ICPCN Research Hub
Sign in

Country

United States of America

Everything on the hub tagged United States of America: researchers, groups, current studies, resources and published literature together.

166 results

Researchers

Callie Daniels-Howell
International Children's Palliative Care Network · United States

Filter the directory by United States of America →

Published literature

Accurate empathy: Mapping and navigating the world of adolescent loss, grief, and traumaCounseling Adolescents through Loss, Grief, and Trauma by Pamela A. Malone. New York, NY: Routledge, 2016. 184 pp. (ISBN: 978-041587055). $44.95 (paperback)
Phiri S, Tweya H, van Lettow M, Rosenberg N, Trapence C, Kapito-Tembo A, Kaunda-Khangamwa B, Kasende F, Kayoyo V, Cataldo F, Stanley C, Gugsa S, Sampathkumar V, Schouten E, Chiwaula L, Eliya M, Chimbwandira F, Hosseinipour M · J Acquir Immune Defic Syndr. · 2017
A Comparison of Young Adults With and Without Cancer in Concurrent Hospice Care: Implications for Transitioning to Adult Health Care
Mooney-Doyle K, Keim-Malpass J, Svynarenko R, Lindley L · Journal of Adolescent and Young Adult Oncology · 2022
A cross-sectional pilot study of compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care providers in the United States
Kase S, Waldman E, Weintraub A · Palliat Support Care · 2018
Addressing Racism in Pediatric Serious Illness: Insights for Clinical Care and Advocacy
Johnson K, Murray C, Patneaude A, Major-Kincade T, Sartor N · Journal of Pain & Symptom Management · 2025
A Difficult and Loving Decision: Disparities in Pediatric End-of-Life Care
Liu A · Academic medicine : journal of the Association of American Medical Colleges · 2025
Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps
Kirch R, Reaman G, Feudtner C, Wiener L, Schwartz L, Sung L, Wolfe J · CA Cancer J Clin. · 2016
A Mind-Body Approach to Pediatric Pain Management
Brown M, Rojas E, Gouda S · Children · 2017
A Narrative Review of Pediatric Respite Care Initiatives in the United States
Ferragamo T, Pituch K, Sorkin T, Simon N, Lindley L, Weaver M · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. · 2022
A new kind of language barrier: Examining disparities in medical teams' referrals of palliative care patients to Pediatric psychology
Schneider N, Steinberg D, Karfunkle B · Pediatric Blood and Cancer · 2018
A New State of Being The Lived Experience of Parental Bereavement
Denhup C · Omega (Westport). · 2017
An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial
Baker J, Friebert S, Needle J, Jiang J, Wang J, Lyon M · Pediatrics. · 2022
An Unsuspected Case of Child Physical Abuse in a Pediatric Patient Enrolled in Hospice
Harris K, Ibach M, Lowen D, Hills T, Copenhaver E · Clin Pediatr (Phila) · 2022
A Plateau in Pediatric Palliative Program Prevalence
Weaver M, Shostrom V, Kaye E, Keegan A, Lindley L · Journal of Pain and Symptom Management · 2022
Application of Instrumental Variable Analysis in Pediatric End-of-Life Research: A Case Study
Svynarenko R, Cozad M, Mack J, Keim-Malpass J, Hinds P, Lindley L · Western journal of nursing research · 2023
Applying a Positive Youth Development Perspective to Observation of Bereavement Camps for Children and Adolescents
Richardson R, Ferguson P, Maxymiv S · J Soc Work End Life Palliat Care · 2017
Approaches to end-of-life discussions with parents of a profoundly compromised newborn
Paris J, Pai V, Cummings B, Batten J, Benitz W · Journal of Perinatology · 1078
A Proposed Model for Perinatal Palliative Care
Cole J, Moldenhauer J, Jones T, Shaughnessy E, Zarrin H, Coursey A, Munson D · J Obstet Gynecol Neonatal Nurs · 2017
A Qualitative Study of Clinicians and Parents of Children with Severe Neurological Impairment on Tools to Support Family-Centered Care
Lewis H, Trowbridge A, Jonas D, Rosenberg A, Bogetz J · Journal of palliative medicine · 2022
A Survey of Perinatal Palliative Care Programs in the United States: Structure, Processes, and Outcomes
