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End of Life Care

Everything on the hub tagged End of Life Care: researchers, groups, current studies, resources and published literature together.

163 results

Published literature

Acceptability and feasibility of a pilot randomized controlled trial of Narrative e-Writing Intervention (NeW-I) for parent-caregivers of children with chronic life-threatening illnesses in Singapore.
Dutta O, Tan-Ho G, Low X, Tan T, Ganapathy S, Car J, Ho R, Miao C, Ho A · BMC palliative care · 2022
Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study
Coombes L, Braybrook D, Roach A, Scott H, Harðardóttir D, Bristowe K, Ellis-Smith C, Bluebond-Langner M, Fraser L, Downing J, Farsides B, Murtagh F, Harding R · Eur J Pediatr · 2022
A Comparison of Young Adults With and Without Cancer in Concurrent Hospice Care: Implications for Transitioning to Adult Health Care
Mooney-Doyle K, Keim-Malpass J, Svynarenko R, Lindley L · Journal of Adolescent and Young Adult Oncology · 2022
A Difficult and Loving Decision: Disparities in Pediatric End-of-Life Care
Liu A · Academic medicine : journal of the Association of American Medical Colleges · 2025
Advance Care Planning and Parent-Reported End-of-Life Outcomes in Children, Adolescents, and Young Adults With Complex Chronic Conditions
DeCourcey D, Silverman M, Oladunjoye A, Wolfe J · Critical Care Medicine · 2019
Advanced care planning five years on: an observational study of multi-centred service development for children with life-limiting conditions
Martin A, Beringer A · Child Care Health Dev · 2019
A Network Approach to Neonatal Palliative Care Education: Impact on Knowledge, Efficacy, and Clinical Practice
Knighting K, Kirton J, Silverio S, Shaw B · Journal of Perinatal and Neonatal Nursing · 2019
An Online Pediatric Palliative Care Education and Mentoring (Project ECHO) in Nepal: A Program Implementation Case Study and Assessment of Changes in Healthcare Providers' Knowledge, Confidence, and Attitudes
Lynch-Godrei A, Sapkota S, Rowe J, Paudel B, Aryal G, Doherty M · J Med Educ Curric Dev · 2024
An Unsuspected Case of Child Physical Abuse in a Pediatric Patient Enrolled in Hospice
Harris K, Ibach M, Lowen D, Hills T, Copenhaver E · Clin Pediatr (Phila) · 2022
Approaches to end-of-life discussions with parents of a profoundly compromised newborn
Paris J, Pai V, Cummings B, Batten J, Benitz W · Journal of Perinatology · 1078
A Qualitative Study Describing Pediatric Palliative Care in Non-Metropolitan Areas of Illinois
Murday P, Downing K, Gaab E, Misasi J, Michelson K · Am J Hosp Palliat Care · 2021
A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why?
Malcolm C, Knighting K · BMC Palliative Care · 2022
A review of approaches for resolving disputes between physicians and families on end-of-life care for newborns
Cummings B, Mercurio M, Paris J · Journal of Perinatology. · 2020
Assisted dying in the UK: please don't ignore the impact on children and young people
Fraser L, Downie J · Archives of Disease in Childhood · 2025
Barriers to and facilitators of end-of-life decision-making by neonatologists and neonatal nurses in neonates: a qualitative study
Dombrecht L, Piette V, Deliens L, Cools F, Chambaere K, Goossens L, Naulaers G, Cornette L, Beernaert K, Cohen J · Journal of pain and symptom management. · 2019
Barriers to Palliative Care for Terminally Ill Children in a Developing Country Cancer Hospital: A Qualitative Study
Khurshid S, Saleem A, Khanzada Z · Journal of Cancer & Allied Specialties · 2026
Bereaved parents' views on end-of-life care for children with cancer: Quality marker implications
Johnston E, Molina J, Martinez I, Dionne-Odom J, Currie E, Crowl T, Butterworth L, Chamberlain L, Bhatia S, Rosenberg A · Cancer. · 2020
‘Best interests’ in paediatric intensive care: an empirical ethics study
Birchley G, Gooberman-Hill R, Deans Z, Fraser J, Huxtable R · Archives of Disease in Childhood · 2017
Beyond technology, drips, and machines: Moral distress in PICU nurses caring for end-of-life patients
Gagnon M, Kunyk D · Nurs Inq · 2021
Caring decisions: The development of a written resource for parents facing end-of-life decisions
Xafis V, Gillam L, Hynson J, Sullivan J, Cossich M, Wilkinson D · Journal of Palliative Medicine · 2015
Caring for Dying Infants: A Systematic Review of Healthcare Providers' Perspectives of Neonatal Palliative Care
Beltran S, Hamel M · Am J Hosp Palliat Care · 2020
Challenges in preloss care to parents facing their child's end-of-life: A qualitative study from the clinicians perspective
Kochen E, Teunissen S, Boelen P, Jenken F, de Jonge R, Grootenhuis M, Kars M · Acad Pediatr · 2021
