Published literature
A call for increased paediatric palliative care research: Identifying barriersBeecham E, Hudson B, Oostendorp L, Candy B, Jones L, Vickerstaff V, Lakhanpaul M, Stone P, Chambers L, Hall D, Hall K, Ganeshamoorthy T, Comac M, Bluebond-Langner M · Palliative Medicine · 2016
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, BelgiumFriedel M, Gilson A, Bouckenaere D, Brichard B, Fonteyne C, Wojcik T, De Clercq E, Guillet A, Mahboub A, Lahaye M, Aujoulat I · BMJ Paediatrics Open · 2019
A randomised trial of early palliative care for maternal stress in infants prenatally diagnosed with single-ventricle heart diseaseHancock H, Pituch K, Uzark K, Bhat P, Fifer C, Silveira M, Yu S, Welch S, Donohue J, Lowery R, Aiyagari R · Cardiol Young · 2018
Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot EvaluationRudolf I, Pieper K, Nolte H, Junge S, Dopfer C, Sauer-Heilborn A, Ringshausen F, Tummler B, von Jan U, Albrecht U, Fuge J, Hansen G, Dittrich A · JMIR mHealth and uHealth · 2019
Assessment of the Implementation of Pharmacogenomic Testing in a Pediatric Tertiary Care SettingCohn I, Manshaei R, Liston E, Okello J, Khan R, Curtis M, Krupski A, Jobling R, Kalbfleisch K, Paton T, Reuter M, Hayeems R, Verstegen R, Goldman A, Kim R, Ito S · JAMA Network Open · 2021
Cannabis-based products for pediatric epilepsy: An updated systematic reviewElliott J, DeJean D, Clifford T, Coyle D, Potter B, Skidmore B, Alexander C, Repetski A, Shukla V, McCoy B, Wells G · Seizure · 2019
Caregiver Values and Preferences Related to Surgical Decision-making for Children with Medical ComplexityLin J, Devereaux T, Simon T, Kaphingst K, Zhu A, Narayanan U, Berry A, Eppich K, Stoddard G, Smith J, Andras L, Heflin J, Keenan H, Asch S, Fagerlin A · The Journal of pediatrics · 2024
Caring for Critically Ill Children With Suspected or Proven Coronavirus Disease 2019 Infection: Recommendations by the Scientific Sections' Collaborative of the European Society of Pediatric and Neonatal Intensive CareRimensberger P, Kneyber M, Deep A, Bansal M, Hoskote A, Javouhey E, Jourdain G, Latten L, MacLaren G, Morin L, Pons-Odena M, Ricci Z, Singh Y, Schlapbach L, Scholefield B, Terheggen U, Tissières P, Tume L, Verbruggen S, Brierley J · Pediatr Crit Care Med · 2021
Characteristics and outcomes of coronavirus disease 2019 (COVID-19) in critically ill pediatric patients admitted to the intensive care unit: A multicenter retrospective cohort studyAlfraij A, Bin Alamir A, Al-Otaibi A, Alsharrah D, Aldaithan A, Kamel A, Almutairi M, Alshammari S, Almazyad M, Macarambon J, Alghounaim M · J Infect Public Health · 2020
CHILD-BRIGHT READYorNot Brain-Based Disabilities Trial: protocol of a randomised controlled trial (RCT) investigating the effectiveness of a patient-facing e-health intervention designed to enhance healthcare transition readiness in youthGorter J, Amaria K, Kovacs A, Rozenblum R, Thabane L, Galuppi B, Nguyen L, Strohm S, Mahlberg N, Ley A, Marelli A · BMJ Open · 2021
Children's visits to the paediatric intensive care unit from the nurses' experienceGonzález-Gil M, Alcolea-Cosín M, Pérez-García S, Luna-Castaño P, Torrent-Vela S, Piqueras-Rodríguez P, Gil-Domínguez S, Alonso-Lloret F, Belda-Holfheinz S, Sánchez-Díaz J, Espinosa-Bayal M · Enferm Intensiva (Engl Ed) · 2021