Denney-Koelsch E, Black B, Cote-Arsenault D, Wool C, Kim S, Kavanaugh K · Journal of Palliative Medicine · 2016
Attempting to Define Clinical Productivity Metrics among Pediatric Palliative Care Services at Academic Children's Hospitals
Mahoney D, Brook I, Fossa M, Kang T · Journal of palliative medicine. · 2019
Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers
Levine A, Winn P, Fogel A, Lelkes E, McPoland P, Agrawal A, Bogetz J · Journal of palliative medicine · 2023
Bringing Home to the Hospital: Development of the Reflection Room and Provider Perspectives
Vesely C, Newman V, Winters Y, Flori H · Journal of Palliative Medicine · 2017
Caregiver preferences for palliative care in pediatric oncology: an educational intervention
Gallegos J, Nelson C, Conour C, Ludrosky J, Tomboc P, Dower J, Duncan C · Children's Health Care · 2023
Care Provider Behaviors That Shape Parent Identity as a "Good Parent" to Their Seriously Ill Child
Neumann M, Weaver M, Lord B, Wiener L, Hinds P · Palliative Medicine Reports · 2021
Challenges and coping styles of fathers as primary medical caretakers: a multicultural qualitative study.
Wolff J, Pak J, Meeske K, Worden J, Katz E · Journal of psychosocial oncology · 2010
Changes Over Time in Good-Parent Beliefs Among Parents of Children with Serious Illness: Two Year Cohort Study (TH320B)
Hill D, Faerber J, Carroll K, Miller V, Morrison W, Hinds P, Feudtner C · Journal of Pain and Symptom Management · 2018
Charting a path to high-quality end-of-life care for children with cancer
Ananth P, Wolfe J, Johnston E · Cancer · 2022
Children with intellectual disability and hospice utilization
Lindley L, Colman M, Meadows J · J Hosp Palliat Nurs · 2017
Children With Intellectual Disability and Hospice Utilization: The Moderating Effect of Residential Care
Lindley L · The American journal of hospice & palliative care · 2018
Commentary From a Pediatric Complexologist and a Pediatric Palliative Care and Ethics Consultant
Tapia C, Jarrell J · The American journal of bioethics : AJOB · 2016
Continued Challenges Accessing Pediatric Hospice Services
Aglio T, Autrey A, Shostrom V, Weaver M, Kaye E, Lindley L · J Pain Symptom Manage · 2022
Counseling for personal care options at neonatal end of life: A quantitative and qualitative parent survey Psychosocial
Shelkowitz E, Vessella S, O'Reilly P, Tucker R, Lechner B · BMC Palliative Care · 2015
Death Is Too High a Price to Pay for Being Born an Impoverished and Ill Child
Coleman C · American Journal of Bioethics · 2025
Defining Neonatal Serious Illness
Guttmann K, Kelley A, Weintraub A, Boss R · J Palliat Med · 2022
Defining the Boundaries of Palliative Care in Pediatric Oncology
Cuviello A, Raisanen J, Donohue P, Wiener L, Boss R · Journal of Pain and Symptom Management. · 2020
Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
Eisenberg L · American Journal of Bioethics · 2023
Do-Not-Resuscitate Orders in the Neonatal ICU: Experiences and Beliefs Among Staff
Arzuaga B, Wraight C, Cummings C, Mao W, Miedema D, Brodsky D · Pediatr Crit Care Med · 2018
Effectively using communication to enhance the provision of pediatric palliative care in an acute care setting
Hubble R, Trowbridge K, Hubbard C, Ahsens L, Ward-Smith P · Journal of Multidisciplinary Healthcare · 2008
Effect of Sustaining a Perinatal Loss: Mothers’ Mental Health and Marital Satisfaction
Akhtar M, Khalid B · Illness, Crisis & Loss · 2024
Encouraging Family Physicians to Fill the Gaps in Hospice and Palliative Care for Children
Fan J, Kilpatrick L · Am Fam Physician · 2022
End-of-Life and Bereavement Care in Pediatric Intensive Care Units
Suttle M, Jenkins T, Tamburro R · Pediatric Clinics of North America. · 2017
End-of-Life Care for Hispanic Children: A Study of California Medicaid Beneficiaries
Lindley L, Trujillo L · Hisp Health Care Int · 2016
End- of- life decisions and minors: do minors have the right to refuse life preserving medical treatment? A comparative study
Lemmens C · Medicine & Law · 2009
