van Teunenbroek K, Mulder R, Verhagen A, Kremer L, Falkenburg J, Honig-Mazer P, van den Bergh E, Kars M, Verheijden J, Rippen H, Borggreve B, Kochen E, Michiels E, van Roosmalen T, van Wageningen N, M W, Berkhout L, Karen G, Looijestijn J, Knoester H, Haag A, Gijsbertsen-Kool A · BMC Palliative Care · 2025

Advances in pediatric psychooncology

Wiener L, Devine K, Thompson A · Current Opinion in Pediatrics · 2020

A Feasibility Study Examining Storytelling Through Music with Bereaved Parents of Children with Cancer (RP212)

Phillips C, Morris S, Rodriguez E, Woods H, Hebdon M, Choi E, Morgan B, Morris J, Jorgensen T, Ravandi D, Moorjani D, Kesler S, Umberson D · Journal of Pain and Symptom Management · 2024

Allostatic Load Borne by Caregivers of Children with Serious Conditions: Acceptability of Self-Reported Data

Grossoehme D, Friebert S, Jenkins R, Pelletier J, White P, Forbes M · Palliative Medicine Reports · 2025

A new kind of language barrier: Examining disparities in medical teams' referrals of palliative care patients to Pediatric psychology

Schneider N, Steinberg D, Karfunkle B · Pediatric Blood and Cancer · 2018

An exploratory study of the feasibility and acceptability of a digital storytelling intervention in paediatric palliative care in Ireland

Safarifard R, Molati A, Corcoran Y, Kiernan G, Courtney E, Mitchell J, Akard T, Lambert V · Journal of Pediatric Nursing · 2026

An Interprofessional Approach to Developing Family Psychosocial Support Programs in a Pediatric Oncology Healthcare Setting

Turner E, Sirrine E, Crabtree V, Elliott D, Carr A, Elsener P, Parris K · Cancers · 2025

A pilot study on sports activities in pediatric palliative care: just do it

Avagnina I, Santini A, Maghini I, Salamon E, Papa S, Giacomelli L, Perilongo G, Agosto C, Benini F · BMC Palliative Care · 2023

Application of the Adverse Childhood Experiences Framework to the NICU

Malin K, Vittner D, Darilek U, McGlothen-Bell K, Crawford A, Koerner R, Pados B, Cartagena D, McGrath J, Vance A · Advances in Neonatal Care · 2024

A psychological experience assessment protocol of parent caregivers in paediatric palliative care

Nogueira A, Ribeiro M · Annals of Medicine · 2023

A Rapid Review Exploring Overnight Camps for Children with Chronic or Serious Illness as a Palliative Care Intervention for Caregivers

Fasolino T, Parry B, Skrocki A, Withycombe J, Garst B, Gillard A, Gagnon R, Hollandsworth R · Journal of palliative medicine · 2025

A scoping review of palliative care for children in low- and middle-income countries

Sasaki H, Bouesseau M, Marston J, Mori R · BMC Palliative Care · 2017

A Seat at the Table: Professional Competencies Define Roles and Value of Psychologists in Pediatric Palliative Care (TH110B)

Thompson A, McCarthy S, Kentor R · Journal of Pain & Symptom Management · 2023

Assessing caregiver needs of critically-ill children with non-cancer diagnoses: a qualitative study

Tempesta C, Abramson E, Salant J · Journal of pain and symptom management · 2026

Assessment of Long-term Psychological Outcomes after Pediatric Intensive Care Unit Admission: A Systematic Review and Meta-analysis

Ko M, Poh P, Heng K, Sultana R, Murphy B, Ng R, Lee J · JAMA Pediatrics · 2022

A Survey of Perinatal Palliative Care Programs in the United States: Structure, Processes, and Outcomes

Denney-Koelsch E, Black B, Cote-Arsenault D, Wool C, Kim S, Kavanaugh K · Journal of Palliative Medicine · 2016

Autonomy in adolescents in palliative care and its biopsychosocial impact: A systematic review

Castro A, Silva J, Pereira Neves A, Rocha Neves J, Ribeiro H, Dourado M · Palliat Care Soc Pract · 2025

