Published literature
African Hospital-Based Paediatric Palliative Oncology Care Independent of Economic Indicators: An International Society of Paediatric Oncology (SIOP) Global Mapping Programme SurveyMauree A, Myezo K, Ranasinghe N, Challinor J, Bandini R, Burns K, Eyal K, Downing J, Pritchard-Jones K, Bouffet E, Geel J · Pediatric blood & cancer · 2025
A multicountry assessment in Eurasia: Alignment of physician perspectives on palliative care integration in pediatric oncology with World Health Organization guidelinesEhrlich B, Movsisyan N, Batmunkh T, Kumirova E, Borisevich M, Kirgizov K, Graetz D, McNeil M, Yakimkova T, Vinitsky A, Ferrara G, Li C, Lu Z, Kaye E, Baker J, Agulnik A · Cancer · 2020
An interprofessional team-based intervention to address barriers to initiating palliative care in pediatric oncology: a multiple-method evaluation of feasibility, acceptability, and impactWalter J, Hill D, Schall T, Szymczak J, Parikh S, DiDomenico C, Carroll K, Nye R, Feudtner C · J Pain Symptom Manage · 2021
A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancerGranek L, Veldhuijzen van Zanten S, Lysecki D, Rapoport A, Datoo N, Hasan F, Gupta S, Wiener L, Widger K, Chan A, Kassam A, Fergus K, McCullogh E, Johnston D · Palliat Support Care · 2026
AquaScouts: ePROs Implemented as a Serious Game for Children With Cancer to Support Palliative CareHoffmann S, Schraut R, Kröll T, Scholz W, Belova T, Erhardt J, Gollmer D, Mauck C, Zacharioudakis G, Meyerheim M, Bonotis P, Kakalou C, Chatzimina M, Karamanidou C, Sander A, Didi J, Graf N, Natsiavas P · Front Digit Health · 2021
Assessing the palliative care needs of children with cancer and their families in tertiary care centres in India: A multicentre observational studyVerma V, Rao K, Ghoshal A, Bhat K V, D H, Sanian A, Mishra A, Sakpal A, Bagalkote M, Sravani B, Iyengar A, Mudaliar S, Palat G, Dinand V, Salins N · Palliative Care and Social Practice · 2026
Assessment of physician perceptions of pediatric palliative care for children with cancer in Latin America.McNeil M, Ehrlich B, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gomez Garcia W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Baker J, Agulnik A · Journal of Clinical Oncology · 2021
Association of Religious and Spiritual Factors With Patient-Reported Outcomes of Anxiety, Depressive Symptoms, Fatigue, and Pain Interference Among Adolescents and Young Adults With CancerGrossoehme D, Friebert S, Baker J, Tweddle M, Needle J, Chrastek J, Thompkins J, Wang J, Cheng Y, Lyon M · JAMA Network Open · 2020
Barriers to the early integration of palliative care in pediatric oncology in 11 Eurasian countriesEhrlich B, Movsisyan N, Batmunkh T, Kumirova E, Borisevich M, Kirgizov K, Graetz D, McNeil M, Yakimkova T, Vinitsky A, Ferrara G, Li C, Lu Z, Kaye E, Baker J, Agulnik A · Cancer · 2020
Bereavement in paediatric oncology: programme evaluationPodda M, Nigro O, Barretta F, Schiavello E, Grampa P, Luksch R, Terenziani M, Ferrari A, Casanova M, Spreafico F, Meazza C, Biassoni V, Chiaravalli S, Bergamaschi L, Colombo V, Puma N, Gattuso G, Sironi G, Clerici C, Lombardi M, Forzini G, Massimino M · BMJ Supportive and Palliative Care · 2026
Characteristics of adolescent and young adult patients with cancer receiving home-based palliative care: A retrospective study at a single centerWatanabe H, Watanabe A, Fujikawa K, Furuya M, Goto H, Iida A, Kosugi Y, Kumagai Y, Murakami A, Sakuma E, Takagi K, Kawauchi J, Gyoda Y, Watanabe J · Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature reviewPinheiro L, McFatrich M, Lucas N, Walker J, Withycombe J, Hinds P, Sung L, Tomlinson D, Freyer D, Mack J, Baker J, Reeve B · Qual Life Res · 2018
Children and adolescent solid tumours and high-intensity end-of-life care: what can be done to reduce acute care admissions?Podda M, Schiavello E, Clerici C, Luksch R, Terenziani M, Ferrari A, Casanova M, Spreafico F, Meazza C, Biassoni V, Chiaravalli S, Puma N, Bergamaschi L, Gattuso G, Sironi G, Nigro O, Massimino M · BMJ Support Palliat Care · 2021
