Published literature
Accurate empathy: Mapping and navigating the world of adolescent loss, grief, and traumaCounseling Adolescents through Loss, Grief, and Trauma by Pamela A. Malone. New York, NY: Routledge, 2016. 184 pp. (ISBN: 978-041587055). $44.95 (paperback)Phiri S, Tweya H, van Lettow M, Rosenberg N, Trapence C, Kapito-Tembo A, Kaunda-Khangamwa B, Kasende F, Kayoyo V, Cataldo F, Stanley C, Gugsa S, Sampathkumar V, Schouten E, Chiwaula L, Eliya M, Chimbwandira F, Hosseinipour M · J Acquir Immune Defic Syndr. · 2017
Adaptation of Pediatric Palliative Care Groups to Metabolic Diseases: Beyond the PathwaysSpolador G, Polastrini R, Zoboli I, Henrique A, Freitas E, do Nascimento A, Monti F, Pugliese C, Kok F, Barbosa S, Bueno C · Annals of Pediatrics · 2025
Advance Care Planning for Children With Rare Diseases: A Pilot RCTLyon M, Fraser J, Thompkins J, Clark H, Brodie N, Detwiler K, Torres C, Guerrera M, Younge T, Aoun S, Trujillo Rivera E · Pediatrics · 2024
A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancerGranek L, Veldhuijzen van Zanten S, Lysecki D, Rapoport A, Datoo N, Hasan F, Gupta S, Wiener L, Widger K, Chan A, Kassam A, Fergus K, McCullogh E, Johnston D · Palliat Support Care · 2026
A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planningLyon M, D'Angelo L, Dallas R, Hinds P, Garvie P, Wilkins M, Garcia A, Briggs L, Flynn P, Rana S, Cheng Y, Wang J · AIDS care · 2017
Assessment of physician perceptions of pediatric palliative care for children with cancer in Latin America.McNeil M, Ehrlich B, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gomez Garcia W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Baker J, Agulnik A · Journal of Clinical Oncology · 2021
Building a culture of engagement at a research centre for childhood disabilityPozniak K, Buchanan F, Cross A, Crowson J, Galuppi B, Grahovac D, Gorter J, Hlyva O, Ketelaar M, Kraus de Camargo O, Krpan Mesic M, Martens R, McCauley D, Nguyen L, Palisano R, Phoenix M, Putterman C, Rosenbaum P, Sprung J, Strohm S, Teplicky R, Thomson D, Wright M · Research Involvement and Engagement · 2021
Caregiver Values and Preferences Related to Surgical Decision-making for Children with Medical ComplexityLin J, Devereaux T, Simon T, Kaphingst K, Zhu A, Narayanan U, Berry A, Eppich K, Stoddard G, Smith J, Andras L, Heflin J, Keenan H, Asch S, Fagerlin A · The Journal of pediatrics · 2024
Children and adolescents with cancer assisted in a Support Institution in Juiz de Fora, Minas Gerais, Brazil - Preliminary studyChagas P, Marques R, Goretti P, Castilho J, El'corab B, Costa M, Taroco A, Oliveira I, Costa H, Fronio J · Developmental Medicine and Child Neurology · 2021
Children's palliative care now! Highlights from the second ICPCN conference on children's palliative care, 18-21 May 2016, Buenos Aires, ArgentinaDowning J, Kiman R, Boucher S, Nkosi B, Steel B, Marston C, Lascar E, Marston J · ecancermedicalscience · 2016
Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and familiesKaye E, Woods C, Kennedy K, Velrajan S, Gattas M, Bilbeisi T, Huber R, Lemmon M, Baker J, Mack J · British Journal of Cancer · 1089
Communication Barriers and Facilitators to Specialist Pediatric Palliative Care Involvement in Pediatric Oncology Settings Across CanadaGranek L, Veldhuijzen van Zanten S, Widger K, Wiener L, Johnston D, Hasan F, Datoo N, Fergus K, Chan A, Kassam A, Lysecki D, McCullogh E, Gupta S, Rapoport A · Psycho-Oncology · 2026
