Published literature
Advance Care Planning for Children With Rare Diseases: A Pilot RCTLyon M, Fraser J, Thompkins J, Clark H, Brodie N, Detwiler K, Torres C, Guerrera M, Younge T, Aoun S, Trujillo Rivera E · Pediatrics · 2024
Assessing the palliative care needs of children with cancer and their families in tertiary care centres in India: A multicentre observational studyVerma V, Rao K, Ghoshal A, Bhat K V, D H, Sanian A, Mishra A, Sakpal A, Bagalkote M, Sravani B, Iyengar A, Mudaliar S, Palat G, Dinand V, Salins N · Palliative Care and Social Practice · 2026
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needsAmarri S, Ottaviani A, Campagna A, De Panfilis L, Cortina I, Sani E, Bertolini P, Bianchi E, Caldarelli V, Poggi G, Riva M, Locatelli C, Melchionda F, Mondardini M, Soffritti S, Mazzoni E, Serra L, Gulmini L, Bertelli S, Fornaro M, Magistà A, Gabriele C, on behalf of Emilia Romagna paediatric palliative care working group · Italian Journal of Pediatrics · 2021
Clinical spectrum of children receiving palliative care in Malaysian HospitalsChong L, Khalid F, Khoo T, Teh S, Kuan G, Abdul Manaf A, Alias E, Chieng C, Razali H, Ong G, Hedra Z, Abdul Shukor I, Wong J · Medical Journal of Malaysia · 2017
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based studySurkan P, Sakyi K, Strobino D, Mehra S, Labrique A, Ali H, Ullah B, Wu L, Klemm R, Rashid M, West K, Christian P · Ann Epidemiol · 2016
Exploring the Palliative Care Needs of Children in Refugee Settlements in UgandaDowning J, Santiago T, Opia V, Oziti G, Namukwaya E, Nabirye L, Maku S, Nalutaaya F, Bagasha P, Smith C, Ikong H, Venkatesh C, Howarth K, McGeough K, Grant L, Leng M · Palliative Medicine · 2023
Identifying palliative care needs in children with acute lymphoblastic leukemia: validation of the Chinese paediatric palliative screening scale (C-PaPaS)Nueraili A, Jiang J, Wang H, Zhu X, Yu Y, Cao P, Fu Y, Li J, Yu L, Cheng L, Zhai X · BMC palliative care · 2026
The global need for paediatric palliative care: the evolution of serious health-related suffering in children aged 0-19 years from 1990 to 2023Downing J, Knaul F, Kwete X, Arreola-Ornelas H, Bhakta N, Rosa W, Radbruch L, Ambler J, Connor S, Ding J, Doherty M, Gong R, Hain R, Kiman R, Krakauer E, McNeil M, Mendez-Carniado O, Morais M, Muckaden M, Pastrana T, Phillips M, Tao H, Touchton M, Enciso V, Vila P, Bhadelia A · The Lancet Child and Adolescent Health · 2026
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