Charting a path to high-quality end-of-life care for children with cancer
Ananth P, Wolfe J, Johnston E · Cancer · 2022
Children's palliative care education and training: developing an education standard framework and audit
Neilson S, Randall D, McNamara K, Downing J · BMC Med Educ · 2021
Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes
Cuervo-Suarez M, Cleves D, Duque-Nieto N, Claros-Hulbert A, Molina-Gómez K, Bolaños-Lopez J, Tello-Cajiao M, Baker J, McNeil M, García-Quintero X · BMC palliative care · 2024
Circle of light education model: Death education for children in end of life care
Fu F, Jiao K, Luo C · Children and Youth Services Review · 2026
Clinician perception of care at the end of life in a quaternary neonatal intensive care unit
Imai L, Gray M, Kim B, Lyle A, Bock A, Weiss E · Front Pediatr · 2023
Comparison of End-of-Life Care Practices Between Children With Complex Chronic Conditions and Neonates Dying in an ICU Versus Non-ICUs: A Substudy of the Pediatric End-of-LIfe CAre Needs in Switzerland (PELICAN) Project
Ramelet A, Bergstraesser E, Grandjean C, Dorsaz A, Fahrni-Nater P, Cignacco E, Zimmerman K · Pediatr Crit Care Med · 2020
Competencies for Psychology Practice in Pediatric Palliative Care
Thompson A, Schaefer M, McCarthy S, Hildenbrand A, Cousino M, Marsac M, Majeski J, Wohlheiter K, Kentor R · J Pediatr Psychol · 2023
Congruence Gaps between Adolescents with Cancer and Their Families Regarding Values, Goals, and Beliefs about End-of-Life Care
Friebert S, Grossoehme D, Baker J, Needle J, Thompkins J, Cheng Y, Wang J, Lyon M · JAMA Network Open · 2020
Considering medical assistance in dying for minors: the complexities of children's voices
Singh H, Macdonald M, Carnevale F · Journal of Medical Ethics · 2020
Consistency in end of life care
Allen D · Nursing Children and Young People · 2016
Continued Challenges Accessing Pediatric Hospice Services
Aglio T, Autrey A, Shostrom V, Weaver M, Kaye E, Lindley L · J Pain Symptom Manage · 2022
Counseling for personal care options at neonatal end of life: A quantitative and qualitative parent survey Psychosocial
Shelkowitz E, Vessella S, O'Reilly P, Tucker R, Lechner B · BMC Palliative Care · 2015
Death talk: Basic linguistic rules and communication in perinatal and paediatric end-of-life discussions
Xafis V, Watkins A, Wilkinson D · Patient Education and Counseling · 2016
Early palliative care is associated with less intense care in children dying with cancer in Alabama: A retrospective, single-site study
Davis E, Martinez I, Hurst G, Bhatia S, Johnston E · Cancer · 2021
Educational Priorities for Providing End-of-Life Care: Parent Perspectives
Arora G, Caliboso M, Baird J, Rusch R, Greenman J, Obregon D, Serwint J · Pediatrics · 2021
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Plaza Fornieles M, Garcia-Marcos Barbero P, Galera Minarro A, Barbieri G, Bellavia N, Bermudez Cortes M, Navarro Mingorance A · Anales de Pediatria. · 2019
Encouraging Family Physicians to Fill the Gaps in Hospice and Palliative Care for Children
Fan J, Kilpatrick L · Am Fam Physician · 2022
End-of-Life Care for Neonates: Assessing and Addressing Pain and Distressing Symptoms
Haug S, Dye A, Durrani S · Front Pediatr · 2020
End-of-life care in Brazilian Pediatric Intensive Care Units
Sousa I, Cruz C, Soares L, van Leeuwen G, Garros D · J Pediatr (Rio J) · 2023
End-of-life care in Brazilian pediatric intensive care units: challenges and opportunities
Rotta A, Alibrahim O · J Pediatr (Rio J) · 2023
End-of-Life Care of Hospitalized Children with Advanced Heart Disease
Lee J, Kim G, Song M, Lee S, Kim M, Bae E · Journal of Korean Medical Science · 2020
End of Life Care Practices at a Tertiary Cancer Centre in India: An Observational Study
Maurya B, Gupta R, Rathore P, Mishra S, Bharati S, Kumar V, Gupta N, Garg R, Bhatnagar S · American Journal of Hospice & Palliative Medicine · 2025
End-of-Life Milieu of Critically Sick Children Admitted to a Pediatric Hospital: A Comparative Study of Survivors versus Nonsurvivors
Das A, Bharti B, Malhi P, Singhi S · Indian J Palliat Care · 2019
End-of-life practices among tertiary care PICUs in the United States: A multicenter study
Meert K, Keele L, Morrison W, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Clark A, Holubkov R, Jenkins T, Doctor A, Dean J, Pollack M · Pediatric Critical Care Medicine · 2015
Evaluation of service user-led workshops in children's palliative care education
Pavey J, Kembrey J, Beringer A · Nurs Child Young People · 2023
Experiences of nursing students providing end of life care for children and young people: A focus group study
Camara C, Rosengarten L, Callum J · Nurse Educ Today · 2024
Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer
Kaal S, Kuijken N, Verhagen C, Jansen R, Servaes P, Van Der Graaf W · Journal of Adolescent and Young Adult Oncology · 2016
Face-Validated Quality Indicators for Appropriateness Of End-Of-Life Care in Children With Serious Illness: A Study Using the RAND/UCLA Appropriateness Method
Piette V, Deliens L, van der Werff Ten Bosch J, Beernaert K, Cohen J · J Pediatr · 2021
Factors impacting pediatric registered nurse attitudes toward caring for dying children and their families: A descriptive study
Richoux D, Chatmon B, Davis A, Sweeney B · J Pediatr Nurs · 2022
Faith-sensitive end of life care for children, young people and their families
Camara C, Rosengarten L · Br J Nurs · 2021
Fifteen-minute consultation: Paediatric organ and tissue donation
Singh A, Scales A, Mildner R · Archives of Disease in Childhood: Education and Practice Edition · 2021
First pediatric organ donation after circulatory determination of death in Singapore: Facing challenges in the absence of a local practice guideline
Thong W, Chong P, Koh P, Loh W, Tay S · Pediatr Transplant · 2020
Growing Symbiotic Local Partnerships to Nurture Quality Pediatric Hospice Care in Rural Regions: Companion Planting
Weaver M · JAMA Pediatr · 2018
High-risk communication at the time of hospice enrollment: Standardizing pediatric hospital to hospice sign out
Brock K, Mullaney E · Pediatr Blood Cancer · 2018
"Holding back my own emotions": Evaluation of an online education module in pediatric end-of-life care
Rawlings D, Winsall M, Yin H, Devery K · J Child Health Care · 2022
Home-based end of life care for children and their families - a systematic scoping review and narrative synthesis
Malcolm C, Knighting K, Taylor C · Journal of pediatric nursing · 2020
Hospital or Home? Where Should Children Die and How Do We Make that a Reality?
Johnston E, Martinez I, Currie E, Brock K, Wolfe J · Journal of Pain and Symptom Management · 2019
Hospital use in the last year of life for children with life-threatening complex chronic conditions
Ananth P, Melvin P, Feudtner C, Wolfe J, Berry J · Pediatrics · 2015
Humanising Child Death: The Creation and Subsequent Development of Children's Palliative Care as a Distinct Clinical, Educational and Research Speciality
Noyes J · Journal of advanced nursing · 2026
Identifying and Quantifying Adolescent and Young Adult Patient Preferences in Cancer Care: Development of a Conjoint Analysis-Based Decision-Making Tool
Snaman J, Blazin L, Holder R, Wolfe J, Baker J · J Adolesc Young Adult Oncol · 2018
Identifying Patterns of Pediatric Mental and Behavioral Health at End of Life: A National Study
Svynarenko R, Beebe L, Lindley L · J Hosp Palliat Nurs · 2021
"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Hospice Home
Shaw T, Berkel C, Bernatavicius W, Berger K · J Palliat Med · 2022
"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Inpatient Hospice Facility (GP709)
Berkel C, Bernatavicius W, Berger K, Shaw T · Journal of Pain and Symptom Management · 2020
Implementing a Best Practice Guideline for Withdrawing Life Sustaining Therapies at a Large Pediatric Hospital
Mauser D, Bartiss M, Lipsitz J, Sawyer K, Carpenter A, Crawford C, Franklin N, Coleman R, Casas J · Journal of pain and symptom management · 2025
Implementing a nurse-led paediatric palliative care service
Sadler K, Nancarrow L, Alyami H, Abudari G · International journal of palliative nursing · 2022
Improved terminal care in pediatric intensive care units
Abel R · Padiatrische Praxis · 2016
Improving Neonatal Intensive Care Unit Providers' Perceptions of Palliative Care through a Weekly Case-Based Discussion
Allen J, Shukla R, Baker R, Slaven J, Moody K · Palliat Med Rep · 2021
Incorporating Bereaved Parents as Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care (FR452)
Snaman J, Kaye E, Levine D, Clark L, Wilcox R, Cunningham M, Baker J · Journal of Pain and Symptom Management · 2018
Independent hospices for children and young people; Hospices North East
Brown A, Newton J, Nicholson C, Fearing A, Gordon S, Wood P, Egdell A, McKean M, Ellam J · Archives of Disease in Childhood · 2021
Indi Gregory: A Wider Perspective on Children's Best Interests at the End-of-life
De Sabbata K, Pearson A · Med Law Rev · 2024
Integration of Routine Parental Request of Organ Donation in End-of-Life Care of Children with Neurologic Disorders in the UK: Unresolved Medical, Legal, Cultural, and Religious Challenges
Rady M · Neurocritical care. · 2020
Intensity at the end of life in pediatric neuro-oncology patients: The
Udemgba C, Hoehn K, Darlington W, Palama B · Journal of Clinical Oncology · 2023
In what circumstances will a neonatologist decide a patient is not a resuscitation candidate?
