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Parents/Caregivers

Everything on the hub tagged Parents/Caregivers: researchers, groups, current studies, resources and published literature together.

236 results

Published literature

Acceptability and feasibility of a pilot randomized controlled trial of Narrative e-Writing Intervention (NeW-I) for parent-caregivers of children with chronic life-threatening illnesses in Singapore.
Dutta O, Tan-Ho G, Low X, Tan T, Ganapathy S, Car J, Ho R, Miao C, Ho A · BMC palliative care · 2022
'A confident parent breeds a confident child': Understanding the experience and needs of parents whose children will transition from paediatric to adult care
Shaw K, Baldwin L, Heath G · Journal of Child Health Care. · 2020
Advance care planning for adolescents with cancer and their parents: study protocol of the BOOST pACP multi-centre randomised controlled trial and process evaluation
van Driessche A, De Vleminck A, Gilissen J, Kars M, van der Werff Ten Bosch J, Deliens L, Cohen J, Beernaert K · BMC Pediatr · 2021
A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology - The perspective of nurses
Karidar H, Akesson H, Glasdam S · European Journal of Oncology Nursing · 2016
An evaluation of By My Side: Peer support in written form is acceptable and useful for parents bereaved by childhood cancer
Raharjo C, Hetherington K, Donovan L, Fardell J, Russell V, Cohn R, Morgan N, Siddiqui J, Wakefield C · Journal of Pain and Symptom Management · 2020
A New State of Being The Lived Experience of Parental Bereavement
Denhup C · Omega (Westport). · 2017
A pilot study of the effectiveness of home teleconsultations in paediatric palliative care
Bradford N, Young J, Armfield N, Bensink M, Pedersen L, Herbert A, Smith A · Journal of Telemedicine & Telecare · 2012
Approaches to end-of-life discussions with parents of a profoundly compromised newborn
Paris J, Pai V, Cummings B, Batten J, Benitz W · Journal of Perinatology · 1078
A Qualitative Study Describing Pediatric Palliative Care in Non-Metropolitan Areas of Illinois
Murday P, Downing K, Gaab E, Misasi J, Michelson K · Am J Hosp Palliat Care · 2021
A quest for meaning: A qualitative exploration among children with advanced cancer and their parents
Schaefer M, Kenney A, Himelhoch A, Howard Sharp K, Humphrey L, Olshefski R, Young-Saleme T, Gerhardt C · Psycho-Oncology · 2021
A Randomized Comparative Trial to Evaluate a PICU Navigator-Based Parent Support Intervention
Michelson K, Frader J, Charleston E, Rychlik K, Aniciete D, Ciolino J, Sorce L, Clayman M, Brown M, Fragen P, Malakooti M, Derrington S, White D · Pediatr Crit Care Med · 2020
A Review of Parental Bereavement Interventions: Implications for Clinical
Dias N, Floyd A, Ramkumar R, Horvick S, Haberstroh A, Hendricks-Ferguson V, Fasolino T · Journal of Hospice & Palliative Nursing
Assessing the quality of bereavement care after perinatal death: development and piloting of a questionnaire to assess parents' experiences
Aiyelaagbe E, Scott R, Holmes V, Lane E, Heazell A · J Obstet Gynaecol · 2017
Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity
Lord S, Moore C, Beatty M, Cohen E, Rapoport A, Hellmann J, Netten K, Amin R, Orkin J · JAMA Network Open · 2020
A Systematic Review of Educational Interventions to Equip Health and Social Care Professionals to Promote End-of-Life Supportive Care when a Parent with Dependent Children is Dying with Cancer
Sheehan S, Hanna J, Drury A, McCance T, Semple C, O'Neill C · Semin Oncol Nurs · 2023
A Systematic Review of Race/Ethnicity and Parental Treatment Decision-Making.
Harris V, Links A, Walsh J, Schoo D, Lee A, Tunkel D, Boss E · Clinical Pediatrics · 2018
Barriers and facilitators for parents in end-of-life decision-making for neonates at the Neonatal Intensive Care Unit: A qualitative study
Piette V, Dombrecht L, Deliens L, Cools F, Chambaere K, Goossens L, Naulaers G, Laroche S, Cornette L, Bekaert E, Decoster P, Beernaert K, Cohen J · Palliat Med · 2022
Barriers to the spiritual care of parents taking care of their child with a life-limiting condition at home
Brouwer M, Bas-Douw B, Leget C, Engel M, Teunissen S, Kars M · Eur J Pediatr · 2023
Bereaved Parents' Change in Mental Health during a Dyadic Diary
Buyukcan-Tetik A, Topal M, Deryalar B, Ergun T, Aydin E, Aykutoglu B · Journal of Loss & Trauma · 2024
Bereaved Parents, Hope, and Realism
Kaye E, Kiefer A, Blazin L, Spraker-Perlman H, Clark L, Baker J · Pediatrics · 2020
Bereaved Parents' Perceptions of Infant Suffering in the NICU
Fortney C, Baughcum A, Moscato E, Winning A, Keim M, Gerhardt C · Journal of pain and symptom management. · 2019
Bereaved parents’ perceptions of their cancer-ill child’s last month with or without palliative care - a nationwide study
Pohlkamp L, Stenmarker M · Frontiers in Oncology · 2024
Bereavement support effectiveness for parents of infants and children: a systematic review
Ainscough T, Fraser L, Taylor J, Beresford B, Booth A · BMJ Support Palliat Care · 2019
Caregiver-Child Discrepancies in Reports of Child Emotional Symptoms in Pediatric Chronic Pain
Martin S, Zeltzer L, Seidman L, Allyn K, Payne L · J Pediatr Psychol · 2020
Caregiver preferences for palliative care in pediatric oncology: an educational intervention
Gallegos J, Nelson C, Conour C, Ludrosky J, Tomboc P, Dower J, Duncan C · Children's Health Care · 2023
