Published literature
Best Practice in Provider/Parent InteractionDavies B, Steele R, Krueger G, Albersheim S, Baird J, Bifirie M, Cadell S, Doane G, Garga D, Siden H, Strahlendorf C, Zhao Y · Qual Health Res · 2016
Building a culture of engagement at a research centre for childhood disabilityPozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter J, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano R, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M · Research Involvement and Engagement · 2021
Drivers that decrease hospital-delivered care in children with medical complexity: Parental perspectivesThibault L, Bourque C, Gaucher N, Marano M, Couture K, Saad L, Chartrand C, Fregeau S, Dore-Bergeron M, Fiscaletti M, Kleiber N · Paediatrics and Child Health (Canada) · 2024
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic PainBirnie K, Killackey T, Backlin G, Gavin F, Harris C, Jordan I, Kim L, Marianayagam J, Swidrovich J, Lalonde C, Tunji-Ajayi L, Oberlander T, Kirby-Allen M, Lambert S, Siden H, Swidrovich J, Noel M, Lalloo C, Stinson J · Healthcare Quarterly (Toronto, Ont.) · 2022
Evaluating Curricular Modules in the Care of Children with Medical Complexity: A Mixed-Methods Randomized Controlled TrialHuth K, Audcent T, Long-Gagne S, Sbrocchi A, Weiser N, Miller D, Arje D, Major N, Issa K, Cohen E, Orkin J · Academic Pediatrics · 2018
First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic reviewPollock D, Bailey H, Hasanoff S, Munn Z, Valenzuela C, Stern C, Price C, Marriott R, Gliddon J, Lewis C, Michie C, Bowie M, Penny M, Reibel T, Warland J, Farrant B, White S, Shepherd C · Women & Birth · 2024
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical ComplexityCostain G, Walker S, Marano M, Veenma D, Snell M, Curtis M, Luca S, Buera J, Arje D, Reuter M, Thiruvahindrapuram B, Trost B, Sung W, Yuen R, Chitayat D, Mendoza-Londono R, Stavropoulos D, Scherer S, Marshall C, Cohn R, Cohen E, Orkin J, Meyn M, Hayeems R · JAMA Netw Open · 2020
Improving the regulation of medical cannabis in Canada to better serve pediatric patientsHuntsman R, Kelly L, Alcorn J, Appendino J, Bélanger R, Crooks B, Finkelstein Y, Gilpin A, Lewis E, Litalien C, Jacobs J, Moore-Hepburn C, Oberlander T, Rassekh S, Repetski A, Rieder M, Shackelford A, Siden H, Szafron M, Jong G, Vaillancourt R · CMAJ · 2021
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancerAvery J, Geist A, D'Agostino N, Kawaguchi S, Mahtani R, Mazzotta P, Mosher P, al-Awamer A, Kassam A, Zimmermann C, Samadi M, Tam S, Srikanthan A, Gupta A · Journal of Oncology Practice · 2020
National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative CareWidger K, Wolfe J, Friedrichsdorf S, Pole J, Brennenstuhl S, Liben S, Greenberg M, Bouffet E, Siden H, Husain A, Whitlock J, Leyden M, Rapoport A · Journal of Palliative Medicine · 2018
Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancerWidger K, Friedrichsdorf S, Wolfe J, Liben S, Pole J, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock J, Rapoport A · BMC Palliative Care · 2016
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)Rose L, McKim D, Leasa D, Nonoyama M, Tandon A, Bai Y, Amin R, Katz S, Goldstein R, Gershon A · PLoS ONE · 2019
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