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Advance Care Planning

Everything on the hub tagged Advance Care Planning: researchers, groups, current studies, resources and published literature together.

152 results

Researchers

Cinara
Center for Research and Implementation in Palliative Care · Brazil
Dr Emily Harrop
Helen & Douglas House · United Kingdom
Iñigo de Noriega-Echevarría
Hospital Infantil Universitario del Niño Jesús · Spain
Judith Aris
Beatrix Children's Hospital, University Medical Center Groningen · The Netherlands
Najiya P
National institute of mental health and neuroscience · India
Sofia
COIMBRA'S HEALTHCARE INTEGRATED  DELIVERY SYSTEM · Portugal

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Current studies

Improving the Effectiveness of Nursing Palliative Care for Children in the Republic of Kazakhstan
Kazakhstan
PALLIAKID

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Published literature

Acceptability of Family-Centered Advanced Care Planning for Adolescents With HIV
Dallas R, Kimmel A, Wilkins M, Rana S, Garcia A, Cheng Y, Wang J, Lyon M, Adolescent Palliative Care C · Pediatrics · 2016
Adolescents and young adults (AYA) at the end of life: Using voicing my choices to enhance communication and guide planning
Zadeh S, Pao M, Wiener L, Sender L, Adlard K, Begino C, Fasciano K, Souza P · Psycho-Oncology · 2016
Advance care planning and outcome in pediatric palliative home care
Hoell J, Weber H, Balzer S, Danneberg M, Gagnon G, Trocan L, Borkhardt A, Janssen G, Kuhlen M · Oncotarget · 2018
Advance Care Planning and Parent-Reported End-of-Life Outcomes in Children, Adolescents, and Young Adults With Complex Chronic Conditions
DeCourcey D, Silverman M, Oladunjoye A, Wolfe J · Critical Care Medicine · 2019
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit
Lin M, Williams D, Vitcov G, Sayeed S, Decourcey D, Wolfe J, Cummings C · American Journal of Perinatology · 2024
Advance care planning and the parental geographical background in pediatric palliative home care: a retrospective chart review.
Dinkelbach L, Galushko M, Oommen-Halbach A, Felek M, Dechert O, Trocan L, Janßen G · European journal of pediatrics · 2022
Advance Care Planning Conversations in Pediatric Patients with Refractory Oncologic Disease
Khan A, Gupta A, Liu A, Ahmad A · Children · 2025
Advance care planning for adolescent patients with life-threatening neurological conditions: A survey of Japanese paediatric neurologists
Yotani N, Kizawa Y, Shintaku H · BMJ Paediatrics Open · 2017
Advance care planning for adolescents with cancer and their parents: study protocol of the BOOST pACP multi-centre randomised controlled trial and process evaluation
van Driessche A, De Vleminck A, Gilissen J, Kars M, van der Werff Ten Bosch J, Deliens L, Cohen J, Beernaert K · BMC Pediatr · 2021
Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Lyon M, Fraser J, Thompkins J, Clark H, Brodie N, Detwiler K, Torres C, Guerrera M, Younge T, Aoun S, Trujillo Rivera E · Pediatrics · 2024
Advance care planning in adolescents with cystic fibrosis: A quality improvement project
Kazmerski T, Weiner D, Matisko J, Schachner D, Lerch W, May C, Maurer S · Pediatric Pulmonology · 2016
Advance care plans in paediatric oncology
Barton C, Brook L · Pediatric Blood and Cancer · 2016
Advanced care planning five years on: an observational study of multi-centred service development for children with life-limiting conditions
Martin A, Beringer A · Child Care Health Dev · 2019
Advance Directives for Adolescents and Young Adults Living With Neuromuscular Disease: An Integrative Review of the Literature
Battista V, Baker D, Trimarchi T, Sabri B, D'Aoust R, Wright R · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. · 2021
Advancing Advance Care Planning: Evaluating a Revised Version of Voicing My CHOiCES