End-of-life practices among tertiary care PICUs in the United States: A multicenter study
Meert K, Keele L, Morrison W, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Clark A, Holubkov R, Jenkins T, Doctor A, Dean J, Pollack M · Pediatric Critical Care Medicine · 2015
Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States
Munoz-Blanco S, Raisanen J, Donohue P, Boss R · Children (Basel) · 2017
Essential Support After Critical Illness: Pediatrics Extracorporeal Life Support (ECLS) Follow-Up Program
Dryden-Palmer K, Fazari L · Canadian Journal of Critical Care Nursing (CAN J CRIT CARE NURS), 32-33
Ethical challenges for a new generation of early-phase pediatric gene therapy trials
Iyer A, Saade D, Bharucha-Goebel D, Foley A, Averion G, Paredes E, Gray S, Bonnemann C, Grady C, Hendriks S, Rid A · Genetics in Medicine · 2021
Ethics consultation in pediatrics: long-term experience from a pediatric oncology center
Johnson L, Church C, Metzger M, Baker J · The American journal of bioethics : AJOB · 2015
Evaluating a Pediatric Palliative Care Elective Rotation Through Prompted Reflective Writing and Aligning with Competencies
Crawford C, Arevalo Soriano T, Lu S, Rubenstein J, Jarrell J · Journal of palliative medicine · 2023
Everyday Ethics or Deference to Expertise: Experiences of Pediatric Palliative Care Teams with Ethics Consultancy
Foxwell A, Ulrich C, Walter J, Weaver M · Journal of palliative medicine · 2024
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Lau N, Bradford M, Steineck A, Scott S, Bona K, Yi-Frazier J, McCauley E, Rosenberg A · Palliative Medicine · 2020
Expressing Condolences to a Family after the Death of a Child #443
Wiener L, Lichtenthal W, Weaver M · J Palliat Med · 2022
Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients
Noh H, Bui C, Mack J · Journal of adolescent and young adult oncology. · 2022
Family Satisfaction with Symptom Management Practices and Child Comfort During Pediatric Hematopoietic Stem Cell Transplant (TH320C)
Ullrich C, Levine D, Li A, Ma C, Wolfe J, Holder R · Journal of Pain and Symptom Management · 2018
First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic review
Pollock D, Bailey H, Hasanoff S, Munn Z, Valenzuela C, Stern C, Price C, Marriott R, Gliddon J, Lewis C, Michie C, Bowie M, Penny M, Reibel T, Warland J, Farrant B, White S, Shepherd C · Women & Birth · 2024
Gender Differences in Depressive Symptoms Following Child Death in Later
Mellencamp K · Journals of Gerontology Series B: Psychological Sciences & Social
Growing Symbiotic Local Partnerships to Nurture Quality Pediatric Hospice Care in Rural Regions: Companion Planting
Weaver M · JAMA Pediatr · 2018
Healthcare Utilization and Spending for Constipation in Children With Versus Without Complex Chronic Conditions
Stephens J, Steiner M, DeJong N, Rodean J, Hall M, Richardson T, Berry J · J Pediatr Gastroenterol Nutr · 2017
High-risk communication at the time of hospice enrollment: Standardizing pediatric hospital to hospice sign out
Brock K, Mullaney E · Pediatr Blood Cancer · 2018
Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications
Boyden J, Hill D, LaRagione G, Wolfe J, Feudtner C · Children · 2022
Hope and despair
Isaacs D · Journal of Paediatrics & Child Health · 2016
Hospice Use for Infants With Life-Threatening Health Conditions, 2007 to 2010
Lindley L, Newnam K · J Pediatr Health Care · 2017
Hospital use in the last year of life for children with life-threatening complex chronic conditions
Ananth P, Melvin P, Feudtner C, Wolfe J, Berry J · Pediatrics · 2015
Identifying the Types of Support Needed by Interprofessional Teams Providing Pediatric End-of-Life Care: A Thematic Analysis
Riotte C, Kukora S, Keefer P, Firn J · Journal of Palliative Medicine · 2018
"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Hospice Home
Shaw T, Berkel C, Bernatavicius W, Berger K · J Palliat Med · 2022
Impact of disability-based discrimination in healthcare on parents of children with medical complexity.