Caregivers' perceptions of pediatric chronic complex diseases during hospitalization: Unpredictability, faith, palliative care and bonding
Domingues C, Rocha A, de Souza R, Iglesias S · Journal of pediatric nursing · 2026
Caregiving and Work
Johannesen J, Angl E · 2024
Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations
Schuetze D, Ploeger C, Hach M, Seipp H, Kuss K, Bösner S, Gerlach F, van den Akker M, Erler A, Engler J · Palliat Med · 2021
Caring decisions: The development of a written resource for parents facing end-of-life decisions
Xafis V, Gillam L, Hynson J, Sullivan J, Cossich M, Wilkinson D · Journal of Palliative Medicine · 2015
Changes Over Time in Good-Parent Beliefs Among Parents of Children with Serious Illness: Two Year Cohort Study (TH320B)
Hill D, Faerber J, Carroll K, Miller V, Morrison W, Hinds P, Feudtner C · Journal of Pain and Symptom Management · 2018
Cognitive testing of the Children's Palliative Outcome Scale (C-POS) with children, young people and their parents/carers
Coombes L, Braybrook D, Hardardottir D, Scott H, Bristowe K, Ellis-Smith C, Fraser L, Downing J, Bluebond-Langner M, Murtagh F, Harding R · Palliative Medicine · 2024
Communication between neonatologists and parents when prognosis is uncertain
Drach L, Hansen D, King T, Sibinga E · Journal of Perinatology · 2020
Communication between parents and well-siblings in the context of living with a child with a life-threatening or life-limiting condition
Jaaniste T, Tan S, Aouad P, Trethewie S · Journal of Paediatrics and Child Health. · 2020
Concerns of Parents with Children Receiving Home-Based Pediatric Palliative Care
Tutelman P, Lipak K, Adewumi A, Fults M, Humphrey L, Gerhardt C · Journal of pain and symptom management. · 2020
Consulting parents bereaved by childhood cancer: A qualitative study to
Loxton I, Oxlad M, Perry A · Death Studies · 2023
Consulting with a folk deity before making decisions: spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction
Lin S, Huang M · Int J Qual Stud Health Well-being · 2020
Continuing bonds with the living: bereaved parents’ narratives of their emotional relationship with their children
Shankar S, Nolte L, Trickey D · Bereavement Care · 2017
Conversations About End-of-Life Decisions in Neonatology: Do Doctors and Parents Implement Shared Decision-Making?
Schouten E, Beyer M, Flemmer A, de Vos M, Kuehlmeyer K · Front Pediatr · 2022
Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families: A qualitative interview study
Ribbers S, Wager J, Hartenstein-Pinter A, Zernikow B, Reuther M · Palliative Medicine · 2019
Counseling for personal care options at neonatal end of life: A quantitative and qualitative parent survey Psychosocial
Shelkowitz E, Vessella S, O'Reilly P, Tucker R, Lechner B · BMC Palliative Care · 2015
COVID-19 Pandemic Restrictions and the Use of Technology for Pediatric Palliative Care in the Acute Care Setting
Bettini E · J Hosp Palliat Nurs · 2020
Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions
Koch A, Albrecht T, Kozhumam A, Son H, Brandon D, Docherty S · Journal of child health care : for professionals working with children in the hospital and community · 2023
Current applications and future perspectives of family-integrated care in the pediatric intensive care unit: a narrative review from concept to practice
Li Y, Liu N, Bao Y · Translational Pediatrics · 2026
Death of One Twin during the Perinatal Period: An Interpretative Phenomenological Analysis
Meaney S, Corcoran P, O'Donoghue K · J Palliat Med · 2017
Developing a culturally relevant bereavement needs assessment tool (CANCOPE-PI) for caregivers of children with cancer in India: a participatory research approach
Suresh V, Mittal A, Venketeswaran M, Radhakrishnan V, Veeraiah S, Ayloor Seshadri R · Research Involvement & Engagement · 2026
Development and Feasibility Evaluation of a Family-Centred Neonatal End-of-Life Care Protocol
Kim E, Kim S, Kim S, Kim S, Ahn S, Lee H · J Clin Nurs · 2024
Development and pilot testing of a coping kit for parents of hospitalized children
Hill D, Carroll K, Snyder K, Mascarenhas M, Erlichman J, Patterson C, Barakat L, Feudtner C · Academic Pediatrics · 2018
Development of a Stakeholder Driven Serious Illness Communication Program for Advance Care Planning in Children, Adolescents, and Young Adults with Serious Illness
DeCourcey D, Partin L, Revette A, Bernacki R, Wolfe J · Journal of Pediatrics · 2021
Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study
Leemann T, Bergstraesser E, Cignacco E, Zimmermann K · BMC Palliat Care · 2020
Effectiveness of a Family-Caregiver Training Program in Home-Based Pediatric Palliative Care
Chocarro González L, Rigal Andrés M, de la Torre-Montero J, Barceló Escario M, Martino Alba R · Children (Basel) · 2021
Effectiveness of time-limited eye movement desensitization reprocessing therapy for parents of children with a rare life-limiting illness: a randomized clinical trial
Conijn T, De Roos C, Vreugdenhil H, Van Dijk-Lokkart E, Wijburg F, Haverman L · Orphanet J Rare Dis · 2022
Emotional dysregulation as a moderating factor on the relationship between the severity of anxiety and depressive symptoms and high caregiving intensity among mothers caring for children diagnosed with life-limiting conditions
Ibdah R, Zaben F, Al-Sarayreh R, Hamdan-Mansour A · Palliative & supportive care · 2026
Employment and leave while parenting children with medical complexity.