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needsAmarri S, Ottaviani A, Campagna A, De Panfilis L, Cortina I, Sani E, Bertolini P, Bianchi E, Caldarelli V, Poggi G, Riva M, Locatelli C, Melchionda F, Mondardini M, Soffritti S, Mazzoni E, Serra L, Gulmini L, Bertelli S, Fornaro M, Magistà A, Gabriele C, on behalf of Emilia Romagna paediatric palliative care working group · Italian Journal of Pediatrics · 2021
Community Hospice Nurses' Perspectives on Needs, Preferences, and Challenges Related to Caring for Children With Serious IllnessPorter A, Zalud K, Applegarth J, Woods C, Gattas M, Rutt E, Williams K, Baker J, Kaye E · JAMA network open · 2021
COVID-19: Impact on Pediatric Palliative CareScott H, Coombes L, Braybrook D, Roach A, Hardardottir D, Bristowe K, Ellis-Smith C, Higginson I, Gao W, Bluebond-Langner M, Farsides B, Murtagh F, Fraser L, Harding R · Journal of Pain and Symptom Management. · 2022
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort studyKorzeniewska-Eksterowicz A, Brzezinska O, Dryja U, Matczak D, Sopilnyak A, Szuszkiewicz E, Przysło Ł, Szmyd K, Jabłońska K, Krych P, Wojtków-Zielińska A, Wąsińska E, Niedźwiecki M · Palliative Medicine · 2024
Death and Dying in Hospitalized Pediatric Patients: A Prospective Multicenter, Multinational StudyNicoll J, Dryden-Palmer K, Frndova H, Gottesman R, Gray M, Hunt E, Hutchison J, Joffe A, Lacroix J, Middaugh K, Nadkarni V, Szadkowski L, Tomlinson G, Wensley D, Parshuram C, Farrell C · J Palliat Med · 2021
Decision-making regarding place of end-of-life care for children with life-limiting and life-threatening conditions: a systematic integrative reviewCrowe A, Hurley F, Kiernan G, Kerr H, Corcoran Y, Price J, Reid J, Courtney E, McConnell T, McNeilly P, Lambert V · BMC palliative care · 2025
Definition and Assessment of Paediatric Breakthrough Pain: A Qualitative Interview StudyDawson E, Greenfield K, Carter B, Bailey S, Anderson A, Rajapakse D, Renton K, Mott C, Hain R, Harrop E, Johnson M, Liossi C · Children (Basel) · 2024
Development of the Parental Experience with Care for Children with Serious Illnesses (PRECIOUS) quality of care measureAng F, Gandhi M, Ostbye T, Malhotra C, Malhotra R, Chong P, Amin Z, Chow C, Tan T, Tewani K, Finkelstein E · BMC Palliative Care · 2024
Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnessesAng F, Cheung Y, Gandhi M, Malhotra R, Ostbye T, Malhotra C, Chow C, Chong P, Amin Z, Tan T, Finkelstein E · Journal of Patient Reported Outcomes · 2025
Drivers that decrease hospital-delivered care in children with medical complexity: Parental perspectivesThibault L, Bourque C, Gaucher N, Marano M, Couture K, Saad L, Chartrand C, Fregeau S, Dore-Bergeron M, Fiscaletti M, Kleiber N · Paediatrics and Child Health (Canada) · 2024
Education in Palliative and End-of-Life Care-Pediatrics: Curriculum use and disseminationPostier A, Wolfe J, Hauser J, Remke S, Baker J, Kolste A, Dussel V, Bernadá M, Widger K, Rapoport A, Drake R, Chong P, Friedrichsdorf S · J Pain Symptom Manage · 2021
Effects of a primary palliative care intervention on quality of life and mental health in cystic fibrosisFriedman D, Linnemann R, Altstein L, Georgiopoulos A, Islam S, Bach K, St John A, Fracchia M, Neuringer I, Lapey A, Sicilian L, Moskowitz S, Yonker L · Pediatr Pulmonol · 2019