COVID-19 in pediatric cancer patients in a resource-limited setting: National data from PeruMontoya J, Ugaz C, Alarcon S, Maradiegue E, Garcia J, Diaz R, Zapata A, Chavez S, Morales R, Ordonez K, Hernandez E, Reano R, Gutierrez C, Vargas M, Sanchez K, Valdiviezo C, Maza I, Rojas N, Moore C, Leon E, Vasquez L · Pediatric Blood & Cancer · 2021
Death and Cardiac Disease in Pediatric Hospitals and the Role of Subspecialty Palliative CareMoynihan K, Cashen K, Daughtrey H, Delgado-Corcoran C, Robinson L, Ting J, Flores S, Beshish A, Chlebowski M, Batsis M, Pryce P, Asfari A, Sznycer-Taub N, Karki K, Wakeham M, Ohman R, Shutes B, Narasimhulu S, Schramm J, Strelow F, Reddy R, Loomba R, Wong J, Werho D, Capone C, Schneider J, Leong K, Kulikowska A, Elgersma K, Prentice E, Reddy C, Leopold S, Mills K, Mastropietro C · Pediatrics · 2026
Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care TeamsGranek L, Wiener L, van Zanten S, Johnston D, Hasan F, Rapoport A, Datoo N, Widger K, Gupta S, Fergus K, Chan A, Kassam A, McCullogh E, Lysecki D · Pediatric Blood and Cancer · 2026
Development and Execution of a Pediatric Hospice and Palliative Medicine Fellowship in Latin AmericaMartinez-Jimenez S, Gradick K, Guarda J, Irwin L, Garcia-Quintero X, Rassam R, Cowfer B, Madni A, McNeil M, Montufar S, Moreira D, Antillon F, Delgado-Corcoran C, Pinargote Pico V, Rivas S · Journal of graduate medical education · 2026
Discussing Serious NewsFlint H, Meyer M, Hossain M, Klein M · The American journal of hospice & palliative care · 2017
Drivers that decrease hospital-delivered care in children with medical complexity: Parental perspectivesThibault L, Bourque C, Gaucher N, Marano M, Couture K, Saad L, Chartrand C, Fregeau S, Dore-Bergeron M, Fiscaletti M, Kleiber N · Paediatrics and Child Health (Canada) · 2024
Early phase study enrollment in Canadian children with cancer near end of life: A retrospective cohort study from Cancer in Young People in CanadaHasan F, Widger K, Punnett A, Rapoport A, Morgenstern D, Cohen-Gogo S, Revon-Riviere G, Abbott L, Guilcher G, Fernandez C, Truong T, Deyell R, Sung L · Cancer · 2025
End-of-life practices among tertiary care PICUs in the United States: A multicenter studyMeert K, Keele L, Morrison W, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Clark A, Holubkov R, Jenkins T, Doctor A, Dean J, Pollack M · Pediatric Critical Care Medicine · 2015
Ethical challenges for a new generation of early-phase pediatric gene therapy trialsIyer A, Saade D, Bharucha-Goebel D, Foley A, Averion G, Paredes E, Gray S, Bonnemann C, Grady C, Hendriks S, Rid A · Genetics in Medicine · 2021
Evaluating Curricular Modules in the Care of Children with Medical Complexity: A Mixed-Methods Randomized Controlled TrialHuth K, Audcent T, Long-Gagne S, Sbrocchi A, Weiser N, Miller D, Arje D, Major N, Issa K, Cohen E, Orkin J · Academic Pediatrics · 2018
Evolving Models of Community-Based Pediatric Palliative Care in Eight Countries Across Latin AmericaUlloa Z, García-Quintero X, Nakashima-Paniagua Y, Rivas S, Gana M, Torelli A, Gutiérrez H, Lopera J, García W, Chacón S, Bernadá M, McNeil M · Journal of Pain & Symptom Management · 2025