Kellom K, Wilson-Hall C, Strane D, Wu K, Matone M · Families, systems & health : the journal of collaborative family healthcare · 2023
End-of-life communication: a nationwide study of bereaved parents' perceptions
Lykke C, Ekholm O, Schmiegelow K, Olsen M, Sjogren P · BMJ Support Palliat Care · 2019
End-of-Life Decision Making Between Doctors and Parents in NICU: The Development and Assessment of a Conversation Analysis Coding Framework
Shaw C, Connabeer K, Drew P, Gallagher K, Aladangady N, Marlow N · Health communication · 2022
End-of-life decision-making for children with severe developmental disabilities: The parental perspective
Zaal-Schuller I, de Vos M, Ewals F, van Goudoever J, Willems D · Research in Developmental Disabilities · 2016
End-of-life decisions in neonatal care: a conversation analytical study
Marlow N, Shaw C, Connabeer K, Aladangady N, Gallagher K, Drew P · Archives of disease in childhood. Fetal and neonatal edition. · 2020
Enhancing the Resilience of Bereaved Parents: Practical Experiences and Needs Perceived by Healthcare Professionals
Cheng L, Cai S, Zhou X, Zhai X · Journal of Advanced Nursing (John Wiley & Sons, Inc.) · 2026
[Evaluation of Specialised Paediatric Palliative Home Care in Lower Saxony, Germany - A Qualitative Study on Parents' Perspectives]
Kremeike K, Mohr A, Nachtmann J, Reinhardt D, Geraedts M, Sander A · Int J Neurosci · 2016
Existential experiences and perceptions of death among children with terminal cancer: An interpretative qualitative study
Lin N, Lv D, Hu Y, Zhu J, Xu H, Lai D · Palliative medicine · 2023
Experiences and needs of parents of palliative paediatric oncology patients: A meta-synthesis
Tan A, Tiew L, Shorey S · Eur J Cancer Care (Engl) · 2020
Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study
Sedig L, Spruit J, Paul T, Cousino M, Pituch K, Hutchinson R · Am J Hosp Palliat Care · 2020
Experiences of paediatric terminal oncology patients and their parents in palliative care: A qualitative systematic review
Tan W, Sambhi S, Shorey S · Journal of pediatric nursing · 2024
Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer
Kaal S, Kuijken N, Verhagen C, Jansen R, Servaes P, Van Der Graaf W · Journal of Adolescent and Young Adult Oncology · 2016
Experiences of Pediatric Palliative Care Among Bereaved Parents Who Lost a Child With Leukemia in South Korea
Oh S, Min H, Choi S, Hwang H, Kim S · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2023
Experiencing place identity and place belongingness at a children's hospice: Parents' perspectives
Dunbar H, Carter B · J Child Health Care · 2020
Explaining the concepts of family vigilance theory in the context of anticipatory grief in mothers of children with life-threatening illnesse: A directed qualitative content analysis
Najafi K, Shirinabadi Farahani A, Rassouli M, Majd H, Faramarzpour M, Ghasemi M · Journal of Pediatric Nursing · 2026
Exploring Parental Decision Making for a Child With a Life-Limiting Condition: An Interpretive Description Study
Yazdani N, Chartrand J, Stacey D · J Hosp Palliat Nurs · 2022
Exploring Parents' Experiences and Needs During Disclosure of a Cerebral Palsy Diagnosis of Their Young Child: A Scoping Review
van der Kemp J, Ketelaar M, Rentinck I, Sommers-Spijkerman M, Benders M, Gorter J · Child Care Health Dev · 2024
Exploring What Motivates Parents of Children Living With Medical Complexity to Participate in Research
Kim L, Hermansen A, Cook K, Siden H · Child: Care, Health and Development · 2024
External second opinions: building trust between health professionals and families
Fraser J, Goold I, Akindolie O, Linney M · Arch Dis Child · 2023
Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review
Nicholas Dionne-Odom J, Hooker S, Bekelman D, Ejem D, McGhan G, Kitko L, Str�mberg A, Wells R, Astin M, Metin Z, Mancarella G, Pamboukian S, Evangelista L, Buck H, Bakitas M, Hooker S, Metin Z, Pamboukian S, Buck H · Heart Failure Reviews
Family characteristics and childcare patterns associated with early social functioning in cancer-bereaved parents
Snaman J, Chen L, Mazzola E, Helton G, Feifer D, Broden E, McCarthy S, Rosenberg A, Baker J, Wolfe J · Cancer · 2024
Family experiences with palliative care for children at home: a systematic literature review
Winger A, Kvarme L, Løyland B, Kristiansen C, Helseth S, Ravn I · BMC Palliat Care · 2020
Family Satisfaction with Symptom Management Practices and Child Comfort During Pediatric Hematopoietic Stem Cell Transplant (TH320C)
Ullrich C, Levine D, Li A, Ma C, Wolfe J, Holder R · Journal of Pain and Symptom Management · 2018
Fatal fetal anomaly: Experiences of women and their partners
Jackson P, Power-Walsh S, Dennehy R, O'Donoghue K · Prenatal diagnosis · 2023
Fathers' experiences of living with a child with a progressive life-limiting condition without curative treatment options: A qualitative systematic review
Sjuls M, Ludvigsen M, Robstad N, Fegran L · J Adv Nurs · 2023
Focuses and trends of the studies on pediatric palliative care:A bibliometric analysis from 2004 to 2018
Zhang M, Li X · International Journal of Nursing Sciences · 2021
From Monochromatic to Technicolor: Parent Perspectives on Challenges and Approaches to Seeing Children with Severe Neurological Impairment Holistically
Bogetz J, Lewis H, Trowbridge A, Jonas D, Hauer J, Wilfond B · J Palliat Med · 2021
Goals of Care Rated by Parents of Children Receiving Pediatric Palliative Care: A Cohort Study Over Two Years (RP409)
Feudtner C, Beight L, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Hays R, Kang T, Hall M, Nye R, Wolfe J · Journal of Pain and Symptom Management · 2022
Grief and coping of parents whose child has a constant life-threatening disability, hypoplastic left heart syndrome with reference to the Dual-Process Model
Cantwell-Bartl A · Death Studies · 2018
Grieving Parents' Meaning-Making Narration in Relation to Value Orientations: A Cross-Cultural Study
Xiu D, Maercker A, Killikelly C, Yang Y, Jia X · Transcultural Psychiatry · 2023
Grieving the loss of a child in times of COVID-19
Hooghe A, Claeys A, Thompson B, Neimeyer R, Rober P · Couple and Family Psychology: Research and Practice · 2021
Health anxiety by proxy - through the eyes of the parents
Ingeman K, Hulgaard D, Rask C · Journal of Child Health Care · 2024
Healthcare for children depend on medical technology and parental quality of life in Japan
Matsuzawa A, Arai J, Shiroki Y, Hirasawa A · Pediatr Int · 2022
Healthcare professionals' experiences of the barriers and facilitators to paediatric pain management in the community at end-of-life: A qualitative interview study
Greenfield D, Carter B, Harrop D, Jassal D, Bayliss M, Renton D, Holley D, Howard D, Johnson M, Liossi C · J Pain Symptom Manage · 2021
Healthcare Satisfaction and Unmet Needs Among Bereaved Parents in the NICU
Baughcum A, Fortney C, Winning A, Dunnells Z, Humphrey L, Gerhardt C · Advances in neonatal care : official journal of the National Association of Neonatal Nurses. · 2019
Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review
Loura D, Ferreira A, Romeiro J, Charepe Z · BMC Pediatrics · 2024
How do children’s nurses working in hospices manage emotional labour and professional integrity in long-term relationships with parents?