Bedoya S, Gordon M, Zabokrtsky K, Kasper K, Frediani J, Ruble K, Ciampa D, Moynihan L, Pao M, Wiener L · Journal of Palliative Medicine · 2024
Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review
Brunetta J, Fahner J, Legemaat M, van den Bergh E, Krommenhoek K, Prinsze K, Kars M, Michiels E · Children (Basel) · 2022
An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial
Baker J, Friebert S, Needle J, Jiang J, Wang J, Lyon M · Pediatrics. · 2022
A novel combined resilience and advance care planning intervention for adolescents and young adults with advanced cancer: A feasibility and acceptability cohort study
Fladeboe K, O'Donnell M, Barton K, Bradford M, Steineck A, Junkins C, Yi-Frazier J, Rosenberg A · Cancer · 2021
Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals
Verberne L, Fahner J, Sondaal S, Schouten-van Meeteren A, de Kruiff C, van Delden J, Kars M · Eur J Pediatr · 2020
A One Day Paediatric Palliative Care Study Day Improves Skills
Aidoo E · Archives of Disease in Childhood · 2023
Approaches to community-based palliative care provision by children's hospices in the UK
Tatterton M · Nursing children and young people. · 2019
A qualitative study of health care professionals’ views and experiences of paediatric advance care planning
Jack B, Mitchell T, O'Brien M, Silverio S, Knighting K · BMC Palliative Care · 2018
A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planning
Lyon M, D'Angelo L, Dallas R, Hinds P, Garvie P, Wilkins M, Garcia A, Briggs L, Flynn P, Rana S, Cheng Y, Wang J · AIDS care · 2017
Are we on the same page? Exploring pediatric patients' involvement with advance care planning
Aasen E, oSovik M, Stordal K, Lee A · Journal of pain and symptom management · 2023
Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity
Lord S, Moore C, Beatty M, Cohen E, Rapoport A, Hellmann J, Netten K, Amin R, Orkin J · JAMA Network Open · 2020
A three pronged approach to improving advance care planning and end of life decision making for patients with life limiting conditions admitted to picu
Sidgwick P, Randle E, Petros A · Pediatric Critical Care Medicine · 2018
Barriers to and facilitators of end-of-life decision-making by neonatologists and neonatal nurses in neonates: a qualitative study
Dombrecht L, Piette V, Deliens L, Cools F, Chambaere K, Goossens L, Naulaers G, Cornette L, Beernaert K, Cohen J · Journal of pain and symptom management. · 2019
Before birth and beyond: Advance care planning in perinatal and neonatal palliative care - A scoping review
Mariano-Menezes M, Reis-Pina P · Palliative Medicine · 2026
Breaking Down Silos: Consensus-Based Recommendations for Improved Content, Structure, and Accessibility of Advance Directives in Emergency and Out-of-Hospital Settings
Carter A, Earle R, Gregoire M, MacConnell G, MacDonald T, Frager G · Journal of Palliative Medicine · 2019
"Can you tell me why you made that choice?": A qualitative study of the influences on treatment decisions in advance care planning among adolescents and young adults undergoing bone marrow transplant
Needle J, Peden-McAlpine C, Liaschenko J, Koschmann K, Sanders N, Smith A, Schellinger S, Lyon M · Palliative Medicine · 2020
Challenges in Pediatric Advance Care Discussions Between Health Care Professionals and Parents of Children with a Life-Limiting Condition: A Qualitative Pilot Study
Hein K, Monz A, Daxer M, Heitkamp N, Knochel K, Jox R, Borasio G, Fuhrer M · Journal of Pain and Symptom Management · 2018
Challenges of palliative care in children with inborn metabolic diseases
Hoell J, Warfsmann J, Distelmaier F, Borkhardt A, Janssen G, Kuhlen M · Orphanet Journal of Rare Diseases · 2018
Checklist of Paediatric Advance Care Planning: A Delphi Study
Cai S, Yan T, Wang R, Peng X, Zhou X · Journal of advanced nursing · 2026
Children and young person advanced care plans in district general hospitals-who gets them?