Executive Summary of Society of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of LifeDerrington S, Broden Arciprete E, Lin M, Oczkowski S, Alladin A, Anani U, Borchik A, Collins C, Delgado-Corcoran C, Dickerman M, Harrod C, Henner N, Kon A, Lewis-Newby M, Lord B, Masters A, McCarthy S, Moynihan K, Munoz-Blanco S, Rissman L, Roberts K, Schlegel A, Schopen A, Siegel L, Swasey H, Wawrzynski S, Zorko D, DeCourcey D · Pediatric Critical Care Medicine · 2026
Experiences in Coping with Stress-A Qualitative Study of Family Caregivers of Children with Medical ComplexityLayshock M, Porter A, Bogetz J, McLachlan L, Weill S, Rosenberg A, Winger J, Houtrow A, Noll R, Schenker Y, Yu J · Children (Basel) · 2024
Experiences of medical traumatic stress in parents of children with medical complexityDewan T, Birnie K, Drury J, Jordan I, Miller M, Neville A, Noel M, Randhawa A, Zadunayski A, Zwicker J · Child: Care, Health and Development · 2023
Experiencing acute genomic care: perspectives from parents in the neonatal and paediatric intensive care units towards rapid genomic sequencingMackley M, Dickson M, Szuto A, Anderson J, Chitayat D, Hayeems R, Mendoza-Londono R, Ng E, Offringa M, Wang Y, Ly L, Chad L · European Journal of Human Genetics · 2026
Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional SurveyChow A, Pugliese M, Tessier L, Chakraborty P, Iverson R, Coyle D, Kronick J, Wilson K, Hayeems R, Al-Hertani W, Inbar-Feigenberg M, Jain-Ghai S, Laberge A, Little J, Mitchell J, Prasad C, Siriwardena K, Sparkes R, Speechley K, Stockler S, Trakadis Y, Walia J, Wilson B, Potter B · The Patient · 2021
First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic reviewPollock D, Bailey H, Hasanoff S, Munn Z, Valenzuela C, Stern C, Price C, Marriott R, Gliddon J, Lewis C, Michie C, Bowie M, Penny M, Reibel T, Warland J, Farrant B, White S, Shepherd C · Women & Birth · 2024
Future roles of artificial intelligence in early pain management of newbornsSalekin M, Mouton P, Zamzmi G, Patel R, Goldgof D, Kneusel M, Elkins S, Murray E, Coughlin M, Maguire D, Ho T, Sun Y · Paediatric and Neonatal Pain
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical ComplexityCostain G, Walker S, Marano M, Veenma D, Snell M, Curtis M, Luca S, Buera J, Arje D, Reuter M, Thiruvahindrapuram B, Trost B, Sung W, Yuen R, Chitayat D, Mendoza-Londono R, Stavropoulos D, Scherer S, Marshall C, Cohn R, Cohen E, Orkin J, Meyn M, Hayeems R · JAMA Netw Open · 2020
Guidance on forgoing life-sustaining medical treatmentWeise K, Okun A, Carter B, Christian C, Katz A, Laventhal N, MacAuley R, Moon M, Opel D, Statter M, Davies D, Dell M, Diekema D, Klipstein S, Elster N, Rivera F, Feudtner C, Boss R, Hauer J, Humphrey L, Klick J, Linebarger J, Parker S, Lord B, Imaizumi S, Guinn-Jones M, Flaherty E, Gavril A, Idzerda S, Laskey A, Legano L, Leventhal J, Fortson B, MacMillan H, Stedt E, Hurley T · Pediatrics · 2017
Ideal vs Actual Timing of Palliative Care Integration for Children With Cancer in Latin AmericaMcNeil M, Ehrlich B, Wang H, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gillipelli S, Gómez García W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Devidas M, Baker J, Agulnik A · JAMA Netw Open · 2023