Brimble M · BMJ Supportive and Palliative Care · 2023
Identifying as a Good Parent: Considering the Communication Theory of Identity for Parents of Children Receiving Palliative Care
Weaver M, Hinds P, Kellas J, Hecht M · Journal of Palliative Medicine · 2021
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Broden E, Hinds P, Werner-Lin A, Curley M · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. · 2022
Impact of compounded drugs on the caregivers' burden of home therapy management in pediatric palliative care: A descriptive study
Burlo F, Zanon D, Passone E, Toniutti M, Ponis G, Barbi E, Taucar V, De Zen L · Palliative medicine · 2023
Impact of disability-based discrimination in healthcare on parents of children with medical complexity.
Ames S, Delaney R, Delgado-Corcoran C, Houtrow A, Alvey J, Watt M, Murphy N · Developmental medicine and child neurology · 2024
Impact of parental socioeconomic factors on childhood cancer mortality: a population-based registry study
Tolkkinen A, Madanat-Harjuoja L, Taskinen M, Rantanen M, Malila N, Pitkaniemi J · Acta Oncologica · 2018
Implementing music therapy in a Norwegian neonatal intensive care unit
Janner C, Gaden T, Nakstad B, Solevåg A · Nursing Children and Young People · 2021
Improvement and implementation of a national individual care plan in paediatric palliative care: a study protocol
Joren C, Kars M, Kremer L, Rippen H, Verhagen A, Aris-Meijer J · BMJ Paediatr Open · 2023
Improving communication with parents: the Neonatal Intensive Care Unit Empathy Workshop
Kasat K, Stoffels G, Ellington M · J Perinatol · 2020
Improving neonatal care with the help of veteran resource parents: An overview of current practices
Bourque C, Dahan S, Mantha G, Robson K, Reichherzer M, Janvier A · Semin Fetal Neonatal Med · 2018
Including Goals of Care in Treatment Decisions —Meeting Them Where They  Are Involves Moving.
Linebarger J · JAMA Pediatrics\'a0 · 2023
Incorporating Bereaved Parents as Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care (FR452)
Snaman J, Kaye E, Levine D, Clark L, Wilcox R, Cunningham M, Baker J · Journal of Pain and Symptom Management · 2018
Initiating end-of-life decisions with parents of infants receiving neonatal intensive care
Shaw C, Connabeer K, Drew P, Gallagher K, Aladangady N, Marlow N · Patient Education and Counseling · 2020
Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review
van Kempen M, Kochen E, Kars M · Acta Paediatr · 2022
‘It is up to me because I gave him this life’ How the awareness of being permanently and unconditionally responsible shapes the experience of chronic sorrow in parents of disabled children
Raap E, Weille K, Dedding C · Psychology & Health · 2025
It's about living a normal life: parents' quality of life when their child has a life-threatening or life-limiting condition - a qualitative study
Kittelsen T, Lorentsen V, Castor C, Lee A, Kvarme L, Winger A · BMC Palliat Care · 2024
"It scares me to know that we might not have been there!": a qualitative study into the experiences of parents of seriously ill children participating in ethical case discussions
Forde R, Linja T · BMC Med Ethics · 2015
“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J · Journal of Pain and Symptom Management · 2023
Keeping all options open: Parents' approaches to advance care planning
Beecham E, Oostendorp L, Crocker J, Kelly P, Dinsdale A, Hemsley J, Russell J, Jones L, Bluebond-Langner M · Health Expect · 2016
Keeping Hope Possible Toolkit: The Development and Evaluation of a Psychosocial Intervention for Parents of Infants, Children and Adolescents with Life Limiting and Life Threatening Illnesses
Bally J, Burles M, Spurr S, Holtslander L, Hodgson-Viden H, Sinha R, Zimmer M · Children (Basel) · 2021
Lessons Learned in Implementing Youth and Parent Participatory Action Research in a School-Based Intervention
Wilhelm A, Pergament S, Cavin A, Bates N, Hang M, Ortega L, Bigelow M, Allen M · Prog Community Health Partnersh · 2021
Let My Child Decide: Qualitative Interview Study With Mothers and Fathers Continuing Pregnancy After a Severe Life-Limiting Diagnosis of their Unborn Child
Hein K, Schramm A, Flaig F, Rabenhorst D, Domenico Borasio G, Führer M · Journal of Pain and Symptom Management · 2018
Life after Loss: Parent Bereavement and Coping Experiences after Infant Death in the Neonatal Intensive Care Unit
Currie E, Christian B, Hinds P, Perna S, Robinson C, Day S, Bakitas M, Meneses K · Death Studies · 2018
Living through liminality? Situating the transitional experience of parents of children with mucopolysaccharidoses
Somanadhan S, Brinkley A, Larkin P · Scandinavian journal of caring sciences. · 2021
Living With Loss: Study Protocol for a Randomized Controlled Trial Evaluating an Internet-Based Perinatal Bereavement Program for Parents Following Stillbirth and Neonatal Death
Loughnan S, Boyle F, Ellwood D, Crocker S, Lancaster A, Astell C, Dean J, Horey D, Callander E, Jackson C, Shand A, Flenady V · Trials · 2022
Long-term nurse-parent relationships in paediatric palliative care: a narrative literature review
Brimble M, Anstey S, Davies J · International journal of palliative nursing · 2019
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
Bronsema A, Theißen T, Oechsle K, Wikert J, Escherich G, Rutkowski S, Bokemeyer C, Ullrich A · BMC Palliat Care · 2022
“Looking for answers”: Parent experiences of perinatal autopsy
