Published literature
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative studyAlarjeh G, Boufkhed S, Alrjoub W, Guo P, Yurdusen S, Ahmed F, Abdal-Rahman M, Alajarmeh S, Alnassan A, Al-Awady S, Kutluk T, Harding R, Shamieh O · Frontiers in Oncology · 2023
Exploring challenges and opportunities in paediatric bereavement care: a qualitative study from a tertiary care hospital in PakistanHussain H, Altaf S, Khalid A, Hashmi S, Rehman N, Bharuchi V, Rahman F, Shafi A, Syed A, Fadoo Z, Mushtaq N, Resham S · BMC palliative care · 2026
Exploring Pediatric Oncology Care Practices Influencing the Relationships Among Children, Caregivers, and Health Care Providers: A Multi-Institutional Study From PakistanResham S, Altaf S, Ayub F, Bhatti A, Syed A, Iqbal R, Tul Quanita A, Vitória Ramos de Oliveira C, Fadoo Z, Mushtaq N, Imam U, Raza M, Yousafzai A · JCO global oncology · 2025
Intensity of Care at the End-of-Life in Pediatrics: A Single Center Analysis With Implications for Advanced Care Planning in Saudi ArabiaSadler K, Altarifi L, Callaghan S, Khan S, AlGhamdi K, Alayed T, Alhuthil R, Alshehri A, Altassan M, Aldhari M, Hussain H, Baragaa M · The American journal of hospice & palliative care · 2025
Neonatal nurses' perceptions of providing palliative care in neonatal intensive care units in Saudi ArabiaAl-Shehri H, Alotaibi A, Alanazi B, Alshehri A, Alajlan A, Alsulami M, Alshehri R, Alshehri F, Alshammari R, Alrashed K, Alhumaidan R, Al-Ghadeer A, Almutairi A, Alzayed A · Medicine · 2026
Retrieval-Augmented Generation (RAG) AI for End-of-Life Support in Pediatric HCT: Bridging Information Gaps for Patients and Caregivers on Palliative CareSiddiqui K, Al-Musa A, Alsaedi H, Ghemlas I, AlAnazi A, Al-Ahmari A, Ramiz S, Sadler K, Virk T, Ayas M, Khan S · Transplantation and Cellular Therapy · 2026
The first regional interdisciplinary paediatric palliative care (PPC) workshop for the Eastern Mediterranean Region: a groundbreaking collective step for PPC integrationRassam R, Lion R, Cherkaoui S, Hessissen L, Garcia-Quintero X, Najjar L, Noun D, Hanna J, Yamout R, Resham S, Habaiba K, Al-Nassan A, El-Khoury J, Rayala S, Alotaibi Q, Gafer N, Troisi G, Downing J, Rasul S, Jeha S, Abraham M, McNeil M · ecancermedicalscience · 2025
Too vulnerable? Successful practices for conducting research with children and young people who have life-limiting or life-threatening illnessNamisango E, Friedel M, Yurdusen S, Alrjoub W, Braybrook D, Alarjeh G, Roach A, Boufkhed S, Farsides B, Coombes L, Harding R · Palliative medicine · 2025
What matters to children and families facing advanced cancer? Identification of priority outcomes to improve paediatric palliative care in Turkey and JordanBoufkhed S, Yurdusen S, Alarjeh G, Ahmed F, Alrjoob W, Sengelen M, Cemaloglu M, Aydin B, Kutluk T, Shamieh O, Harding R · Palliative Medicine · 2021
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