Efficacy of Traditional, Complementary, and Integrative Medicine in Pain and Psychological Distress Management for Pediatric Palliative Patients: A Systematic Review and Meta-Analysis of Randomized Controlled TrialsWu X, Lam C, Chu Y, Deng W, Chan C, Au K, Man S, Li C, Zhong C, Ho L, Cheung Y · Journal of Pain and Symptom Management · 2025
Electronic nursing documentation in paediatric palliative care: a scoping reviewBeghe A, Mancin S, Cacciapaglia E, Piccolomini G, Trombetta M, Bonotti G, Tognetti E, Cattani D, Dacomi A, Lopane D, Crippa C, Coldani C, Tomaiuolo G, Iadeluca A, Mazzoleni B · International journal of palliative nursing · 2025
End of life care in paediatric settings: UK national surveyBedendo A, Papworth A, Beresford B, Phillips B, Vasudevan C, Lake Walker G, Weatherly H, Feltbower R, Hinde S, Hewitt C, Murtagh F, Noyes J, Hackett J, Hain R, Oddie S, Subramanian G, Haynes A, Fraser L · BMJ supportive & palliative care · 2025
End-of-Life Course and Subspecialty Palliative Care Involvement for Children on Mechanical Circulatory Support: Five-Center Retrospective Cohort Study from the United States, 2015-2020Vazquez Colon Z, Robinson L, Lopez-Colon D, Joong A, Waldman E, Delgado-Corcoran C, May L, Cousino M, Peng D, Lukich S, Blume E, Machado D, M Moynihan K · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025
Evaluating Curricular Modules in the Care of Children with Medical Complexity: A Mixed-Methods Randomized Controlled TrialHuth K, Audcent T, Long-Gagne S, Sbrocchi A, Weiser N, Miller D, Arje D, Major N, Issa K, Cohen E, Orkin J · Academic Pediatrics · 2018
Experience-based co-design informed development of a toolbox to help optimise primary care support during transition from children's hospice care: HOPSCOTCH study protocolChapman E, Mitchell S, Fraser L, Wozencroft J, Morris B, Peat G, Charles T, Elverson J, Carder P, Tallowin K, Magnusson J, Ziegler L · BMJ Open · 2025
Experiences in Coping with Stress-A Qualitative Study of Family Caregivers of Children with Medical ComplexityLayshock M, Porter A, Bogetz J, McLachlan L, Weill S, Rosenberg A, Winger J, Houtrow A, Noll R, Schenker Y, Yu J · Children (Basel) · 2024
Experiences of medical traumatic stress in parents of children with medical complexityDewan T, Birnie K, Drury J, Jordan I, Miller M, Neville A, Noel M, Randhawa A, Zadunayski A, Zwicker J · Child: Care, Health and Development · 2023
Gastrointestinal Symptoms in Children With Life-Limiting Conditions Receiving Palliative Home CareHauch H, Kriwy P, Hahn A, Dettmeyer R, Zimmer K, Neubauer B, Brill S, Vaillant V, de Laffolie J, Schaefer K, Tretiakowa I, Hach M, Sibelius U, Berthold D · Front Pediatr · 2021
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical ComplexityCostain G, Walker S, Marano M, Veenma D, Snell M, Curtis M, Luca S, Buera J, Arje D, Reuter M, Thiruvahindrapuram B, Trost B, Sung W, Yuen R, Chitayat D, Mendoza-Londono R, Stavropoulos D, Scherer S, Marshall C, Cohn R, Cohen E, Orkin J, Meyn M, Hayeems R · JAMA Netw Open · 2020