Ames S, Delaney R, Delgado-Corcoran C, Houtrow A, Alvey J, Watt M, Murphy N · Developmental medicine and child neurology · 2024
Implementing a Best Practice Guideline for Withdrawing Life Sustaining Therapies at a Large Pediatric Hospital
Mauser D, Bartiss M, Lipsitz J, Sawyer K, Carpenter A, Crawford C, Franklin N, Coleman R, Casas J · Journal of pain and symptom management · 2025
Incorporating Bereaved Parents as Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care (FR452)
Snaman J, Kaye E, Levine D, Clark L, Wilcox R, Cunningham M, Baker J · Journal of Pain and Symptom Management · 2018
Increasing access to the benefits of palliative care in the PICU
Levetown M · Pediatric Critical Care Medicine · 2016
Incremental cost analysis of pediatric hospice care in rural and urban Appalachia
Svynarenko R, Cozad M, Keim-Malpass J, Lindley L · The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2023
'In palliative care we help children make memories'
Cole E · Nursing standard · 1987
Intensity at the end of life in pediatric neuro-oncology patients: The
Udemgba C, Hoehn K, Darlington W, Palama B · Journal of Clinical Oncology · 2023
In what circumstances will a neonatologist decide a patient is not a resuscitation candidate?
Murray P, Esserman D, Mercurio M · J Med Ethics · 2016
Legacy at the Bedside: A Nurse-Led Evidence-Based Framework for Memory-Making in the Pediatric Intensive Care Unit
Torrez K, Ursua K, Phillips H, Lilitwat W · Journal of Hospice & Palliative Nursing · 2026
Let's Work Together: Collaborative Research Is Needed to Overcome Difficulty Enrolling Families for Bereaved Sibling Research.
Miller E, Hildenbrand A, Taggi-Pinto A, Alderfer M · Journal of pain and symptom management · 2018
Leveraging User Experience Design Expertise in Palliative Care Intervention Science
Hawley C, Alcantra N, Chen C, Feng Y, Lattimore K, Oh S, Rajeeva B, Robinson F, Shenbanjo M, Oslin E, Bogetz J · Journal of Palliative Medicine · 2026
Life after Loss: Parent Bereavement and Coping Experiences after Infant Death in the Neonatal Intensive Care Unit
Currie E, Christian B, Hinds P, Perna S, Robinson C, Day S, Bakitas M, Meneses K · Death Studies · 2018
Longitudinal Randomized Controlled Trial of Advance Care Planning for Teens: Religiousness and End of Life Treatment Preferences
Lyon M, Wang J · Journal of Adolescent Health · 2016
“Looking for answers”: Parent experiences of perinatal autopsy
Côté-Arsenault D, Hanson K, Hawsawi S, Besmer S · Death Studies · 2022
Low prevalence of palliative care and ethics consultations for children with chronic critical illness
Boss R, Falck A, Goloff N, Hutton N, Miles A, Shapiro M, Weiss E, Donohue P · Acta Paediatrica, International Journal of Paediatrics · 2018
Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013
Keim-Malpass J, Cozad M, Svynarenko R, Mack J, Lindley L · J Spec Pediatr Nurs · 2021
Mindful Movement: Tai Chi, Gentle Yoga, and Qi Gong for Hospitalized Pediatric Palliative Care Patients and Family Members
Parry S, Staenberg B, Weaver M · Journal of Palliative Medicine · 2018
Moral equivalence theory in neonatology
Lin M, Vitcov G, Cummings C · Semin Perinatol · 2022
Mortality During Readmission Among Children in United States Children's Hospitals
Rees C, Neuman M, Monuteaux M, Michelson K, Duggan C · J Pediatr · 2022
