murga V, Espinosa-Elizondo R, de Diego Flores-Chapa J, Perez-Saldivar M, Rodriguez-Zepeda M, Dorantes-Acosta E, Nunez-Villegas N, Velazquez-Avina M, Torres-Nava J, Reyes-Zepeda N, Gonzalez-Bonilla C, Flores-Villegas L, Rangel-Lopez A, Rivera-Luna R, Paredes-Aguilera R, Cardenas-Cardos R, Martinez-Avalos A, Gil-Hernandez A, Duarte-Rodriguez D, Mejia-Arangure J · Leuk Lymphoma · 2017
Early phase study enrollment in Canadian children with cancer near end of life: A retrospective cohort study from Cancer in Young People in CanadaHasan F, Widger K, Punnett A, Rapoport A, Morgenstern D, Cohen-Gogo S, Revon-Riviere G, Abbott L, Guilcher G, Fernandez C, Truong T, Deyell R, Sung L · Cancer · 2025
Effectiveness of an Interdisciplinary Pediatric and Neonatal Palliative Care Simulation Program in IndiaFlippo R, Garner S, Peck J, Rosonet L, Dorion M, Sudia T, Prater L, Ke W, Siew A, Maganth M, Johnson S · Clinical Simulation In Nursing · 2024
Effect of the COVID-19 pandemic response on intrapartum care, stillbirth, and neonatal mortality outcomes in Nepal: a prospective observational studyKc A, Gurung R, Kinney M, Sunny A, Moinuddin M, Basnet O, Paudel P, Bhattarai P, Subedi K, Shrestha M, Lawn J, Målqvist M · Lancet Glob Health · 2020
Effects of a primary palliative care intervention on quality of life and mental health in cystic fibrosisFriedman D, Linnemann R, Altstein L, Georgiopoulos A, Islam S, Bach K, St John A, Fracchia M, Neuringer I, Lapey A, Sicilian L, Moskowitz S, Yonker L · Pediatr Pulmonol · 2019
Effects of COVID-19 on Pediatric Cancer Care: A Multicenter Study of 11 Middle Eastern CountriesElzembely M, Al Rawas A, Al-Hebshi A, Alhadi A, Ibrahim A, Zein A, Ragab I, Alshamsi E, Dammag E, Gachi F, Zain G, Mohammad H, Haddad H, Boudiaf H, Alharbi I, Sultan I, Salami K, Bayoumy M, Al-Mulla N, Al Mashaikhi N, Almajali R, Farah R, Al Daama S, Ahmad S, Ragab S, Fadel S, Ahmed S, Al-Sweedan S, Abdelmabood S, Kaleem W, Madney Y · Journal of Pediatric Hematology/Oncology · 2023
End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United KingdomPapworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hain R, Subramanian G, Haynes A, Fraser L · NIHR open research · 2022
End of life care in paediatric settings: UK national surveyBedendo A, Papworth A, Beresford B, Phillips B, Vasudevan C, Lake Walker G, Weatherly H, Feltbower R, Hinde S, Hewitt C, Murtagh F, Noyes J, Hackett J, Hain R, Oddie S, Subramanian G, Haynes A, Fraser L · BMJ supportive & palliative care · 2025
End-of-Life Course and Subspecialty Palliative Care Involvement for Children on Mechanical Circulatory Support: Five-Center Retrospective Cohort Study from the United States, 2015-2020Vazquez Colon Z, Robinson L, Lopez-Colon D, Joong A, Waldman E, Delgado-Corcoran C, May L, Cousino M, Peng D, Lukich S, Blume E, Machado D, M Moynihan K · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of BelgiumAujoulat I, Henrard S, Charon A, Johansson A, Langhendries J, Mostaert A, Vermeylen D, Verellen G, Maton P, Van Overmeire B, Kalenga M, Broux I, Henrion E, Dussart A, Muller M, Cavatorta E, Marechal Y, Vanden Eijnden S, Lecart C, Haumont D, Van Herreweghe I, Vlieghe V, Debauche C, Flausch M, Sepulchre B · BMC Pediatrics · 2018
End-of-life practices among tertiary care PICUs in the United States: A multicenter studyMeert K, Keele L, Morrison W, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Clark A, Holubkov R, Jenkins T, Doctor A, Dean J, Pollack M · Pediatric Critical Care Medicine · 2015
End-of-Life transfusion support at hospice and pediatric oncology unit: Bridging the gap between benefits and therapeutic allianceNigro O, Podda M, Pellegatta F, Schiavello E, Clerici C, Catalano I, Visconti G, Albarini M, Luksch R, Terenziani M, Ferrari A, Casanova M, Biassoni V, Meazza C, Spreafico F, Gattuso G, Sironi G, Puma N, Bergamaschi L, Chiaravalli S, Massimino M · Tumori · 2023
Epilepsy in Paediatric Palliative Care: Prevalence, Clinical Correlations and the Development of a Consensus-Based Seizure Management ProtocolHizanu Dumitrache M, Salim C, Plesea-Condratovici A, Mindru D, Duceac Covrig M, Elkan E, Cristescu Budala C, Gurzu I, Moraru P, Matasaru M, Matei M, Duceac L · Medicina (Kaunas, Lithuania) · 2026
Estimating national prevalence of life-limiting conditions amongst infants, children, and adolescents using administrative hospital data in the absence of a unique health identifier; evidence from IrelandSmith S, Delamere T, Fraser L, Murphy O, May P, McElligott F, Devins M, Horne T, Rabbitte M, Guerin S, O'Hara S, Dillon M, Balfe J · BMC Pediatrics · 2026
Ethical decision-making climate, moral distress, and intention to leave among ICU professionals in a tertiary academic hospital centerSilverman H, Wilson T, Tisherman S, Kheirbek R, Mukherjee T, Tabatabai A, McQuillan K, Hausladen R, Davis-Gilbert M, Cho E, Bouchard K, Dove S, Landon J, Zimmer M · BMC Med Ethics · 2022
Evaluating the impact of national education in pediatric palliative care: the Quality of Care Collaborative AustraliaSlater P, Herbert A, Baggio S, Donovan L, McLarty A, Duffield J, Pedersen L, Duc J, Delaney A, Johnson S, Heywood M, Burr C · Adv Med Educ Pract · 2018