Certified Child Life Specialists in Hospice and Palliative Care Organizations: A State of the Profession

Mangers-Deans J, Friedberg A, Downing K, Lindley L · The American journal of hospice & palliative care · 2024

Community Resource Connection for Pediatric Caregivers with Unmet Social Needs: A Qualitative Study

Vasan A, Darko O, Fortin K, Scribano P, Kenyon C · Acad Pediatr · 2021

Competencies for Psychology Practice in Pediatric Palliative Care

Thompson A, Schaefer M, McCarthy S, Hildenbrand A, Cousino M, Marsac M, Majeski J, Wohlheiter K, Kentor R · J Pediatr Psychol · 2023

Cultivating Gratitude in Bereaved Families: Description of the Impact of the Bereavement Workshop on Families of Deceased Patients in the Pediatric Palliative Care Program

Cuervo M, Devia A, Pereira L, Alvarez T, Molina K, Bolanos J, Correa I, Garcia X · Pediatric Blood and Cancer · 2022

Documentation of Psychosocial Distress and Its Antecedents in Children with Rare or Life-Limiting Chronic Conditions

McCarthy S, Golembiewski E, Gravholt D, Clark J, Clark J, Fischer C, Mulholland H, Babcock K, Montori V, Jones A · Children (Basel) · 2022

Effectiveness of psychological interventions for children eligible for pediatric palliative care: systematic review and meta-analysis

Alvarez-Perez Y, Duarte-Diaz A, Rivero-Santana A, Abrante-Luis A, Carreras B, Infante-Ventura D, Ramos-Garcia V, Herrera-Ramos E, Marrero Gomez J, Torres-Castano A, Perestelo-Perez L · BMC pediatrics · 2026

Effectiveness of psychological interventions for parents of children eligible for paediatric palliative care: a systematic review and meta-analysis

Alvarez-Perez Y, Duarte-Diaz A, Rivero-Santana A, Abrante-Luis A, Carreras B, Infante-Ventura D, Ramos-Garcia V, Torres-Castano A, Herrera-Ramos E, Marrero Gomez J, Perestelo-Perez L · Frontiers in Psychology · 2026

Effect of a group intervention for children and their parents who have cancer

Kobayashi M, Heiney S, Osawa K, Ozawa M, Matsushima E · Palliat Support Care · 2017

Emotional Wellbeing in Adolescents Living With Chronic Conditions: A Metasynthesis of the Qualitative Literature

Courtwright S, Le Pard A, Jones J · Journal of Adolescent Health · 2022

Enhancing psychosocial care at end of life: A novel simulation training program

Crnjak E, Kerns M, Stevens M, O'Connell B, Mednick L · Palliative & supportive care · 2026

Enhancing resilience in hospitalized children and adolescents

Ihle E · Journal of the American Academy of Child and Adolescent Psychiatry · 2017

Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients

LeBeau K, Collins S, Zori G, Walker D, Marchi E, Pomeranz J, Hart M · Palliative & supportive care · 2023

Evaluating virtual reality for anxiety reduction in children and adolescents with life-limiting conditions: a randomized pilot study

Sebova A, Fajnerova I, Drnkova L, Hrdlickova L · BMC palliative care · 2026

Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases

Fratantoni K, Livingston J, Schellinger S, Aoun S, Lyon M · Children · 2022

Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?

Du Plessis J, Stones D, Meiring M · Pediatric Blood and Cancer · 2018

Feasibility, Acceptability, and Impact of Using Virtual Reality Social Support for Adolescents Living with Serious Illness

Alexander S, St Louis J, Rapoport A, Horan R, Korenblum C, Weingarten K, Widger K · Journal of palliative medicine · 2026

Feasibility, acceptability and potential efficacy of the pediatric family-based dignity therapy for children with advanced cancer: A pilot study

Wu Y, Tian Z, Deng C, Yan J, Huang K, Wang Z, Zhou X, Liu H, Cai S, Zheng R, Guo Q · Asia-Pacific Journal of Oncology Nursing · 2025

