Published literature
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, BelgiumFriedel M, Gilson A, Bouckenaere D, Brichard B, Fonteyne C, Wojcik T, De Clercq E, Guillet A, Mahboub A, Lahaye M, Aujoulat I · BMJ Paediatrics Open · 2019
A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancerGranek L, Veldhuijzen van Zanten S, Lysecki D, Rapoport A, Datoo N, Hasan F, Gupta S, Wiener L, Widger K, Chan A, Kassam A, Fergus K, McCullogh E, Johnston D · Palliat Support Care · 2026
Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014Friedel M, Brichard B, Fonteyne C, Renard M, Misson J, Vandecruys E, Tonon C, Verfaillie F, Hendrijckx G, Andersson N, Ruysseveldt I, Moens K, Degryse J, Aujoulat I · BMC Palliat Care. · 2018
Drivers that decrease hospital-delivered care in children with medical complexity: Parental perspectivesThibault L, Bourque C, Gaucher N, Marano M, Couture K, Saad L, Chartrand C, Fregeau S, Dore-Bergeron M, Fiscaletti M, Kleiber N · Paediatrics and Child Health (Canada) · 2024
Early Versus Late Pediatric Palliative Care in Oncology: A Systematic Review of Outcomes, Disparities, and Implementation BarriersRezaei F, Salamat F, Vejdani H, Moslemi Najarcolaie F, Gharibi Z, Shirali R, Okhli A, Esmi A, Kordian A · Galen Medical Journal · 2025
Expert survey on coverage and characteristics of pediatric palliative care in Europe - a focus on home careWager J, Kubek L, Brenner M, Calmanti S, Doyle C, Lovgren M, Kreicbergs U, Kremer L, Le Moine P, Robert G, Schuiling-Otten M, Schroder-Back P, Verhagen E, Zernikow B · BMC Palliative Care · 2022
Ideal Timing and Perceived Barriers for Palliative Care Integration for Children with Cancer in ChinaRuixin W, Xuan Z, Siyu C, Sun C, Garcia-Quintero X, Anan Z, Xiangling H, Weihong Z, Jie H, Hao Z, Job G, Devidas M, Weiwei Z, Xianjing W, Ping Z, Yanhua Y, Baker J, McNeil M · Journal of pain and symptom management · 2026
Ideal vs Actual Timing of Palliative Care Integration for Children With Cancer in Latin AmericaMcNeil M, Ehrlich B, Wang H, Bustamante M, Dussel V, Friedrich P, Garcia Quintero X, Gillipelli S, Gómez García W, Graetz D, Kaye E, Metzger M, Sabato Danon C, Devidas M, Baker J, Agulnik A · JAMA Netw Open · 2023
Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in BrazilMcNeil M, Godfrey A, Loggetto P, De Oliveira Junior A, Job G, Boldrini E, Regina Costa Murra G, Antunes Geronutti Ayub D, Francisco Oliveira De Lima A, Esmeraldo Andrade De Almeida A, Lopes Garcia J, Beatriz Costa Neves Do Amaral A, Cristina Cunha Ferreira E, Friedrich P, Metzger M, Devidas M, Agulnik A, Baker J · JCO Global Oncology · 2023
Programs to Support Pediatric to Adult Healthcare Transitions for Youth with Complex Care Needs and their Families: A Scoping ReviewDoucet S, Splane J, Luke A, Asher K, Breneol S, Pidduck J, Grant A, Dionne E, Scott C, Keeping-Burke L, McIsaac J, Gorter J, Curran J · Child: Care, Health and Development
Racial Disparities in Palliative Care at End-of-life in Children with Advanced Heart Disease in the SouthTurner H, Davis E, Martinez I, Anshumani S, Boresino S, Buckingham S, Caudill C, Dai C, Mendoza E, Moynihan K, Puttock L, Tefera R, Bhatia S, Johnston E · The Journal of Pediatrics · 2024
Raising Awareness: Real World Data On Palliative Care for Advanced Pediatric Cancers in BavariaNehls N, Börner M, Ziegelmayer S, Haller B, Klot F, Metzler M, Frühwald M, Schlegel P, Corbacioglu S, Feuchtinger T, Lüttichau I · Pediatric Blood & Cancer · 2025
Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative studyPapworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hain R, Subramanian G, Haynes A, Fraser L · BMC Palliative Care · 2023
Social Determinants of Health And End-Of-Life Circumstances in A Quaternary Children's HospitalJamieson T, Liu J, Goldberg S, Ting J, Fox M, Rosenberg A, Heneghan C, Kwan S, Schicho F, Vitali S, Kheir J, Johnston E, Thiagarajan R, Weller E, Ward V, Moynihan K · Journal of pain and symptom management · 2026
Stakeholder's Perspectives on the Barriers and Facilitators of Childhood Cancer Care in IndiaNath A, Mathur P, Sudarshan K, Arora R, Seth R, Kumar S, Chinnaswamy G, Budukh A, Singh V, Kumari T, Banipal R, Bodal V, Kumar A, Vijay C, Avinash T, Ramesh C, Gundeti S, Malik S, Chaudhary N, Majumdar G, Das D, Radhakrishnan N, Rao V, Rawal M, Pautu J, Sundriyal D, Hazarika M, Harris C, Jondhale S, Khamo V, Najmi A, Pareek P, Konjengbam R, Das Majumdar S, Pandya S, Shah A, Singh S, Radhakrishnan V, Swaminathan R, Kumar C, Singh P, Tiwari L, Mandal S, Tawsik S, Pandey A, Gunaseelan K, Bhutia T · Indian Pediatrics · 2025
Systems Theory Model to Understand the Barriers and Facilitators to Palliative Care Referral for Pediatric Oncology Patients in CanadaGranek L, Hasan F, Lysecki D, Johnston D, Veldhuijzen van Zanten S, Datoo N, Gupta S, Chan A, Wiener L, Widger K, McCullogh E, Kassam A, Fergus K, Rapoport A · JCO oncology practice · 2026
Transition to adult services for young people suffering from life-limiting neurodevelopmental disabilities: A case seriesCheng H, Li C, Yeung K, Lee T, Chan K, Chung W, Hsu D, Chan O, Chui R, Man C, Cheung K, Wong C, Wu M, Chan C · Progress in Palliative Care · 2022
Vulnerability and agency across treatment-seeking journeys for acutely ill children: how family members navigate complex healthcare before, during and after hospitalisation in a rural Kenyan settingZakayo S, Njeru R, Sanga G, Kimani M, Charo A, Muraya K, Sarma H, Uddin M, Berkley J, Walson J, Kelley M, Marsh V, Molyneux S · Int J Equity Health · 2020
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