Children and adolescents with cancer assisted in a Support Institution in Juiz de Fora, Minas Gerais, Brazil - Preliminary studyChagas P, Marques R, Goretti P, Castilho J, El'corab B, Costa M, Taroco A, Oliveira I, Costa H, Fronio J · Developmental Medicine and Child Neurology · 2021
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative studyAlarjeh G, Boufkhed S, Alrjoub W, Guo P, Yurdusen S, Ahmed F, Abdal-Rahman M, Alajarmeh S, Alnassan A, Al-Awady S, Kutluk T, Harding R, Shamieh O · Frontiers in Oncology · 2023
Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and familiesKaye E, Woods C, Kennedy K, Velrajan S, Gattas M, Bilbeisi T, Huber R, Lemmon M, Baker J, Mack J · Br J Cancer · 2021
Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and familiesKaye E, Woods C, Kennedy K, Velrajan S, Gattas M, Bilbeisi T, Huber R, Lemmon M, Baker J, Mack J · British Journal of Cancer · 1089
Communication Barriers and Facilitators to Specialist Pediatric Palliative Care Involvement in Pediatric Oncology Settings Across CanadaGranek L, Veldhuijzen van Zanten S, Widger K, Wiener L, Johnston D, Hasan F, Datoo N, Fergus K, Chan A, Kassam A, Lysecki D, McCullogh E, Gupta S, Rapoport A · Psycho-Oncology · 2026
COVID-19 in pediatric cancer patients in a resource-limited setting: National data from PeruMontoya J, Ugaz C, Alarcon S, Maradiegue E, Garcia J, Diaz R, Zapata A, Chavez S, Morales R, Ordonez K, Hernandez E, Reano R, Gutierrez C, Vargas M, Sanchez K, Valdiviezo C, Maza I, Rojas N, Moore C, Leon E, Vasquez L · Pediatric Blood & Cancer · 2021
Customised pediatric palliative care: Integrating oncological and palliative care prioritiesPodda M, Schiavello E, Visconti G, Clerici C, Armiraglio M, Casiraghi G, Ambroset S, Grossi A, Rizzi B, Lonati G, Massimino M · Acta Paediatrica, International Journal of Paediatrics · 2021
Customized pediatric palliative care: Integrating oncological and palliative care prioritiesPodda M, Schiavello E, Visconti G, Clerici C, Armiraglio M, Casiraghi G, Ambroset S, Grossi A, Rizzi B, Lonati G, Massimino M · Acta paediatrica (Oslo, Norway : 1992) · 2020
Death One Hour After Terminal Extubation in Children: Validation of a Machine Learning Model to Predict Cardiac Death After Withdrawal of Life-Sustaining Treatment in a Multicenter Cohort, 2009-2021Winter M, Zhou A, Laksana E, Aczon M, Ledbetter D, Avesar M, Burkiewicz K, Chandnani H, Fainberg N, Hsu S, McCrory M, Morrow K, Noguchi A, O'Brien C E, Ojha A, Pringle C, Ross P, Shah J, Shah S, Shpaner L, Siegel L, Tripathi S, Wetzel R · Pediatric Critical Care Medicine · 2025
Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care TeamsGranek L, Wiener L, van Zanten S, Johnston D, Hasan F, Rapoport A, Datoo N, Widger K, Gupta S, Fergus K, Chan A, Kassam A, McCullogh E, Lysecki D · Pediatric Blood and Cancer · 2026
Designing and maturing the OKRA-Compass for breaking bad news in the German pediatric oncology setting: A participatory action research studyDittmer K, Vitinius F, Hamm I, Dabritz T, Hanse S, Hoemberg M, Lorenz A, Misgeld R, Paul N, Stamm W, Krieger T · Patient Education and Counseling · 2025
Early mortality in children with acute lymphoblastic leukemia in a developing country: the role of malnutrition at diagnosis. A multicenter cohort MIGICCL studyMartin-Trejo J, Nunez-Enriquez J, Fajardo-Gutierrez A, Medina-Sanson A, Flores-Lujano J, Jimenez-Hernandez E, Amador-Sanchez R, Penaloza-Gonzalez J, Alvarez-Rodriguez F, Bolea-Murga V, Espinosa-Elizondo R, de Diego Flores-Chapa J, Perez-Saldivar M, Rodriguez-Zepeda M, Dorantes-Acosta E, Nunez-Villegas N, Velazquez-Avina M, Torres-Nava J, Reyes-Zepeda N, Gonzalez-Bonilla C, Flores-Villegas L, Rangel-Lopez A, Rivera-Luna R, Paredes-Aguilera R, Cardenas-Cardos R, Martinez-Avalos A, Gil-Hernandez A, Duarte-Rodriguez D, Mejia-Arangure J · Leuk Lymphoma · 2017
Early phase study enrollment in Canadian children with cancer near end of life: A retrospective cohort study from Cancer in Young People in CanadaHasan F, Widger K, Punnett A, Rapoport A, Morgenstern D, Cohen-Gogo S, Revon-Riviere G, Abbott L, Guilcher G, Fernandez C, Truong T, Deyell R, Sung L · Cancer · 2025
