Published literature
A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancerGranek L, Veldhuijzen van Zanten S, Lysecki D, Rapoport A, Datoo N, Hasan F, Gupta S, Wiener L, Widger K, Chan A, Kassam A, Fergus K, McCullogh E, Johnston D · Palliat Support Care · 2026
Best Practice in Provider/Parent InteractionDavies B, Steele R, Krueger G, Albersheim S, Baird J, Bifirie M, Cadell S, Doane G, Garga D, Siden H, Strahlendorf C, Zhao Y · Qual Health Res · 2016
Building a culture of engagement at a research centre for childhood disabilityPozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter J, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano R, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M · Research Involvement and Engagement · 2021
Communication Barriers and Facilitators to Specialist Pediatric Palliative Care Involvement in Pediatric Oncology Settings Across CanadaGranek L, Veldhuijzen van Zanten S, Widger K, Wiener L, Johnston D, Hasan F, Datoo N, Fergus K, Chan A, Kassam A, Lysecki D, McCullogh E, Gupta S, Rapoport A · Psycho-Oncology · 2026
Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care TeamsGranek L, Wiener L, van Zanten S, Johnston D, Hasan F, Rapoport A, Datoo N, Widger K, Gupta S, Fergus K, Chan A, Kassam A, McCullogh E, Lysecki D · Pediatric Blood and Cancer · 2026
Drivers that decrease hospital-delivered care in children with medical complexity: Parental perspectivesThibault L, Bourque C, Gaucher N, Marano M, Couture K, Saad L, Chartrand C, Fregeau S, Dore-Bergeron M, Fiscaletti M, Kleiber N · Paediatrics and Child Health (Canada) · 2024
Early phase study enrollment in Canadian children with cancer near end of life: A retrospective cohort study from Cancer in Young People in CanadaHasan F, Widger K, Punnett A, Rapoport A, Morgenstern D, Cohen-Gogo S, Revon-Riviere G, Abbott L, Guilcher G, Fernandez C, Truong T, Deyell R, Sung L · Cancer · 2025
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic PainBirnie K, Killackey T, Backlin G, Gavin F, Harris C, Jordan I, Kim L, Marianayagam J, Swidrovich J, Lalonde C, Tunji-Ajayi L, Oberlander T, Kirby-Allen M, Lambert S, Siden H, Swidrovich J, Noel M, Lalloo C, Stinson J · Healthcare Quarterly (Toronto, Ont.) · 2022
Evaluating Curricular Modules in the Care of Children with Medical Complexity: A Mixed-Methods Randomized Controlled TrialHuth K, Audcent T, Long-Gagne S, Sbrocchi A, Weiser N, Miller D, Arje D, Major N, Issa K, Cohen E, Orkin J · Academic Pediatrics · 2018
Experiences of medical traumatic stress in parents of children with medical complexityDewan T, Birnie K, Drury J, Jordan I, Miller M, Neville A, Noel M, Randhawa A, Zadunayski A, Zwicker J · Child: Care, Health and Development · 2023
Experiencing acute genomic care: perspectives from parents in the neonatal and paediatric intensive care units towards rapid genomic sequencingMackley M, Dickson M, Szuto A, Anderson J, Chitayat D, Hayeems R, Mendoza-Londono R, Ng E, Offringa M, Wang Y, Ly L, Chad L · European Journal of Human Genetics · 2026
Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional SurveyChow A, Pugliese M, Tessier L, Chakraborty P, Iverson R, Coyle D, Kronick J, Wilson K, Hayeems R, Al-Hertani W, Inbar-Feigenberg M, Jain-Ghai S, Laberge A, Little J, Mitchell J, Prasad C, Siriwardena K, Sparkes R, Speechley K, Stockler S, Trakadis Y, Walia J, Wilson B, Potter B · The Patient · 2021
First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic reviewPollock D, Bailey H, Hasanoff S, Munn Z, Valenzuela C, Stern C, Price C, Marriott R, Gliddon J, Lewis C, Michie C, Bowie M, Penny M, Reibel T, Warland J, Farrant B, White S, Shepherd C · Women & Birth · 2024
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical ComplexityCostain G, Walker S, Marano M, Veenma D, Snell M, Curtis M, Luca S, Buera J, Arje D, Reuter M, Thiruvahindrapuram B, Trost B, Sung W, Yuen R, Chitayat D, Mendoza-Londono R, Stavropoulos D, Scherer S, Marshall C, Cohn R, Cohen E, Orkin J, Meyn M, Hayeems R · JAMA Netw Open · 2020
Improving the regulation of medical cannabis in Canada to better serve pediatric patientsHuntsman R, Kelly L, Alcorn J, Appendino J, Bélanger R, Crooks B, Finkelstein Y, Gilpin A, Lewis E, Litalien C, Jacobs J, Moore-Hepburn C, Oberlander T, Rassekh S, Repetski A, Rieder M, Shackelford A, Siden H, Szafron M, Jong G, Vaillancourt R · CMAJ · 2021