Côté-Arsenault D, Hanson K, Hawsawi S, Besmer S · Death Studies · 2022
'Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition
Price J, Hurley F, Kiernan G · Journal of Child Health Care · 2024
Missing life stories. The narratives of palliative patients, parents and physicians in paediatric oncology
De Clercq E, Elger B, Wangmo T · Eur J Cancer Care (Engl) · 2017
National Children's Hospitals Bereavement Network standards for supporting families following the death of a child
Edwards F · Nursing children and young people. · 2020
Navigating the landscape of paediatric haematological malignancies: a qualitative exploration of caregivers' experiences and palliative care integration in Pakistan
Shariq S, Sultan A, Bukhari S, Zehra N, Fadoo Z, Zaheer H, Resham S · BMC palliative care · 2026
Navigating Time-Critical Decisions in Pediatric Critical Care: A Proactive Communication Guide for Cultivating Prognostic Awareness
Ting J, Snaman J, Sinha A, Puccetti D, Decourcey D, Moynihan K · Journal of Palliative Medicine · 2025
Network analysis of prolonged grief disorder and anxiety symptoms among bereaved Chinese parents who lost their only child
Xiong J, Chen Z, Ma H, Ma R, Xu T, Zhou B, Wang Y · Death Studies · 2026
Nursing interventions for perinatal bereavement care in neonatal intensive care units: A scoping review
Paraiso Pueyo E, Gonzalez Alonso A, Botigue T, Masot O, Escobar-Bravo M, Lavedan Santamaria A · International nursing review · 2021
'Of course you crash' Parenting a young child with neurodevelopmental difficulties.
Faldt A, Fangstrom K · Research in developmental disabilities · 2024
One Size Doesn't Fit All in Early Pediatric Oncology Bereavement Support
Helton G, Beight L, Morris S, Wolfe J, Snaman J · Journal of pain and symptom management · 2022
Palliative Care in Duchenne Muscular Dystrophy: A Study on Parents' Understanding
Sadasivan A, Warrier M, Polavarapu K, Preethish-Kumar V, Nair M, Keerthipriya M, Vengalil S, Sagar J, Kishore T, Nalini A, Thomas P · Indian J Palliat Care · 2021
Parental bereavement - impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review
Vig P, Lim J, Lee R, Huang H, Tan X, Lim W, Lim M, Lee A, Chiam M, Lim C, Baral V, Krishna L · BMC Palliat Care · 2021
Parental Decision-Making for Children With Medical Complexity: An Integrated Literature Review
Jonas D, Scanlon C, Bogetz J · J Pain Symptom Manage · 2021
Parental distress and desire for information regarding long-term implications of pediatric cancer treatment
Greenzang K, Cronin A, Kang T, Mack J · Cancer · 2018
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
Verberne L, Kars M, Schouten-van Meeteren A, van den Bergh E, Bosman D, Colenbrander D, Grootenhuis M, van Delden J · European Journal of Pediatrics. · 2019
Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis
He S, Shen K, Huang B, Zhang J · BMC palliative care · 2026
Parental knowledge and opinions on palliative care for children
Zawistowski C, Black C, Spruill T, Granowetter L · Pediatrics · 2018
Parental knowledge and views regarding palliative care for children with cancer in Greece
Mavrougiannou A, Evagelou E, Vlachou E, Baka M, Polychronopoulou S, Govina O, Petsios K, Dousis E · Nosileftiki · 2023
Parental Perceptions of Hospital-Based Bereavement Support Following a Child's Death from Cancer: Room for Improvement
Helton G, Morris S, Dole O, Wolfe J, Snaman J · J Pain Symptom Manage · 2020
Parental Perceptions of the Impact of a Child’s Complex Chronic Condition: A Validation Study of the Impact on Family Scale
Alves S, Braz A, Graça L, Fontaine A · International Journal of Environmental Research and Public Health · 2024
Parental Personal Sense of Duty as a Foundation of Pediatric Medical Decision-making
Feudtner C, Schall T, Hill D · Pediatrics · 2018
Parental perspectives on the clinician's approach to serious illness communication: A qualitative study
Mills N, Chapman M, Sutherland I, Gillam L, Collins A · Palliat Support Care · 2023
Parental support needs during pediatric resuscitation: A systematic review
Ghavi A, Hassankhani H, Powers K, Arshadi-Bostanabad M, Namdar-Areshtanab H, Heidarzadeh M · International Emergency Nursing · 2022
Parental Use of Religion and Spirituality in Medical Decision-Making
Malcolm H, Desjardins C, Ferrara B, Kitamura E, Mueller M, Betz J, Ragsdale J, Grossoehme D · Journal of Health Care Chaplaincy · 2019
Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high-income countries
Boyle F, Horey D, Siassakos D, Burden C, Bakhbakhi D, Silver R, Flenady V · Bjog · 2021
Parent-led strategies supporting personal well-being when caring for a child with a life-limiting condition: A scoping review
Oakley S, Dunbar H, de Vries K · J Child Health Care · 2021
Parent moral distress in serious pediatric illness: A dimensional analysis
Mooney-Doyle K, Ulrich C · Nurs Ethics · 2020
Parent Perceptions of Infant Symptoms and Suffering and Associations With Distress Among Bereaved Parents in the NICU
Clark O, Fortney C, Dunnells Z, Gerhardt C, Baughcum A · Journal of Pain and Symptom Management · 2021
Parent Perspective and Response to Challenges and Priorities for Pediatric Palliative Care Research
Lord B · Journal of Pain and Symptom Management · 2019
Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study
Leary J, Krcmar R, Yoon G, Freund K, LeClair A · Hosp Pediatr · 2020
Parent perspectives on education to support hospital discharge for children with invasive mechanical ventilation.
