Published literature
AquaScouts: ePROs Implemented as a Serious Game for Children With Cancer to Support Palliative CareHoffmann S, Schraut R, Kröll T, Scholz W, Belova T, Erhardt J, Gollmer D, Mauck C, Zacharioudakis G, Meyerheim M, Bonotis P, Kakalou C, Chatzimina M, Karamanidou C, Sander A, Didi J, Graf N, Natsiavas P · Front Digit Health · 2021
Designing and maturing the OKRA-Compass for breaking bad news in the German pediatric oncology setting: A participatory action research studyDittmer K, Vitinius F, Hamm I, Dabritz T, Hanse S, Hoemberg M, Lorenz A, Misgeld R, Paul N, Stamm W, Krieger T · Patient Education and Counseling · 2025
Education in Palliative and End-of-Life Care-Pediatrics: Curriculum use and disseminationPostier A, Wolfe J, Hauser J, Remke S, Baker J, Kolste A, Dussel V, Bernadá M, Widger K, Rapoport A, Drake R, Chong P, Friedrichsdorf S · J Pain Symptom Manage · 2021
Experience-based co-design informed development of a toolbox to help optimise primary care support during transition from children's hospice care: HOPSCOTCH study protocolChapman E, Mitchell S, Fraser L, Wozencroft J, Morris B, Peat G, Charles T, Elverson J, Carder P, Tallowin K, Magnusson J, Ziegler L · BMJ Open · 2025
''If they knew what I thought was important that would help a lot more'': Methods for involving children and young people with life-limiting and life-threatening conditions in development of a paediatric palliative care outcome measureBraybrook D, Coombes L, Roach A, Scott H, Haroardottir D, Bristowe K, Ellis-Smith C, Hills M, Maynard L, Anderson A, Namisango E, Higginson I, Downing J, Bluebond-Langner M, Fraser L, Murtagh F, Harding R · Quality of Life Research · 2022
Learnings from the establishment and delivery of the UK Collaborative Paediatric Palliative Care Research NetworkPeat G, Harrop E, Anderson A, Box D, Murtagh F, Harding R, Ziegler L, Hewitt C, Wong I, Elverson J, Harris N, Fraser L · Health technology assessment (Winchester, England) · 2025
Leveraging User Experience Design Expertise in Palliative Care Intervention ScienceHawley C, Alcantra N, Chen C, Feng Y, Lattimore K, Oh S, Rajeeva B, Robinson F, Shenbanjo M, Oslin E, Bogetz J · Journal of Palliative Medicine · 2026
Neither the “Devil’s Lettuce” nor a “Miracle Cure:” The Use of Medical Cannabis in the Care of Children and YouthGunning M, Rotenberg A, Anderson J, Balneaves L, Brace T, Crooks B, Hall W, Kelly L, Rassekh S, Rieder M, Virani A, Ware M, Zaslawski Z, Siden H, Illes J · Neuroethics · 2022
Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practiceBroden Arciprete E, Michelson K, Feder S, Marr J, Al-Roub N, Gouda S, Jones A, Schopen A, Tapper A, Pasek T, Kelly R, Morris L, Olszewski A, Gallagher C, Taylor J, McCarthy S, Snaman J, Ananth P · Intensive & critical care nursing · 2026
Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital MedicineGill P, Bayliss A, Sozer A, Buchanan F, Breen-Reid K, De Castris-Garcia K, Green M, Quinlan M, Wong N, Frappier S, Cowan K, Chan C, Arafeh D, Anwar M, Macarthur C, Parkin P, Cohen E, Mahant S, Canadian Pediatric Inpatient Research Network (PIRN) · JAMA Network Open · 2022
Pediatric End-of-Life Care Skills Workshop: A novel, deliberate practice approachScheurer J, Norbie E, Bye J, Villacis-Calderon D, Heith C, Woll A, Shu D, McManimon K, Kamrath H, Goloff N · Acad Pediatr · 2022
Supporting parent capacity to manage pain in young children with cancer at home: Co-design and usability testing of the PainCaRe appJibb L, Liu W, Stinson J, Nathan P, Chartrand J, Alberts N, Hashemi E, Masama T, Pease H, Torres L, Cortes H, Kuczynski S, Liu S, La H, Fortier M · Paediatric and Neonatal Pain · 2024
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