Early Versus Late Pediatric Palliative Care in Oncology: A Systematic Review of Outcomes, Disparities, and Implementation BarriersRezaei F, Salamat F, Vejdani H, Moslemi Najarcolaie F, Gharibi Z, Shirali R, Okhli A, Esmi A, Kordian A · Galen Medical Journal · 2025
Effects of COVID-19 on Pediatric Cancer Care: A Multicenter Study of 11 Middle Eastern CountriesElzembely M, Al Rawas A, Al-Hebshi A, Alhadi A, Ibrahim A, Zein A, Ragab I, Alshamsi E, Dammag E, Gachi F, Zain G, Mohammad H, Haddad H, Boudiaf H, Alharbi I, Sultan I, Salami K, Bayoumy M, Al-Mulla N, Al Mashaikhi N, Almajali R, Farah R, Al Daama S, Ahmad S, Ragab S, Fadel S, Ahmed S, Al-Sweedan S, Abdelmabood S, Kaleem W, Madney Y · Journal of Pediatric Hematology/Oncology · 2023
End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United KingdomPapworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hain R, Subramanian G, Haynes A, Fraser L · NIHR open research · 2022
End of life care in paediatric settings: UK national surveyBedendo A, Papworth A, Beresford B, Phillips B, Vasudevan C, Lake Walker G, Weatherly H, Feltbower R, Hinde S, Hewitt C, Murtagh F, Noyes J, Hackett J, Hain R, Oddie S, Subramanian G, Haynes A, Fraser L · BMJ supportive & palliative care · 2025
End-of-Life transfusion support at hospice and pediatric oncology unit: Bridging the gap between benefits and therapeutic allianceNigro O, Podda M, Pellegatta F, Schiavello E, Clerici C, Catalano I, Visconti G, Albarini M, Luksch R, Terenziani M, Ferrari A, Casanova M, Biassoni V, Meazza C, Spreafico F, Gattuso G, Sironi G, Puma N, Bergamaschi L, Chiaravalli S, Massimino M · Tumori · 2023
Enhancing Expert Panel Discussions in Pediatric Palliative Care: Innovative Scenario Development and Summarization With ChatGPT-4Almazyad M, Aljofan F, Abouammoh N, Muaygil R, Malki K, Aljamaan F, Alturki A, Alayed T, Alshehri S, Alrbiaan A, Alsatrawi M, Temsah H, Alsohime F, Alhaboob A, Alabdulhafid M, Jamal A, Alhasan K, Al-Eyadhy A, Temsah M · Cureus · 2023
Ethics and end-of-life in pediatric and neonatal ICUs: a systematic review of recommendationsŠpoljar D, Janković S, Vrkić D, McNamara G, Ćurković M, Novak M, Filipović-Grčić B, Grosek S, Gastmans C, Gordijn B, Borovečki A · BMC Palliative Care · 2025
Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative SynthesisNgwenya N, Kenten C, Jones L, Gibson F, Pearce S, Flatley M, Hough R, Stirling L, Taylor R, Wong G, Whelan J · J Adolesc Young Adult Oncol · 2017
Exploring Pediatric Oncology Care Practices Influencing the Relationships Among Children, Caregivers, and Health Care Providers: A Multi-Institutional Study From PakistanResham S, Altaf S, Ayub F, Bhatti A, Syed A, Iqbal R, Tul Quanita A, Vitória Ramos de Oliveira C, Fadoo Z, Mushtaq N, Imam U, Raza M, Yousafzai A · JCO global oncology · 2025
Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi-site longitudinal survey studyKaye E, Smith J, Zhou Y, Bagatell R, Baker J, Cohn S, Diller L, Glade Bender J, Granger M, Marachelian A, Park J, Rosenberg A, Shusterman S, Twist C, Mack J · Cancer · 2023
Feasibility, acceptability and potential efficacy of the pediatric family-based dignity therapy for children with advanced cancer: A pilot studyWu Y, Tian Z, Deng C, Yan J, Huang K, Wang Z, Zhou X, Liu H, Cai S, Zheng R, Guo Q · Asia-Pacific Journal of Oncology Nursing · 2025
Feasibility of Implementing an Electronic Patient-Reported Outcome-Based Digital Health Platform in Pediatric Oncology and Palliative Care: Insights From the MyPal4Kids Multicenter Observational StudyMeyerheim M, Radova L, Burns-Gebhart A, Mergen M, Natsiavas P, Bonotis P, Karamanidou C, Payne S, Downing J, Ling J, Sander A, Mirzaie K, Dokutur S, Vaculikova J, Lokaj P, Rohleder O, Graf N · JMIR Cancer · 2026
Fifteen years of shared care for paediatric oncology, haematology and palliative patients across Queensland: The role of Regional Case ManagersSlater P, Hastings Y, Nicholson J, Noyes M, Benitez L, Pollock K, Peacock R, Cox A, Gunning R, Caris K, Petersen D, Henry C, Spanner R, Beckett K, Chisholm C · The Australian journal of rural health · 2023