High M, Lynch E, Sobotka S · Journal of pediatric nursing · 2024
Parents’ advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups
Hjorth E, Kreicbergs U, Sejersen T, Werlauff U, Rahbek J, Lövgren M · Journal of Child Health Care · 2021
Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children with Severe Neurological Impairment During Decision-Making
Bogetz J, Trowbridge A, Lewis H, Shipman K, Jonas D, Hauer J, Rosenberg A · J Pain Symptom Manage · 2021
Parents as Advocates for Pediatric Palliative Care
Lord B, Morrison W, Goldstein R, Feudtner C · Pediatrics · 2021
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Guz E, Brodowicz-Król M, Kulbaka E, Bartoszuk-Popko M, Lutomski P · Annals of Agricultural and Environmental Medicine · 2020
Parents' decision-making for their foetus or neonate with a severe congenital heart defect
Delaney R, Pinto N, Ozanne E, Brown H, Stark L, Watt M, Karasawa M, Patel A, Donofrio M, Steltzer M, Miller S, Zickmund S, Fagerlin A · Cardiol Young · 2022
Parents' descriptions of labouring with an antepartum fetal death: Findings from the Birthing in Grief study
Warland J, Pollock D, Collier A, Horey D, Boyle F · Australian & New Zealand Journal of Obstetrics & Gynaecology · 2024
Parents’ experiences during and after their child’s stay in the paediatric intensive care unit – A qualitative interview study
Jakobsen L, Kristensen K, Laerkner E · Intensive and Critical Care Nursing · 2021
Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries
Horey D, Boyle F, Cassidy J, Cassidy P, Erwich J, Gold K, Gross M, Heazell A, Leisher S, Murphy M, Ravaldi C, Siassakos D, Storey C, Vannacci A, Wojcieszek A, Flenady V · Birth (Berkeley, Calif.) · 2021
Parents' experiences of requests for organ and tissue donation: The value of asking
Darlington A, Long-Sutehall T, Randall D, Wakefield C, Robinson V, Brierley J · Archives of Disease in Childhood. · 2019
Parents, Grandparents and Siblings: A Pilot Psychological Intervention Study in Pediatric Palliative Care
Nogueira A, Ribeiro M · Contemporary Family Therapy: An International Journal · 2024
Parents' hope in perinatal and neonatal palliative care: a scoping review
Silveira A, Wernet M, Franco L, Dias P, Charepe Z · BMC Palliative Care · 2023
Parents' Perception of Their Relationship Following the Loss of a Child
Dyregrov A, Dyregrov K · Omega: Journal of Death & Dying · 2017
Parents' Perspectives on Hospital Care for Children and Adolescents with Life-Limiting Conditions: A Grounded Theory Analysis of Narrative Interviews
Engler J, Gruber D, Engler F, Hach M, Seipp H, Kuss K, Gerlach F, Ulrich L, Erler A · Journal of Palliative Medicine · 2019
Parents providing palliative care for children with cancer
Rassam R, Huijer H, Noureddine S, Smith E, Wolfe J, Fares S, Abboud M · Ecancermedicalscience · 2024
Parents' views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study
Kruithof K, Olsman E, Nieuwenhuijse A, Willems D · Res Dev Disabil · 2022
Parents' views on what facilitated or complicated their grief after losing a child to cancer
Pohlkamp L, Sveen J, Kreicbergs U, Lövgren M · Palliat Support Care · 2020
Participation in a clinical trial for a child with cancer is burdensome for a minority of children
van der Geest I, van den Heuvel-Eibrink M, Zwaan C, Pieters R, Passchier J, Darlington A · Acta Paediatrica, International Journal of Paediatrics · 2016
Pediatric Goals of Care Communication: A Socioecological Model to Guide Conversations
Grier K, Koch A, Docherty S · Journal of Hospice & Palliative Nursing · 2023
Pediatric palliative care in children and young people with non-oncological diseases: a scoping review
Maffeo M, Sartorio I, Fiani M, Nicolosi B, Ciofi D · infermieristica journal · 2024
Pediatric palliative care parents' distress, financial difficulty, and child symptoms
Boyden J, Hill D, Nye R, Bona K, Johnston E, Hinds P, Friebert S, Kang T, Hays R, Hall M, Wolfe J, Feudtner C · J Pain Symptom Manage · 2021
Perceptible Signs of End of Life in Pediatric Intensive Care Patients
Pierron C, Levy M, Mattioni V, Poncelet G, Le Bourgeois F · J Palliat Med · 2022
Perceptions of the parents of deceased children and of healthcare providers about end-of-life communication and breaking bad news at a tertiary care public hospital in India: A qualitative exploratory study
Das M, Arora N, Chellani H, Debata P, Meena K, Rasaily R, Kaur G, Malik P, Joshi S, Kumari M · PLoS One · 2021
Perinatal palliative care: a dedicated care pathway
Rusalen F, Cavicchiolo M, Lago P, Salvadori S, Benini F · BMJ Support Palliat Care · 2021
Perinatal palliative care after a stillbirth - Midwives experiences of using Cubitus baby
Radestad I, Listermar K · BMC Pregnancy and Childbirth · 2017
Perinatal Palliative Care: Cultural, Spiritual, and Religious Considerations for Parents-What Clinicians Need to Know
Kain V · Front Pediatr · 2021
Pilot Evaluation of a Palliative and End-of-Life Communication Intervention for Parents of Children With a Brain Tumor
Hendricks-Ferguson V, Pradhan K, Shih C, Gauvain K, Kane J, Liu J, Haase J · J Pediatr Oncol Nurs · 2016
Play in Children With Life-Threatening and Life-Limiting Conditions: A Scoping Review
Jasem Z, Darlington A, Lambrick D, Grisbrooke J, Randall D · American Journal of Occupational Therapy · 2020
Preferences and willingness to pay for palliative care among parents of children with cancer: a Discrete Choice Experiment
Jiao C, Kou C, Bai W, Gao L, Liang Z, Chen J, Yu G, Guo X, Li W · European Journal of Oncology Nursing · 2026