Holland C, Nohavicka L, Aspel J, Hughes S · Archives of Disease in Childhood · 2017
Children's complex health: Maternal experiences of care and decision making
Willis E, Godbold R · Journal of child health care : for professionals working with children in the hospital and community · 2023
Children's unmet palliative care needs: a scoping review of parents' perspectives
Constantinou G, Garcia R, Cook E, Randhawa G · BMJ Support Palliat Care · 2019
Clinician Identified Barriers and Strategies for Advance Care Planning in Seriously Ill Pediatric Patients
Basu M, Partin L, Revette A, Wolfe J, DeCourcey D · J Pain Symptom Manage · 2021
Communication about prognosis and end-of-life in pediatric organ failure and transplantation
Cousino M, Schumacher K, Magee J, Wolfe J, Yu S, Eder S, Fredericks E · Pediatr Transplant · 2019
Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and families
Kaye E, Woods C, Kennedy K, Velrajan S, Gattas M, Bilbeisi T, Huber R, Lemmon M, Baker J, Mack J · British Journal of Cancer · 1089
Conceptualising paediatric advance care planning: a qualitative phenomenological study of paediatricians caring for children with life-limiting conditions in Australia
Vemuri S, Hynson J, Williams K, Gillam L · BMJ open · 2022
"Consider the Following Situation," Parental Treatment Preferences for Children With Rare Diseases: A Content Analysis of Pediatric Advance Care Plans
Younge T, Moore H, Thompkins J, Lyon M · The American journal of hospice & palliative care · 2025
Content Analysis of Multifaceted Needs for Improving the Quality of Pediatric Palliative Care Among Parents of Children With Life-threatening Conditions
Cho-Hee K, Min-Sun K, Yi-Ji M, Hee-Young S, Myung-Nam L, Kyung-Ah K · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. · 2022
Content and comprehensiveness of goals-of-care documentation in pediatric patients
Riedy H, Lyons K, Casarett D, Jordan M, Monroe B, Eckert E, Ma J · Journal of pain and symptom management · 2025
Context of death and end-of-life decision-making in paediatric patients with neurological conditions
Pejenaute I, Murguiondo M, Irazabal G, Sarriegui A, Carmona-Nunez A, Lopez-Bayon J, Echaniz J, Aguirre I · Medicina Paliativa · 2023
Courageous conversations: Advance care planning and family communication
Wiener L, Zadeh Bedoya S, Battles H, Leonard S, Fasciano K, Heath C, Lyon M, Donovan K, Noronha Ferraz De Arruda Colli M, Pao M · Pediatric Blood and Cancer · 2018
Culture Humility: Supporting Families With Limited English Proficiency in Pediatric Palliative Care
Azambuja D, Grekov K, Xenakis L, Ullrich C · Journal of pain and symptom management · 2025
Demographic and clinical profile of children with congenital heart diseases receiving palliative care
Prabhu S, Dixit P, Dinand V, Khanna S, Sumitra V, Jain S, Mishra J, Panda B, Bodhanwala M · Cardiology in the Young · 2024
Differences in Advance Care Planning and Circumstances of Death for Pediatric Patients Who Do and Do Not Receive Palliative Care Consults: A Single-Center Retrospective Review of All Pediatric Deaths from 2012 to 2016
Harmoney K, Mobley E, Gilbertson-White S, Brogden N, Benson R · Journal of palliative medicine. · 2019
Differences in perspectives of pediatricians on advance care planning: a cross-sectional survey
Song I, Kang S, Kim M, Kim C, Moon Y, Lee J · BMC palliative care · 2020
Discussing end-of-life issues in an adolescent with a terminal illness
Chia S · Cogent Medicine. Conference: 11th Annual Excellence in Pediatrics Conference. Denmark. · 2019
DO CHILDREN AND YOUNG PEOPLE WITH LIFELIMITING CONDITIONS RECEIVE TIMELY PALLIATIVE CARE INPUT AND ADVANCE CARE PLANNING?