Mortality in parents after the death of a child
Song J, Mailick M, Greenberg J, Floyd F · Social Science & Medicine · 2019
Multiple Complex Chronic Conditions and Pediatric Hospice Utilization among California Medicaid Beneficiaries, 2007-2010
Lindley L · Journal of Palliative Medicine · 2017
Navigating Time-Critical Decisions in Pediatric Critical Care: A Proactive Communication Guide for Cultivating Prognostic Awareness
Ting J, Snaman J, Sinha A, Puccetti D, Decourcey D, Moynihan K · Journal of Palliative Medicine · 2025
Neonatal Death in the Emergency Department: When End-of-Life Care Is Needed at the Beginning of Life
Fry J, Henner N · Clinical Pediatric Emergency Medicine · 2016
Neonatal Hospital Course and Outcomes of Live-born Infants with Trisomy 18 at Two Tertiary Care Centers in the United States
Dereddy N, Pivnick E, Upadhyay K, Dhanireddy R, Talati A · Am J Perinatol · 2017
Not Just Small Adults: The Birth and Early Years of a Pediatric Hospice Program
Macdonell-Yilmaz R, Ritzau J · Journal of Pain and Symptom Management · 2024
One Meeting, Three Perspectives
Nolan T, Fodor B, Rissman L · JAMA · 2025
Outpatient Pediatric Palliative Care Development: Guidance on Building Sustainable Programs
James C, Mothi S, Miller E, Kaye E, Morvant A, Stafford C, Autrey A · Journal of Palliative Medicine · 2024
Pain in Nonverbal Children with Medical Complexity: A Two-Year Retrospective Study
Quinn B, Solodiuk J, Morrill D, Mauskar S · The American journal of nursing · 2018
Palliative and end-of-life care for infants and their families in the NICU: Building a program of research
Fortney C · Journal of pediatric nursing. · 2019
Palliative care allocation among critically ill children is highly variable in the United States
O'Keefe S, Maddux A, Bennett K, Youngwerth J, Czaja A · Critical Care Medicine · 2019
Palliative Care Programs in Children's Hospitals
Weaver M, Shostrom V, Kaye E, Keegan A, Lindley L · Pediatrics · 2022
Palliative epilepsy surgery in Dravet syndrome-case series and review of the literature
Dlouhy B, Miller B, Jeong A, Bertrand M, Limbrick J, Smyth M · Childs Nervous System · 2016
Palliative Sedation Therapy in Pediatrics: An Algorithm and Clinical Practice Update
Cuviello A, Johnson L, Morgan K, Anghelescu D, Baker J · Children · 2022
Parental Attitudes Towards Palliative Care in Pediatric Oncology: Insights from Bereaved Families
Martinez I, Davis E, Wimberly C, Towry L, Johnston E, Walsh K · Journal of pain and symptom management · 2024
Parental knowledge and opinions on palliative care for children
Zawistowski C, Black C, Spruill T, Granowetter L · Pediatrics · 2018
Parental Personal Sense of Duty as a Foundation of Pediatric Medical Decision-making
Feudtner C, Schall T, Hill D · Pediatrics · 2018
Parental Perspectives on Roles in End-of-Life Decision Making in the Pediatric Intensive Care Unit: An Integrative Review
Bennett R, LeBaron V · Journal of Pediatric Nursing · 2019
Parent Perspective and Response to Challenges and Priorities for Pediatric Palliative Care Research
Lord B · Journal of Pain and Symptom Management · 2019
Participation in a clinical trial for a child with cancer is burdensome for a minority of children
van der Geest I, van den Heuvel-Eibrink M, Zwaan C, Pieters R, Passchier J, Darlington A · Acta Paediatrica, International Journal of Paediatrics · 2016