Guidelines regarding ineffective maintenance of organ functions (futile therapy) in paediatric intensive care unitsBartkowska-Śniatkowska A, Byrska-Maciejasz E, Cettler M, Damps M, Jarosz K, Mierzewska-Schmidt M, Migdał M, Ożóg-Zabolska I, Piotrowski A, Rawicz M, Świder M, Tałałaj M, Zielińska M · Anaesthesiol Intensive Ther · 2021
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital databaseRevon-Riviere G, Pauly V, Baumstarck K, Bernard C, Andre N, Gentet J, Seyler C, Fond G, Orleans V, Michel G, Auquier P, Boyer L · Cancer. · 2019
Home-based palliative care for children with recurrent and/or refractory central nervous system tumourYanagisawa T, Tomonari S, Kohei F, Masayoshi Y, Wataru O, Kentaro Y, Masaharu A, Ai M, Yuichiro N, Junichi A, Kazuhiko M, Ryo N · Pediatric Blood and Cancer · 2016
Household material hardship and distress among parents of children with advanced cancer: A report from the PediQUEST Response trialEche-Ugwu I, Orellana L, Becker D, Bona K, Avery M, Feudtner C, Freedman J, Kang T, Rosenberg A, Waldman E, Ullrich C, Dussel V, Wolfe J · Cancer · 2024
Ideal Timing and Perceived Barriers for Palliative Care Integration for Children with Cancer in ChinaRuixin W, Xuan Z, Siyu C, Sun C, Garcia-Quintero X, Anan Z, Xiangling H, Weihong Z, Jie H, Hao Z, Job G, Devidas M, Weiwei Z, Xianjing W, Ping Z, Yanhua Y, Baker J, McNeil M · Journal of pain and symptom management · 2026
Ideal vs Actual Timing of Palliative Care Integration for Children With Cancer in Latin AmericaMcNeil M, Ehrlich B, Wang H, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gillipelli S, Gómez García W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Devidas M, Baker J, Agulnik A · JAMA Netw Open · 2023
Illness and end-of-life experiences of children with cancer who receive palliative careKaye E, Gushue C, DeMarsh S, Jerkins J, Sykes A, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · Pediatric Blood and Cancer · 2018
Impact of a multi-professional expert team on EOL care of children with cancerIwamoto S, Hori H, Sakata K, Kawamata A, Suefuji M, Igura C, Yodoya N, Matsubara T, Ogura T, Komada Y, Hirayama M · Pediatrics international : official journal of the Japan Pediatric Society. · 2021
Impact of Race and Ethnicity on End-of-Life Experiences for Children With CancerKaye E, Gushue C, DeMarsh S, Jerkins J, Li C, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · American Journal of Hospice and Palliative Care · 2019
Impacts of Ethical Dilemmas and Moral Distress in Pediatric Hematology Oncology NursesMadni A, Levine D, Sawyer K, Azzi Y, Mandrell B, Li Y, Ashcraft E, Boggs J, Acharya R, Caples M, Gattuso J, Shoulders L, Johnson L · Pediatric Blood and Cancer · 2025
Influence of pediatric advance care planning on the secondary outcomes of the BOOST pACP trial: determinants of communication between parents and adolescents with cancervan Driessche A, Beernaert K, Deliens L, Kars M, Wallaert S, Willems L, Morren H, Vercruysse G, Van den Bossche A, De Vleminck A, Cohen J · European Journal of Pediatrics · 2025
Integrating a palliative approach into the healthcare provided by the French-African Pediatric Oncology Group's pilot units. Insights from a 3-year training programEdan C, Yao A, Hessissen L, Moreira C, Viallard M, Poulain P, Calmanti S, Thinlot C, Aubier F, Doucot M, Gagnepain-Lacheteau A, Patte C · Archives de Pediatrie · 2021
Integrating Electronic Patient-Reported Outcomes and Palliative Care in Pediatric Advanced Cancer: The PediQUEST Response Multisite Randomized Controlled TrialDussel V, Orellana L, Requena M, Avery M, Becker D, Ullrich C, Feudtner C, Freedman J, Kang T, Waldman E, Gerhardt C, Bakitas M, Baker J, Friedrichsdorf S, Rosenberg A, Wolfe J · Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2026
Knowledge Is Power: Benefits, Risks, Hopes, and Decision-Making Reported by Parents Consenting to Next-Generation Sequencing for Children and Adolescents with CancerMandrell B, Gattuso J, Pritchard M, Caples M, Howard Sharp K, Harrison L, Ouma A, Valdez J, Johnson L, Nichols K · Seminars in Oncology Nursing · 2021