Evolving Models of Community-Based Pediatric Palliative Care in Eight Countries Across Latin AmericaUlloa Z, García-Quintero X, Nakashima-Paniagua Y, Rivas S, Gana M, Torelli A, Gutiérrez H, Lopera J, García W, Chacón S, Bernadá M, McNeil M · Journal of Pain & Symptom Management · 2025
Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countriesNamisango E, Bristowe K, Murtagh F, Downing J, Powell R, Atieno M, Abas M, Ali Z, Luyirika E, Meiring M, Mwangi-Powell F, Higginson I, Harding R · Palliative Medicine · 2022
Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi-site longitudinal survey studyKaye E, Smith J, Zhou Y, Bagatell R, Baker J, Cohn S, Diller L, Glade Bender J, Granger M, Marachelian A, Park J, Rosenberg A, Shusterman S, Twist C, Mack J · Cancer · 2023
Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional SurveyChow A, Pugliese M, Tessier L, Chakraborty P, Iverson R, Coyle D, Kronick J, Wilson K, Hayeems R, Al-Hertani W, Inbar-Feigenberg M, Jain-Ghai S, Laberge A, Little J, Mitchell J, Prasad C, Siriwardena K, Sparkes R, Speechley K, Stockler S, Trakadis Y, Walia J, Wilson B, Potter B · The Patient · 2021
Feasibility of Implementing an Electronic Patient-Reported Outcome-Based Digital Health Platform in Pediatric Oncology and Palliative Care: Insights From the MyPal4Kids Multicenter Observational StudyMeyerheim M, Radova L, Burns-Gebhart A, Mergen M, Natsiavas P, Bonotis P, Karamanidou C, Payne S, Downing J, Ling J, Sander A, Mirzaie K, Dokutur S, Vaculikova J, Lokaj P, Rohleder O, Graf N · JMIR Cancer · 2026
Gastrointestinal Symptoms in Children With Life-Limiting Conditions Receiving Palliative Home CareHauch H, Kriwy P, Hahn A, Dettmeyer R, Zimmer K, Neubauer B, Brill S, Vaillant V, de Laffolie J, Schaefer K, Tretiakowa I, Hach M, Sibelius U, Berthold D · Front Pediatr · 2021
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical ComplexityCostain G, Walker S, Marano M, Veenma D, Snell M, Curtis M, Luca S, Buera J, Arje D, Reuter M, Thiruvahindrapuram B, Trost B, Sung W, Yuen R, Chitayat D, Mendoza-Londono R, Stavropoulos D, Scherer S, Marshall C, Cohn R, Cohen E, Orkin J, Meyn M, Hayeems R · JAMA Netw Open · 2020
Geography and age drive racial and ethnic disparities in hospital mortality for paediatric community-acquired pneumonia in the United States: a retrospective population based cohort study of hospitalized patientsGathers C, Yehya N, Reddy A, Magee P, Denny V, Mayeda M, O'Halloran A, Mehta S, Wanamaker S, Fowler J, Keim G · The Lancet Regional Health - Americas · 2025
Goals of Care Among Parents of Children Receiving Palliative CareFeudtner C, Beight L, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Bogetz J, Kang T, Hall M, Nye R, Wolfe J · JAMA pediatrics · 2023
Goals of Care Rated by Parents of Children Receiving Pediatric Palliative Care: A Cohort Study Over Two Years (RP409)Feudtner C, Beight L, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Hays R, Kang T, Hall M, Nye R, Wolfe J · Journal of Pain and Symptom Management · 2022
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital databaseRevon-Riviere G, Pauly V, Baumstarck K, Bernard C, Andre N, Gentet J, Seyler C, Fond G, Orleans V, Michel G, Auquier P, Boyer L · Cancer. · 2019
Household material hardship and distress among parents of children with advanced cancer: A report from the PediQUEST Response trialEche-Ugwu I, Orellana L, Becker D, Bona K, Avery M, Feudtner C, Freedman J, Kang T, Rosenberg A, Waldman E, Ullrich C, Dussel V, Wolfe J · Cancer · 2024
Ideal vs Actual Timing of Palliative Care Integration for Children With Cancer in Latin AmericaMcNeil M, Ehrlich B, Wang H, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gillipelli S, Gómez García W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Devidas M, Baker J, Agulnik A · JAMA Netw Open · 2023
Identifying Key Areas to Improve Care for Families Around the Time of Stillbirth or Neonatal Death: A Survey of Maternity Services in AustraliaLoughnan S, Horey D, Wojcieszek A, Andrews C, Gautam R, Carty M, Ellwood D, Forbes M, Gordon A, Jennings B, Lohan A, Laporte J, Seeho S, Shand A, Boyle F, Flenady V · Australian & New Zealand Journal of Obstetrics & Gynaecology · 2026
Illness and end-of-life experiences of children with cancer who receive palliative careKaye E, Gushue C, DeMarsh S, Jerkins J, Sykes A, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · Pediatric Blood and Cancer · 2018
Impact of a multi-professional expert team on EOL care of children with cancerIwamoto S, Hori H, Sakata K, Kawamata A, Suefuji M, Igura C, Yodoya N, Matsubara T, Ogura T, Komada Y, Hirayama M · Pediatrics international : official journal of the Japan Pediatric Society. · 2021
Impact of COVID-19 on Admissions and Outcomes for Children With Complex Chronic ConditionsMarkham J, Richardson T, Teufel R, Hersh A, DePorre A, Fleegler E, Antiel R, Williams D, Hotz A, Wilder J, Shah S · Hosp Pediatr · 2022
Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from CancerKenney A, Tutelman P, Fisher R, Lipak K, Barrera M, Gilmer M, Fairclough D, Akard T, Compas B, Davies B, Hogan N, Vannatta K, Gerhardt C · J Clin Psychol Med Settings · 2021
Impact of Palliative Care on Psychosocial and Spiritual Outcomes in the Neonatal Intensive Care UnitLin M, Horner C, Butler K, Bosworth O, Kiernan T, Nelson J, Pierce K, Dore D, Eison D, Kazmi S, Zawistowski C · Journal of Pain and Symptom Management · 2025