Feasibility and Acceptability of a Digital Storytelling Intervention in Paediatric Palliative Care: A Small-Scale Pilot Study in Ireland

Safarifard R, Molati A, Kiernan G, Corcoran Y, Courtney E, Mitchell J, Akard T, Lambert V · SSRN · 2026

Free and Appropriate: Navigating School Integration for Pediatric Patients Receiving Palliative Care or Hospice

Maxwell E, Satty A, French C, Purol N, Ullrich C · Journal of Pain and Symptom Management · 2024

I have the right to carry a backpack: access to the school of children and adolescents in paediatric palliative care in the Veneto Region (Italy)

Santini A, Rosa M, Marinetto A, Grigolon E, Giacomelli L, Vecchi L, Agosto C, Tommasi V, Benini F · Italian journal of pediatrics · 2025

Impact of Animal-Assisted Interactions on Children with Advanced Cancer

Mahoney A, Akard T, Cowfer B, Newton J, Walker H, Dietrich M, Gilmer M · Journal of palliative medicine · 2026

Impact of palliative care interventions on health-related quality of life (HRQOL): A secondary analysis of the Promoting Resilience in Stress Management (PRISM) Randomized Controlled Trial (RCT)

Steineck A, Bradford M, Lau N, Scott S, Yi-Frazier J, Rosenberg A · Journal of Clinical Oncology. Conference · 2018

Implementation of evidence-based psychosocial care in six pediatric oncology units across Pakistan

Farooq W, Nur Y, Baig N, Najmi A, Raza M · J Psychosoc Oncol · 2023

Improved parent-child communication following a RCT evaluating a legacy intervention for children with advanced cancer

Akard T, Dietrich M, Friedman D, Gerhardt C, Given B, Hendricks-Ferguson V, Hinds P, Ridner S, Beckmann N, Gilmer M · Progress in Palliative Care. · 2020

Integrating palliative care into the care of paediatric patients at a referral hospital in ghana

Paintsil V, Ossei-Sekyere B, Osei-Tutu L, Asiamah C · Pediatric Blood and Cancer · 2018

Investing in Uncertainty: Young Adults with Life-Limiting Conditions Achieving Their Developmental Goals

Cook K, Jack S, Siden H, Thabane L, Browne G · J Palliat Med · 2016

"It Is a Whole Different Life from the Life I Used to Live": Assessing Parents' Support Needs in Paediatric Palliative Care

Aoun S, Stegmann R, Deleuil R, Momber S, Cuddeford L, Phillips M, Lyon M, Gill F · Children · 2022

'Learning to Hold a Paradox': A Narrative Review of How Ambiguous Loss and Disenfranchised Grief Affects Children in Care

Leitch J · Practice (09503153) · 2022

Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers

Truninger M, Werner H, Landolt M, Hahn A, Hennermann J, Lagler F, Moslinger D, Pfrimmer C, Rohrbach M, Huemer M · Orphanet Journal of Rare Diseases · 2024

Mapping the palliative care needs of children with cancer: a scoping review through the bio-psycho-socio-spiritual lens

Verma V, Harshitha D, Ghoshal A, Mathias E, Rao K, Damani A, Iyengar A, Bhat K V, Salins N · Pediatric Research · 2026

Measuring the psychological symptoms of pediatric palliative care patients and their caregivers: a scoping review of available instruments

Rosa M, Santini A, De Tommasi V, Benini F · BMC Psychology · 2026

Methods to Assess Adverse Childhood Experiences of Children and Families: Toward Approaches to Promote Child Well-being in Policy and Practice

Bethell C, Carle A, Hudziak J, Gombojav N, Powers K, Wade R, Braveman P · Acad Pediatr · 2017

Mothers' Support Preferences With Their Chronically Ill Child's Health Care Team

Rafferty K, Nemmers-Bello S, Tietz S, Lipovac M · West J Nurs Res · 2021

Outcomes of critically ill children with pre-existing mental health conditions

Krawiec C, Cash M, Ceneviva G, Tian Z, Zhou S, Thomas N · Pediatric Investigation · 2024