Life Duration of Pediatric Patients with Cancer Enrolled on Concurrent Hospice Care: A Retrospective Decedent StudyWeaver M, Jalfon R, Zeng E, Kalyanasundaram S, Kaye E, Salek M, Cowfer B, Johnson L, Mamer T, Mandrell B, Lindley L, Levine D · Journal of Palliative Medicine · 2026
Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and researchMcFatrich M, Brondon J, Lucas N, Hinds P, Maurer S, Mack J, Freyer D, Jacobs S, Baker J, Mowbray C, Wang M, Castellino S, Barz Leahy A, Reeve B · Cancer · 2019
Measuring the Effects of an Animal-Assisted Intervention for Pediatric Oncology Patients and Their Parents: A Multisite Randomized Controlled TrialMcCullough A, Ruehrdanz A, Jenkins M, Gilmer M, Olson J, Pawar A, Holley L, Sierra-Rivera S, Linder D, Pichette D, Grossman N, Hellman C, Guerin N, O'Haire M · J Pediatr Oncol Nurs · 2017
Mixed-method examination of factors associated with adolescent decision-making and involvement in care in the context of advanced cancerSutherland-Foggio M, Olsavsky A, Skeens M, Nahata L, Hill K, Schaefer M, Himelhoch A, Kenney A, Humphrey L, Olshefski R, Gerhardt C · Palliative & supportive care · 2024
MyPal-Child study protocol: an observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patientsMeyerheim M, Karamanidou C, Payne S, Garani-Papadatos T, Sander A, Downing J, Stamatopoulos K, Ling J, Payne C, Scarfò L, Lokaj P, Maramis C, Graf N · BMJ Open · 2021
Pain Squad+ smartphone app to support real-time pain treatment for adolescents with cancer: protocol for a randomised controlled trialJibb L, Nathan P, Breakey V, Fernandez C, Johnston D, Lewis V, McKillop S, Patel S, Sabapathy C, Strahlendorf C, Victor J, Moretti M, Nguyen C, Hundert A, Cassiani C, El-Khechen Richandi G, Insull H, Hamilton R, Fang G, Kuczynski S, Stinson J · BMJ Open · 2020
Palliative CareWasilewski-Masker K, Howk T, Connelly E, Postovsky S, Brill P, Wrammert K, Pillai R · Pediatric Oncology · 2017
Palliative care for children with central nervous system tumors: results of a Spanish multicenter studyPerez-Torres Lobato M, Navarro-Marchena L, de Noriega I, Morey Olive M, Solano-Paez P, Rubio Perez E, Garrido Colino C, Garcia Abos M, Tallon Garcia M, Huidobro Labarga B, Portugal Rodriguez R, Lopez Ibor B, Lassaletta A, Morgenstern Isaak A, Cruz Martinez O, Valero Arrese L, Llort Sales A, Gros Subias L, Marquez Vega C, Moreno L, Quiroga-Cantero E · Clinical and Translational Oncology · 2023
Palliative care services in paediatric oncology centres across Europe: A cross-sectional surveyPedraza E, Raguindin P, Hendriks M, Vokinger A, De Clercq E, Rüesch K, Hjorth L, von Bueren A, Tinner E, Bergstraesser E, Wiener L, Michel G · EJC Paediatric Oncology · 2023
Parent Priorities in End-of-Life Care for Children With CancerAnanth P, Lindsay M, Mun S, McCollum S, Shabanova V, de Oliveira S, Pitafi S, Kirch R, Ma X, Gross C, Boyden J, Feudtner C, Wolfe J · JAMA network open · 2023
Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults with CancerMack J, Fisher L, Kushi L, Chao C, Vega B, Rodrigues G, Josephs I, Brock K, Buchanan S, Casperson M, Cooper R, Fasciano K, Kolevska T, Lakin J, Lefebvre A, Schwartz C, Shalman D, Wall C, Wiener L, Altschuler A · JAMA Network Open · 2021
Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With CancerOdejide O, Fisher L, Kushi L, Chao C, Vega B, Rodrigues G, Josephs I, Brock K, Buchanan S, Casperson M, Cooper R, Fasciano K, Kolevska T, Lakin J, Lefebvre A, Schwartz C, Shalman D, Wall C, Wiener L, Altschuler A, Mack J · JCO Oncology Practice · 2022
Pediatric palliative care in patients with brain tumors: Timing, activation, and management of acute eventsNigro O, Podda M, Schiavello E, Biassoni V, Luksch R, Terenziani M, Ferrari A, Spreafico F, Casanova M, Meazza C, Chiaravalli S, Puma N, Bergamaschi L, Gattuso G, Sironi G, Colombo V, Catalano I, Pellegatta F, Barretta F, Vennarini S, Forzini G, Massimino M · Tumori · 2025
