Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–21 of 21 publications
Barriers to Palliative Care Integration for Children With Cancer Across Asia Pacific
PURPOSE: Early integration of palliative care (PC) for children with cancer is vital to improved patient outcomes. Despite this, access to PC services for children in Asia Pacific (AP) is sparce. We aimed to explore potential barriers to PC provision in childh…
Global Barriers to Pediatric Palliative Care: A Systematic Review
Pediatric palliative care (PPC) improves quality of life for children with serious illness and families, yet access remains limited, especially in low-income, rural, and historically marginalized communities. This review synthesizes global barriers to PPC acce…
Less Pain, More Meaning and Comfort: The Need to Enhance Paediatric Palliative Care in the West Bank of Palestine
This article focuses on the challenges and current state of paediatric palliative care (PPC) in the Palestinian territories, particularly the West Bank. It highlights limited access to specialised PPC services, shortages of trained healthcare professionals, in…
Milestones and Horizons: Highlights from the 4th International Children's Palliative Care Network Conference in Manila, Philippines
The International Children's Palliative Care Network (ICPCN) held its 4th international conference in Manila, Philippines (12th-15th November 2025), in partnership with The Ruth Foundation. The conference, 'Milestones & Horizons,' marked ICPCN's 20th anniversa…
Patient Concerns on Access to Supportive Care Medicines and Symptom Management Outcomes Among Children with Cancer in Tanzania
Background: Pediatric cancers cause significant morbidity and mortality among children in Tanzania. Chemotherapy remains the primary treatment, but it often leads to treatment-induced toxicities that necessitate supportive care medicines. This study assessed p…
Perceived Challenges to Effective Pediatric Palliative Care in India: A Systematic Review
Pediatric palliative care aims to improve the quality of life for children with life-threatening diseases. The requirements and approach to pediatric palliative care differ greatly from adult palliative care. Palliative care has been introduced and grown in In…
Preferences and willingness to pay for palliative care among parents of children with cancer: a Discrete Choice Experiment
Purpose To quantify the preference of parents of children with cancer for palliative care (PC) in China to provide references for the development of service programs. Methods A discrete choice experiment (DCE) was used to explore preferences for PC among paren…
Reducing inequity in the provision of children's palliative care in low- and middle- income countries: A focus on education and research
There are over 21 million children and their families globally who need palliative care,1 yet estimates suggest that less than 10% can access it. The greatest need for palliative care in children is in low- and middle-income countries, where 98% of the demand …
Key constituents for integration of care for children assisted with long-term home ventilation: a European study
BACKGROUND: The number of children requiring long-term home ventilation has consistently increased over the last 25 years. Given the growing population of children with complex care needs (CCNs), this was an important area of focus within the Models of Child H…
Pediatric End-of-life Care Barriers and Facilitators: Perception of
Introduction: End-of-life care is a critical issue for pediatric