Palliative care for children: methodology for the development of a national clinical practice guideline

van Teunenbroek K, Kremer L, Verhagen A, Verheijden J, Rippen H, Borggreve B, Michiels E, Mulder R · BMC Palliative Care · 2023

Parent-led strategies supporting personal well-being when caring for a child with a life-limiting condition: A scoping review

Oakley S, Dunbar H, de Vries K · J Child Health Care · 2021

Pediatric advanced chronic kidney disease as a family challenge: coping and communication in daily life

Jonas M, Napierala H, Kanzelmeyer N, Taylan C, Kubiak N, Thumfart J · European Journal of Pediatrics · 2026

Pediatric and Adult Cardiologists' and Respirologists' Referral Practices to Palliative Care

Jewitt N, Mah K, Bonares M, Weingarten K, Ross H, Amin R, Morgan C, Zimmermann C, Wentlandt K · Journal of Pain and Symptom Management · 2022

Pediatric End of Life Care and Bereavement During COVID- 19: The Experiences of Moral Distress

Wiener L · Psycho-Oncology · 2022

Pediatric Palliative Care and Child Psychiatry: A Model for Enhancing Practice and Collaboration

Muriel A, Wolfe J, Block S · J Palliat Med · 2016

Pediatric palliative care-child life beyond the hospital

Case C, Fisher J · Pediatrics · 2018

Pediatric palliative care in kelantan: A community engagement model

Taib F, Rostenberghe H, Muhammad N · Bangladesh Journal of Medical Science · 2016

Pediatric Palliative Care Program Implementation in Low- and Middle-income Countries: A Systematic Review Using a Strengths, Weaknesses, Opportunities and Threats Analysis

Kenneson S, Hughes-Visentin A, Doherty M, Kaye E, Wrigley J, Gujral P, Lodhi S, Phadke S, Rayala S, Gentica X, Malipeddi D, Sarvode S · Palliative Medicine · 2023

Pediatric Perspectives on Palliative Care in the Neurocritical Care Unit

Vermilion P, Boss R · Neurocritical Care · 2024

Pediatric psychopharmacology: To use or not to use at the end of life

Pao M · Psycho-Oncology · 2016

Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea

Kim M, Kim C, Yu J, Song I · Cogent Medicine · 2017

Posttraumatic growth in hospitalized children and adolescents

Ihle E · Journal of the American Academy of Child and Adolescent Psychiatry · 2017

Posttraumatic growth in pediatric intensive care personnel: Dependence on resilience and coping strategies

Rodriguez-Rey R, Palacios A, Alonso-Tapia J, Perez E, Alvarez E, Coca A, Mencia S, Marcos A, Mayordomo-Colunga J, Fernandez F, Gomez F, Cruz J, Baron L, Calderon R, Belda S · Psychol Trauma. · 2017

Psychedelic-Assisted Therapies and Pediatric Palliative Care: New Tools for Hope and Healing (TH118A)

Waldman E, Adrian C, Spence D · Journal of Pain & Symptom Management · 2023

Psychiatry and interdisciplinary pediatric palliative care: a scoping review

Cress A · Ann Palliat Med · 2024

Psychological and Psychiatric Comorbidities in Youth with Serious Physical Illness

Nibras S, Kentor R, Masood Y, Price K, Schneider N, Tenenbaum R, Calarge C · Children (Basel) · 2022

Psychological distress and social support among community paediatric palliative care programme caregivers: longitudinal analysis

Wong E, Au-Doung P, Chu Y, Wong S, Li C, Cheung Y · BMJ supportive & palliative care · 2023

Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study

Nielsen M, Neergaard M, Jensen A, Bro F, Guldin M · Supportive Care in Cancer · 2016

Psychologists as Pivotal Members of the Pediatric Palliative Care Team

Thompson A, Kentor R, Schaefer M, McCarthy S · Journal of pain and symptom management · 2024

Psychosocial Support within the Context of Perinatal Palliative Care: The "SORROWFUL" Model

von der Hude K, Garten L · Children (Basel) · 2022

Racial Disparities in the Provision of Pediatric Psychosocial End-of-Life Services: A Systematic Review