Perspectives of pediatric oncologists and palliative care physicians on the therapeutic use of cannabis in children with cancerOberoi S, Protudjer J, Rapoport A, Rassekh S, Crooks B, Siden H, Decker K, Ananth P, Chapman S, Balneaves L, Vanan M, Kelly L · Cancer Reports
Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in BrazilMcNeil M, Godfrey A, Loggetto P, De Oliveira Junior A, Job G, Boldrini E, Regina Costa Murra G, Antunes Geronutti Ayub D, Francisco Oliveira De Lima A, Esmeraldo Andrade De Almeida A, Lopes Garcia J, Beatriz Costa Neves Do Amaral A, Cristina Cunha Ferreira E, Friedrich P, Metzger M, Devidas M, Agulnik A, Baker J · JCO Global Oncology · 2023
Physician Perceptions of Palliative Care for Children With Cancer in Latin AmericaMcNeil M, Ehrlich B, Wang H, Vedaraju Y, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gillipelli S, Gomez Garcia W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Devidas M, Baker J, Agulnik A, Assessing Doctors' Attitudes on Palliative Treatment Latin America Study G · JAMA Network Open · 2022
Physicians' Perspectives and Attitudes Toward Palliative Care for Cancer Children in mainland ChinaZhang A, Zhou X, Wang J, Sun C, Garcia-Quintero X, Li X, Mu D, Ma L, Han Y, Zhang F, Zhang H, Zhu X, Job G, Devidas M, Mo L, Sun Y, Wang R, Tuo Y, Yao Y, Shen C, Duan F, Zhang B, Cai S, Baker J, MichaelMcNeil J · Journal of pain and symptom management · 2025
Practice patterns of palliative radiation therapy in paediatric oncology patients amongst an international paediatric research consortiumRao A, Ermoian R, Alcorn S, Figueiredo M, Chen M, Dieckmann K, MacDonald S, Ladra M, Kobyzeva D, Nechesnyuk A, Nilsson K, Winey B, Villar R, Terezakis S · Pediatric Blood and Cancer · 2016
Practice patterns of palliative radiation therapy in pediatric oncology patients in an international pediatric research consortiumRao A, Chen Q, Ermoian R, Alcorn S, Figueiredo M, Chen M, Dieckmann K, MacDonald S, Ladra M, Kobyzeva D, Nechesnyuk A, Nilsson K, Ford E, Winey B, Villar R, Terezakis S · Pediatric Blood and Cancer · 2017
Predictors of Late Palliative Care Referral in Children with CancerKaye E, Jerkins J, Gushue C, DeMarsh S, Sykes A, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · J Pain Symptom Manage · 2018
Predictors of Location of Death for Children with Cancer Enrolled on a Palliative Care ServiceKaye E, DeMarsh S, Gushue C, Jerkins J, Sykes A, Lu Z, Snaman J, Blazin L, Johnson L, Levine D, Morrison R, Baker J · Oncologist · 2018
Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With CancerWidger K, Sutradhar R, Rapoport A, Vadeboncoeur C, Zelcer S, Kassam A, Nelson K, Liu Y, Wolfe J, Earle C, Pole J, Gupta S · J Clin Oncol · 2018
Preferences for Communication About Prognosis Among Children With Cancer, Parents, and OncologistsChristianson C, Reeves C, Farner H, Mehler S, Brinkman T, Baker J, Hinds P, Mack J, Kaye E · JAMA Network Open · 2025
Preferred and Actual Location of Death in Adolescents and Young Adults With CancerOdejide O, Cernik C, Uno H, Fisher L, Xu L, Laurent C, Cannizzaro N, Munneke J, Cooper R, Lakin J, Schwartz C, Casperson M, Altschuler A, Wiener L, Kushi L, Chao C, Mack J · JAMA Network Open e2454000 e2454000 · 2025
Prevalence and Trajectory of Household Material Hardship Among Children With Advanced CancerWright S, Paul M, Mendez S, Jones E, Lokko L, Heneghan C, Purol N, Arnold M, Aziz-Bose R, Kelly C, Pruitt S, Wolfe J, Bona K, Umaretiya P · Pediatric Blood and Cancer · 2026
Provider Perspectives on Use of Medical Marijuana in Children With CancerAnanth P, Ma C, Al-Sayegh H, Kroon L, Klein V, Wharton C, Hallez E, Braun I, Michelson K, Rosenberg A, London W, Wolfe J · Pediatrics · 2017
Psychopharmacology in the Pediatric Oncology and Bone Marrow Transplant Units: Antipsychotic Medications Palliate Symptoms in Children with CancerPeled O, Lavan O, Stein J, Vinograd I, Yahel A, Valevski A, Weizman A, Kimmel-Tamir E, Apter A, Fennig S, Yaniv I, Bernfeld Y, Benaroya-Milshtein N · Journal of Child and Adolescent Psychopharmacology · 2020
Quality of palliative care for children with cancerWidger K, Friedrichsdorf S, Wolfe J, Liben S, Pole J, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock J, Rapoport A · Journal of Pain and Symptom Management · 2016