Partnering with Payers to Meet the Needs of Pediatric Palliative Care Patients (FR473)
Cunningham M, Williamson S, Baker J, Pennington K, Young A, Bolick R, Norton C · Journal of Pain and Symptom Management · 2018
Patterns of palliative care service consultation in a sample of critically ill ICU patients at high risk of dying
Seaman J, Barnato A, Sereika S, Happ M, Erlen J · PLoS Negl Trop Dis. · 2016
Pediatric advance care planning (pACP) for teens with cancer and their families: Design of a dyadic, longitudinal RCCT
Curtin K, Watson A, Wang J, Okonkwo O, Lyon M · Contemporary clinical trials · 2017
Pediatric End of Life Care and Bereavement During COVID- 19: The Experiences of Moral Distress
Wiener L · Psycho-Oncology · 2022
Pediatric Goals of Care Communication: A Socioecological Model to Guide Conversations
Grier K, Koch A, Docherty S · Journal of Hospice & Palliative Nursing · 2023
Pediatric palliative care through the eyes of healthcare professionals, parents and communities: a narrative review
Saad R, Huijer H, Noureddine S, Sailian S · Annals of palliative medicine. · 2022
Pediatric palliative podcasting as a tool to reach families
Moore D, Bills O · Pediatrics · 2019
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Evan E, Sandesara A, Mock K · Journal of Pain and Symptom Management · 2020
Personalize the Patient Initiative: A Demedicalized Medical Chart Cover Page for Children Receiving Palliative Care
Serena K, Piva J, Andreolio C, Carvalho P, Rocha T · Rev Bras Ter Intensiva. · 2018
Primary palliative care skills in caring for surgical patients in the neonatal intensive care unit
Bishop C, Jackson L, Brown A · Seminars in Pediatric Surgery · 2022
Problems and hopes perceived by mothers, fathers and physicians of children receiving palliative care
Hill D, Miller V, Hexem K, Carroll K, Faerber J, Kang T, Feudtner C · Health expectations : an international journal of public participation in health care and health policy · 1052
Quality of Care in the Last Two Years of Life for Children with Complex Chronic Conditions
Bogetz J, Strub B, Bradford M, McGalliard J, Shipman K, Jeyte A, Patneaude A, Johnston E, Ananth P, Thienprayoon R, Rosenberg A · Journal of pain and symptom management · 2024
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
Baker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Racial Disparities in Palliative Care at End-of-life in Children with Advanced Heart Disease in the South
Turner H, Davis E, Martinez I, Anshumani S, Boresino S, Buckingham S, Caudill C, Dai C, Mendoza E, Moynihan K, Puttock L, Tefera R, Bhatia S, Johnston E · The Journal of Pediatrics · 2024
Racial Disparities in the Provision of Pediatric Psychosocial End-of-Life Services: A Systematic Review
Kara M, Foster S, Cantrell K · Journal of palliative medicine · 2022
Research Cooperative Groups in Pediatric Palliative Care Research
Akard T, Gilmer M · Palliat Med Rep · 2020
Research Priorities in Pediatric Palliative Care
Baker J, Levine D, Hinds P, Weaver M, Cunningham M, Johnson L, Anghelescu D, Mandrell B, Gibson D, Jones B, Wolfe J, Feudtner C, Friebert S, Carter B, Kane J · Journal of Pediatrics · 2015
R Package for Pediatric Complex Chronic Condition Classification.