Geography and age drive racial and ethnic disparities in hospital mortality for paediatric community-acquired pneumonia in the United States: a retrospective population based cohort study of hospitalized patientsGathers C, Yehya N, Reddy A, Magee P, Denny V, Mayeda M, O'Halloran A, Mehta S, Wanamaker S, Fowler J, Keim G · The Lancet Regional Health - Americas · 2025
Goals of Care Among Parents of Children Receiving Palliative CareFeudtner C, Beight L, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Bogetz J, Kang T, Hall M, Nye R, Wolfe J · JAMA pediatrics · 2023
Healthcare professionals' perspectives of providing end-of-life care for infants, children and young people in acute settings: A multi-site qualitative studyMcLorie E, Hackett J, Barrett L, Peat G, Weatherly H, Hinde S, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hewitt C, Hain R, Subramanian G, Haynes A, Papworth A, Fraser L, Murtagh F · Palliative medicine · 2025
Impact of COVID-19 on Admissions and Outcomes for Children With Complex Chronic ConditionsMarkham J, Richardson T, Teufel R, Hersh A, DePorre A, Fleegler E, Antiel R, Williams D, Hotz A, Wilder J, Shah S · Hosp Pediatr · 2022
Increasing Pediatric Palliative Care Consultation for Patients with Heart Disease and Prolonged Cardiac Intensive Care StayHeadrick A, Wawrzynski S, Moore J, Winder M, Masih J, De Leon Jauregui M, Flaherty B, Moresco B, Millar M, Codden R, Moore D, Delgado-Corcoran C · Pediatric Quality & Safety · 2025
Integration of Pediatric Palliative Care Into Cardiac Intensive Care: A Champion-Based ModelMoynihan K, Snaman J, Kaye E, Morrison W, DeWitt A, Sacks L, Thompson J, Hwang J, Bailey V, Lafond D, Wolfe J, Blume E · Pediatrics · 2019
International consensus on sleep problems in pediatric palliative care: Paving the wayMercante A, Owens J, Bruni O, Nunes M, Gringras P, Li S, Papa S, Kreicbergs U, Wolfe J, Zernikow B, Lacerda A, Benini F, Li A, Wolfson A, Marinetto A, Santini A, Zanin A, Kuhn B, Angelhoff C, Santos C, Goh D, Verrillo E, Zhou E, Ferreira E, Bergstraesser E, Pizza F, Nilsson F, Plazzi G, Wang G, Traslaviña G, Moreira G, Siden H, Hauch H, Huijer H, Catalano I, Narang I, Avagnina I, Lopez J, Wille J, Mindell J, Bogetz J, Downing J, Hauer J, Streuli J, Baker J, Spruyt K, Chan K, Soster L, Oliveira L, Ragsdale L, Nobili L, Matlen L, Nosetti L, De Zen L, Strambi L, Stenmarker M, Lopes M, Blankenburg M, Rios M, Bernadá M, Farquhar M, Frühwald M, Gradisar M, Simakajornboon N, Lazzarin P, Chong P, Ferri R, Martino-Alba R, Findling R, Ferreira R, Bin-Hasan S, Kudchadkar S, Mercadante S, Amarri S, Keenan S, Noce S, de Oliveira Iglesias S, Fagondes S, Suh S, Sheldon S, Sejersen T, Ceranoglu T, Crabtree V, Castronovo V · Sleep Medicine · 2024
International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCSBenini F, Pappadatou D, Bernadá M, Craig F, De Zen L, Downing J, Drake R, Freidrichsdorf S, Garros D, Giacomelli L, Lacerda A, Lazzarin P, Marceglia S, Marston J, Muckaden M, Papa S, Parravicini E, Pellegatta F, Wolfe J · J Pain Symptom Manage · 2022
Lactation Support as a Proxy Measure of Family-Centered Care Quality in Neonates with Life-Limiting Conditions-A Comparative StudyBrito S, Williams A, Fox J, Mohammed T, Chahin N, McCarthy K, Nubayaat L, Nunlist S, Brannon M, Xu J, Hendricks-Munoz K · Children · 2023