Impact of Specialized Pediatric Palliative Care on Bereaved Parents' Mental and Physical HealthDelgado-Corcoran C, Meeks H, Wawrzynski S, Markovitz B, Harman B, Masih J, Li K, Harousseau M, Moore D, Wilkes J, Ames S · Journal of Pain and Symptom Management · 2026
Improving the regulation of medical cannabis in Canada to better serve pediatric patientsHuntsman R, Kelly L, Alcorn J, Appendino J, Bélanger R, Crooks B, Finkelstein Y, Gilpin A, Lewis E, Litalien C, Jacobs J, Moore-Hepburn C, Oberlander T, Rassekh S, Repetski A, Rieder M, Shackelford A, Siden H, Szafron M, Jong G, Vaillancourt R · CMAJ · 2021
Integrating Electronic Patient-Reported Outcomes and Palliative Care in Pediatric Advanced Cancer: The PediQUEST Response Multisite Randomized Controlled TrialDussel V, Orellana L, Requena M, Avery M, Becker D, Ullrich C, Feudtner C, Freedman J, Kang T, Waldman E, Gerhardt C, Bakitas M, Baker J, Friedrichsdorf S, Rosenberg A, Wolfe J · Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2026
Lessons Learned Establishing the Palliative Care Research Cooperative's Qualitative Data RepositoryMeghani S, Mooney-Doyle K, Barnato A, Colborn K, Gillette R, Harrison K, Hinds P, Kirilova D, Knafl K, Schulman-Green D, Pollak K, Ritchie C, Kutner J, Karcher S · Journal of Pain and Symptom Management · 2024
Leveraging User Experience Design Expertise in Palliative Care Intervention ScienceHawley C, Alcantra N, Chen C, Feng Y, Lattimore K, Oh S, Rajeeva B, Robinson F, Shenbanjo M, Oslin E, Bogetz J · Journal of Palliative Medicine · 2026
Life Duration of Pediatric Patients with Cancer Enrolled on Concurrent Hospice Care: A Retrospective Decedent StudyWeaver M, Jalfon R, Zeng E, Kalyanasundaram S, Kaye E, Salek M, Cowfer B, Johnson L, Mamer T, Mandrell B, Lindley L, Levine D · Journal of Palliative Medicine · 2026
Long length of hospital stay in children with medical complexityGold J, Hall M, Shah S, Thomson J, Subramony A, Mahant S, Mittal V, Wilson K, Morse R, Mussman G, Hametz P, Montalbano A, Parikh K, Ishman S, O'Neill M, Berry J · Journal of Hospital Medicine · 2016
Medication Order Errors at Hospital Admission Among Children With Medical ComplexityBlaine K, Wright J, Pinkham A, O'Neill M, Wilkerson S, Rogers J, McBride S, Crofton C, Grodsky S, Hall D, Mauskar S, Akula V, Khan A, Mercer A, Berry J · J Patient Saf · 2022
Neither the “Devil’s Lettuce” nor a “Miracle Cure:” The Use of Medical Cannabis in the Care of Children and YouthGunning M, Rotenberg A, Anderson J, Balneaves L, Brace T, Crooks B, Hall W, Kelly L, Rassekh S, Rieder M, Virani A, Ware M, Zaslawski Z, Siden H, Illes J · Neuroethics · 2022
Neonatal deaths: Prospective exploration of the causes and process of end-of-life decisionsHellmann J, Knighton R, Lee S, Shah P, Andrews W, Payot A, Bullied B, Chiu A, Dow K, Doctor S, Coughlin K, McMillan D, Ojah C, Peliowski A, Piedboeuf B, Riley P, Rouvinez-Bouali N, Dabowal T, Watts J, Osiovich H · Archives of Disease in Childhood: Fetal and Neonatal Edition · 2016
