Published literature
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, BelgiumFriedel M, Gilson A, Bouckenaere D, Brichard B, Fonteyne C, Wojcik T, De Clercq E, Guillet A, Mahboub A, Lahaye M, Aujoulat I · BMJ Paediatrics Open · 2019
Accurate empathy: Mapping and navigating the world of adolescent loss, grief, and traumaCounseling Adolescents through Loss, Grief, and Trauma by Pamela A. Malone. New York, NY: Routledge, 2016. 184 pp. (ISBN: 978-041587055). $44.95 (paperback)Phiri S, Tweya H, van Lettow M, Rosenberg N, Trapence C, Kapito-Tembo A, Kaunda-Khangamwa B, Kasende F, Kayoyo V, Cataldo F, Stanley C, Gugsa S, Sampathkumar V, Schouten E, Chiwaula L, Eliya M, Chimbwandira F, Hosseinipour M · J Acquir Immune Defic Syndr. · 2017
A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planningLyon M, D'Angelo L, Dallas R, Hinds P, Garvie P, Wilkins M, Garcia A, Briggs L, Flynn P, Rana S, Cheng Y, Wang J · AIDS care · 2017
Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot EvaluationRudolf I, Pieper K, Nolte H, Junge S, Dopfer C, Sauer-Heilborn A, Ringshausen F, Tummler B, von Jan U, Albrecht U, Fuge J, Hansen G, Dittrich A · JMIR mHealth and uHealth · 2019
Children and adolescents with cancer assisted in a Support Institution in Juiz de Fora, Minas Gerais, Brazil - Preliminary studyChagas P, Marques R, Goretti P, Castilho J, El'corab B, Costa M, Taroco A, Oliveira I, Costa H, Fronio J · Developmental Medicine and Child Neurology · 2021
Estimating national prevalence of life-limiting conditions amongst infants, children, and adolescents using administrative hospital data in the absence of a unique health identifier; evidence from IrelandSmith S, Delamere T, Fraser L, Murphy O, May P, McElligott F, Devins M, Horne T, Rabbitte M, Guerin S, O'Hara S, Dillon M, Balfe J · BMC Pediatrics · 2026
Guidance for Pediatric End-of-Life CareLinebarger J, Johnson V, Boss R, Section On H, Palliative M, Collura C, Humphrey L, Miller E, Williams C, Rholl E, Ajayi T, Lord B, McCarty C · Pediatrics · 2022
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital databaseRevon-Riviere G, Pauly V, Baumstarck K, Bernard C, Andre N, Gentet J, Seyler C, Fond G, Orleans V, Michel G, Auquier P, Boyer L · Cancer. · 2019
‘I’m tired of justifying why my life has stopped’: A qualitative analysis of the experiences and support needs of young people caring at the end of life and into bereavementHarrop E, Abbott Z, Hopewell-Kelly N, Goss S, Byrne C, Bayliss J, Jones K, Clabburn O, Warren R, Penny A, Leadbitter H · Palliative Care and Social Practice · 2026
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancerAvery J, Geist A, D'Agostino N, Kawaguchi S, Mahtani R, Mazzotta P, Mosher P, al-Awamer A, Kassam A, Zimmermann C, Samadi M, Tam S, Srikanthan A, Gupta A · Journal of Oncology Practice · 2020
Palliative CareWasilewski-Masker K, Howk T, Connelly E, Postovsky S, Brill P, Wrammert K, Pillai R · Pediatric Oncology · 2017
Pediatric chronic patients at outpatient clinics: A study in a Latin American University HospitalAlveno R, Miranda C, Passone C, Waetge A, Hojo E, Farhat S, Odone-Filho V, Tannuri U, Carvalho W, Carneiro-Sampaio M, Silva C · Jornal de Pediatria. · 2017
Programs to Support Pediatric to Adult Healthcare Transitions for Youth with Complex Care Needs and their Families: A Scoping ReviewDoucet S, Splane J, Luke A, Asher K, Breneol S, Pidduck J, Grant A, Dionne E, Scott C, Keeping-Burke L, McIsaac J, Gorter J, Curran J · Child: Care, Health and Development
Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancerSansom-Daly U, Wiener L, Darlington A, Poort H, Rosenberg A, Weaver M, Schulte F, Anazodo A, Phillips C, Sue L, Herbert A, Mack J, Lindsay T, Evans H, Wakefield C, Global Adolescent and Young Adult Cancer Accord End-of-Life Study G · PLoS ONE [Electronic Resource] · 2022
Transition to adult services for young people suffering from life-limiting neurodevelopmental disabilities: A case seriesCheng H, Li C, Yeung K, Lee T, Chan K, Chung W, Hsu D, Chan O, Chui R, Man C, Cheung K, Wong C, Wu M, Chan C · Progress in Palliative Care · 2022
What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and ParentsBraybrook D, Coombes L, Scott H, Harardottir D, Roach A, Bariuan J, Ellis-Smith C, Downing J, Murtagh F, Bluebond-Langner M, Fraser L, Harding R, Bristowe K · The patient · 2025
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