Kara M, Foster S, Cantrell K · Journal of palliative medicine · 2022

Reiki for alleviation of physical and psychological distress in end of life care in children with cancer in Pakistan

Khan Ghazi E · Pediatric Blood and Cancer · 2016

Reticence in disclosure of HIV infection and reasons for bereavement: impact on perinatally infected adolescents' mental health and understanding of HIV treatment and prevention in Johannesburg, South Africa

Woollett N, Black V, Cluver L, Brahmbhatt H · Afr J AIDS Res. · 2017

Situational analysis and needs assessment regarding the availability and extent of pediatric palliative care services in the philippines

Cajucom L, Ramos R, Manago R, Fuentes R, Garcia P, Ridulme Q, Oruga M, Vinas M · JNCCN Journal of the National Comprehensive Cancer Network · 2019

Symptom management and psychological support for families are the cornerstones of end-of-life care for children with spinal muscular atrophy type 1

Pede C, Agosto C, Tommasi V, Gregorio A, Benini F · Acta Paediatr · 2017

Tailoring support for parents of children in palliative care: Feasibility of the carer support needs assessment tool intervention paediatric in a Norwegian context

Trae G, Winger A, Nordstrøm M · Palliative Care and Social Practice · 2026

The agony of the child with complexity: Exploring the psychological impact on parents caring for children with complex healthcare needs

Crothers E, Bradbury M, Lewis S, O'Gorman C, Murphy A · Archives of Disease in Childhood · 2019

The caregivers' psychosocial and economic effects of caring for terminally ill patients: The case of hospice Africa Uganda

Buyinza N · Palliative Medicine · 2016

"the doctor is in": The role of child psychiatrists in pediatric palliative care

Battista V, Hwang J, Mosher P, Muriel A · Journal of Pain and Symptom Management · 2016

The Family Talk Intervention Improves Family Communication and Psychosocial Health Among Families in Pediatric Palliative Care: A Pre-Post Evaluation Study

Ivéus K, Holm M, Årestedt K, Kreicbergs U, Anmyr L, Udo C, Lövgren M · Children · 2026

The Limits of Resilience and the Need for Resistance: Articulating the Role of Music Therapy With Young People Within a Shifting Trauma Paradigm

Scrine E · Frontiers in Psychology · 2021

The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes

Postier A, Root M, O'Riordan D, Purser L, Friedrichsdorf S, Pantilat S, Bogetz J · Hospital pediatrics · 2023

The Psychiatric Care of Children and Young Adults With Neurodegenerative Diseases

Hauptman A, Augustine E, Brown H · Journal of the American Academy of Child and Adolescent Psychiatry · 2024

The psychological needs of haematology and oncology patients in a paediatric palliative care perspective: Clinical audit and service development in ireland

Besani C, O'Reilly M, Twomey M, Devins M · Pediatric Blood and Cancer · 2016

The Role of Psychology in Pediatric Palliative Care

Edlynn E, Kaur H · J Palliat Med · 2016

"They just get it" an exploration of father's experiences and perceptions of a support group for men caring for children with disabilities and/or developmental delay

Batchelor M, Maguire S, Shearn J · Journal of applied research in intellectual disabilities : JARID · 2021

Trauma-informed care in the context of intellectual and developmental disability services: Perceptions of service providers

Rich A, DiGregorio N, Strassle C · Journal of Intellectual Disabilities · 2021

Trauma-Informed Care: Pediatric Intensive Care Nurses at the Root of Children’s Safety and Trust

McDowell B, Pasek T, Perlick C, Kostie K · Critical Care Nurse · 2022

Trauma Informed Ethics Consultation

Lanphier E, Anani U · The American Journal of Bioethics · 2022

Using Online Health Communication to Manage Chronic Sorrow: Mothers of Children with Rare Diseases Speak

Glenn A · Journal of Pediatric Nursing · 2015

Volunteer activity in specialist paediatric palliative care: a national survey

Burbeck R, Low J, Sampson E, Scott R, Bravery R, Candy B · BMJ supportive & palliative care · 2015

What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature

Neylon K, Condren C, Guerin S, Looney K · Journal of Adolescent and Young Adult Oncology · 2023

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