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancerAvery J, Geist A, D'Agostino N, Kawaguchi S, Mahtani R, Mazzotta P, Mosher P, al-Awamer A, Kassam A, Zimmermann C, Samadi M, Tam S, Srikanthan A, Gupta A · Journal of Oncology Practice · 2020
National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative CareWidger K, Wolfe J, Friedrichsdorf S, Pole J, Brennenstuhl S, Liben S, Greenberg M, Bouffet E, Siden H, Husain A, Whitlock J, Leyden M, Rapoport A · Journal of Palliative Medicine · 2018
Neither the “Devil’s Lettuce” nor a “Miracle Cure:” The Use of Medical Cannabis in the Care of Children and YouthGunning M, Rotenberg A, Anderson J, Balneaves L, Brace T, Crooks B, Hall W, Kelly L, Rassekh S, Rieder M, Virani A, Ware M, Zaslawski Z, Siden H, Illes J · Neuroethics · 2022
Neonatal deaths: Prospective exploration of the causes and process of end-of-life decisionsHellmann J, Knighton R, Lee S, Shah P, Andrews W, Payot A, Bullied B, Chiu A, Dow K, Doctor S, Coughlin K, McMillan D, Ojah C, Peliowski A, Piedboeuf B, Riley P, Rouvinez-Bouali N, Dabowal T, Watts J, Osiovich H · Archives of Disease in Childhood: Fetal and Neonatal Edition · 2016
Not there yet: Pediatric palliative care in Canada 2002-2012Widger K, Davies D, Dauost L, Liben S, Rapoport A, Gregoire M, Vadeboncoeur C, Stenekes S, Cyr C, Sarpal A, Roy H, Hodgson-Viden H, Robertson M, Siden H · Journal of Pain and Symptom Management · 2016
Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital MedicineGill P, Bayliss A, Sozer A, Buchanan F, Breen-Reid K, De Castris-Garcia K, Green M, Quinlan M, Wong N, Frappier S, Cowan K, Chan C, Arafeh D, Anwar M, Macarthur C, Parkin P, Cohen E, Mahant S, Canadian Pediatric Inpatient Research Network (PIRN) · JAMA Network Open · 2022
Perspectives of pediatric oncologists and palliative care physicians on the therapeutic use of cannabis in children with cancerOberoi S, Protudjer J, Rapoport A, Rassekh S, Crooks B, Siden H, Decker K, Ananth P, Chapman S, Balneaves L, Vanan M, Kelly L · Cancer Reports
Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancerWidger K, Friedrichsdorf S, Wolfe J, Liben S, Pole J, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock J, Rapoport A · BMC Palliative Care · 2016
Quality of palliative care for children with cancerWidger K, Friedrichsdorf S, Wolfe J, Liben S, Pole J, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock J, Rapoport A · Journal of Pain and Symptom Management · 2016
Systems Theory Model to Understand the Barriers and Facilitators to Palliative Care Referral for Pediatric Oncology Patients in CanadaGranek L, Hasan F, Lysecki D, Johnston D, Veldhuijzen van Zanten S, Datoo N, Gupta S, Chan A, Wiener L, Widger K, McCullogh E, Kassam A, Fergus K, Rapoport A · JCO oncology practice · 2026
The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, CanadaWidger K, Vadeboncoeur C, Zelcer S, Liu Y, Kassam A, Sutradhar R, Rapoport A, Nelson K, Wolfe J, Earle C, Pole J, Gupta S · Journal of Palliative Medicine · 2017
Top Ten Tips Palliative Care Clinicians Should Know About Prognostication in ChildrenBergstraesser E, Thienprayoon R, Brook L, Fraser L, Hynson J, Rosenberg A, Snaman J, Weaver M, Widger K, Zernikow B, Jones C, Schlögl M · J Palliat Med · 2021
Trends and Causes of Neonatal Mortality in Canadian Neonatal Intensive Care UnitsStritzke A, Bhullar H, Ruth C, Lodha A, Beltempo M, Shah P, Pillay T, Wong J, Stavel M, Sherlock R, Mehrem A, Toye J, Ting J, Fajardo C, Harabor A, Strueby L, Seshia M, Louis D, Ruth C, Yi A, Mukerji A, Da Silva O, Augustine S, Lee K, Ng E, Lemyre B, Bitar E, Bizgu V, Nouraeyan N, Barrington K, Lapointe A, Ethier G, Drolet C, Zeid M, St-Hilaire M, Bertelle V, Masse E, Costa P, Makary H, Aziz A, de Carvalho Nunes G, Alburaki W, Hudson J, Afifi J, Kajetanowicz A, Chang C, Piedboeuf B · Journal of Pediatrics · 2026
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)Rose L, McKim D, Leasa D, Nonoyama M, Tandon A, Bai Y, Amin R, Katz S, Goldstein R, Gershon A · PLoS ONE · 2019
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