Impact of Race and Ethnicity on End-of-Life Experiences for Children With CancerKaye E, Gushue C, DeMarsh S, Jerkins J, Li C, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · American Journal of Hospice and Palliative Care · 2019
Impact of Specialized Pediatric Palliative Care on Bereaved Parents' Mental and Physical HealthDelgado-Corcoran C, Meeks H, Wawrzynski S, Markovitz B, Harman B, Masih J, Li K, Harousseau M, Moore D, Wilkes J, Ames S · Journal of Pain and Symptom Management · 2026
Impacts of Ethical Dilemmas and Moral Distress in Pediatric Hematology Oncology NursesMadni A, Levine D, Sawyer K, Azzi Y, Mandrell B, Li Y, Ashcraft E, Boggs J, Acharya R, Caples M, Gattuso J, Shoulders L, Johnson L · Pediatric Blood and Cancer · 2025
Implementation of Polish guidelines on futile therapy protocols in pediatric intensive care units: a multicenter retrospective reviewDamps M, Rybojad B, Byrska-Maciejasz E, Gajda M, Mierzewska-Schmidt M, Bartkowska-Sniatkowska A, Zielinska M, Kubica-Cielinska A, Pagowska-Klimek I, Aftyka A, Wiktor L, Duda I · Scientific Reports · 2026
Implementing Pediatric Palliative Care in Vietnam: Initial Experiences and LessonsAdelmann M, Huyen B, Hocaoglu M, Quang H, Quynh N, Mai T, Tung N, Y N, Thuan V, Tho P, Anh N, Binh H, Nam N, Dinh T, Krakauer E · Journal of pain and symptom management · 2025
Incorporating Bereaved Parents as Faculty Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care.Snaman J, Kaye E, Spraker-Perlman H, Levine D, Clark L, Wilcox R, Barnett B, Sykes A, Lu Z, Cunningham M, Baker J · The American journal of hospice & palliative care · 2018
Influence of pediatric advance care planning on the secondary outcomes of the BOOST pACP trial: determinants of communication between parents and adolescents with cancervan Driessche A, Beernaert K, Deliens L, Kars M, Wallaert S, Willems L, Morren H, Vercruysse G, Van den Bossche A, De Vleminck A, Cohen J · European Journal of Pediatrics · 2025
Integrating a palliative approach into the healthcare provided by the French-African Pediatric Oncology Group's pilot units. Insights from a 3-year training programEdan C, Yao A, Hessissen L, Moreira C, Viallard M, Poulain P, Calmanti S, Thinlot C, Aubier F, Doucot M, Gagnepain-Lacheteau A, Patte C · Archives de Pediatrie · 2021
Integrating Electronic Patient-Reported Outcomes and Palliative Care in Pediatric Advanced Cancer: The PediQUEST Response Multisite Randomized Controlled TrialDussel V, Orellana L, Requena M, Avery M, Becker D, Ullrich C, Feudtner C, Freedman J, Kang T, Waldman E, Gerhardt C, Bakitas M, Baker J, Friedrichsdorf S, Rosenberg A, Wolfe J · Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2026
Intensity of Care at the End-of-Life in Pediatrics: A Single Center Analysis With Implications for Advanced Care Planning in Saudi ArabiaSadler K, Altarifi L, Callaghan S, Khan S, AlGhamdi K, Alayed T, Alhuthil R, Alshehri A, Altassan M, Aldhari M, Hussain H, Baragaa M · The American journal of hospice & palliative care · 2025
Lactation Support as a Proxy Measure of Family-Centered Care Quality in Neonates with Life-Limiting Conditions-A Comparative StudyBrito S, Williams A, Fox J, Mohammed T, Chahin N, McCarthy K, Nubayaat L, Nunlist S, Brannon M, Xu J, Hendricks-Munoz K · Children · 2023
Life Duration of Pediatric Patients with Cancer Enrolled on Concurrent Hospice Care: A Retrospective Decedent StudyWeaver M, Jalfon R, Zeng E, Kalyanasundaram S, Kaye E, Salek M, Cowfer B, Johnson L, Mamer T, Mandrell B, Lindley L, Levine D · Journal of Palliative Medicine · 2026
Limiting and Withdrawing Life Support in the PICU: For Whom Are These Options Discussed?Keele L, Meert K, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Morrison W, Funai T, Holubkov R, Dean J, Pollack M, Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research N · Pediatric Critical Care Medicine · 2016
Living with a child who has a life-limiting condition: The functioning of well-siblings and parentsJaaniste T, Cuganesan A, Chin W, Tan S, Coombs S, Heaton M, Cowan S, Aouad P, Potter D, Smith P, Trethewie S · Child Care Health Dev · 2021
Long length of hospital stay in children with medical complexityGold J, Hall M, Shah S, Thomson J, Subramony A, Mahant S, Mittal V, Wilson K, Morse R, Mussman G, Hametz P, Montalbano A, Parikh K, Ishman S, O'Neill M, Berry J · Journal of Hospital Medicine · 2016
Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and researchMcFatrich M, Brondon J, Lucas N, Hinds P, Maurer S, Mack J, Freyer D, Jacobs S, Baker J, Mowbray C, Wang M, Castellino S, Barz Leahy A, Reeve B · Cancer · 2019
Measuring Knowledge of Healthcare Providers on Pediatric Palliative Care with an Online Questionnaire Based on the National Core Curriculum in ItalyZanello E, Vecchi R, Zamagni G, Biagi M, Bruno I, Cragnolin E, Danielli E, Paoletti S, Rabusin M, Ronfani L, Pessa Valente E · Healthcare (Basel) · 2023
Medication Order Errors at Hospital Admission Among Children With Medical ComplexityBlaine K, Wright J, Pinkham A, O'Neill M, Wilkerson S, Rogers J, McBride S, Crofton C, Grodsky S, Hall D, Mauskar S, Akula V, Khan A, Mercer A, Berry J · J Patient Saf · 2022
