Published literature
A 15-year experience in pediatric palliative care: a retrospective hospital-based studySchiavon M, Lazzarin P, Agosto C, Rusalen F, Divisic A, Zanin A, Mercante A, Mirisola V, Papa S, Giacomelli L, Benini F · BMC palliative care · 2024
Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview studyCoombes L, Braybrook D, Roach A, Scott H, Harðardóttir D, Bristowe K, Ellis-Smith C, Bluebond-Langner M, Fraser L, Downing J, Farsides B, Murtagh F, Harding R · Eur J Pediatr · 2022
Advance Care Planning for Children With Rare Diseases: A Pilot RCTLyon M, Fraser J, Thompkins J, Clark H, Brodie N, Detwiler K, Torres C, Guerrera M, Younge T, Aoun S, Trujillo Rivera E · Pediatrics · 2024
African Hospital-Based Paediatric Palliative Oncology Care Independent of Economic Indicators: An International Society of Paediatric Oncology (SIOP) Global Mapping Programme SurveyMauree A, Myezo K, Ranasinghe N, Challinor J, Bandini R, Burns K, Eyal K, Downing J, Pritchard-Jones K, Bouffet E, Geel J · Pediatric blood & cancer · 2025
A Nationwide Study to Evaluate Accessibility to Specialized Pediatric Palliative Care in Italy-Patients, Needs, and Critical Issues: The PalliPed StudyBenini F, Mercante A, Di Nunzio S, Papa S, Agosto C, Albanesi B, Amarri S, Avagnina I, Barbugian E, Basile R, Bellagamba O, Bellini F, Beltrami C, Bignamini E, Bolognani M, Campagna M, Carraro C, Catalano G, Catalano I, Celentano L, De Marinis M, De Tommasi V, De Zen L, Divisic A, Dolcini A, Fasson A, Franchi F, Ghiraldo G, Giacomelli L, Grigolon E, Iadelica A, Lazzarin P, Maghini I, Manfredini L, Marinetto A, Mazzoni E, Michelotto E, Mirone R, Molinaro G, Moliterni P, Moro N, Orofino R, Paone G, Pellegatta F, Peruselli C, Piccolruaz U, Raspi M, Roverato B, Salata M, Santini A, Schiavon B, Soffritti S, Taucar V, Thaler M, Tornesello A, Uez F, Vaccher S, Vezzoli C, Zanin A, Ziggiotto S · Journal of Palliative Medicine · 2024
Assessing the palliative care needs of children with cancer and their families in tertiary care centres in India: A multicentre observational studyVerma V, Rao K, Ghoshal A, Bhat K V, D H, Sanian A, Mishra A, Sakpal A, Bagalkote M, Sravani B, Iyengar A, Mudaliar S, Palat G, Dinand V, Salins N · Palliative Care and Social Practice · 2026
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needsAmarri S, Ottaviani A, Campagna A, De Panfilis L, Cortina I, Sani E, Bertolini P, Bianchi E, Caldarelli V, Poggi G, Riva M, Locatelli C, Melchionda F, Mondardini M, Soffritti S, Mazzoni E, Serra L, Gulmini L, Bertelli S, Fornaro M, Magistà A, Gabriele C, on behalf of Emilia Romagna paediatric palliative care working group · Italian Journal of Pediatrics · 2021
Children with palliative care needs - the landscape of the nordic countriesWinger A, Holmen H, Birgisdottir D, Lykke C, Lovgren M, Neergaard M, Gronroos M, Kero J, Kristinsdottir O, Petursdottir A, Castor C · BMC Palliative Care · 2024
Clinical spectrum of children receiving palliative care in Malaysian HospitalsChong L, Khalid F, Khoo T, Teh S, Kuan G, Abdul Manaf A, Alias E, Chieng C, Razali H, Ong G, Hedra Z, Abdul Shukor I, Wong J · Medical Journal of Malaysia · 2017
Delphi Method to Develop a Palliative Care Tool for Children and Families in Sub-Saharan AfricaChinyundo K, Casas J, Bank R, Abenawe C, Gaolebale B, Nakirulu A, Maifale-Mburu G, Hesselgrave J, Butia M, Bakulumpagi D, Nassanga I, Higgins J, Hockenberry M · J Pain Symptom Manage · 2022