Parry-Reece J, Jassal S, Soman A · Archives of Disease in Childhood · 2024
Early Versus Late Outpatient Pediatric Palliative Care Consultation and Its Association With End-of-Life Outcomes in Children with Cancer
Lee A, DeGroote N, Brock K · J Palliat Med · 2023
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Lyon M · Journal of Pain and Symptom Management · 2024
End-of-life care for children with medical complexity: Does advance care planning matter?
DeCourcey D, Silverman M, Oladunjoye A, Wolfe J · Critical Care Medicine · 2016
Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit
Fahner J, Rietjens J, van der Heide A, Milota M, van Delden J, Kars M · Acta Paediatrica · 2020
Experiences with an Advance Care Planning Intervention for Children with Life-Limiting Conditions: A Qualitative Study of Families and Clinicians Using the IMplementing Pediatric Advance Care Planning Toolkit +
Fahner J, van Delden J, Rietjens J, van der Heide A, Kars M · Children · 2026
Experiences with a national team-based learning program for advance care planning in pediatric palliative care
Engel M, Fahner J, Hennus M, Kars M, Brounen M, van Capelle C, de Groot M, Hermans M, Hofman S, Joosen C, Lalbahadoersing-Jharap S, Maebe S, Michiels E, Miedema S, Raphael M, Schieving J, de Weerd W · BMC Palliative Care · 2024
Exploring Pediatric Code Status, Advance Care Planning, and Mode of Death Disparities at End of Life
Makinde K, Silverstein A, Peckham-Gregory E, Kim E, Casas J · Journal of pain and symptom management · 2024
FACE-Rare: Protocol of a randomized controlled trial of a family-centered advance care planning intervention for families of children with rare diseases
Yu J, Thompkins J, Friebert S, Grossoehme D, Baker J, Gordish-Dressman H, Lyon M · Contemporary Clinical Trials · 2026
Factors associated with family decision-making after pediatric out-of-hospital cardiac arrest
Frelinger J, Tan J, Klein M, Newth C, Ross P, Winter M · Resuscitation · 2024
Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review
Carr K, Hasson F, McIlfatrick S, Downing J · Palliat Med · 2020
Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases
Fratantoni K, Livingston J, Schellinger S, Aoun S, Lyon M · Children · 2022
Family-centred advanced care planning with adolescents living with HIV is perceived as important, helpful and meaningful
Wiener L, Rosenberg A · Evid Based Nurs. · 2017
Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning
DeCourcey D, Bernacki R, Nava-Coulter B, Lach S, Xiong N, Wolfe J · JAMA network open · 2024
Fifteen-minute consultation: Developing an advance care plan in partnership with the child and family
Harrop E, Boyce K, Beale T, Brombley K · Archives of Disease in Childhood: Education and Practice Edition · 2018
Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care
Ekberg S, Herbert A, Johns K, Tarrant G, Sansone H, Yates P, Danby S, Bradford N · Palliat Med · 2020
Finding their voice: Advance care planning for children and young adults without decision-making capacity
Downing A, Dombrowski D, Battista V · Journal of Pain and Symptom Management · 2016
Goals of Care Discussion Characteristics and Disparities in Children With Medical Complexity
Monroe B, Nazareth-Pidgeon K, Daniel K, Ming D, Jordan M, DiCarlo C, Spangler A, Washabaugh C, Hornik C, Chandler M · Academic Pediatrics · 2025
Has Pediatric Palliative Care Become Too Deferential? A Challenge To and For the Field
Humphrey L, Jacobowski N, Truba N · Journal of Pain and Symptom Management · 2024
How can advance care planning tools help young people's voices be heard?