Mortality, length of stay, bloodstream and respiratory viral infections in a pediatric intensive care unitHon K, Luk M, Fung W, Li C, Yeung H, Liu P, Li S, Tsang K, Li C, Chan P, Cheung K, Leung T, Koh P · J Crit Care · 2017
Navigating the shadows: medical professionals' values and perspectives on end-of-life care within pediatric intensive care units in CroatiaCurkovic M, Rubic F, Jozepovic A, Novak M, Filipovic-Grcic B, Mestrovic J, Lah Tomulic K, Peter B, Spoljar D, Grosek S, Jankovic S, Vukovic J, Kujundzic Tiljak M, Stajduhar A, Borovecki A · Frontiers in Pediatrics · 2024
Neonatal deaths: Prospective exploration of the causes and process of end-of-life decisionsHellmann J, Knighton R, Lee S, Shah P, Andrews W, Payot A, Bullied B, Chiu A, Dow K, Doctor S, Coughlin K, McMillan D, Ojah C, Peliowski A, Piedboeuf B, Riley P, Rouvinez-Bouali N, Dabowal T, Watts J, Osiovich H · Archives of Disease in Childhood: Fetal and Neonatal Edition · 2016
Neonatal nurses' perceptions of providing palliative care in neonatal intensive care units in Saudi ArabiaAl-Shehri H, Alotaibi A, Alanazi B, Alshehri A, Alajlan A, Alsulami M, Alshehri R, Alshehri F, Alshammari R, Alrashed K, Alhumaidan R, Al-Ghadeer A, Almutairi A, Alzayed A · Medicine · 2026
Neuropsychological assessments in a large cohort of pediatric palliative epilepsy surgery patientsJeno M, Koop J, Gabriel M, Caraway A, Novotny E, Patrick K, Gonzalez-Giraldo E, Auguste K, Ostendorf A, McNally K, Alexander A, Berrios-Servios G, Eschbach K, Bolton J, Ailion A, Singh R, Wong-Kisiel L, Zaccariello M, Tatachar P, Duong P, Depositario-Cabacar D, Berl M, Sepeta L, Karakas C, Karia S, Mohapatra L, Rowmanowski E, McNamara N, Hodges E, Shrey D, Hennrick H, Olaya J, Arredondo K, DeLeon R, Reddy S, Molnar A, Javarayee P, Park S, Coryell J, Olsen E, Bearden D, Winston M, Samanta D, Armstrong D, Wolf S, McGoldrick P, Marashly A, Grinspan Z, Nangia S, Perry M, Ciliberto M · Epilepsy and Behavior · 2026
Non-invasive respiratory support in children and young adults with complex medical conditions in pediatric palliative careFauroux B, Taytard J, Ioan I, Lubrano M, Le Clainche L, Bokov P, Dudoignon B, Debelleix S, Galode F, Coutier L, Sigur E, Labouret G, Ollivier M, Binoche A, Bergougnioux J, Mbieleu B, Essid A, Hullo E, Barzic A, Moreau J, Jokic M, Denamur S, Aubertin G, Schweitzer C · Archives of Disease in Childhood · 2024
Not there yet: Pediatric palliative care in Canada 2002-2012Widger K, Davies D, Dauost L, Liben S, Rapoport A, Gregoire M, Vadeboncoeur C, Stenekes S, Cyr C, Sarpal A, Roy H, Hodgson-Viden H, Robertson M, Siden H · Journal of Pain and Symptom Management · 2016
Outpatient Follow-up Care After Hospital Discharge of Children With Complex Chronic Conditions at a Rural Tertiary Care HospitalBrown A, Quaile M, Morris H, Tumin D, Parker C, Warren L, Wall B, Crickmore K, Ledoux M, Eldridge D, Aikman I · Clin Pediatr (Phila) · 2021
Paediatric end-of-life care at homeLarsen S, Bording I, Bjergegaard M, Buchreitz J, Mouritzen B, Brix L, Jespersen B, Neergaard M · International journal of palliative nursing · 2023
Pain Assessment and Management in Pediatric Intensive Care Units Around the World, an International, Multicenter StudyGrunauer M, Mikesell C, Bustamante G, Cobo G, Sanchez S, Roman A, Icaza-Freire A, Gavilanes A, Wang N · Frontiers in Pediatrics · 2021
Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: Results from a London cohort study and international surveyVeldhuijzen Van Zanten S, Van Meerwijk C, Jansen M, Twisk J, Anderson A, Coombes L, Breen M, Hargrave O, Hemsley J, Craig F, Cruz O, Kaspers G, Van Vuurden D, Hargrave D · Neuro-Oncology · 2016
Palliative care for children with central nervous system tumors: results of a Spanish multicenter studyPerez-Torres Lobato M, Navarro-Marchena L, de Noriega I, Morey Olive M, Solano-Paez P, Rubio Perez E, Garrido Colino C, Garcia Abos M, Tallon Garcia M, Huidobro Labarga B, Portugal Rodriguez R, Lopez Ibor B, Lassaletta A, Morgenstern Isaak A, Cruz Martinez O, Valero Arrese L, Llort Sales A, Gros Subias L, Marquez Vega C, Moreno L, Quiroga-Cantero E · Clinical and Translational Oncology · 2023
Palliative Care in SMA Type 1: A Prospective Multicenter French Study Based on Parents' ReportsHully M, Barnerias C, Chabalier D, Le Guen S, Germa V, Deladriere E, Vanhulle C, Cuisset J, Chabrol B, Cances C, Vuillerot C, Espil C, Mayer M, Nougues M, Sabouraud P, Lefranc J, Laugel V, Rivier F, Louvier U, Durigneux J, Napuri S, Sarret C, Renouil M, Masurel A, Viallard M, Desguerre I · Frontiers in Pediatrics · 2020
Palliative care services in paediatric oncology centres across Europe: A cross-sectional surveyPedraza E, Raguindin P, Hendriks M, Vokinger A, De Clercq E, Rüesch K, Hjorth L, von Bueren A, Tinner E, Bergstraesser E, Wiener L, Michel G · EJC Paediatric Oncology · 2023
Parent Priorities in End-of-Life Care for Children With CancerAnanth P, Lindsay M, Mun S, McCollum S, Shabanova V, de Oliveira S, Pitafi S, Kirch R, Ma X, Gross C, Boyden J, Feudtner C, Wolfe J · JAMA network open · 2023
Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countriesHorey D, Boyle F, Cassidy J, Cassidy P, Erwich J, Gold K, Gross M, Heazell A, Leisher S, Murphy M, Ravaldi C, Siassakos D, Storey C, Vannacci A, Wojcieszek A, Flenady V · Birth (Berkeley, Calif.) · 2021
