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Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Showing 1–12 of 12 publications

Current situation, challenges and future trends of pediatric palliative care from a multi-dimensional perspective: a narrative review
Lv D, Li Y, Chen X, Bao Y · Translational Pediatrics · 2026 · DOI: 10.21037/tp-2026-0343
Background and Objective: Pediatric palliative care (PPC) provides holistic support for children and adolescents with life-threatening or life-limiting conditions and their families. This narrative review summarizes PPC concepts, current service models, key im…
Western PacificChinaAdolescents & Young AdultsCare ModelsReview/Synthesis
Estimating national prevalence of life-limiting conditions amongst infants, children, and adolescents using administrative hospital data in the absence of a unique health identifier; evidence from Ireland
Smith S, Delamere T, Fraser L, Murphy O, May P, McElligott F, Devins M, Horne T, Rabbitte M, Guerin S, O'Hara S, Dillon M, Balfe J · BMC Pediatrics · 2026 · DOI: 10.1186/s12887-026-07003-1
EuropeIrelandAdolescents & Young AdultsPeri/neonatal palliative careQuantitative
Palliative Care Involvement and End-of-Life Care Intensity Among Adolescents and Young Adults with Nonmalignant Illnesses: A Population-Based Cohort Study in Ontario, Canada
Abdelaal M, Parsons H, al-Awamer A, Mosher P, Lapenskie J, Fung S, Yoo S, Tanuseputro P, Downar J · Journal of Palliative Medicine · 2025 · DOI: 10.1089/jpm.2024.0524
Background: Adolescents and young adults (AYAs) with life-limiting
The AmericasCanadaAdolescents & Young AdultsEnd of Life CareQuantitative
Quality indicators for transition from paediatric to adult care for adolescents with chronic physical and mental illness: protocol for a systematic review
Bailey K, Lee S, de Los Reyes T, Lo L, Gorter J, Toulany A · BMJ open · 2021 · DOI: 10.1136/bmjopen-2021-055194
INTRODUCTION: Transition from paediatric to adult care is a complex process, which poses significant challenges for adolescents with chronic physical and mental illnesses. For many, transfer to adult care is associated with poor health and psychosocial outcome…
The AmericasCanadaAdolescents & Young AdultsQuality of CareProtocolReview/Synthesis
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Lau N, Bradford M, Steineck A, Scott S, Bona K, Yi-Frazier J, McCauley E, Rosenberg A · Palliative Medicine · 2020 · DOI: 10.1177/0269216319886215
Background: The "Promoting Resilience in Stress Management" intervention is a skills-based, early palliative care intervention with demonstrated efficacy in adolescents and young adults with cancer.
The AmericasUnited States of AmericaAdolescents & Young AdultsOncologyQuantitative
Issues in adolescent and young adult oncology in a developing country like India
Gupta S, Jafa E, Bansal A · Indian Journal of Medical and Paediatric Oncology · 2020
South-East AsiaIndiaAdolescents & Young AdultsOncology
Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review
Matthew F, Debra S, Cunningham Charles E, Willem G · Journal of Transition Medicine · 2018 · DOI: 10.1515/jtm-2018-0003
The transition to adulthood is a developmental phase which occurs as young people move from adolescence into adulthood. Young people with disabilities, including cerebral palsy (CP), and their families have reported challenges during the transition to adulthoo…
GlobalAdolescents & Young AdultsNeurologyReview/Synthesis
Accurate empathy: Mapping and navigating the world of adolescent loss, grief, and traumaCounseling Adolescents through Loss, Grief, and Trauma by Pamela A. Malone. New York, NY: Routledge, 2016. 184 pp. (ISBN: 978-041587055). $44.95 (paperback)
Phiri S, Tweya H, van Lettow M, Rosenberg N, Trapence C, Kapito-Tembo A, Kaunda-Khangamwa B, Kasende F, Kayoyo V, Cataldo F, Stanley C, Gugsa S, Sampathkumar V, Schouten E, Chiwaula L, Eliya M, Chimbwandira F, Hosseinipour M · J Acquir Immune Defic Syndr. · 2017
The AmericasUnited States of AmericaAdolescents & Young AdultsGrief & bereavement
Applying a Positive Youth Development Perspective to Observation of Bereavement Camps for Children and Adolescents
Richardson R, Ferguson P, Maxymiv S · J Soc Work End Life Palliat Care · 2017
The AmericasUnited States of AmericaAdolescents & Young AdultsGrief & bereavement
Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer
Kaal S, Kuijken N, Verhagen C, Jansen R, Servaes P, Van Der Graaf W · Journal of Adolescent and Young Adult Oncology · 2016 · DOI: 10.1089/jayao.2015.0009
EuropeNetherlandsAdolescents & Young AdultsEnd of Life CareOncologyParents/CaregiversQuality of CareMixed methods
Longitudinal Randomized Controlled Trial of Advance Care Planning for Teens: Religiousness and End of Life Treatment Preferences
Lyon M, Wang J · Journal of Adolescent Health · 2016 · DOI: 10.1016/j.jadohealth.2015.10.180
The AmericasUnited States of AmericaAdolescents & Young AdultsAdvance Care PlanningCommunicable DiseasesEnd of Life CareSpiritualityQuantitativeRandomised controlled trials
Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to Adulthood
Goossens E, Bovijn L, Gewillig M, Budts W, Moons P · Am J Obstet Gynecol. · 2016
GlobalAccess to CareAdolescents & Young AdultsChildren with Medical ComplexityReview/Synthesis