Trang J, Herbert A, Sansom-Daly U · Journal of Paediatrics and Child Health. · 2022
How Do Hospitalised Children Die? The Context of Death and End-Of-Life Decision-Making
Serrano-Pejenaute I, Carmona-Nunez A, Zorrilla-Sarriegui A, Martin-Irazabal G, Lopez-Bayon J, Sanchez-Echaniz J, Astigarraga I · Journal of Paediatrics and Child Health · 2023
How The Fault in Our Stars illuminates four themes of the Adolescent End of Life Narrative
Kirkman A, Hartsock J, Torke A · Med Humanit · 2019
Identifying and Quantifying Adolescent and Young Adult Patient Preferences in Cancer Care: Development of a Conjoint Analysis-Based Decision-Making Tool
Snaman J, Blazin L, Holder R, Wolfe J, Baker J · J Adolesc Young Adult Oncol · 2018
Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study
Hein K, Knochel K, Zaimovic V, Reimann D, Monz A, Heitkamp N, Borasio G, Fuhrer M · Palliative medicine. · 2020
Impact of Subspecialty Pediatric Palliative Care on Children with Heart Disease; A Systematic Review and Meta-analysis
Ting J, Songer K, Bailey V, Rotman C, Lipsitz S, Rosenberg A, Delgado-Corcoran C, Moynihan K · Pediatric Cardiology · 2024
Improving paediatric advance care planning: Results of a learning needs analysis and simulation-based education programme
Katz N, Sacks B, Hynson J, Heywood M, Williams M, Sokol J · Journal of Paediatrics and Child Health · 2020
Individualised advance care planning in children with life-limiting conditions
Loeffen E, Tissing W, Schuiling-Otten M, de Kruiff C, Kremer L, Verhagen A, Pediatric Palliative Care-Individualized Care Plan Working G · Archives of Disease in Childhood · 2018
Infant Maternal Perinatal Advanced Care Team: A Pilot Collaboration for Families Facing a Life-Threatening Fetal Diagnosis
Lord S, Williams R, Pollard L, Ives-Baine L, Van Meer S, Goodman K, Mackenzie J, Salminen R, Rapoport A · Journal of Palliative Medicine · 2022
Initiation of Paediatric Advance Care Planning: Cross Sectional Survey of Health professionals reported behaviour
Carr K, Hasson F, McIlfatrick S, Downing J · Child Care Health Dev · 2021
Intensity of Care at the End-of-Life in Pediatrics: A Single Center Analysis With Implications for Advanced Care Planning in Saudi Arabia
Sadler K, Altarifi L, Callaghan S, Khan S, AlGhamdi K, Alayed T, Alhuthil R, Alshehri A, Altassan M, Aldhari M, Hussain H, Baragaa M · The American journal of hospice & palliative care · 2025
Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making
Lin J, Lipstein E, Wittenberg E, Tay D, Lundstrom R, Lundstrom G, Sediqzadah S, Wright D · MDM Policy Pract · 2021
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Friebert S, Fratantoni K, Wiener L, Needle J, Fraser J, Gaines J, Alderfer M, Lyon M · Journal of Pain and Symptom Management · 2019
Is it early enough? The authentic meaning of the pediatric palliative approach between early and late referral in pediatric oncology: a case study
Santini A, Avagnina I, Affinita M, Zanin A, Benini F · Frontiers in Oncology · 2024
'It's a hard conversation to have'. Healthcare professionals' views concerning advance care discussions with young people affected by life-limiting neuromuscular diseases: an interview study
Hiscock A, Barclay S · BMJ Support Palliat Care · 2017
Listening to the multidisciplinary care team: exploring the pediatric palliative care needs in advanced chronic kidney disease
Nenner V, Napierala H, Jonas M, Kubiak N, Thumfart J · Pediatric nephrology (Berlin, Germany) · 2025
Longitudinal Randomized Controlled Trial of Advance Care Planning for Teens: Religiousness and End of Life Treatment Preferences
Lyon M, Wang J · Journal of Adolescent Health · 2016
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Cousino M, Miller V, Smith C, Uzark K, Lowery R, Rottach N, Blume E, Schumacher K · Palliative Medicine · 2020