Learnings from the establishment and delivery of the UK Collaborative Paediatric Palliative Care Research NetworkPeat G, Harrop E, Anderson A, Box D, Murtagh F, Harding R, Ziegler L, Hewitt C, Wong I, Elverson J, Harris N, Fraser L · Health technology assessment (Winchester, England) · 2025
Lessons Learned: Identifying Items Felt to Be Critical to Leading a Pediatric Palliative Care Program in the Current Era of Program DevelopmentMiller E, Weaver M, Ragsdale L, Hills T, Humphrey L, Williams C, Morvant A, Pitts B, Waldman E, Lotstein D, Linebarger J, Feudtner C, Klick J · Journal of Palliative Medicine · 2020
Limiting and Withdrawing Life Support in the PICU: For Whom Are These Options Discussed?Keele L, Meert K, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Morrison W, Funai T, Holubkov R, Dean J, Pollack M, Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research N · Pediatric Critical Care Medicine · 2016
Living with a child who has a life-limiting condition: The functioning of well-siblings and parentsJaaniste T, Cuganesan A, Chin W, Tan S, Coombs S, Heaton M, Cowan S, Aouad P, Potter D, Smith P, Trethewie S · Child Care Health Dev · 2021
Long length of hospital stay in children with medical complexityGold J, Hall M, Shah S, Thomson J, Subramony A, Mahant S, Mittal V, Wilson K, Morse R, Mussman G, Hametz P, Montalbano A, Parikh K, Ishman S, O'Neill M, Berry J · Journal of Hospital Medicine · 2016
Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available toolsMayland C, Sunderland K, Cooper M, Taylor P, Powell P, Zeigler L, Cox V, Gilman C, Turner N, Flemming K, Fraser L · Palliat Med · 2022
Medication Order Errors at Hospital Admission Among Children With Medical ComplexityBlaine K, Wright J, Pinkham A, O'Neill M, Wilkerson S, Rogers J, McBride S, Crofton C, Grodsky S, Hall D, Mauskar S, Akula V, Khan A, Mercer A, Berry J · J Patient Saf · 2022
'My Life Is a Mess but I Cope': An Analysis of the Language Children with Life-limiting and Life Threatening Illnesses Use to Describe their Own ConditionBristowe K, Braybrook D, Scott H, Coombes L, Harardottir D, Roach A, Ellis-Smith C, Fraser L, Downing J, Murtagh F, Harding R · Palliative Medicine · 2023
Non-invasive respiratory support in children and young adults with complex medical conditions in pediatric palliative careFauroux B, Taytard J, Ioan I, Lubrano M, Le Clainche L, Bokov P, Dudoignon B, Debelleix S, Galode F, Coutier L, Sigur E, Labouret G, Ollivier M, Binoche A, Bergougnioux J, Mbieleu B, Essid A, Hullo E, Barzic A, Moreau J, Jokic M, Denamur S, Aubertin G, Schweitzer C · Archives of Disease in Childhood · 2024
Oral morphine versus transmucosal diamorphine for breakthrough pain in children: methods and outcomes: UK (DIPPER study) consensusHarrop E, Liossi C, Jamieson L, Gastine S, Oulton K, Skene S, Howard R, Johnson M, Boyce K, Mitchell L, Jassal S, Anderson A, Hain R, Hills M, Bayliss J, Soman A, Laddie J, Vickers D, Mellor C, Warlow T, Wong I · BMJ Support Palliat Care · 2021
Outpatient Follow-up Care After Hospital Discharge of Children With Complex Chronic Conditions at a Rural Tertiary Care HospitalBrown A, Quaile M, Morris H, Tumin D, Parker C, Warren L, Wall B, Crickmore K, Ledoux M, Eldridge D, Aikman I · Clin Pediatr (Phila) · 2021
