Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–25 of 236 publications
Emotional dysregulation as a moderating factor on the relationship between the severity of anxiety and depressive symptoms and high caregiving intensity among mothers caring for children diagnosed with life-limiting conditions
OBJECTIVE: Providing care for children with life-limiting conditions(LLCs) is an emotionally challenging experience that often exposes caregivers, particularly mothers, to considerable risk of psychological distress. The purpose of this study was to examine th…
Enhancing the Resilience of Bereaved Parents: Practical Experiences and Needs Perceived by Healthcare Professionals
Aims: To explore the practical experiences and perceived needs of healthcare professionals in fostering resilience among bereaved parents. Design: A qualitative descriptive study was conducted. Methods: Twenty‐seven healthcare professionals were recruited from…
Explaining the concepts of family vigilance theory in the context of anticipatory grief in mothers of children with life-threatening illnesse: A directed qualitative content analysis
Mothers of chronically ill children encounter distinct challenges throughout their child's illness journey. To identify predictive behaviors of anticipatory grief based on participants' perceptions within the cultural context of Iranian society. This qualitati…
Network analysis of prolonged grief disorder and anxiety symptoms among bereaved Chinese parents who lost their only child
Parents who have lost their only child and cannot or do not wish to adopt or have another child are labeled Shidu parents. Network analysis is used to examine symptom-level interactions in mental disorders. This study aimed to investigate the comorbidity netwo…
Preferences and willingness to pay for palliative care among parents of children with cancer: a Discrete Choice Experiment
Purpose To quantify the preference of parents of children with cancer for palliative care (PC) in China to provide references for the development of service programs. Methods A discrete choice experiment (DCE) was used to explore preferences for PC among paren…
Prolonged Grief Disorder Symptoms and Posttraumatic Growth Among Chinese Shidu Parents: A Latent Transition Analysis
Objective: Chinese shidu parents (bereaved parents who have lost the only child) may experience prolonged grief disorder, as well as posttraumatic growth (PTG). This study aimed to examine their latent classes and transition patterns of prolonged grief disorde…
Ruminative thoughts and sleep disturbances among mothers of children in the palliative care unit: A phenomenological study
BACKGROUND: Recent studies have indicated that mothers whose children receive palliative care frequently engage in repetitive negative thought patterns, or ruminative thinking, when confronted with intense stressors. AIM: The present study was aimed to explore…
Silent wounds: violence and adverse experiences in parents caring for terminally ill children in palliative care
BACKGROUND: Primary caregivers of paediatric palliative care patients-mostly women-are disproportionately exposed to adverse events and violence, both directly related to the experience of disease and to other stressful life events. These experiences have been…
Sleep Quality of Children and Caregivers in Pediatric Palliative Care: A Single-Center Cross-Sectional Study
Objectives Having a child with a life-limiting or life-threatening illness affects the lives of family members. Sleep disorders are among the most common symptoms in pediatric palliative care, but strategies for symptom management associated with sleep disorde…
Study protocol to develop bereavement care package for the Indian healthcare system to support parents of stillborn babies
Background: India is estimated to have the largest number of stillbirths globally. Although the health system in India has made significant strides in maternal and newborn care, the bereavement needs of the parents’ experiencing stillbirth have not received at…
Navigating Time-Critical Decisions in Pediatric Critical Care: A Proactive Communication Guide for Cultivating Prognostic Awareness
Background: Clinical teams face many barriers to communicating with the parents/caregivers of patients experiencing an acute decline. Outside of these time-critical situations, clinicians often can iteratively assess and cultivate prognostic awareness of the p…
The invisible woman by Laura Macgregor
Article about Ont.-based writer has won the 2025 CBC Nonfiction Prize. Her story The Invisible Woman is at the bottom of the article.
Bereaved Parents' Change in Mental Health during a Dyadic Diary
Recent years have seen a shift in the number of bereavement studies examining daily grief processes, but our knowledge is still limited due to the lack of dyadic research. In this paper, we explored the change in mental health in the course of a seven-day dyad…
Bereaved parents’ perceptions of their cancer-ill child’s last month with or without palliative care - a nationwide study
Background: Cancer is still the leading cause of non-accidental death in childhood, although the majority of children diagnosed in high-income countries survive their illness. In accordance with international standards, equal and early access to palliative car…
Caregiving and Work
We're doing something a little bit different! We're taking a shot at making video along with the podcast! You can watch this episode on our YouTube channel, or as always, you can listen in your favorite podcast app.
This episode has two parts. We're first goi…
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