Neuropsychological assessments in a large cohort of pediatric palliative epilepsy surgery patientsJeno M, Koop J, Gabriel M, Caraway A, Novotny E, Patrick K, Gonzalez-Giraldo E, Auguste K, Ostendorf A, McNally K, Alexander A, Berrios-Servios G, Eschbach K, Bolton J, Ailion A, Singh R, Wong-Kisiel L, Zaccariello M, Tatachar P, Duong P, Depositario-Cabacar D, Berl M, Sepeta L, Karakas C, Karia S, Mohapatra L, Rowmanowski E, McNamara N, Hodges E, Shrey D, Hennrick H, Olaya J, Arredondo K, DeLeon R, Reddy S, Molnar A, Javarayee P, Park S, Coryell J, Olsen E, Bearden D, Winston M, Samanta D, Armstrong D, Wolf S, McGoldrick P, Marashly A, Grinspan Z, Nangia S, Perry M, Ciliberto M · Epilepsy and Behavior · 2026
Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practiceBroden Arciprete E, Michelson K, Feder S, Marr J, Al-Roub N, Gouda S, Jones A, Schopen A, Tapper A, Pasek T, Kelly R, Morris L, Olszewski A, Gallagher C, Taylor J, McCarthy S, Snaman J, Ananth P · Intensive & critical care nursing · 2026
Not there yet: Pediatric palliative care in Canada 2002-2012Widger K, Davies D, Dauost L, Liben S, Rapoport A, Gregoire M, Vadeboncoeur C, Stenekes S, Cyr C, Sarpal A, Roy H, Hodgson-Viden H, Robertson M, Siden H · Journal of Pain and Symptom Management · 2016
Opioids in Palliative CareSalazar-Trujillo N, Torres-Méndez R, Molina-Covarrubias J · Opioids: Pharmacology, Abuse, and Addiction · 2022
Palliative CareWasilewski-Masker K, Howk T, Connelly E, Postovsky S, Brill P, Wrammert K, Pillai R · Pediatric Oncology · 2017
Parental Grief and Bereavement: Exploring the Impact of Collaboratively Created Films on Audience MembersBurke J, Checo G, Agarwal A, Hawley B, Scheunemann L, Grassmyer C, Hackwelder T, Leinbach M, Pentz M, Weber A, Indralingam R, Baumann S · Health Promotion Practice · 2026
Pediatric CardiomyopathiesLee T, Hsu D, Kantor P, Towbin J, Ware S, Colan S, Chung W, Jefferies J, Rossano J, Castleberry C, Addonizio L, Lal A, Lamour J, Miller E, Thrush P, Czachor J, Razoky H, Hill A, Lipshultz S · Circ Res · 2017
Pediatric chronic patients at outpatient clinics: A study in a Latin American University HospitalAlveno R, Miranda C, Passone C, Waetge A, Hojo E, Farhat S, Odone-Filho V, Tannuri U, Carvalho W, Carneiro-Sampaio M, Silva C · Jornal de Pediatria. · 2017
Perspectives of pediatric oncologists and palliative care physicians on the therapeutic use of cannabis in children with cancerOberoi S, Protudjer J, Rapoport A, Rassekh S, Crooks B, Siden H, Decker K, Ananth P, Chapman S, Balneaves L, Vanan M, Kelly L · Cancer Reports
Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in BrazilMcNeil M, Godfrey A, Loggetto P, De Oliveira Junior A, Job G, Boldrini E, Regina Costa Murra G, Antunes Geronutti Ayub D, Francisco Oliveira De Lima A, Esmeraldo Andrade De Almeida A, Lopes Garcia J, Beatriz Costa Neves Do Amaral A, Cristina Cunha Ferreira E, Friedrich P, Metzger M, Devidas M, Agulnik A, Baker J · JCO Global Oncology · 2023
Physician Perceptions of Palliative Care for Children With Cancer in Latin AmericaMcNeil M, Ehrlich B, Wang H, Vedaraju Y, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gillipelli S, Gomez Garcia W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Devidas M, Baker J, Agulnik A, Assessing Doctors' Attitudes on Palliative Treatment Latin America Study G · JAMA Network Open · 2022
Place of death of children with complex chronic conditions: cross-national study of 11 countriesHakanson C, Ohlen J, Kreicbergs U, Cardenas-Turanzas M, Wilson D, Loucka M, Frache S, Giovannetti L, Naylor W, Rhee Y, Ramos M, Teno J, Beernaert K, Deliens L, Houttekier D, Cohen J · European Journal of Pediatrics. · 2017