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral centerBaker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Raising Awareness: Real World Data On Palliative Care for Advanced Pediatric Cancers in BavariaNehls N, Börner M, Ziegelmayer S, Haller B, Klot F, Metzler M, Frühwald M, Schlegel P, Corbacioglu S, Feuchtinger T, Lüttichau I · Pediatric Blood & Cancer · 2025
Real World Presentation and Treatment Outcomes with a Predominant Induction Chemotherapy Based Approach in Nasopharyngeal Carcinoma: A Sixteen Year Report from a Teaching Hospital in IndiaGogi R, Sharma A, Mohanti B, Pramanik R, Bhasker S, Biswas A, Thakar A, Singh A, Sikka K, Kumar R, Thulkar S, Bahadur S · Cancer Investigation · 2023
Regional adaptation of the education in palliative and end-of-life Care Pediatrics (EPEC-Pediatrics) curriculum in EurasiaMcNeil M, Ehrlich B, Yakimkova T, Wang H, Mishkova V, Bezler Z, Kumirova E, Madni A, Movsisyan N, Williams K, Baizakova B, Borisevich M, Chatman G, Erimbetova I, Quintero X, Golban R, Kirby B, Nunez P, Ranadive R, Sakhar N, Sonnenfelt J, Volkova A, Moreira D, Friedrichsdorf S, Wolfe J, Remke S, Hauser J, Devidas M, Baker J, Agulnik A · Cancer Med · 2023
Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year periodZernikow B, Szybalski K, Hubner-Mohler B, Wager J, Paulussen M, Lassay L, Jorch N, Weber C, Schneider D, Janssen G, Oommen P, Kuhlen M, Brune T, Wieland R, Schundeln M, Kremens B, Langler A, Prokop A, Kiener R, Niehues T, Rose M, Baumann-Kohler M, Poppelmann M, Thorer H, Irnich M, Sinha K, Wolfe J, Schmidt P · Palliative Medicine · 2018
Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literatureRobert R, Stavinoha P, Jones B, Robinson J, Larson K, Hicklen R, Smith B, Perko K, Koch K, Findley S, Weaver M · Pediatric Blood and Cancer · 2019
Stakeholder's Perspectives on the Barriers and Facilitators of Childhood Cancer Care in IndiaNath A, Mathur P, Sudarshan K, Arora R, Seth R, Kumar S, Chinnaswamy G, Budukh A, Singh V, Kumari T, Banipal R, Bodal V, Kumar A, Vijay C, Avinash T, Ramesh C, Gundeti S, Malik S, Chaudhary N, Majumdar G, Das D, Radhakrishnan N, Rao V, Rawal M, Pautu J, Sundriyal D, Hazarika M, Harris C, Jondhale S, Khamo V, Najmi A, Pareek P, Konjengbam R, Das Majumdar S, Pandya S, Shah A, Singh S, Radhakrishnan V, Swaminathan R, Kumar C, Singh P, Tiwari L, Mandal S, Tawsik S, Pandey A, Gunaseelan K, Bhutia T · Indian Pediatrics · 2025
Supporting parent capacity to manage pain in young children with cancer at home: Co-design and usability testing of the PainCaRe appJibb L, Liu W, Stinson J, Nathan P, Chartrand J, Alberts N, Hashemi E, Masama T, Pease H, Torres L, Cortes H, Kuczynski S, Liu S, La H, Fortier M · Paediatric and Neonatal Pain · 2024
Supporting the needs of adolescents and young adults: Integrated palliative care and psychiatry clinic for adolescents and young adults with cancerAbdelaal M, Mosher P, Gupta A, Hannon B, Cameron C, Berman M, Moineddin R, Avery J, Mitchell L, Li M, Zimmermann C, Al-Awamer A · Cancers · 2021
Systems Theory Model to Understand the Barriers and Facilitators to Palliative Care Referral for Pediatric Oncology Patients in CanadaGranek L, Hasan F, Lysecki D, Johnston D, Veldhuijzen van Zanten S, Datoo N, Gupta S, Chan A, Wiener L, Widger K, McCullogh E, Kassam A, Fergus K, Rapoport A · JCO oncology practice · 2026
The association of age, literacy, and race on completing patient-reported outcome measures in pediatric oncologyWithycombe J, McFatrich M, Pinheiro L, Hinds P, Keller F, Baker J, Mack J, Sung L, Waldron M, Reeve B · Quality of Life Research · 2019
The COVID-19 pandemic: A rapid global response for children with cancer from SIOP, COG, SIOP-E, SIOP-PODC, IPSO, PROS, CCI, and St Jude GlobalSullivan M, Bouffet E, Rodriguez-Galindo C, Luna-Fineman S, Khan M, Kearns P, Hawkins D, Challinor J, Morrissey L, Fuchs J, Marcus K, Balduzzi A, Basset-Salom L, Caniza M, Baker J, Kebudi R, Hessissen L, Sullivan R, Pritchard-Jones K · Pediatric Blood and Cancer · 2020