Feinstein J, Russell S, DeWitt P, Feudtner C, Dai D, Bennett T · JAMA pediatrics · 2018
Seeking the best training model for difficult conversations in neonatology
Lechner B, Shields R, Tucker R, Bender G · Journal of Perinatal Medicine · 2016
Shades of Care: Understanding the Needs of Racially and Ethnically Diverse Paediatric Patients, their Families, and Health Care Providers in North America
Ladha R, Neiterman E · Journal of child health care : for professionals working with children in the hospital and community · 2023
Short Term Coping-Behaviors and Postpartum Health in a Population-Based Study of Women with a Live Birth, Stillbirth, or Neonatal Death
Stanhope K, Temple J, Christiansen-Lindquist L, Dudley D, Stoll B, Varner M, Hogue C · Maternal & Child Health Journal · 2024
Should We Aspire to Be Rational About Letting Babies Die?
Lantos J · The American Journal of Bioethics · 2022
Simulation, Storytelling, and Pediatric End-of-Life Care: A Continuing Professional Development Approach for Nurse Residents
McNall A, Breda K, Hinderer K · Journal of Pediatric Hematology/Oncology Nursing · 2024
Sleep quality moderates the association between family bereavement and heart rate variability
Chai H, Jester D, Lee S, Joo S, Umberson D, Almeida D · Journal of Behavioral Medicine · 2023
Spiritual Care in PICUs: A U.S. Survey of 245 Training Fellows 2020-2021*
Stevens P, Rassbach C, Qin F, Kuo K · Pediatric Critical Care Medicine · 2024
Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit
Bogetz J, Oslin E, Barton K, Trowbridge A, Yi-Frazier J, Watson R, Rosenberg A · Journal of Palliative Medicine · 2024
Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers
Mora D, Jong M, Quandt S, Arcury T, Kristoffersen A, Stub T · BMC Complementary Medicine and Therapies · 2023
Surgical Interventions During End-of-Life Hospitalizations in Children's Hospitals
Traynor M, Antiel R, Camazine M, Blinman T, Nance M, Eghtesady P, Lam S, Hall M, Feudtner C · Pediatrics · 2021
Surprised by Benefit in Pediatric Palliative Care Research
Weaver M, Bell C, Diver J, Jacobs S, Lyon M, Mooney-Doyle K, Newman A, Slutsman J, Hinds P · Cancer Nurs · 2018
Teaching of Medical Ethics Regarding Children, Death and Dying, and Research at the Uniformed Services University of the Health Sciences (USUHS) During Its First Fifty Years
Howe E · Military medicine · 2025
The AAP Resilience in the Face of Grief and Loss Curriculum
Serwint J, Bostwick S, Burke A, Church A, Gogo A, Hofkosh D, King M, Linebarger J, McCabe M, Moon M, Osta A, Rana D, Sahler O, Smith K, Rivera F, Baldwin C · Pediatrics. · 2016
The Fraught Notion of a "Good Death" in Pediatrics
Moore B · J Med Philos · 2022
The Home-based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of psychometric properties
Boyden J, Ersek M, Widger K, Shea J, Feudtner C · Journal of pain and symptom management · 2024
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Autrey A, James C, Mothi S, Stafford C, Morvant A, Miller E, Kaye E · Journal of pain and symptom management · 2023
The Limits of "Life-Limiting"
Macauley R · Journal of Pain & Symptom Management · 2019
The National Palliative Care Registry: A Decade of Supporting Growth and Sustainability of Palliative Care Programs
Rogers M, Meier D, Heitner R, Aldridge M, Hill Spragens L, Kelley A, Nemec S, Morrison R · J Palliat Med · 2019
The proliferation of perinatal hospices in states with reproductive restrictions or abortion bans
Weaver M, Zhou Y, Williams A, Chana T, Lindley L · Journal of Perinatology · 2026
The relationship between the nursing environment and delivering culturally sensitive perinatal hospice care