Practice patterns of palliative radiation therapy in paediatric oncology patients amongst an international paediatric research consortiumRao A, Ermoian R, Alcorn S, Figueiredo M, Chen M, Dieckmann K, MacDonald S, Ladra M, Kobyzeva D, Nechesnyuk A, Nilsson K, Winey B, Villar R, Terezakis S · Pediatric Blood and Cancer · 2016
Prevalence and Trajectory of Household Material Hardship Among Children With Advanced CancerWright S, Paul M, Mendez S, Jones E, Lokko L, Heneghan C, Purol N, Arnold M, Aziz-Bose R, Kelly C, Pruitt S, Wolfe J, Bona K, Umaretiya P · Pediatric Blood and Cancer · 2026
Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancerWidger K, Friedrichsdorf S, Wolfe J, Liben S, Pole J, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock J, Rapoport A · BMC Palliative Care · 2016
Quality Measures for End-of-Life in Children with Heart Disease: A Modified Delphi ApproachJohnston E, Tefera R, Nyamao T, Martinez I, Bhayani S, Mendoza E, Ananth P, Whittle S, Sadler E, James K, Moynihan K, Bhatia S, Asch S · Journal of Pain and Symptom Management · 2026
Quality of Care in the Last Two Years of Life for Children with Complex Chronic ConditionsBogetz J, Strub B, Bradford M, McGalliard J, Shipman K, Jeyte A, Patneaude A, Johnston E, Ananth P, Thienprayoon R, Rosenberg A · Journal of pain and symptom management · 2024
Quality of palliative care for children with cancerWidger K, Friedrichsdorf S, Wolfe J, Liben S, Pole J, Bouffet E, Greenberg M, Husain A, Siden H, Whitlock J, Rapoport A · Journal of Pain and Symptom Management · 2016
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral centerBaker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Race, Ethnicity, and Social Determinants of Health in PICU Mode of Death: Single-Center Retrospective Cohort StudyAlladin A, Pfeiffer B, Nino P, Mosal S, Nares M, Alba-Sandoval M, Solano J, Gelman B, Cantwell G, Jeyapalan A · Critical Care Explorations · 2026
Racial Disparities in Palliative Care at End-of-life in Children with Advanced Heart Disease in the SouthTurner H, Davis E, Martinez I, Anshumani S, Boresino S, Buckingham S, Caudill C, Dai C, Mendoza E, Moynihan K, Puttock L, Tefera R, Bhatia S, Johnston E · The Journal of Pediatrics · 2024
Research Priorities in Pediatric Palliative CareBaker J, Levine D, Hinds P, Weaver M, Cunningham M, Johnson L, Anghelescu D, Mandrell B, Gibson D, Jones B, Wolfe J, Feudtner C, Friebert S, Carter B, Kane J · Journal of Pediatrics · 2015
Social Determinants of Health And End-Of-Life Circumstances in A Quaternary Children's HospitalJamieson T, Liu J, Goldberg S, Ting J, Fox M, Rosenberg A, Heneghan C, Kwan S, Schicho F, Vitali S, Kheir J, Johnston E, Thiagarajan R, Weller E, Ward V, Moynihan K · Journal of pain and symptom management · 2026
Society of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of LifeDerrington S, Broden Arciprete E, Lin M, Oczkowski S, Alladin A, Anani U, Borchik A, Collins C, Delgado-Corcoran C, Dickerman M, Harrod C, Henner N, Kon A, Lewis-Newby M, Lord B, Masters A, McCarthy S, Moynihan K, Munoz-Blanco S, Rissman L, Roberts K, Schlegel A, Schopen A, Siegel L, Swasey H, Wawrzynski S, Zorko D, DeCourcey D · Pediatric Critical Care Medicine · 2026