Mock No Code: A simulation curriculum for responding to patients with varying goals of care
Manrriquez A, Chen H, Klein M, Rake A, Greenman J, Winter M, Arora G · Journal of pain and symptom management · 2026
Mothers' Support Preferences With Their Chronically Ill Child's Health Care Team
Rafferty K, Nemmers-Bello S, Tietz S, Lipovac M · West J Nurs Res · 2021
Multimodal Pediatric Advance Care Planning Training for Neonatal Intensive Care Unit and Palliative Care Practitioners: Training, Self-Efficacy, and Practice
Younge T, Moore H, Mahmood L, Thompkins J, Chandereng T, Lyon M · Journal of Continuing Education in the Health Professions · 2026
National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative Care
Widger K, Wolfe J, Friedrichsdorf S, Pole J, Brennenstuhl S, Liben S, Greenberg M, Bouffet E, Siden H, Husain A, Whitlock J, Leyden M, Rapoport A · Journal of Palliative Medicine · 2018
Opening end-of-life discussions: how to introduce Voicing My CHOiCESTM, an advance care planning guide for adolescents and young adults
Zadeh S, Pao M, Wiener L · Palliative & Supportive Care · 2015
Paediatric advance care planning survey: a cross-sectional examination of congruence and discordance between adolescents with HIV/AIDS and their families
Lyon M, Dallas R, Garvie P, Wilkins M, Garcia A, Cheng Y, Wang J · BMJ supportive & palliative care · 2019
Palliative care for children and young people with stage 5 chronic kidney disease
Craig F, Henderson E, Patel B, Murtagh F, Bluebond-Langner M · Pediatric Nephrology. · 2021
Palliative care for children: methodology for the development of a national clinical practice guideline
van Teunenbroek K, Kremer L, Verhagen A, Verheijden J, Rippen H, Borggreve B, Michiels E, Mulder R · BMC Palliative Care · 2023
Palliative care for infants with life-limiting conditions: Integrative review
Iten R, O'Connor M, Gill F · BMJ Supportive and Palliative Care · 2023
Parental Ethical Decision Making and Implications for Advance Care Planning: A Systematic Review and Secondary Analysis of Qualitative Literature from England and Wales, Germany, and the Netherlands
Neefjes V · Journal of palliative medicine · 2023
Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis
He S, Shen K, Huang B, Zhang J · BMC palliative care · 2026
Parental experiences of end of life care decision-making for children with life-limiting conditions in the paediatric intensive care unit: A qualitative interview study
Mitchell S, Spry J, Hill E, Coad J, Dale J, Plunkett A · BMJ Open · 2019
Parental Goals of Care for Children With Rare Diseases: A Content Analysis of Pediatric Advance Care Planning Conversations
Younge T, Moore H, Thompkins J, Lyon M · The American journal of hospice & palliative care · 2025
Parent experience of advance care planning: reconstructing meaning - grounded theory
Bennett H, Duke S, Richardson A · BMJ Support Palliat Care · 2023
Parent Preferences and Experiences in Advance Care Planning in the Neonatal Intensive Care Unit
Lin M, Williams D, Vitcov G, Sayeed S, Decourcey D, Wolfe J, Cummings C · American Journal of Perinatology · 2024
Parents' experiences of initiation of paediatric advance care planning discussions: a qualitative study
Carr K, Hasson F, McIlfatrick S, Downing J · Eur J Pediatr · 2021
Participatory development of a modular advance care planning program in pediatric palliative care (MAPPS)
Knochel K, Zaimovic V, Gatzweiler B, Hein K, Heitkamp N, Monz A, Reimann D, Borasio G, Führer M · J Pain Symptom Manage · 2021
Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice
Tooten S, Hermens R, Verhoeven M, Vierhoven E, Boulakhrif F, Reintjes J, Willemsen M, Aris-Meijer J, Fahner J, Engel M, Kars M, Ahout I, Deuning-Smit E · BMC Palliative Care · 2026
Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT
Thompkins J, Needle J, Baker J, Briggs L, Cheng Y, Wang J, Friebert S, Lyon M · Pediatrics · 2021
Pediatric Advance Care Planning: A Scoping Review
Lusney N, van Breemen C, Lim E, Pawliuk C, Hussein Z · Children (Basel) · 2023
Pediatricians' Perceptions Toward Do Not Resuscitate: A Survey in Saudi Arabia and Literature Review
Aljethaily A, Al-Mutairi T, Al-Harbi K, Al-Khonezan S, Al-Homaidhi H · Adv Med Educ Pract · 2020
Perinatal Palliative Care Birth Planning as Advance Care Planning
Cortezzo D, Ellis K, Schlegel A · Frontiers in Pediatrics · 2020
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Kim M, Kim C, Yu J, Song I · Cogent Medicine · 2017
Primary palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
Dellon E, Basile M, Hobler M, Georgiopoulos A, Goggin J, Chen E, Goss C, Hempstead S, Faro A, Kavalieratos D · Pediatric Pulmonology · 2018
Psychiatry and interdisciplinary pediatric palliative care: a scoping review
Cress A · Ann Palliat Med · 2024
Qualitative Study of Paediatric Advance Care Planning Through Simulation: How We Did It and the Lessons Learned
Vemuri S, Hynson J, Williams K, Gillam L · Palliative Medicine · 2022
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
Baker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Shared decision-making in pediatric palliative care in the Netherlands
Em M, Cy J, Mc K, Jl A, Aae V · Current Problems in Pediatric and Adolescent Health Care · 2024
Shifting Focus in Pediatric Advance Care Planning From Advance Directives to Family Engagement
Siden H, Chavoshi N · J Pain Symptom Manage · 2016
Specialized pediatric palliative care services in pediatric hematopoietic stem cell transplant centers
Mekelenkamp H, Schroder T, Trigoso E, Hutt D, Galimard J, Kozijn A, Dalissier A, Gjergji M, Liptrott S, Kenyon M, Murray J, Corbacioglu S, Bader P · Children · 2021
Supporting parents and families of children with life-limiting conditions: the impact of advance care planning
Moody A, Stocks K, Tatterton M · Evidence-based nursing · 2024
Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning
Fahner J, Rietjens J, van der Heide A, van Delden J, Kars M · Acta Paediatr · 2020
Taboo words in pediatric oncology: Communication experiences of nurses and physicians with dying children and their families
Aydin A, Savas E, Bingol H, Kebudi R · European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2023
The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility
van Driessche A, Gilissen J, De Vleminck A, Kars M, Fahner J, van der Werff Ten Bosch J, Deliens L, Cohen J, Beernaert K · BMC Pediatr · 2022
The Do‐Not‐Resuscitate Order for Children With Terminal Cancer Admitted to a Palliative Care Unit
Li N, Guo D, Jiang J, Deng Q, Shuai R · European Journal of Cancer Care · 2026
The Dutch Multidisciplinary Clinical Practice Guideline for Pediatric Palliative Care
Van Teunenbroek K, Mulder R, Kremer L, Borggreve B, Verhagen A, Michiels E · Pediatric Blood and Cancer · 2022
The Effect of FAmily-CEntered (FACE(®)) Pediatric Advanced Care Planning Intervention on Family Anxiety: A Randomized Controlled Clinical Trial for Adolescents With HIV and Their Families
Lin C, Cheng Y, Garvie P, D'Angelo L, Wang J, Lyon M · J Fam Nurs · 2020
The experiences of bereaved family caregivers with advance care planning for children with medical complexity
Lord S, Moore C, Netten K, Amin R, Rappaport A, Hellman J, Cohen E, Orkin J · Paediatrics and Child Health (Canada) · 2019
The impact of specialized pediatric palliative care on advance care planning and healthcare utilization in children and young adults: a retrospective analysis of medical records of in-hospital deaths
Kim C, Lee J, Lee J, Kim M · BMC Palliative Care · 2024
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Autrey A, James C, Mothi S, Stafford C, Morvant A, Miller E, Kaye E · Journal of pain and symptom management · 2023