Paediatric end-of-life care at homeLarsen S, Bording I, Bjergegaard M, Buchreitz J, Mouritzen B, Brix L, Jespersen B, Neergaard M · International journal of palliative nursing · 2023
Palliative Care in Duchenne Muscular Dystrophy: A Study on Parents' UnderstandingSadasivan A, Warrier M, Polavarapu K, Preethish-Kumar V, Nair M, Keerthipriya M, Vengalil S, Sagar J, Kishore T, Nalini A, Thomas P · Indian J Palliat Care · 2021
Palliative Care in SMA Type 1: A Prospective Multicenter French Study Based on Parents' ReportsHully M, Barnerias C, Chabalier D, Le Guen S, Germa V, Deladriere E, Vanhulle C, Cuisset J, Chabrol B, Cances C, Vuillerot C, Espil C, Mayer M, Nougues M, Sabouraud P, Lefranc J, Laugel V, Rivier F, Louvier U, Durigneux J, Napuri S, Sarret C, Renouil M, Masurel A, Viallard M, Desguerre I · Frontiers in Pediatrics · 2020
Parents' experiences of paediatric end-of-life care in the UK: a multisite qualitative studyPeat G, McLorie E, Barrett L, Weatherly H, Hinde S, Lake Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hewitt C, Hain R, Subramanian G, Haynes A, Fraser L, Murtagh F, Hackett J · BMJ supportive & palliative care · 2025
Pediatric chronic patients at outpatient clinics: A study in a Latin American University HospitalAlveno R, Miranda C, Passone C, Waetge A, Hojo E, Farhat S, Odone-Filho V, Tannuri U, Carvalho W, Carneiro-Sampaio M, Silva C · Jornal de Pediatria. · 2017
Pediatric palliative care parents' distress, financial difficulty, and child symptomsBoyden J, Hill D, Nye R, Bona K, Johnston E, Hinds P, Friebert S, Kang T, Hays R, Hall M, Wolfe J, Feudtner C · J Pain Symptom Manage · 2021
Pediatric Palliative Care Program Implementation in LMICs: A Systematic Review using SWOT AnalysisKenneson S, Hughes-Visentin A, Wrigley J, Gujral P, Lodhi S, Phadke S, Rayala S, Gentica X, Malipeddi D, Sarvode S, Kaye E, Doherty M · J Pain Symptom Manage · 2023
Place of death of children with complex chronic conditions: cross-national study of 11 countriesHakanson C, Ohlen J, Kreicbergs U, Cardenas-Turanzas M, Wilson D, Loucka M, Frache S, Giovannetti L, Naylor W, Rhee Y, Ramos M, Teno J, Beernaert K, Deliens L, Houttekier D, Cohen J · European Journal of Pediatrics. · 2017
Polypharmacy in Children with Medical Complexity: A Cross-Sectional Study in a Pediatric Palliative Care CenterZanin A, Baratiri F, Roverato B, Mengato D, Pivato L, Avagnina I, Maghini I, Divisic A, Rusalen F, Agosto C, Venturini F, Benini F · Children · 2024
Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported DataFeudtner C, Nye R, Hill D, Hall M, Hinds P, Johnston E, Friebert S, Hays R, Kang T, Wolfe J, Pediatric Palliative Care Research Network Shared Data and Research (PPCRN SHARE) Project Group · JAMA Network Open · 2021
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnessesAng F, Bun Cheung Y, Gandhi M, Ostbye T, Malhotra C, Malhotra R, Cristelle Chow C, Heng Chong P, Amin Z, Teresa Tan S, Tewani K, Hanim Buang S, Finkelstein E · Journal of clinical epidemiology · 2024
Priorities for Nutrition Research in Pediatric Critical CareTume L, Valla F, Floh A, Goday P, Jotterand Chaparro C, Larsen B, Lee J, Moreno Y, Pathan N, Verbruggen S, Mehta N · JPEN J Parenter Enteral Nutr · 2019