Systems Theory Model to Understand the Barriers and Facilitators to Palliative Care Referral for Pediatric Oncology Patients in CanadaGranek L, Hasan F, Lysecki D, Johnston D, Veldhuijzen van Zanten S, Datoo N, Gupta S, Chan A, Wiener L, Widger K, McCullogh E, Kassam A, Fergus K, Rapoport A · JCO oncology practice · 2026
The AAP Resilience in the Face of Grief and Loss CurriculumSerwint J, Bostwick S, Burke A, Church A, Gogo A, Hofkosh D, King M, Linebarger J, McCabe M, Moon M, Osta A, Rana D, Sahler O, Smith K, Rivera F, Baldwin C · Pediatrics. · 2016
The association of age, literacy, and race on completing patient-reported outcome measures in pediatric oncologyWithycombe J, McFatrich M, Pinheiro L, Hinds P, Keller F, Baker J, Mack J, Sung L, Waldron M, Reeve B · Quality of Life Research · 2019
The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, CanadaWidger K, Vadeboncoeur C, Zelcer S, Liu Y, Kassam A, Sutradhar R, Rapoport A, Nelson K, Wolfe J, Earle C, Pole J, Gupta S · Journal of Palliative Medicine · 2017
Top Ten Tips Palliative Care Clinicians Should Know About Delivering Specialty-Aligned Palliative CareLeiter R, Bischoff K, Carey E, Gelfand S, Iyer A, Jain N, Kramer N, Lally K, Landzberg M, Lever N, Newport K, O`Donnell A, Patel A, Sciacca K, Snaman J, Tulsky J, Rosa W, Lakin J · Journal of Palliative Medicine
Transfusion Use Among Children with Hematologic Malignancies Receiving Concurrent Hospice CareWeaver M, Jalfon R, Liang J, Mamer T, Johnson L, Kaye E, Salek M, Cowfer B, Superdock A, Li Y, Levine D · Journal of Pain & Symptom Management · 2026
Trends and Causes of Neonatal Mortality in Canadian Neonatal Intensive Care UnitsStritzke A, Bhullar H, Ruth C, Lodha A, Beltempo M, Shah P, Pillay T, Wong J, Stavel M, Sherlock R, Mehrem A, Toye J, Ting J, Fajardo C, Harabor A, Strueby L, Seshia M, Louis D, Ruth C, Yi A, Mukerji A, Da Silva O, Augustine S, Lee K, Ng E, Lemyre B, Bitar E, Bizgu V, Nouraeyan N, Barrington K, Lapointe A, Ethier G, Drolet C, Zeid M, St-Hilaire M, Bertelle V, Masse E, Costa P, Makary H, Aziz A, de Carvalho Nunes G, Alburaki W, Hudson J, Afifi J, Kajetanowicz A, Chang C, Piedboeuf B · Journal of Pediatrics · 2026
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)Rose L, McKim D, Leasa D, Nonoyama M, Tandon A, Bai Y, Amin R, Katz S, Goldstein R, Gershon A · PLoS ONE · 2019
UnspokenLalisan A, Woodman K, Silverstein A · Journal of pain and symptom management · 2025
Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures as Clinical Trial Endpoints: Experience from a Multicenter Pragmatic Trial in Children with Crohn’s DiseaseMiller T, Schuchard J, Carle A, Forrest C, Kappelman M, Adler J, Ammoury R, Bass D, Bass J, Benkov K, Bousvaros A, Boyle B, Cabrera J, Colletti R, Dorsey J, Ebach D, Firestine A, Gulati A, Hoffenberg E, Jester T, Kaplan J, Kugathasan S, Kusek M, Leibowitz I, Linville T, Margolis P, Minar P, Rios Z, Moses J, Palomo P, Pappa H, Pashankar D, Saeed S, Samson C, Sandberg K, Steiner S, Strople J, Sullivan J, Tung J, Wali P · The Journal of Pediatrics · 2021
Well-Child Visits of Medicaid-Insured Children with Medical ComplexityShumskiy I, Richardson T, Brar S, Hall M, Cox J, Crofton C, Peltz A, Samuels-Kalow M, Alpern E, Neuman M, Berry J · Journal of Pediatrics · 2018
Filter the literature by The Americas →
