Published literature
Advance Care Planning for Children With Rare Diseases: A Pilot RCTLyon M, Fraser J, Thompkins J, Clark H, Brodie N, Detwiler K, Torres C, Guerrera M, Younge T, Aoun S, Trujillo Rivera E · Pediatrics · 2024
A randomised trial of early palliative care for maternal stress in infants prenatally diagnosed with single-ventricle heart diseaseHancock H, Pituch K, Uzark K, Bhat P, Fifer C, Silveira M, Yu S, Welch S, Donohue J, Lowery R, Aiyagari R · Cardiol Young · 2018
A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planningLyon M, D'Angelo L, Dallas R, Hinds P, Garvie P, Wilkins M, Garcia A, Briggs L, Flynn P, Rana S, Cheng Y, Wang J · AIDS care · 2017
Cannabis-based products for pediatric epilepsy: An updated systematic reviewElliott J, DeJean D, Clifford T, Coyle D, Potter B, Skidmore B, Alexander C, Repetski A, Shukla V, McCoy B, Wells G · Seizure · 2019
CHILD-BRIGHT READYorNot Brain-Based Disabilities Trial: protocol of a randomised controlled trial (RCT) investigating the effectiveness of a patient-facing e-health intervention designed to enhance healthcare transition readiness in youthGorter J, Amaria K, Kovacs A, Rozenblum R, Thabane L, Galuppi B, Nguyen L, Strohm S, Mahlberg N, Ley A, Marelli A · BMJ Open · 2021
Death and Dying in Hospitalized Pediatric Patients: A Prospective Multicenter, Multinational StudyNicoll J, Dryden-Palmer K, Frndova H, Gottesman R, Gray M, Hunt E, Hutchison J, Joffe A, Lacroix J, Middaugh K, Nadkarni V, Szadkowski L, Tomlinson G, Wensley D, Parshuram C, Farrell C · J Palliat Med · 2021
Death One Hour After Terminal Extubation (DONATE): A Multisite Cohort StudyWinter M, Zhou A, Laksana E, Aczon M, Ledbetter D, Avesar M, Fainberg N, Hsu S, McCrory M, Morrow K, O'Brien C, Pringle C, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, Wetzel R · Critical Care Medicine · 2024
Death One Hour After Terminal Extubation in Children: Validation of a Machine Learning Model to Predict Cardiac Death After Withdrawal of Life-Sustaining Treatment in a Multicenter Cohort, 2009-2021Winter M, Zhou A, Laksana E, Aczon M, Ledbetter D, Avesar M, Burkiewicz K, Chandnani H, Fainberg N, Hsu S, McCrory M, Morrow K, Noguchi A, O'Brien C E, Ojha A, Pringle C, Ross P, Shah J, Shah S, Shpaner L, Siegel L, Tripathi S, Wetzel R · Pediatric Critical Care Medicine · 2025
Efficacy of Traditional, Complementary, and Integrative Medicine in Pain and Psychological Distress Management for Pediatric Palliative Patients: A Systematic Review and Meta-Analysis of Randomized Controlled TrialsWu X, Lam C, Chu Y, Deng W, Chan C, Au K, Man S, Li C, Zhong C, Ho L, Cheung Y · Journal of Pain and Symptom Management · 2025
Evaluating Curricular Modules in the Care of Children with Medical Complexity: A Mixed-Methods Randomized Controlled TrialHuth K, Audcent T, Long-Gagne S, Sbrocchi A, Weiser N, Miller D, Arje D, Major N, Issa K, Cohen E, Orkin J · Academic Pediatrics · 2018
Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from CancerKenney A, Tutelman P, Fisher R, Lipak K, Barrera M, Gilmer M, Fairclough D, Akard T, Compas B, Davies B, Hogan N, Vannatta K, Gerhardt C · J Clin Psychol Med Settings · 2021
Influence of pediatric advance care planning on the secondary outcomes of the BOOST pACP trial: determinants of communication between parents and adolescents with cancervan Driessche A, Beernaert K, Deliens L, Kars M, Wallaert S, Willems L, Morren H, Vercruysse G, Van den Bossche A, De Vleminck A, Cohen J · European Journal of Pediatrics · 2025
Integrating Electronic Patient-Reported Outcomes and Palliative Care in Pediatric Advanced Cancer: The PediQUEST Response Multisite Randomized Controlled TrialDussel V, Orellana L, Requena M, Avery M, Becker D, Ullrich C, Feudtner C, Freedman J, Kang T, Waldman E, Gerhardt C, Bakitas M, Baker J, Friedrichsdorf S, Rosenberg A, Wolfe J · Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2026
Living with Loss: study protocol for a randomized controlled trial evaluating an internet-based perinatal bereavement program for parents following stillbirth and neonatal deathLoughnan S, Lancaster A, Crocker S, Astell C, Griffin A, Wojcieszek A, Boyle F, Ellwood D, Dean J, Horey D, Callander E, Jackson C, Seeho S, Shand A, Flenady V · Journal of Loss & Trauma · 2025
Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and researchMcFatrich M, Brondon J, Lucas N, Hinds P, Maurer S, Mack J, Freyer D, Jacobs S, Baker J, Mowbray C, Wang M, Castellino S, Barz Leahy A, Reeve B · Cancer · 2019
Measuring the Effects of an Animal-Assisted Intervention for Pediatric Oncology Patients and Their Parents: A Multisite Randomized Controlled TrialMcCullough A, Ruehrdanz A, Jenkins M, Gilmer M, Olson J, Pawar A, Holley L, Sierra-Rivera S, Linder D, Pichette D, Grossman N, Hellman C, Guerin N, O'Haire M · J Pediatr Oncol Nurs · 2017
Pain Squad+ smartphone app to support real-time pain treatment for adolescents with cancer: protocol for a randomised controlled trialJibb L, Nathan P, Breakey V, Fernandez C, Johnston D, Lewis V, McKillop S, Patel S, Sabapathy C, Strahlendorf C, Victor J, Moretti M, Nguyen C, Hundert A, Cassiani C, El-Khechen Richandi G, Insull H, Hamilton R, Fang G, Kuczynski S, Stinson J · BMJ Open · 2020
Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures as Clinical Trial Endpoints: Experience from a Multicenter Pragmatic Trial in Children with Crohn’s DiseaseMiller T, Schuchard J, Carle A, Forrest C, Kappelman M, Adler J, Ammoury R, Bass D, Bass J, Benkov K, Bousvaros A, Boyle B, Cabrera J, Colletti R, Dorsey J, Ebach D, Firestine A, Gulati A, Hoffenberg E, Jester T, Kaplan J, Kugathasan S, Kusek M, Leibowitz I, Linville T, Margolis P, Minar P, Rios Z, Moses J, Palomo P, Pappa H, Pashankar D, Saeed S, Samson C, Sandberg K, Steiner S, Strople J, Sullivan J, Tung J, Wali P · The Journal of Pediatrics · 2021
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