Published literature
A global call to action for disability inclusion in health researchAnderson A, Martin R, DeCormier Plosky W, Ned L, Swenor B, Bailie J, Mathias K, Maggo J, Omino M, Russell A, Lawson A, Brown A, Bierer B, Shariq S, Mwifadhi M, Deane K, Philip S, Shepherd V, Walsh N, McHugh G · Nature Medicine · 2025
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatmentsFrance E, Uny I, Turley R, Thomson K, Noyes J, Jordan A, Forbat L, Caes L, Silveira Bianchim M · Cochrane Database of Systematic Reviews · 2023
Early Versus Late Pediatric Palliative Care in Oncology: A Systematic Review of Outcomes, Disparities, and Implementation BarriersRezaei F, Salamat F, Vejdani H, Moslemi Najarcolaie F, Gharibi Z, Shirali R, Okhli A, Esmi A, Kordian A · Galen Medical Journal · 2025
Effectiveness of psychological interventions for children eligible for pediatric palliative care: systematic review and meta-analysisAlvarez-Perez Y, Duarte-Diaz A, Rivero-Santana A, Abrante-Luis A, Carreras B, Infante-Ventura D, Ramos-Garcia V, Herrera-Ramos E, Marrero Gomez J, Torres-Castano A, Perestelo-Perez L · BMC pediatrics · 2026
Effectiveness of psychological interventions for parents of children eligible for paediatric palliative care: a systematic review and meta-analysisAlvarez-Perez Y, Duarte-Diaz A, Rivero-Santana A, Abrante-Luis A, Carreras B, Infante-Ventura D, Ramos-Garcia V, Torres-Castano A, Herrera-Ramos E, Marrero Gomez J, Perestelo-Perez L · Frontiers in Psychology · 2026
Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science reviewNicholas Dionne-Odom J, Hooker S, Bekelman D, Ejem D, McGhan G, Kitko L, Str�mberg A, Wells R, Astin M, Metin Z, Mancarella G, Pamboukian S, Evangelista L, Buck H, Bakitas M, Hooker S, Metin Z, Pamboukian S, Buck H · Heart Failure Reviews
Global Experiences of Pediatric Palliative Care Teams During the First 6 Months of the SARS-CoV-2 PandemicMcNeil M, Kaye E, Vedaraju Y, Baker J, DevidasPhD M, Downing J, Graetz D, Ranadive R, Rosenberg A, Wiener L, Weaver M · Journal of Pain and Symptom Management · 2021
Outcomes used to measure the clinical application of neonatal palliative and/or end-of-life care in neonatal settings: A systematic reviewGallagher K, Chant K, Parisi V, Patel M, Dunbar H, Paize F, Bertaud S, Agyepong A, Mancini A, Bluebond-Langner M, Marlow N · Archives of Disease in Childhood: Fetal and Neonatal Edition · 2025
Programs to Support Pediatric to Adult Healthcare Transitions for Youth with Complex Care Needs and their Families: A Scoping ReviewDoucet S, Splane J, Luke A, Asher K, Breneol S, Pidduck J, Grant A, Dionne E, Scott C, Keeping-Burke L, McIsaac J, Gorter J, Curran J · Child: Care, Health and Development
The Bucharest international European Society for Organ Transplantation consensus on paediatric controlled donation after circulatory determination of deathWeiss M, Siebelink M, Cavazzoni E, Figini M, Kazzaz Y, Nadalin S, Nakagawa T, Scales A, Dominguez-Gil B, Oniscu G, Cillo U, Martin D · Transplant International · 2026
The COVID-19 Pandemic: Early Ripple Effects in Pediatric Palliative CareBustamante L, Okhuysen-Cawley R, Downing J, Connor S, Muckaden M, Phillips M, Icaza A, Garzon N, Nakashima Y, Morgan K, Mauser D, Grunauer M · Children (Basel) · 2022
The global need for paediatric palliative care: the evolution of serious health-related suffering in children aged 0-19 years from 1990 to 2023Downing J, Knaul F, Kwete X, Arreola-Ornelas H, Bhakta N, Rosa W, Radbruch L, Ambler J, Connor S, Ding J, Doherty M, Gong R, Hain R, Kiman R, Krakauer E, McNeil M, Mendez-Carniado O, Morais M, Muckaden M, Pastrana T, Phillips M, Tao H, Touchton M, Enciso V, Vila P, Bhadelia A · The Lancet Child and Adolescent Health · 2026
Too vulnerable? Successful practices for conducting research with children and young people who have life-limiting or life-threatening illnessNamisango E, Friedel M, Yurdusen S, Alrjoub W, Braybrook D, Alarjeh G, Roach A, Boufkhed S, Farsides B, Coombes L, Harding R · Palliative medicine · 2025
Treatment Decision Making at Diagnosis for Children Presenting With Advanced Cancer in Low- and Middle-Income CountriesSalek M, Caceres-Serrano A, Canedo J, Fuentes L, Mehler S, Rule A, Zeal J, Rodriguez-Galindo C, Graetz D, Bhakta N, Kaye E, Group C, Baker J, Dolendo M, Figueredo D, Force L, Friedrich P, Geriga F, Gunasekera S, Hunleth J, Kizyma R, Maradiege E, Kim Nguyen H, Nzamu I, Raza M, Rustamova K, Sari N, Wise P · JCO Global Oncology · 2026
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Basics of Grant Proposal Writing external ↗This tutorial is suitable for students and professionals in higher education (especially post-graduate students and early-career academics and librarians) who would like to learn the basics of writing a grant proposal to receive funding for an activity or project.
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Essential Elements of Ethics external ↗This e-Learning resource will guide the development of a dedicated “Ethics section” of the protocol in which these Essential Elements are addressed or cross-referenced to other sections of the protocol.
Ethics Tool Kit external ↗The purpose of this guidance is to encourage protocol authors to address ethical issues in the design of studies, documenting their rationale, in a section of the protocol easily understood by review boards and investigators.
Global Health Research Process Map external ↗Good data management is key to maintaining, processing, analysing and storing high quality data. This course provides an overview and guide to this important element of the research process and is aimed at everyone involved in clinical research.
Introduction to Clinical Research external ↗The course provides an introductory overview aimed at everyone involved in clinical research and focuses on the main areas of why and how clinical research is carried out, the importance of ethics in research, and an outline of the five main clinical study designs.
Introduction to Research Ethics external ↗In this course you will discover, through real-world examples, what ethics means, why it's important, whose responsibility it is, what happens if ethical issues are ignored, and how to be an ethical researcher.
Research Ethics Online Training external ↗Research is a vital ingredient for improved global health, and scientifically sound and ethically appropriate research is especially important in resource-poor settings where the need for locally applicable research findings is so great.
Search Strategies external ↗This tutorial is designed to help anyone looking for information online to develop skills in defining a search strategy and conducting searches efficiently.
The Research Question external ↗his short course is aimed at all those carrying out clinical research and explores the main factors which affect and influence the development of a valid research question.
The Study Protocol external ↗This course is designed to guide researchers through the basic stages and concepts surrounding the creation of a protocol.
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