Publication
Paediatric oncology meets palliative care: A road towards a common language
De Zen L, Podda M, Martinez M, Kokkinou G, Krottendorfer K, Lacerda A · EJC Paediatric Oncology · 2026
Advances in paediatric oncology (PO) have substantially improved survival rates in childhood cancer, yet an increasing complexity has generated new clinical, psychosocial and ethical challenges. Integrating paediatric palliative care (PPC) early in the oncological trajectory has been shown to enhance quality of life for patients and families, but conceptual barriers often hinder collaboration between the two disciplines. This project aimed to develop a shared European glossary of key terms used in PO and PPC, fostering a common language to facilitate communication, collaboration and integration across culturally and resource diverse healthcare systems. Building upon an existing Italian glossary, a European version was developed in 2024. The process included English translation, expert review and multiple consensus rounds involving representatives from the European Society for Paediatric Oncology (SIOPE) PPC Working Group and the Italian interdisciplinary team. Each term was critically evaluated for conceptual clarity, cross-cultural applicability and alignment with international practice. The glossary evolved from 30 to 21 final terms, reflecting consensus on definitions and the removal or adaptation of items not generalizable to the European context (e.g., terms linked to Italian legislation). The final document underwent editorial and graphical revision, and was submitted to the SIOPE Executive Board for endorsement and dissemination. The European Glossary of PO and PPC provides a foundational framework for harmonising language and practice across Europe. It supports education, clinical integration and policy dialogue, representing a key step towards shared understanding and patient-centred care for children with cancer and their families. © 2026 The Authors
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.
