ICPCN Research Hub
Sign in

Clinical focus

Research in CPC

Everything on the hub tagged Research in CPC: researchers, groups, current studies, resources and published literature together.

23 results

Published literature

A global call to action for disability inclusion in health research
Anderson A, Martin R, DeCormier Plosky W, Ned L, Swenor B, Bailie J, Mathias K, Maggo J, Omino M, Russell A, Lawson A, Brown A, Bierer B, Shariq S, Mwifadhi M, Deane K, Philip S, Shepherd V, Walsh N, McHugh G · Nature Medicine · 2025
Building a culture of engagement at a research centre for childhood disability
Pozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter J, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano R, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M · Research Involvement and Engagement · 2021
Comparative analysis of research hotspots and development trends of pediatric palliative care at home and abroad based on CiteSpace: a bibliometric study
Yuhong N, Xinyan G, Tianying L, Daoqing G · Frontiers in Pediatrics · 2026
Engaging Children and Young People in Pediatric Palliative Care Research: A Scoping Review Protocol of Patient and Public Involvement Practices
Molati A, Safarifard R, Nicholson E, Nevin M, Lambert V · HRB open research · 2025
Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications
Boyden J, Hill D, LaRagione G, Wolfe J, Feudtner C · Children · 2022
Humanising Child Death: The Creation and Subsequent Development of Children's Palliative Care as a Distinct Clinical, Educational and Research Speciality
Noyes J · Journal of advanced nursing · 2026
Improvements in communication and relationship building are essential
Anonymous · Nursing Children and Young People · 2016
Inclusion of children with disabilities in mainstream child development research
Feldman M, M. B, A. S, and Luckasson R · Disability & Society · 2012
Inclusive practice for research with children with disability: a guide
Jenkin E, Wilson E, Murfitt K, Clarke M, Campain R, Stockman L · 2024
Let's Work Together: Collaborative Research Is Needed to Overcome Difficulty Enrolling Families for Bereaved Sibling Research.
Miller E, Hildenbrand A, Taggi-Pinto A, Alderfer M · Journal of pain and symptom management · 2018
Managing and sharing research data in children's palliative care: Risks, benefits and imponderables
Harris N, Noyes J, Fraser L, Lapwood S, Harrop E, Blackburn M, Price J, Chambers L, Bluebond-Langer M · Journal of advanced nursing. · 2020
Milestones and Horizons: Highlights from the 4th International Children's Palliative Care Network Conference in Manila, Philippines
Daniels-Howell C, Corvera R, Chambers L, Daniels A, Jayma R, Ayon B, Mendoza N, Lorenzo F, Naranjo L, Auste C, Chong P, Palfreman M, Baker J, McNeil M, Doherty M, Downing J · ecancermedicalscience · 2026
Palliative and end-of-life care for infants and their families in the NICU: Building a program of research
Fortney C · Journal of pediatric nursing. · 2019
Parent Perspective and Response to Challenges and Priorities for Pediatric Palliative Care Research
Lord B · Journal of Pain and Symptom Management · 2019
Participation in a clinical trial for a child with cancer is burdensome for a minority of children
van der Geest I, van den Heuvel-Eibrink M, Zwaan C, Pieters R, Passchier J, Darlington A · Acta Paediatrica, International Journal of Paediatrics · 2016
Promoting an ethic of engagement in pediatric palliative care research
Rahimzadeh V, Bartlett G, Longo C, Crimi L, Macdonald M, Jabado N, Ells C · BMC Palliat Care · 2015
Reducing inequity in the provision of children's palliative care in low- and middle- income countries: A focus on education and research
Downing J, Brand T, Daniels A, El-Khoury J, Gafer N, Palat G, Riga O, Szylit R, Garcia-Quintero X · Palliative Medicine · 2025
Research Cooperative Groups in Pediatric Palliative Care Research
Akard T, Gilmer M · Palliat Med Rep · 2020
R Package for Pediatric Complex Chronic Condition Classification.
Feinstein J, Russell S, DeWitt P, Feudtner C, Dai D, Bennett T · JAMA pediatrics · 2018
SPORcast – Podcast
SPORcast · 2020
Surprised by Benefit in Pediatric Palliative Care Research
Weaver M, Bell C, Diver J, Jacobs S, Lyon M, Mooney-Doyle K, Newman A, Slutsman J, Hinds P · Cancer Nurs · 2018
Teaching of Medical Ethics Regarding Children, Death and Dying, and Research at the Uniformed Services University of the Health Sciences (USUHS) During Its First Fifty Years
Howe E · Military medicine · 2025
The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review
Hudson B, Oostendorp L, Candy B, Vickerstaff V, Jones L, Lakhanpaul M, Bluebond-Langner M, Stone P · Palliative Medicine · 2017

Filter the literature by Research in CPC →