Problems and hopes perceived by mothers, fathers and physicians of children receiving palliative care
Hill D, Miller V, Hexem K, Carroll K, Faerber J, Kang T, Feudtner C · Health expectations : an international journal of public participation in health care and health policy · 1052
Professional bereavement photography for perinatal loss: A mixed-methods study
Vivekananda K, McDowell C, Knipe K, McMaster C, Rahimi F, Richards M, Salvini S · Death Studies · 2024
Prolonged Grief, Autobiographical Memory, and Its Interaction With Value Orientations in China and Switzerland
Xiu D, Maercker A, Yang Y, Jia X · Journal of Cross Cultural Psychology · 1369
Prolonged Grief Disorder Symptoms and Posttraumatic Growth Among Chinese Shidu Parents: A Latent Transition Analysis
Xu X, Wen J, Zhou N, Zou X, Shen X, Wang J, Smith K · Psychological Trauma: Theory, Research, Practice & Policy · 2026
Prolonged Grief, Posttraumatic Stress, and Depression Among Bereaved Parents: Prevalence and Response to an Intervention Program
Baumann I, Kunzel J, Goldbeck L, Tutus D, Niemitz M · Omega (Westport) · 2020
Protective and risk factors in the grieving process among cancer-bereaved
Rasouli O, Øglænd I, Reinfjell T, Eilertsen M · Death Studies · 2023
Psychological distress and social support among community paediatric palliative care programme caregivers: longitudinal analysis
Wong E, Au-Doung P, Chu Y, Wong S, Li C, Cheung Y · BMJ supportive & palliative care · 2023
Psychosocial factors affecting the quality of life of parents who have children with home mechanical ventilation
Ozcan G, Zirek F, Tekin M, Bayav S, Bakirarar B, Duman B, Cobanoglu N · Pediatr Pulmonol · 2024
Reflecting on 'Hannah's Choice': Using the Ethics of Care to Justify Child Participation in End of Life Decision-Making
Moreton K · Med Law Rev · 2020
Relationships and Resources Supporting Children With Serious Illness and Their Parents
Bogetz J, Revette A, Partin L, DeCourcey D · Hosp Pediatr · 2022
Respite services for children with life-limiting conditions and their families in Ireland
Hill K · Nursing Children and Young People · 2016
Role of Sense of Coherence in Mediating the Relationship Between End-of-Life Caregiving Burden and Bereavement Depressive-Symptom Trajectory
Wen F, Chou W, Hou M, Su P, Shen W, Chen J, Chang W, Tang S · The journal of nursing research : JNR · 2026
Ruminative thoughts and sleep disturbances among mothers of children in the palliative care unit: A phenomenological study
Yayan E, Zengin M, Suna Dag Y, Kenc I · Journal of pediatric nursing · 2026
Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn
Thornton R, Nicholson P, Harms L · J Obstet Gynecol Neonatal Nurs · 2019
Shared decision-making in pediatric palliative care
Stroh J, Carter B · Current Problems in Pediatric and Adolescent Health Care · 2023
Shifting Focus in Pediatric Advance Care Planning From Advance Directives to Family Engagement
Siden H, Chavoshi N · J Pain Symptom Manage · 2016
Silent Mourning: Infant Death and Caring for Iranian Parents Under the Influence of Religious and Socio-cultural Factors
Fadaei Z, Mirlashari J, Nikbakht Nasrabadi A, Ghorbani F · Journal of religion and health · 2023
Silent wounds: violence and adverse experiences in parents caring for terminally ill children in palliative care
Orozco J, Mendoza M, Martinez M, Pelaez-Ballestas I, de Lara A, Pedraza M · BMC palliative care · 2026
Sleep Quality of Children and Caregivers in Pediatric Palliative Care: A Single-Center Cross-Sectional Study
Harputluoglu N, Onur D, Cubukcu D, Celik T, Unalp A · Journal of Palliative Care · 2026
Social support and prolonged grief disorder symptoms in parents who lost their only child from urban and rural China
Song C, Fu Z, Li W, Yu Y, Ma J, Li X, Wang J · Psychological Trauma: Theory, Research, Practice, and Policy · 2023
Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences
Whittingham K, Wee D, Sanders M, Boyd R · Disability and Rehabilitation · 2013
Spiritual Care: Minimizing the Vulnerability of Parents Whose Children With Cancer Face the End of Life
Petersen C · Journal of Pediatric Oncology Nursing · 2019
'Starting out in haziness': Parental experiences surrounding the diagnosis of their child's non-malignant life-limiting condition in Ireland
Hurley F, Kiernan G, Price J · J Pediatr Nurs · 2021
Study protocol to develop bereavement care package for the Indian healthcare system to support parents of stillborn babies
Mukherjee R · BMC Pregnancy and Childbirth · 2026
Sudden Unexpected Death in Childhood in Greater Manchester (United Kingdom): A Five-Year Review (2015–2020)
Quinn S, Dierckx E, Long T, Rowland A · Comprehensive Child & Adolescent Nursing · 2022
Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning
Fahner J, Rietjens J, van der Heide A, van Delden J, Kars M · Acta Paediatr · 2020
Techniques to Communicate Better With Parents During End-of-Life Scenarios in Neonatology
Lizotte M, Barrington K, Sultan S, Pennaforte T, Moussa A, Lachance C, Sureau M, Zao Y, Janvier A · Pediatrics · 2020
The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility
van Driessche A, Gilissen J, De Vleminck A, Kars M, Fahner J, van der Werff Ten Bosch J, Deliens L, Cohen J, Beernaert K · BMC Pediatr · 2022
The changing nature of relationships between parents and healthcare providers when a child dies in the paediatric intensive care unit
Butler A, Hall H, Copnell B · J Adv Nurs · 2017
The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
