Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–23 of 23 publications
Comparative analysis of research hotspots and development trends of pediatric palliative care at home and abroad based on CiteSpace: a bibliometric study
Aim: To visualize and analyze the literature on palliative care for children based on Web of Science and CNKI database.
Method(s): The research literature on child palliative care included in the Web of Science and CNKI databases from 2000 to 2024 was searched…
Milestones and Horizons: Highlights from the 4th International Children's Palliative Care Network Conference in Manila, Philippines
The International Children's Palliative Care Network (ICPCN) held its 4th international conference in Manila, Philippines (12th-15th November 2025), in partnership with The Ruth Foundation. The conference, 'Milestones & Horizons,' marked ICPCN's 20th anniversa…
A global call to action for disability inclusion in health research
Despite bringing great strengths and facing substantial health inequities, disabled people remain underserved by health research; addressing this requires multi-level actions spanning all areas of research.
Reducing inequity in the provision of children's palliative care in low- and middle- income countries: A focus on education and research
There are over 21 million children and their families globally who need palliative care,1 yet estimates suggest that less than 10% can access it. The greatest need for palliative care in children is in low- and middle-income countries, where 98% of the demand …
Teaching of Medical Ethics Regarding Children, Death and Dying, and Research at the Uniformed Services University of the Health Sciences (USUHS) During Its First Fifty Years
Introduction: The first class at USUHS took its initial course in medical ethics in 1977. I directed this course until recently when COVID first emerged. In this piece, I review what these students were taught during the first 3 of 8 class sessions involving c…
Inclusive practice for research with children with disability: a guide
Inclusive practice for research with children with disability: a guide
Building a culture of engagement at a research centre for childhood disability
Engaging patients and family members as partners in research studies has become a widespread practice in healthcare. However, relatively little has been documented about what happens after the research study ends. For example, is patient and family engagement …
Research Cooperative Groups in Pediatric Palliative Care Research
Research cooperative groups aim to facilitate collaborative and rigorous palliative care research. The purpose of this article is to (1) demonstrate how cooperative groups are taking formal and sustainable steps with commitment to pediatric palliative care res…
SPORcast – Podcast
A Podcast series discussing the Standards for Patient-Oriented Research from the west coast of Canada. Hosts: Beverley Pomeroy and Lisa Ridgway. SPORcast aims to inspire Patients / Families, Clinicians, Academics and Decision Makers to get involved and create …
Palliative and end-of-life care for infants and their families in the NICU: Building a program of research
This article is a brief report on the building of a program of research to support palliative and end-of-life care for infants and their families in the neonatal intensive care unit.
Participation in a clinical trial for a child with cancer is burdensome for a minority of children
Aim: This study explored how parents who had lost a child to cancer felt about them taking part in a clinical trial. Methods: A retrospective questionnaire was sent to parents who had lost a child to cancer. They were asked whether their child took part in a c…
Inclusion of children with disabilities in mainstream child development research
This study investigated whether children with disabilities are excluded from mainstream child development research. Fifteen per cent of 533 articles from Child Development and Developmental Psychology (1996?2010) were randomly selected. The exclusion rate was …