Published literature
Clinical spectrum of children receiving palliative care in Malaysian HospitalsChong L, Khalid F, Khoo T, Teh S, Kuan G, Abdul Manaf A, Alias E, Chieng C, Razali H, Ong G, Hedra Z, Abdul Shukor I, Wong J · Medical Journal of Malaysia · 2017
Evaluating the impact of national education in pediatric palliative care: the Quality of Care Collaborative AustraliaSlater P, Herbert A, Baggio S, Donovan L, McLarty A, Duffield J, Pedersen L, Duc J, Delaney A, Johnson S, Heywood M, Burr C · Adv Med Educ Pract · 2018
Feasibility, acceptability and potential efficacy of the pediatric family-based dignity therapy for children with advanced cancer: A pilot studyWu Y, Tian Z, Deng C, Yan J, Huang K, Wang Z, Zhou X, Liu H, Cai S, Zheng R, Guo Q · Asia-Pacific Journal of Oncology Nursing · 2025
Fifteen years of shared care for paediatric oncology, haematology and palliative patients across Queensland: The role of Regional Case ManagersSlater P, Hastings Y, Nicholson J, Noyes M, Benitez L, Pollock K, Peacock R, Cox A, Gunning R, Caris K, Petersen D, Henry C, Spanner R, Beckett K, Chisholm C · The Australian journal of rural health · 2023
First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic reviewPollock D, Bailey H, Hasanoff S, Munn Z, Valenzuela C, Stern C, Price C, Marriott R, Gliddon J, Lewis C, Michie C, Bowie M, Penny M, Reibel T, Warland J, Farrant B, White S, Shepherd C · Women & Birth · 2024
Ideal Timing and Perceived Barriers for Palliative Care Integration for Children with Cancer in ChinaRuixin W, Xuan Z, Siyu C, Sun C, Garcia-Quintero X, Anan Z, Xiangling H, Weihong Z, Jie H, Hao Z, Job G, Devidas M, Weiwei Z, Xianjing W, Ping Z, Yanhua Y, Baker J, McNeil M · Journal of pain and symptom management · 2026
Identifying Key Areas to Improve Care for Families Around the Time of Stillbirth or Neonatal Death: A Survey of Maternity Services in AustraliaLoughnan S, Horey D, Wojcieszek A, Andrews C, Gautam R, Carty M, Ellwood D, Forbes M, Gordon A, Jennings B, Lohan A, Laporte J, Seeho S, Shand A, Boyle F, Flenady V · Australian & New Zealand Journal of Obstetrics & Gynaecology · 2026
Implementing Pediatric Palliative Care in Vietnam: Initial Experiences and LessonsAdelmann M, Huyen B, Hocaoglu M, Quang H, Quynh N, Mai T, Tung N, Y N, Thuan V, Tho P, Anh N, Binh H, Nam N, Dinh T, Krakauer E · Journal of pain and symptom management · 2025
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case studyWong F, Ho J, Lai T, Lee L, Ho E, Lee S, Chan S, Fung C, Ho A, Li C, Li C, Chiu A, Tsui K, Lam K · Archives of Disease in Childhood · 2023
Influence of multi-party consultations on child involvement in clinical encounters: An observational study of paediatric palliative careEkberg S, Danby S, Pitt E, Ekberg K, Watts J, Weinglass L, Bluebond-Langner M, Langner R, Bradford N, Yates P, Fleming S, Delaney A, Duffield J, Herbert A · Patient Education and Counseling · 2026
Involving Nonspeaking and Speaking Children in Clinical Encounters: An Observational Study of Real-World Clinical EncountersEkberg S, Danby S, Watts J, Weinglass L, Cooke R, Nelson M, Pitt E, Ekberg K, Bluebond-Langner M, Langner R, Bradford N, Yates P, Delaney A, Duffield J, Orr A, Fleming S, Scully M, Ryan S, Herbert A · Journal of paediatrics and child health · 2026
Mortality in Dravet syndromeCooper M, McIntosh A, Crompton D, McMahon J, Schneider A, Farrell K, Ganesan V, Gill D, Kivity S, Lerman-Sagie T, McLellan A, Pelekanos J, Ramesh V, Sadleir L, Wirrell E, Scheffer I · Epilepsy Res · 2016
Mortality, length of stay, bloodstream and respiratory viral infections in a pediatric intensive care unitHon K, Luk M, Fung W, Li C, Yeung H, Liu P, Li S, Tsang K, Li C, Chan P, Cheung K, Leung T, Koh P · J Crit Care · 2017
Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challengesNevin S, Kelada L, Elvidge K, Maack M, Hilton G, Kershaw J, Ros E, Briggs N, Farrar M, Wakefield C · Journal of Pediatric Psychology · 2026
Physicians' Perspectives and Attitudes Toward Palliative Care for Cancer Children in mainland ChinaZhang A, Zhou X, Wang J, Sun C, Garcia-Quintero X, Li X, Mu D, Ma L, Han Y, Zhang F, Zhang H, Zhu X, Job G, Devidas M, Mo L, Sun Y, Wang R, Tuo Y, Yao Y, Shen C, Duan F, Zhang B, Cai S, Baker J, MichaelMcNeil J · Journal of pain and symptom management · 2025
Place of death of children with complex chronic conditions: cross-national study of 11 countriesHakanson C, Ohlen J, Kreicbergs U, Cardenas-Turanzas M, Wilson D, Loucka M, Frache S, Giovannetti L, Naylor W, Rhee Y, Ramos M, Teno J, Beernaert K, Deliens L, Houttekier D, Cohen J · European Journal of Pediatrics. · 2017
Quality of care collaborative for paediatric palliative care in Australia (QuoCCA)Herbert A, Irving H, Pedersen L, Baggio S, Delaney A, Donovan L, McLarty A, Duc J, Slater P, Johnson S, Trethewie S, Ryan S, Hynson J, Duffield J, Fleming S, Heywood M, Phillips M, Momber S, Burr C · Pediatric Blood and Cancer · 2017
Research priorities for childhood chronic conditions: a workshop reportLopez-Vargas P, Tong A, Crowe S, Alexander S, Caldwell P, Campbell D, Couper J, Davidson A, De S, Fitzgerald D, Haddad S, Hill S, Howell M, Jaffe A, James L, Ju A, Manera K, McKenzie A, Morrow A, Odgers H, Pinkerton R, Ralph A, Richmond P, Shaw P, Singh-Grewal D, van Zwieten A, Wake M, Craig J · Archives of Disease in Childhood · 2018
The critical role of education in shaping nurses' attitudes and intentions towards neonatal palliative care: A network analysisLi Y, Peng H, Kain V, Huang X, Li Y, Li X, Shi Z, Yang R, Wan X, Luo B, Hu Y · Nurse education today · 2025
Trend analysis of mortality rates and causes of death in children under 5 years old in Beijing, China from 1992 to 2015 and forecast of mortality into the future: an entire population-based epidemiological studyCao H, Wang J, Li Y, Li D, Guo J, Hu Y, Meng K, He D, Liu B, Liu Z, Qi H, Zhang L · BMJ Open · 2017
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