Mixer S, Lindley L, Wallace H, Fornehed M, Wool C · International Journal of Palliative Nursing · 2015
The Role of Child Life Specialists in Providing Culturally Responsive Palliative Care to the Mexican Origin Community
Petkus J · Journal of Palliative Medicine · 2019
The Role of Midwives in US Perinatal Palliative Care: A Scoping Review
Schafer R, LoGiudice J, Hargwood P, Wilpers A · Journal of Midwifery & Women's Health · 2024
The spiritual needs of seriously ill children and their families
Nursing Children and Young People · 2017
The Unexpected Death of a Child and The Experience of Emergency Service Personnel
Lindsay J, Heliker D · J Emerg Nurs · 2017
The Use of Simulation to Improve Resident Communication and Personal Experience at End-of-Life Care
Nellis M, Howell J, Ching K, Bylund C · Journal of Pediatric Intensive Care · 2017
"They were here, and they still matter": A qualitative study of bereaved parents legacy experiences and perceptions
Jones M, Albanese E, Boles J · Palliative medicine · 2023
Time of Admission to the PICU and Mortality
McCrory M, Spaeder M, Gower E, Nakagawa T, Simpson S, Coleman M, Morris P · Pediatr Crit Care Med · 2017
Transforming the Pediatric Experience: The Story of Child Life
Beickert K, Mora K · Pediatric Annals
Transitional Objects to Faciliate Grieving Following Perinatal Loss
LeDuff 3, Bradshaw W, Blake S · Adv Neonatal Care · 2017
Unspoken
Lalisan A, Woodman K, Silverstein A · Journal of pain and symptom management · 2025
Use of Telehealth in Pediatric Palliative Care
Winegard B, Miller E, Slamon N · Telemed J E Health · 2017
Using Online Health Communication to Manage Chronic Sorrow: Mothers of Children with Rare Diseases Speak
Glenn A · Journal of Pediatric Nursing · 2015
Utilization of a Prenatal Palliative Care Consultation Pathway for Congenital Heart Disease
Mikal M, Gandhi R, Walsh S · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2023
Walking the Line Between Hope And Hype: Palliative Care in the Era of New and Expensive Neuromuscular Therapies for Children and Adults (TH317)
Noritz G, Feudtner C · Journal of Pain and Symptom Management · 2018
We Built It…They All Came…Now How to Keep from Drowning? Pediatric Palliative Care Program Development 202: Skills in Your Toolbox for Growth and Sustainability (P20)
Kang T, Lotstein D, Humphrey L, Klick J, Williams C · Journal of Pain and Symptom Management · 2018
"We were made to mourn": A meta-ethnographic synthesis of living through the loss of a child to cancer for Latinx families in the United States
Buzelli P, Snaman J · Death Stud · 2024
What are the limits of parental authority? Pediatric bioethics and the law
Johnson L, Steuer K, Campbell A, Baker J · Journal of Pain and Symptom Management · 2016
What do transplant physicians think about palliative care? A national survey study
El-Jawahri A, LeBlanc T, Burns L, Denzen E, Meyer C, Mau L, Roeland E, Wood W, Petersdorf E · Blood · 2017
What’s Wrong With Advance Care Planning?
Morrison R, Meier D, Arnold R · JAMA · 2021
When Technology Fails: Community-Based Pediatric Hospice
Ryan J, Haas K, Kramer N, Vizzachero N, Butler S, Waechtler E · Journal of Pediatric Nursing · 2016
"Who Has the Relationship?": Caring for a Shared Population of Children with Medical Complexity
DiDomizio P, Johnson M, Friedrich A · Journal of Palliative Medicine · 2024
"You Can Carry the Torch Now:" A Qualitative Analysis of Parents' Experiences Caring for a Child with Trisomy 13 or 18
Arthur J, Gupta D, Arthur J · HEC Forum · 2017
"You're on a Rollercoaster, Just Hold On": The Lived Experience of the Dyad Following a Fetal Death
McDonough M, Leone-Sheehan D · Research & Theory for Nursing Practice · 2023

Filter the literature by United States of America →