Programs to Support Pediatric to Adult Healthcare Transitions for Youth with Complex Care Needs and their Families: A Scoping ReviewDoucet S, Splane J, Luke A, Asher K, Breneol S, Pidduck J, Grant A, Dionne E, Scott C, Keeping-Burke L, McIsaac J, Gorter J, Curran J · Child: Care, Health and Development
Quality of Care in the Last Two Years of Life for Children with Complex Chronic ConditionsBogetz J, Strub B, Bradford M, McGalliard J, Shipman K, Jeyte A, Patneaude A, Johnston E, Ananth P, Thienprayoon R, Rosenberg A · Journal of pain and symptom management · 2024
Rapid whole-genome sequencing decreases infant morbidity and cost of hospitalizationFarnaes L, Hildreth A, Sweeney N, Clark M, Chowdhury S, Nahas S, Cakici J, Benson W, Kaplan R, Kronick R, Bainbridge M, Friedman J, Gold J, Ding Y, Veeraraghavan N, Dimmock D, Kingsmore S · npj Genomic Medicine · 2018
Research priorities for childhood chronic conditions: a workshop reportLopez-Vargas P, Tong A, Crowe S, Alexander S, Caldwell P, Campbell D, Couper J, Davidson A, De S, Fitzgerald D, Haddad S, Hill S, Howell M, Jaffe A, James L, Ju A, Manera K, McKenzie A, Morrow A, Odgers H, Pinkerton R, Ralph A, Richmond P, Shaw P, Singh-Grewal D, van Zwieten A, Wake M, Craig J · Archives of Disease in Childhood · 2018
Safety and pharmacokinetics of medical cannabis preparation in a monocentric series of young patients with drug resistant epilepsyGherzi M, Milano G, Fucile C, Calevo M, Mancardi M, Nobili L, Astuni P, Marini V, Barco S, Cangemi G, Manfredini L, Mattioli F, De Grandis E · Complement Ther Med · 2020
Scoping review of symptoms in children with rare, progressive, life-threatening disordersPawliuk C, Widger K, Dewan T, Brander G, Brown H, Hermansen A, Grégoire M, Steele R, Siden H · BMJ Supportive & Palliative Care · 2019
Scoping Review on Transitions in the Context of Pediatric Palliative CareChampagne E, Chenard J, Simard C, Bonanno M, Bogossian A, Roberge V, Olivier-D'Avignon M, Ummel D, Fortin G, Bergeron F, Bonenfant F · Journal of Palliative Medicine · 2024
Self-Reported Health Outcomes of Children and Youth with 10 Chronic DiseasesForrest C, Schuchard J, Bruno C, Amaral S, Cox E, Flynn K, Hinds P, Huang I, Kappelman M, Krishnan J, Kumar R, Lai J, Paller A, Phipatanakul W, Schanberg L, Sumino K, Weitzman E, Reeve B · The Journal of Pediatrics · 2022
Specialised outpatient paediatric palliative care team–parent collaboration: narrative interviews with parentsSchütze D, Engler F, Ploeger C, Ulrich L, Hach M, Seipp H, Kuss K, Bösner S, Gerlach F, van den Akker M, Erler A, Engler J · BMJ Supportive & Palliative Care · 2022
The DIGNITAL StudyRodriguez A, Smith J, Tatterton M, McSherry W, Kellehear A, Yaziji N, Villa-Uriol M, LanFranchi V, Watts L · Palliative Medicine · 2022
Timing of Co-occurring Chronic Conditions in Children With Neurologic ImpairmentThomson J, Hall M, Nelson K, Flores J, Garrity B, DeCourcey D, Agrawal R, Goodman D, Feinstein J, Coller R, Cohen E, Kuo D, Antoon J, Houtrow A, Bastianelli L, Berry J · Pediatrics · 2021
Top Ten Tips Palliative Care Clinicians Should Know About Prognostication in ChildrenBergstraesser E, Thienprayoon R, Brook L, Fraser L, Hynson J, Rosenberg A, Snaman J, Weaver M, Widger K, Zernikow B, Jones C, Schlögl M · J Palliat Med · 2021