Patterns of paediatric end-of-life care: A chart review across different care settings in SwitzerlandZimmermann K, Cignacco E, Engberg S, Ramelet A, von der Weid N, Eskola K, Bergstraesser E, Ansari M, Aebi C, Baer R, Popovic M, Bernet V, Brazzola P, Bucher H, Buder R, Cagnazzo S, Dinten B, Dorsaz A, Elmer F, Enriquez R, Fahrni-Nater P, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink R, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Malaer R, Meyer A, Stuessi C, Nelle M, Neuhaus T, Niggli F, Perrenoud G, Pfammatter J, Plecko B, Rupf D, Sennhauser F, Stade C, Steinlin M, Stoffel L, Thomas K, Vonarburg C, von Vigier R, Wagner B, Wieland J, Wernz B · BMC Pediatrics · 2018
Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practiceTooten S, Hermens R, Verhoeven M, Vierhoven E, Boulakhrif F, Reintjes J, Willemsen M, Aris-Meijer J, Fahner J, Engel M, Kars M, Ahout I, Deuning-Smit E · BMC Palliative Care · 2026
Pediatric chronic patients at outpatient clinics: A study in a Latin American University HospitalAlveno R, Miranda C, Passone C, Waetge A, Hojo E, Farhat S, Odone-Filho V, Tannuri U, Carvalho W, Carneiro-Sampaio M, Silva C · Jornal de Pediatria. · 2017
Pediatric End-of-Life Care Skills Workshop: A novel, deliberate practice approachScheurer J, Norbie E, Bye J, Villacis-Calderon D, Heith C, Woll A, Shu D, McManimon K, Kamrath H, Goloff N · Acad Pediatr · 2022
Pediatric Oncology Clinical Trials and Collaborative Research in Africa: Current Landscape and Future Perspectivesvan Heerden J, Zaghloul M, Neven A, de Rojas T, Geel J, Patte C, Balagadde-Kambugu J, Hesseling P, Tchintseme F, Bouffet E, Hessissen L · JCO global oncology · 2020
Pediatric palliative care in patients with brain tumors: Timing, activation, and management of acute eventsNigro O, Podda M, Schiavello E, Biassoni V, Luksch R, Terenziani M, Ferrari A, Spreafico F, Casanova M, Meazza C, Chiaravalli S, Puma N, Bergamaschi L, Gattuso G, Sironi G, Colombo V, Catalano I, Pellegatta F, Barretta F, Vennarini S, Forzini G, Massimino M · Tumori · 2025
Pediatric palliative care parents' distress, financial difficulty, and child symptomsBoyden J, Hill D, Nye R, Bona K, Johnston E, Hinds P, Friebert S, Kang T, Hays R, Hall M, Wolfe J, Feudtner C · J Pain Symptom Manage · 2021
Pediatric Palliative Symptom Categories for (e)PROM in specialized pediatric palliative home careHocher R, Ruthke N, Busse T, Ghori S, Krumpelmann S, Messerschmidt C, Nathrath M, Vaillant V, Voelker T, Voelzke A, Zimmermann J, Deckers M · Journal of pain and symptom management · 2026
Perspectives of pediatric oncologists and palliative care physicians on the therapeutic use of cannabis in children with cancerOberoi S, Protudjer J, Rapoport A, Rassekh S, Crooks B, Siden H, Decker K, Ananth P, Chapman S, Balneaves L, Vanan M, Kelly L · Cancer Reports
Physician Perceptions of Palliative Care for Children With Cancer in Latin AmericaMcNeil M, Ehrlich B, Wang H, Vedaraju Y, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gillipelli S, Gomez Garcia W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Devidas M, Baker J, Agulnik A, Assessing Doctors' Attitudes on Palliative Treatment Latin America Study G · JAMA Network Open · 2022
Polypharmacy in Children with Medical Complexity: A Cross-Sectional Study in a Pediatric Palliative Care CenterZanin A, Baratiri F, Roverato B, Mengato D, Pivato L, Avagnina I, Maghini I, Divisic A, Rusalen F, Agosto C, Venturini F, Benini F · Children · 2024
Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported DataFeudtner C, Nye R, Hill D, Hall M, Hinds P, Johnston E, Friebert S, Hays R, Kang T, Wolfe J, Pediatric Palliative Care Research Network Shared Data and Research (PPCRN SHARE) Project Group · JAMA Network Open · 2021
Posttraumatic growth in pediatric intensive care personnel: Dependence on resilience and coping strategiesRodriguez-Rey R, Palacios A, Alonso-Tapia J, Perez E, Alvarez E, Coca A, Mencia S, Marcos A, Mayordomo-Colunga J, Fernandez F, Gomez F, Cruz J, Baron L, Calderon R, Belda S · Psychol Trauma. · 2017
Practice patterns of palliative radiation therapy in paediatric oncology patients amongst an international paediatric research consortiumRao A, Ermoian R, Alcorn S, Figueiredo M, Chen M, Dieckmann K, MacDonald S, Ladra M, Kobyzeva D, Nechesnyuk A, Nilsson K, Winey B, Villar R, Terezakis S · Pediatric Blood and Cancer · 2016
Practice patterns of palliative radiation therapy in pediatric oncology patients in an international pediatric research consortiumRao A, Chen Q, Ermoian R, Alcorn S, Figueiredo M, Chen M, Dieckmann K, MacDonald S, Ladra M, Kobyzeva D, Nechesnyuk A, Nilsson K, Ford E, Winey B, Villar R, Terezakis S · Pediatric Blood and Cancer · 2017
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnessesAng F, Bun Cheung Y, Gandhi M, Ostbye T, Malhotra C, Malhotra R, Cristelle Chow C, Heng Chong P, Amin Z, Teresa Tan S, Tewani K, Hanim Buang S, Finkelstein E · Journal of clinical epidemiology · 2024
Predictors of Late Palliative Care Referral in Children with CancerKaye E, Jerkins J, Gushue C, DeMarsh S, Sykes A, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · J Pain Symptom Manage · 2018
Predictors of Location of Death for Children with Cancer Enrolled on a Palliative Care ServiceKaye E, DeMarsh S, Gushue C, Jerkins J, Sykes A, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · Oncologist · 2018
Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With CancerWidger K, Sutradhar R, Rapoport A, Vadeboncoeur C, Zelcer S, Kassam A, Nelson K, Liu Y, Wolfe J, Earle C, Pole J, Gupta S · J Clin Oncol · 2018
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Pre-loss personal factors and prolonged grief disorder in bereaved mothersGoldstein R, Petty C, Morris S, Human M, Odendaal H, Elliott A, Tobacco D, Angal J, Brink L, Kinney H, Prigerson H · Psychol Med · 2018
Prevalence and Trajectory of Household Material Hardship Among Children With Advanced CancerWright S, Paul M, Mendez S, Jones E, Lokko L, Heneghan C, Purol N, Arnold M, Aziz-Bose R, Kelly C, Pruitt S, Wolfe J, Bona K, Umaretiya P · Pediatric Blood and Cancer · 2026
Priorities for Nutrition Research in Pediatric Critical CareTume L, Valla F, Floh A, Goday P, Jotterand Chaparro C, Larsen B, Lee J, Moreno Y, Pathan N, Verbruggen S, Mehta N · JPEN J Parenter Enteral Nutr · 2019
Project Baby Panther -assessment of the implementation of the rapid Whole Genome Sequencing as routine diagnostic toll for critically ill neonates and children in AustriaZaminer M, Schreiner E, Bierbaumer S, Blatterer J, Hammer S, Kaufmann L, Kuhberger S, Tichy H, Wagner-Skacel J, Holter M, Eber E, Wagner K, Verheyen S · European Journal of Human Genetics · 2025
Prospective, phenotype-driven selection of critically ill neonates for rapid exome sequencing is associated with high diagnostic yieldGubbels C, VanNoy G, Madden J, Copenheaver D, Yang S, Wojcik M, Gold N, Genetti C, Stoler J, Parad R, Roumiantsev S, Bodamer O, Beggs A, Juusola J, Agrawal P, Yu T · Genet Med · 2020
Provider Perspectives on Use of Medical Marijuana in Children With CancerAnanth P, Ma C, Al-Sayegh H, Kroon L, Klein V, Wharton C, Hallez E, Braun I, Michelson K, Rosenberg A, London W, Wolfe J · Pediatrics · 2017
Psychopharmacology in the Pediatric Oncology and Bone Marrow Transplant Units: Antipsychotic Medications Palliate Symptoms in Children with CancerPeled O, Lavan O, Stein J, Vinograd I, Yahel A, Valevski A, Weizman A, Kimmel-Tamir E, Apter A, Fennig S, Yaniv I, Bernfeld Y, Benaroya-Milshtein N · Journal of Child and Adolescent Psychopharmacology · 2020
Quality of Care in the Last Two Years of Life for Children with Complex Chronic ConditionsBogetz J, Strub B, Bradford M, McGalliard J, Shipman K, Jeyte A, Patneaude A, Johnston E, Ananth P, Thienprayoon R, Rosenberg A · Journal of pain and symptom management · 2024
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Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral centerBaker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Race, Ethnicity, and Social Determinants of Health in PICU Mode of Death: Single-Center Retrospective Cohort StudyAlladin A, Pfeiffer B, Nino P, Mosal S, Nares M, Alba-Sandoval M, Solano J, Gelman B, Cantwell G, Jeyapalan A · Critical Care Explorations · 2026
Racial Disparities in Palliative Care at End-of-life in Children with Advanced Heart Disease in the SouthTurner H, Davis E, Martinez I, Anshumani S, Boresino S, Buckingham S, Caudill C, Dai C, Mendoza E, Moynihan K, Puttock L, Tefera R, Bhatia S, Johnston E · The Journal of Pediatrics · 2024
Raising Awareness: Real World Data On Palliative Care for Advanced Pediatric Cancers in BavariaNehls N, Börner M, Ziegelmayer S, Haller B, Klot F, Metzler M, Frühwald M, Schlegel P, Corbacioglu S, Feuchtinger T, Lüttichau I · Pediatric Blood & Cancer · 2025
Rapid whole-genome sequencing decreases infant morbidity and cost of hospitalizationFarnaes L, Hildreth A, Sweeney N, Clark M, Chowdhury S, Nahas S, Cakici J, Benson W, Kaplan R, Kronick R, Bainbridge M, Friedman J, Gold J, Ding Y, Veeraraghavan N, Dimmock D, Kingsmore S · npj Genomic Medicine · 2018
Real World Presentation and Treatment Outcomes with a Predominant Induction Chemotherapy Based Approach in Nasopharyngeal Carcinoma: A Sixteen Year Report from a Teaching Hospital in IndiaGogi R, Sharma A, Mohanti B, Pramanik R, Bhasker S, Biswas A, Thakar A, Singh A, Sikka K, Kumar R, Thulkar S, Bahadur S · Cancer Investigation · 2023
Regional adaptation of the education in palliative and end-of-life Care Pediatrics (EPEC-Pediatrics) curriculum in EurasiaMcNeil M, Ehrlich B, Yakimkova T, Wang H, Mishkova V, Bezler Z, Kumirova E, Madni A, Movsisyan N, Williams K, Baizakova B, Borisevich M, Chatman G, Erimbetova I, Quintero X, Golban R, Kirby B, Nunez P, Ranadive R, Sakhar N, Sonnenfelt J, Volkova A, Moreira D, Friedrichsdorf S, Wolfe J, Remke S, Hauser J, Devidas M, Baker J, Agulnik A · Cancer Med · 2023
Relationship between parental distress and proxy symptom reports in pediatric palliative careHill D, Nye R, Boyden J, Johnston E, Hinds P, Friebert S, Bogetz J, Kang T, Hall M, Wolfe J, Feudtner C · Journal of pain and symptom management · 2025
Retrieval-Augmented Generation (RAG) AI for End-of-Life Support in Pediatric HCT: Bridging Information Gaps for Patients and Caregivers on Palliative CareSiddiqui K, Al-Musa A, Alsaedi H, Ghemlas I, AlAnazi A, Al-Ahmari A, Ramiz S, Sadler K, Virk T, Ayas M, Khan S · Transplantation and Cellular Therapy · 2026