The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes
Postier A, Root M, O'Riordan D, Purser L, Friedrichsdorf S, Pantilat S, Bogetz J · Hospital pediatrics · 2023
The Pediatric Serious Illness Conversation Program: Understanding challenges and experiences for clinicians after advance care planning training
Doherty M, Gujral P, Frenette M, Lusney N, van Breemen C · Palliative & supportive care · 2023
The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study
Joren C, Aris-Meijer J, Kremer L, Hofman S, Rippen-Wagner H, Slingerland-Blom R, van der Velden C, Schuiling-Otten M, Verhagen A, Kars M · Children · 2024
The Process and Impact of a Stakeholder Driven Serious Illness Communication Program for Advance Care Planning in AYAs and Parents of Children with Serious Illness (TH114C)
Decourcey D, Schwartz A, Bernacki R, Lach S, Wolfe J · Journal of Pain & Symptom Management · 2023
The Road to Readiness: Guiding Families of Children and Adolescents with Serious Illness Toward Meaningful Advance Care Planning Discussions
Wiener L, Bell C, Spruit J, Weaver M, Thompson a · NAM Perspectives · 2021
The ROAR Score: Quantifying Risk of Acute Return to the Hospital in Pediatric Hospice Patients
Maddox K, Newcomer K · Journal of Pain and Symptom Management · 2024
The role of perinatal palliative care following prenatal diagnosis of major, incurable fetal anomalies: a multicentre prospective cohort study
de Barbeyrac C, Roth P, Noël C, Anselem O, Gaudin A, Roumegoux C, Azcona B, Castel C, Noret M, Letamendia E, Stirnemann J, Ville Y, Lapillonne A, Viallard M, Kermorvant-Duchemin E · Bjog · 2021
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Green D, Bennett E, Olson L, Wawrzynski S, Bodily S, Moore D, Mansfield K, Wilkins V, Cook L, Delgado-Corcoran C · Journal of Pediatric Intensive Care · 2023
Toward an Understanding of Advance Care Planning in Children With Medical Complexity
Orkin J, Beaune L, Moore C, Weiser N, Arje D, Rapoport A, Netten K, Adams S, Cohen E, Amin R · Pediatrics · 2020
Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child
Fahner J, Tholking T, Rietjens J, van der Heide A, van Delden J, Kars M · European Journal of Pediatrics · 2020
Transition to adult services for young people suffering from life-limiting neurodevelopmental disabilities: A case series
Cheng H, Li C, Yeung K, Lee T, Chan K, Chung W, Hsu D, Chan O, Chui R, Man C, Cheung K, Wong C, Wu M, Chan C · Progress in Palliative Care · 2022
Views and experiences of young people, their parents/carers and healthcare professionals of the advance care planning process: A summary of the findings from a qualitative study
Hughes B, O'Brien M, Flynn A, Knighting K · Palliat Med · 2022
What’s Wrong With Advance Care Planning?
Morrison R, Meier D, Arnold R · JAMA · 2021
When a child becomes terminal: Discrepant adolescent and parent perspectives on discussing a terminal prognosis with adolescents with cardiomyopathy, heart failure, and heart transplant
Hansen K, Edwards L, Luong R, Yohannes K, Halpern-Felsher B, Cohen H, Kaufman B · Circulation. Conference · 2018
When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices
Wiener L, Zadeh S, Wexler L, Pao M · Pediatric Blood & Cancer · 2013
Withholding and withdrawal of life-sustaining treatments for neonate in Japan: Are hospital practices associated with physicians' beliefs, practices, or perceived barriers?
Yotani N, Nabetani M, Feudtner C, Honda J, Kizawa Y, Iijima K · Early human development · 2019
'You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end': A meta-ethnography exploring the experience of parents whose baby is diagnosed antenatally with a life limiting or life-threatening condition
Tatterton M, Fisher M · Palliat Med · 2023

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