Cai S, Guo Q, Lin J, Deng C, Li H, Zhou X · BMC Palliat Care · 2023
The effect of an educational intervention for caregivers of children receiving palliative care: A quasi-experimental study
Kenc I, Yayan E, Zengin M · Journal of pediatric nursing · 2026
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Schmidt P, Hartenstein-Pinter A, Hasan C, Stening K, Zernikow B, Wager J · Int J Palliat Nurs · 2021
The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer
Dos Santos M, Szylit R, Deatrick J, Mooney-Doyle K, Wiegand D · Journal of family nursing · 2020
The experience of parents living with a child with cancer at the end of life
Wang S, Wu L, Yang Y, Sheen J · Eur J Cancer Care (Engl) · 2019
The family's experience of the child and/or teenager in palliative care: fluctuating between hope and hopelessness in a world changed by losses
Misko M, dos Santos M, Ichikawa C, de Lima R, Bousso R · Revista Latino-Americana de Enfermagem · 2015
The invisible woman by Laura Macgregor
CBC · 2025
The lived experience of parents of children with mucopolysaccharidosis (MPS)
Somanadhan S, Larkin P · Molecular Genetics and Metabolism · 2017
The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review
Hartley J, Bluebond-Langner M, Candy B, Downie J, Henderson E · Pediatrics · 2021
The profile and support needs of parents in paediatric palliative care: comparing cancer and non-cancer groups
Aoun S, Gill F, Phillips M, Momber S, Cuddeford L, Deleuil R, Stegmann R, Howting D, Lyon M · Palliat Care Soc Pract · 2020
The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study
Friedel M, Aujoulat I, Brichard B, Fonteyne C, Renard M, Degryse J · Children (Basel) · 2023
The role of nurses in parents' help-seeking and support-seeking behaviors in pediatric palliative care: A qualitative study
Kulcu D, Kurekci C, Yaman Z, Altintas M · Journal of Pediatric Nursing · 2026
The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J · Journal of Pediatric Nursing · 2023
The spiritual needs of seriously ill children and their families
Nursing Children and Young People · 2017
The suffering in silence of older parents whose child died of cancer: A qualitative study
Van Humbeeck L, Dillen L, Piers R, Grypdonck M, Van Den Noortgate N · Crit Care Med. · 2016
The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review
Gill F, Hashem Z, Stegmann R, Aoun S · Palliat Med · 2020
Treatment Decision Making and Regret in Parents of Children With Incurable Cancer
Ye Z, Cheng M, Zhang X, Tang Y, Liang J, Sun Z, Liang M, Yu Y · Cancer Nursing · 2021
Uncertainty and Perinatal Post‐Traumatic Stress Disorder in the Neonatal Intensive Care Unit
Malin K, Johnson T, Brown R, Leuthner J, Malnory M, White‐Traut R, Rholl E, Lagatta J · Research in Nursing & Health · 2022
Understanding the Bereavement Process: Voices of Bereaved Parents
Calderwood K, Alberton A · Illness, Crisis & Loss · 2021
Unheard Voices and Unmet Needs: Psychological and Counselling Needs of Parents of Children with Life-limiting Neurological Disorder-insight from a Qualitative Study
Venugopal A, Padmja A · Indian Journal of Psychiatric Nursing · 2026
Use of subcutaneous fluids in palliative care with children: a case study
Smith A, Jane Brimble M · Nurs Child Young People · 2020
Using Online Health Communication to Manage Chronic Sorrow: Mothers of Children with Rare Diseases Speak
Glenn A · Journal of Pediatric Nursing · 2015
Values clarification: Eliciting the values that inform and influence parents' treatment decisions for periviable birth
Tucker Edmonds B, Hoffman S, Laitano T, Bhamidipalli S, Jeffries E, Fadel W, Kavanaugh K · Paediatr Perinat Epidemiol · 2020
Visualizing social support in home pediatric palliative care using network maps
Lindemann D, Borasio G, Fuhrer M, Wasner M · Palliat Med · 2019
Welcoming expertise: Bereaved parents' perceptions of the parent-healthcare provider relationship when a critically ill child is admitted to the paediatric intensive care unit
Butler A, Copnell B, Hall H · Australian Critical Care · 2019
"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition
Kittelsen T, Castor C, Lee A, Kvarme L, Winger A · Int J Qual Stud Health Well-being · 2024
What are the limits of parental authority? Pediatric bioethics and the law
Johnson L, Steuer K, Campbell A, Baker J · Journal of Pain and Symptom Management · 2016
What Does 'Good' Palliative Care Look Like for Children and Young People? A Qualitative Study of Parents' Experiences and Perspectives
Fields D, Fraser L, Taylor J, Hackett J · Palliat Med · 2023
What information do parents need when facing end-of-life decisions for their child? A meta-synthesis of parental feedback
Xafis V, Wilkinson D, Sullivan J · BMC palliative care · 2015
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories
Kochen E, Jenken F, Boelen P, Deben L, Fahner J, van den Hoogen A, Teunissen S, Geleijns K, Kars M · BMC Palliat Care · 2020
Worth a Try? Describing the Experiences of Families during the Course of Care in the Neonatal Intensive Care Unit When the Prognosis is Poor
Arnolds M, Xu L, Hughes P, McCoy J, Meadow W · J Pediatr · 2018
"You Can Carry the Torch Now:" A Qualitative Analysis of Parents' Experiences Caring for a Child with Trisomy 13 or 18
Arthur J, Gupta D, Arthur J · HEC Forum · 2017
"You're on a Rollercoaster, Just Hold On": The Lived Experience of the Dyad Following a Fetal Death
McDonough M, Leone-Sheehan D · Research & Theory for Nursing Practice · 2023

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