Towards new perspectives: International consensus guidance on dystonia in pediatric palliative careMercante A, Nardocci N, Fernandez-Alvarez E, Lumsden D, Hauer J, Bernada M, Drake R, Kreicbergs U, Palomo-Carrion R, Gemma M, Coubes P, Fasano A, Lin J, Benini F · European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society · 2025
Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative studyNamisango E, Bristowe K, Murtagh F, Downing J, Powell R, Abas M, Lohfeld L, Ali Z, Atieno M, Haufiku D, Guma S, Luyirika E, Mwangi-Powell F, Higginson I, Harding R · Palliative Medicine · 2020
Training Healthcare Assistants for School-Based Care of Children Receiving Paediatric Palliative Care: A Post-Training EvaluationSantini A, Marinetto A, Grigolon E, Fasson A, Schiavon M, D'Angelo I, Moro N, Roverato B, Lazzarin P, Benini F · Children (Basel, Switzerland) · 2026
Trajectories in Intensity of Medical Interventions at the End of Life: Clustering Analysis in a Pediatric, Single-Center Retrospective Cohort, 2013-2021Liesse K, Malladi L, Dinh T, Wesp B, Kam B, Turturice B, Pyke-Grimm K, Char D, Hollander S · Pediatric Critical Care Medicine · 2024
Types of Challenges and Barriers in Accessing Paediatric Palliative Care in Romania: A Qualitative Study Based on Focus Groups Guided by a Semi-Structured Discussion GuideHizanu Dumitrache M, Stafie L, Plesea-Condratovici A, Mindru D, Salim C, Elkan E, Duceac Covrig M, Matei M, Dinu C, Duceac L · Medicina (Kaunas, Lithuania) · 2025
Unseen, Unrelenting, and Uncertain: Caregiver-Identified Targets for Pediatric Palliative CarePorter A, Layshock M, Bogetz J, McLachlan L, Weill S, Snaman J, Houtrow A, Noll R, Rosenberg A, Schenker Y, Yu J · Journal of Pain and Symptom Management · 2025
Use of a Mortality Prediction Model in Children on Mechanical Ventilation: A 5-Year Experience in a Tertiary University HospitalAlbuali W, Algamdi A, Hasan E, Al-Qahtani M, Yousef A, Al Ghamdi M, Bubshait D, Alshahrani M, AlQurashi F, Bou Shahmah T, Awary B · J Multidiscip Healthc · 2020
Vaccine preventable diseases in pediatric palliative care - a multicenter cross-sectional studyVaillant V, Tretiakova I, Berthold D, Scheer M, Kimmig A, Hagenguth A, Kaestner J, Meinhardt A, Kriwy P, Wolff J, Hauch H, Tretiakowa I · Journal of Pain & Symptom Management · 2023
Well-Child Visits of Medicaid-Insured Children with Medical ComplexityShumskiy I, Richardson T, Brar S, Hall M, Cox J, Crofton C, Peltz A, Samuels-Kalow M, Alpern E, Neuman M, Berry J · Journal of Pediatrics · 2018
What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and ParentsBraybrook D, Coombes L, Scott H, Harardottir D, Roach A, Bariuan J, Ellis-Smith C, Downing J, Murtagh F, Bluebond-Langner M, Fraser L, Harding R, Bristowe K · The patient · 2025
Which children and young people are at higher risk of severe disease and death after hospitalisation with SARS-CoV-2 infection in children and young people: A systematic review and individual patient meta-analysisHarwood R, Yan H, Talawila Da Camara N, Smith C, Ward J, Tudur-Smith C, Linney M, Clark M, Whittaker E, Saatci D, Davis P, Luyt K, Draper E, Kenny S, Fraser L, Viner R · EClinicalMedicine · 2022
Filter the literature by Children with Medical Complexity →