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based studySurkan P, Sakyi K, Strobino D, Mehra S, Labrique A, Ali H, Ullah B, Wu L, Klemm R, Rashid M, West K, Christian P · Ann Epidemiol · 2016
Exploring the Palliative Care Needs of Children in Refugee Settlements in UgandaDowning J, Santiago T, Opia V, Oziti G, Namukwaya E, Nabirye L, Maku S, Nalutaaya F, Bagasha P, Smith C, Ikong H, Venkatesh C, Howarth K, McGeough K, Grant L, Leng M · Palliative Medicine · 2023
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case studyWong F, Ho J, Lai T, Lee L, Ho E, Lee S, Chan S, Fung C, Ho A, Li C, Li C, Chiu A, Tsui K, Lam K · Archives of Disease in Childhood · 2023
International consensus on sleep problems in pediatric palliative care: Paving the wayMercante A, Owens J, Bruni O, Nunes M, Gringras P, Li S, Papa S, Kreicbergs U, Wolfe J, Zernikow B, Lacerda A, Benini F, Li A, Wolfson A, Marinetto A, Santini A, Zanin A, Kuhn B, Angelhoff C, Santos C, Goh D, Verrillo E, Zhou E, Ferreira E, Bergstraesser E, Pizza F, Nilsson F, Plazzi G, Wang G, Traslaviña G, Moreira G, Siden H, Hauch H, Huijer H, Catalano I, Narang I, Avagnina I, Lopez J, Wille J, Mindell J, Bogetz J, Downing J, Hauer J, Streuli J, Baker J, Spruyt K, Chan K, Soster L, Oliveira L, Ragsdale L, Nobili L, Matlen L, Nosetti L, De Zen L, Strambi L, Stenmarker M, Lopes M, Blankenburg M, Rios M, Bernadá M, Farquhar M, Frühwald M, Gradisar M, Simakajornboon N, Lazzarin P, Chong P, Ferri R, Martino-Alba R, Findling R, Ferreira R, Bin-Hasan S, Kudchadkar S, Mercadante S, Amarri S, Keenan S, Noce S, de Oliveira Iglesias S, Fagondes S, Suh S, Sheldon S, Sejersen T, Ceranoglu T, Crabtree V, Castronovo V · Sleep Medicine · 2024
Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challengesNevin S, Kelada L, Elvidge K, Maack M, Hilton G, Kershaw J, Ros E, Briggs N, Farrar M, Wakefield C · Journal of Pediatric Psychology · 2026
Not there yet: Pediatric palliative care in Canada 2002-2012Widger K, Davies D, Dauost L, Liben S, Rapoport A, Gregoire M, Vadeboncoeur C, Stenekes S, Cyr C, Sarpal A, Roy H, Hodgson-Viden H, Robertson M, Siden H · Journal of Pain and Symptom Management · 2016
Pediatric chronic patients at outpatient clinics: A study in a Latin American University HospitalAlveno R, Miranda C, Passone C, Waetge A, Hojo E, Farhat S, Odone-Filho V, Tannuri U, Carvalho W, Carneiro-Sampaio M, Silva C · Jornal de Pediatria. · 2017
Prevalence and Trajectory of Household Material Hardship Among Children With Advanced CancerWright S, Paul M, Mendez S, Jones E, Lokko L, Heneghan C, Purol N, Arnold M, Aziz-Bose R, Kelly C, Pruitt S, Wolfe J, Bona K, Umaretiya P · Pediatric Blood and Cancer · 2026
The global need for paediatric palliative care: the evolution of serious health-related suffering in children aged 0-19 years from 1990 to 2023Downing J, Knaul F, Kwete X, Arreola-Ornelas H, Bhakta N, Rosa W, Radbruch L, Ambler J, Connor S, Ding J, Doherty M, Gong R, Hain R, Kiman R, Krakauer E, McNeil M, Mendez-Carniado O, Morais M, Muckaden M, Pastrana T, Phillips M, Tao H, Touchton M, Enciso V, Vila P, Bhadelia A · The Lancet Child and Adolescent Health · 2026
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