Safety and pharmacokinetics of medical cannabis preparation in a monocentric series of young patients with drug resistant epilepsyGherzi M, Milano G, Fucile C, Calevo M, Mancardi M, Nobili L, Astuni P, Marini V, Barco S, Cangemi G, Manfredini L, Mattioli F, De Grandis E · Complement Ther Med · 2020
Self-Reported Health Outcomes of Children and Youth with 10 Chronic DiseasesForrest C, Schuchard J, Bruno C, Amaral S, Cox E, Flynn K, Hinds P, Huang I, Kappelman M, Krishnan J, Kumar R, Lai J, Paller A, Phipatanakul W, Schanberg L, Sumino K, Weitzman E, Reeve B · The Journal of Pediatrics · 2022
Social Determinants of Health And End-Of-Life Circumstances in A Quaternary Children's HospitalJamieson T, Liu J, Goldberg S, Ting J, Fox M, Rosenberg A, Heneghan C, Kwan S, Schicho F, Vitali S, Kheir J, Johnston E, Thiagarajan R, Weller E, Ward V, Moynihan K · Journal of pain and symptom management · 2026
Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year periodZernikow B, Szybalski K, Hubner-Mohler B, Wager J, Paulussen M, Lassay L, Jorch N, Weber C, Schneider D, Janssen G, Oommen P, Kuhlen M, Brune T, Wieland R, Schundeln M, Kremens B, Langler A, Prokop A, Kiener R, Niehues T, Rose M, Baumann-Kohler M, Poppelmann M, Thorer H, Irnich M, Sinha K, Wolfe J, Schmidt P · Palliative Medicine · 2018
Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literatureRobert R, Stavinoha P, Jones B, Robinson J, Larson K, Hicklen R, Smith B, Perko K, Koch K, Findley S, Weaver M · Pediatric Blood and Cancer · 2019
Stakeholder's Perspectives on the Barriers and Facilitators of Childhood Cancer Care in IndiaNath A, Mathur P, Sudarshan K, Arora R, Seth R, Kumar S, Chinnaswamy G, Budukh A, Singh V, Kumari T, Banipal R, Bodal V, Kumar A, Vijay C, Avinash T, Ramesh C, Gundeti S, Malik S, Chaudhary N, Majumdar G, Das D, Radhakrishnan N, Rao V, Rawal M, Pautu J, Sundriyal D, Hazarika M, Harris C, Jondhale S, Khamo V, Najmi A, Pareek P, Konjengbam R, Das Majumdar S, Pandya S, Shah A, Singh S, Radhakrishnan V, Swaminathan R, Kumar C, Singh P, Tiwari L, Mandal S, Tawsik S, Pandey A, Gunaseelan K, Bhutia T · Indian Pediatrics · 2025
Subcutaneous Drug Administration in Pediatric Palliative Home Care: A Multicenter Prospective StudyRiva de la Hoz B, de Miguel M, Gorbe C, Tristancho-Perez A, Garcia-Palop B, Corro B, Nogue-Pujadas E, Bosch-Peligero M, Zurbano R, Yunquera-Romero L, Garcia-Lopez I · Journal of Pain & Symptom Management · 2026
Supporting the needs of adolescents and young adults: Integrated palliative care and psychiatry clinic for adolescents and young adults with cancerAbdelaal M, Mosher P, Gupta A, Hannon B, Cameron C, Berman M, Moineddin R, Avery J, Mitchell L, Li M, Zimmermann C, Al-Awamer A · Cancers · 2021
Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric studyHully M, Barnerias C, Chabrol B, Vuillerot C, Sabouraud P, Cuisset J, Cances C, Ropars J, Rivier F, Isapoff A, Desguerre I · Developmental Medicine and Child Neurology · 2019
Survival and causes of death in extremely preterm infants in the Netherlandsvan Beek P, Groenendaal F, Broeders L, Dijk P, Dijkman K, van den Dungen F, van Heijst A, van Hillegersberg J, Kornelisse R, Onland W, Schuerman F, van Westering-Kroon E, Witlox R, Andriessen P · Arch Dis Child Fetal Neonatal Ed · 2020
Symptom Trajectories and Mortality Among Children Receiving Palliative Care: A Prospective Cohort StudyFeudtner C, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Bogetz J, Kang T, Hall M, Nye R, Wolfe J · Journal of Pain and Symptom Management · 2024
The association of age, literacy, and race on completing patient-reported outcome measures in pediatric oncologyWithycombe J, McFatrich M, Pinheiro L, Hinds P, Keller F, Baker J, Mack J, Sung L, Waldron M, Reeve B · Quality of Life Research · 2019
The critical role of education in shaping nurses' attitudes and intentions towards neonatal palliative care: A network analysisLi Y, Peng H, Kain V, Huang X, Li Y, Li X, Shi Z, Yang R, Wan X, Luo B, Hu Y · Nurse education today · 2025
The global need for paediatric palliative care: the evolution of serious health-related suffering in children aged 0-19 years from 1990 to 2023Downing J, Knaul F, Kwete X, Arreola-Ornelas H, Bhakta N, Rosa W, Radbruch L, Ambler J, Connor S, Ding J, Doherty M, Gong R, Hain R, Kiman R, Krakauer E, McNeil M, Mendez-Carniado O, Morais M, Muckaden M, Pastrana T, Phillips M, Tao H, Touchton M, Enciso V, Vila P, Bhadelia A · The Lancet Child and Adolescent Health · 2026
The radiotherapy utilization rate in pediatric tumors: An analysis of 13,305 patientsBishr M, Zaghloul M, Elmaraghi C, Galal A, Abdelaziz M, Elghazawy H, Shaheen H, Ramzy E, Mesbah A, Eissa S, Hegazy R, Hamza A, Elkhateeb N, Mousa A · Radiotherapy and Oncology · 2021
Therapeutic Alliance Between Bereaved Parents and Physicians in the PICUSuttle M, Hall M, Pollack M, Berg R, McQuillen P, Mourani P, Sapru A, Carcillo J, Startup E, Holubkov R, Dean J, Notterman D, Meert K · Pediatr Crit Care Med · 2020
The spiritual needs and care of children and young people with life-threatening or life-shortening conditions, and parents (SPARK): a mixed-method investigationBeresford B, Richardson N, Mukherjee S, Nye R, Aldridge J, Atkin K, Clayton M, Gibson F, Hackett J, Hain R, Arshad M, Nash P, Phillips B · Health & Social Care Delivery Research · 2025
