Coombes L, Braybrook D, Hardardottir D, Scott H, Bristowe K, Ellis-Smith C, Fraser L, Downing J, Bluebond-Langner M, Murtagh F, Harding R · Palliative Medicine · 2024

Consistency in end of life care

Allen D · Nursing Children and Young People · 2016

Development of research priorities in paediatric pain and palliative care

Liossi C, Anderson A, Howard R · British Journal of Pain · 2017

Educational needs and preferred learning approaches of the paediatric palliative care workforce: A qualitative exploratory study

Malcolm C, McGirr D · Nurse education today · 2020

Ethics and patient and public involvement with children and young people

Mitchell S, Slowther A, Coad J, Akhtar S, Hyde E, Khan D, Dale J · Archives of disease in childhood. Education and practice edition · 2019

Experiences of healthcare professionals in the community dealing with the spiritual needs of children and young people with life-threatening and life-limiting conditions and their families: report of a workshop

Llewellyn H, Jones L, Kelly P, Barnes J, O'Gorman B, Craig F, Bluebond-Langner M · BMJ supportive & palliative care · 2015

Exploring the experiences of children's palliative care for forced migrant families in the United Kingdom: an interpretative phenomenological study

Clancy M, Bradbury-Jones C, Phillimore J, Taylor J · Frontiers in Pediatrics · 2024

External second opinions: building trust between health professionals and families

Fraser J, Goold I, Akindolie O, Linney M · Arch Dis Child · 2023

Fifteen-minute consultation: Not the whole story-considering children's spirituality and advance care planning

Clayton M, Aldridge J · Arch Dis Child Educ Pract Ed · 2019

Fifteen-minute consultation: Paediatric organ and tissue donation

Singh A, Scales A, Mildner R · Archives of Disease in Childhood: Education and Practice Edition · 2021

George's Lullaby: A Case Study of the Use of Music Therapy to Support Parents and Their Infant on a Palliative Pathway

Ormston K, Rose E, Gallagher K · Journal of Neonatal Nursing · 2022

How holistic nursing can enhance the quality of life of children with cystic fibrosis

Tointon K, Hunt J · Nurs Child Young People. · 2016

Humanising Child Death: The Creation and Subsequent Development of Children's Palliative Care as a Distinct Clinical, Educational and Research Speciality

Noyes J · Journal of advanced nursing · 2026

Impact of child death on paediatric trainees

Hollingsworth C, Wesley C, Huckridge J, Finn G, Griksaitis M · Arch Dis Child · 2018

Improvements in communication and relationship building are essential

Anonymous · Nursing Children and Young People · 2016

Independent hospices for children and young people; Hospices North East

Brown A, Newton J, Nicholson C, Fearing A, Gordon S, Wood P, Egdell A, McKean M, Ellam J · Archives of Disease in Childhood · 2021

Indi Gregory: A Wider Perspective on Children's Best Interests at the End-of-life

De Sabbata K, Pearson A · Med Law Rev · 2024

Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children

Butler A, Vincent K, Bluebond-Langner M · Palliat Med · 2020

Integration of Routine Parental Request of Organ Donation in End-of-Life Care of Children with Neurologic Disorders in the UK: Unresolved Medical, Legal, Cultural, and Religious Challenges

Rady M · Neurocritical care. · 2020

Is it taking longer to die in paediatric intensive care in England and Wales?

Plunkett A, Parslow R · Archives of Disease in Childhood · 2016

'Listen to our voice!' using co-creation and art-based methods to explore the welfare and wellbeing of siblings of children with life-limiting conditions

Dunbar H, Hart T, de Vries K · Emotional and Behavioural Difficulties · 2024

Management of dystonia in paediatric palliative care

Slater T, Hughes G, Lumsden D, Laddie J · Archives of Disease in Childhood · 2018

Managing and sharing research data in children's palliative care: Risks, benefits and imponderables

Harris N, Noyes J, Fraser L, Lapwood S, Harrop E, Blackburn M, Price J, Chambers L, Bluebond-Langer M · Journal of advanced nursing. · 2020

Max's legacy: an evaluation of the impacts of baby loss on staff and families

Whitehouse C, Crane R, Rostron H, Cater K · British Journal of Midwifery · 2023

Meeting the needs of young adults with life-limiting conditions: A UK survey of current provision and future challenges for hospices

Knighting K, Bray L, Downing J, Kirkcaldy A, Mitchell T, O'Brien M, Pilkington M, Jack B · Journal of Advanced Nursing · 2018

Navigating a child's best interest: the essential role of palliative care

Craig F · The Lancet Child and Adolescent Health · 2023

Palliative care in the neonatal intensive care unit

Jackson C, Vasudevan C · Paediatrics & Child Health · 2020

Quality of Living and Dying: Pediatric Palliative Care and End-of-Life Decisions in the Netherlands

Brouwer M, Maeckelberghe E, De Weerd W, Verhagen E · Cambridge Quarterly of Healthcare Ethics · 2018

Reflecting on 'Hannah's Choice': Using the Ethics of Care to Justify Child Participation in End of Life Decision-Making

Moreton K · Med Law Rev · 2020

Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis.

Tatterton M, Honour A, Lyon J, Kirkby L, Newbegin M, Webster J · Mortality · 2023

Succession planning in children's palliative care services

Dickson G · Palliative Medicine · 2016

The Chameleon Project: A children's end of life care quality improvement project

Wolff A, Dorsett C, Haynes S, Whitehouse W, Clements H, Griffin H, Chhaochharia A, Connolly A, Kelly N, Turnbull J, Deorukker S, Hill S, Batey N, Douglas E, Sheikh N, Bifani E, Lovegrove S, Webb K, Manning J · Developmental Medicine and Child Neurology · 2020

The impact of a sibling's life-limiting genetic condition on adult brothers and sisters

Brown E, Coad J, Franklin A · American Journal of Medical Genetics, Part A · 1754

The Impact of COVID-19 on Palliative Care for Children Within the UK

Scott H, Coombes L, Braybrook D, Roach A, Harardottir D, Bristowe K, Ellis-Smith C, Bluebond-Langner M, Farsides B, Murtagh F, Fraser L, Harding R · Palliative Medicine · 2022

The journey through care: study protocol for a longitudinal qualitative interview study to investigate the healthcare experiences and preferences of children and young people with life-limiting and life-threatening conditions and their families in the West Midlands, UK

Mitchell S, Slowther A, Coad J, Dale J · BMJ Open · 2018

The role of the courts in disagreements over the care of seriously ill babies

Griffith R · British journal of nursing · 2017

The 'surprise' question in paediatric palliative care: A prospective cohort study

Burke K, Coombes L, Menezes A, Anderson A · Palliat Med · 2017

The Tragic Case of Charlie Gard

Lantos J, Children’s Mercy Bioethics Center C · JAMA Pediatrics · 2017

The unique grief of grandparents

Cole E · Nursing Standard · 2018

Updated perinatal palliative standards emphasise choice and bereavement support

Evans N · Nursing Children and Young People · 2017

Volunteer activity in specialist paediatric palliative care: a national survey

Burbeck R, Low J, Sampson E, Scott R, Bravery R, Candy B · BMJ supportive & palliative care · 2015

When a child is sick: the role of social tourism in palliative and end-of-life care

Hunter-Jones P, Sudbury-Riley L, Al-Abdin A, Menzies L, Neary K · Annals of Tourism Research · 2020

When paediatricians and families can't agree

Wallis C · Archives of disease in childhood · 2018

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