The Impact of Qualification and Hospice Education on Staff Attitudes during Palliative Care in Pediatric Oncology Wards-A National SurveySalamon E, Fodor E, Foldesi E, Hauser P, Krivan G, Csanadi K, Garami M, Kovacs G, Csoka M, Tiszlavicz L, Kiss C, Dergez T, Ottoffy G · Children · 2024
The Impact of Specialty Palliative Care in Pediatric Oncology: A Systematic ReviewKaye E, Weaver M, DeWitt L, Byers E, Stevens S, Lukowski J, Shih B, Zalud K, Applegarth J, Wong H, Baker J, Ullrich C, Committee A · Journal of Pain & Symptom Management · 2021
The radiotherapy utilization rate in pediatric tumors: An analysis of 13,305 patientsBishr M, Zaghloul M, Elmaraghi C, Galal A, Abdelaziz M, Elghazawy H, Shaheen H, Ramzy E, Mesbah A, Eissa S, Hegazy R, Hamza A, Elkhateeb N, Mousa A · Radiotherapy and Oncology · 2021
The St. Jude Global Academy: A Multifaceted Education Program to Expand Pediatric Oncology Workforce CapacityMoreira D, Hashmi S, Andujar A, Berg F, Conger K, Fox Irwin L, Mikkelsen M, Antillon-Klussmann F, Bazzeh F, Cypriano M, Gao Y, Gonzalez-Ramella O, Rivas S, Lopes L, Mack R, Morosini F, Noun D, Garcia X, Homsi M, Puerto-Torres M, Agulnik A, Baker J, Caniza M, McNeil M, Qaddoumi I, Chantada G, Rodriguez-Galindo C · Pediatric Blood and Cancer · 2025
The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, CanadaWidger K, Vadeboncoeur C, Zelcer S, Liu Y, Kassam A, Sutradhar R, Rapoport A, Nelson K, Wolfe J, Earle C, Pole J, Gupta S · Journal of Palliative Medicine · 2017
Treatment Decision Making at Diagnosis for Children Presenting With Advanced Cancer in Low- and Middle-Income CountriesSalek M, Caceres-Serrano A, Canedo J, Fuentes L, Mehler S, Rule A, Zeal J, Rodriguez-Galindo C, Graetz D, Bhakta N, Kaye E, Group C, Baker J, Dolendo M, Figueredo D, Force L, Friedrich P, Geriga F, Gunasekera S, Hunleth J, Kizyma R, Maradiege E, Kim Nguyen H, Nzamu I, Raza M, Rustamova K, Sari N, Wise P · JCO Global Oncology · 2026
Unrealistic parental expectations for cure in poor-prognosis childhood cancerMack J, Cronin A, Uno H, Shusterman S, Twist C, Bagatell R, Rosenberg A, Marachelian A, Granger M, Glade Bender J, Baker J, Park J, Cohn S, Levine A, Taddei S, Diller L · Cancer · 2020
Use of Cancer-Directed therapy at the end of life among adolescents and young adultsMack J, Cernik C, Xu L, Laurent C, Fisher L, Cannizzaro N, Munneke J, Cooper R, Lakin J, Schwartz C, Casperson M, Altschuler A, Wiener L, Kushi L, Chao C, Uno H · Journal of the National Cancer Institute · 2024
Using the Pediatric Oncology Facility Integrated Local Evaluation (PrOFILE) Tool to Evaluate and Improve Pediatric Oncology Systems in Cameroon: A Focus on National, Facility, and Financing ContextsAfungchwi G, Pondy-Ongotsoyi A, Sona M, Kouya F, Ndonku A, Frambo A, Mapoko B, Youwa P, Waindim Y, Omotola A, Friedrich P, Bhakta N, Ndom P · Pediatric Blood and Cancer · 2026
Utilizing the Metaverse to Provide Innovative Psychosocial Support for Pediatric, Adolescent, and Young Adult Patients with Rare CancerHasei J, Ishida H, Katayama H, Maeda N, Nagano A, Ochi M, Okamura M, Iwata S, Ikuta K, Yoshida S, Fujiwara T, Nakata E, Nakahara R, Kunisada T, Ozaki T · Cancers · 2024
“We’re going to get through this together”: patient, parent, and oncologist recommendations for providing emotional support in advanced childhood cancerChristianson C, Mehler S, Reeves C, Farner H, Brinkman T, Baker J, Hinds P, Mack J, Kaye E · Journal of Psychosocial Oncology · 2025
What matters to children and families facing advanced cancer? Identification of priority outcomes to improve paediatric palliative care in Turkey and JordanBoufkhed S, Yurdusen S, Alarjeh G, Ahmed F, Alrjoob W, Sengelen M, Cemaloglu M, Aydin B, Kutluk T, Shamieh O, Harding R · Palliative Medicine · 2021
Withholding and withdrawing treatment in pediatric intensive care. Update of the GFRUP recommendationsCremer R, de Saint Blanquat L, Birsan S, Bordet F, Botte A, Brissaud O, Guilbert J, Le Roux B, Le Reun C, Michel F, Millasseau F, Sinet M, Hubert P · Arch Pediatr · 2021
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