The use of drugs with a life-shortening effect in end-of-life care in neonates and infantsProvoost V, Cools F, Bilsen J, Ramet J, Deconinck P, Vander Stichele R, Vande Velde A, Van Herreweghe I, Mortier F, Vandenplas Y, Deliens L · Intensive Care Medicine · 2006
The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, CanadaWidger K, Vadeboncoeur C, Zelcer S, Liu Y, Kassam A, Sutradhar R, Rapoport A, Nelson K, Wolfe J, Earle C, Pole J, Gupta S · Journal of Palliative Medicine · 2017
Timing of Co-occurring Chronic Conditions in Children With Neurologic ImpairmentThomson J, Hall M, Nelson K, Flores J, Garrity B, DeCourcey D, Agrawal R, Goodman D, Feinstein J, Coller R, Cohen E, Kuo D, Antoon J, Houtrow A, Bastianelli L, Berry J · Pediatrics · 2021
Training Healthcare Assistants for School-Based Care of Children Receiving Paediatric Palliative Care: A Post-Training EvaluationSantini A, Marinetto A, Grigolon E, Fasson A, Schiavon M, D'Angelo I, Moro N, Roverato B, Lazzarin P, Benini F · Children (Basel, Switzerland) · 2026
Trajectories in Intensity of Medical Interventions at the End of Life: Clustering Analysis in a Pediatric, Single-Center Retrospective Cohort, 2013-2021Liesse K, Malladi L, Dinh T, Wesp B, Kam B, Turturice B, Pyke-Grimm K, Char D, Hollander S · Pediatric Critical Care Medicine · 2024
Transfusion Use Among Children with Hematologic Malignancies Receiving Concurrent Hospice CareWeaver M, Jalfon R, Liang J, Mamer T, Johnson L, Kaye E, Salek M, Cowfer B, Superdock A, Li Y, Levine D · Journal of Pain & Symptom Management · 2026
Trend analysis of mortality rates and causes of death in children under 5 years old in Beijing, China from 1992 to 2015 and forecast of mortality into the future: an entire population-based epidemiological studyCao H, Wang J, Li Y, Li D, Guo J, Hu Y, Meng K, He D, Liu B, Liu Z, Qi H, Zhang L · BMJ Open · 2017
Trends and Causes of Neonatal Mortality in Canadian Neonatal Intensive Care UnitsStritzke A, Bhullar H, Ruth C, Lodha A, Beltempo M, Shah P, Pillay T, Wong J, Stavel M, Sherlock R, Mehrem A, Toye J, Ting J, Fajardo C, Harabor A, Strueby L, Seshia M, Louis D, Ruth C, Yi A, Mukerji A, Da Silva O, Augustine S, Lee K, Ng E, Lemyre B, Bitar E, Bizgu V, Nouraeyan N, Barrington K, Lapointe A, Ethier G, Drolet C, Zeid M, St-Hilaire M, Bertelle V, Masse E, Costa P, Makary H, Aziz A, de Carvalho Nunes G, Alburaki W, Hudson J, Afifi J, Kajetanowicz A, Chang C, Piedboeuf B · Journal of Pediatrics · 2026
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)Rose L, McKim D, Leasa D, Nonoyama M, Tandon A, Bai Y, Amin R, Katz S, Goldstein R, Gershon A · PLoS ONE · 2019
Use of a Mortality Prediction Model in Children on Mechanical Ventilation: A 5-Year Experience in a Tertiary University HospitalAlbuali W, Algamdi A, Hasan E, Al-Qahtani M, Yousef A, Al Ghamdi M, Bubshait D, Alshahrani M, AlQurashi F, Bou Shahmah T, Awary B · J Multidiscip Healthc · 2020
Use of Cancer-Directed therapy at the end of life among adolescents and young adultsMack J, Cernik C, Xu L, Laurent C, Fisher L, Cannizzaro N, Munneke J, Cooper R, Lakin J, Schwartz C, Casperson M, Altschuler A, Wiener L, Kushi L, Chao C, Uno H · Journal of the National Cancer Institute · 2024
Using the Pediatric Oncology Facility Integrated Local Evaluation (PrOFILE) Tool to Evaluate and Improve Pediatric Oncology Systems in Cameroon: A Focus on National, Facility, and Financing ContextsAfungchwi G, Pondy-Ongotsoyi A, Sona M, Kouya F, Ndonku A, Frambo A, Mapoko B, Youwa P, Waindim Y, Omotola A, Friedrich P, Bhakta N, Ndom P · Pediatric Blood and Cancer · 2026
Vaccine preventable diseases in pediatric palliative care - a multicenter cross-sectional studyVaillant V, Tretiakova I, Berthold D, Scheer M, Kimmig A, Hagenguth A, Kaestner J, Meinhardt A, Kriwy P, Wolff J, Hauch H, Tretiakowa I · Journal of Pain & Symptom Management · 2023
Well-Child Visits of Medicaid-Insured Children with Medical ComplexityShumskiy I, Richardson T, Brar S, Hall M, Cox J, Crofton C, Peltz A, Samuels-Kalow M, Alpern E, Neuman M, Berry J · Journal of Pediatrics · 2018
Which children and young people are at higher risk of severe disease and death after hospitalisation with SARS-CoV-2 infection in children and young people: A systematic review and individual patient meta-analysisHarwood R, Yan H, Talawila Da Camara N, Smith C, Ward J, Tudur-Smith C, Linney M, Clark M, Whittaker E, Saatci D, Davis P, Luyt K, Draper E, Kenny S, Fraser L, Viner R · EClinicalMedicine · 2022
Withdrawal of Life-Sustaining Treatment in Children Managed in Nine PICUs in the United States: A Secondary Analysis of the Death One Hour After Terminal Extubation (DONATE) Dataset, 2009-2021Shah S, Laksana E, Aczon M, Avesar M, Burkiewicz K, Chandnani H, Fainberg N, Hsu S, McCrory M, Hodge K, Pringle C, Ross P, Shah J, Siegel L, Tripathi S, Morrison W, Wetzel R, Winter M · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025
Withholding or withdrawing life-sustaining treatment in extremely low gestational age neonatesDworetz A, Natarajan G, Langer J, Kinlaw K, James J, Bidegain M, Das A, Poindexter B, Bell E, Cotten C, Kirpalani H, Shankaran S, Stoll B · Archives of disease in childhood. Fetal and neonatal edition. · 2020
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