Murray P, Esserman D, Mercurio M · J Med Ethics · 2016
Leveraging AI-Powered Cultural Intelligence to Enhance Pediatric Critical Care Nurses' Competencies in End-of-Life Care
Hemdan Abdelhamed Morsi T, Abdelgawad Said D, Mohamed Adam Tozer S, Mohamed Ibrahim Nassar H · Egyptian Journal of Health Care · 2026
Listening to the multidisciplinary care team: exploring the pediatric palliative care needs in advanced chronic kidney disease
Nenner V, Napierala H, Jonas M, Kubiak N, Thumfart J · Pediatric nephrology (Berlin, Germany) · 2025
Longitudinal Randomized Controlled Trial of Advance Care Planning for Teens: Religiousness and End of Life Treatment Preferences
Lyon M, Wang J · Journal of Adolescent Health · 2016
Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013
Keim-Malpass J, Cozad M, Svynarenko R, Mack J, Lindley L · J Spec Pediatr Nurs · 2021
Moral Distress in the Neonatal Intensive Care Unit: What Is It, Why It Happens, and How We Can Address It
Mills M, Cortezzo D · Frontiers in Pediatrics · 2020
Moral equivalence theory in neonatology
Lin M, Vitcov G, Cummings C · Semin Perinatol · 2022
Music therapy and pediatric palliative care: songwriting with children in the end-of-life
Giordano F, Rutigliano C, Baroni M, Grassi M, Muggeo P, Santoro N · World J Pediatr · 2022
National Children's Hospitals Bereavement Network standards for supporting families following the death of a child
Edwards F · Nursing children and young people. · 2020
Navigating a child's best interest: the essential role of palliative care
Craig F · The Lancet Child and Adolescent Health · 2023
Neonatal donation: are newborns too young to be recognized?
Vileito A, Hulzebos C, Toet M, Baptist D, Verhagen E, Siebelink M · Eur J Pediatr · 2021
Neonatal euthanasia in the context of palliative and EoL care
Verhagen A · Semin Fetal Neonatal Med · 2023
Neonatal Nurses' Perceptions and Needs of End-of-Life Care Practice: A Jordanian Qualitative Study
Shattnawi K, Younis B, Omran S · J Hosp Palliat Nurs · 2022
Neonatal Nurses' Perceptions of Palliative Care in the Neonatal Intensive Care Unit
Chin S, Paraszczuk A, Eckardt P, Bressler T · MCN Am J Matern Child Nurs · 2021
Nurses' Experiences in End-of-Life Care in the PICU: A Qualitative Systematic Review
Mu P, Tseng Y, Wang C, Chen Y, Huang S, Hsu T, Florczak K · Nursing science quarterly · 2019
Nurses' experiences of end-of-life communication with children who have life-threatening conditions in paediatric intensive care units: a qualitative descriptive study
Donmez C, Kara R, Muslu K, Johnston B · BMC palliative care · 2026
Nurses' experiences of managing vulnerability when working with seriously ill children
Nugent A, Donohue G, Higgins A · Nurs Child Young People · 2022
Nurses' roles and challenges in providing end-of-life care in neonatal intensive care units in South Korea
Kim S, Savage T, Song M, Vincent C, Park C, Ferrans C, Kavanaugh K · Applied Nursing Research · 2019
Opportunities for Palliative Care in Public Health
De Lima L, Pastrana T · Annu Rev Public Health · 2016
Paediatric end-of-life care - symptoms and problems: parent assessment
Lykke C, Ekholm O, Olsen M, Sjogren P · BMJ supportive & palliative care. · 2021
Paediatric palliative care: Recommendations for treatment of symptoms in the Netherlands Palliative care in other conditions
Knops R, Kremer L, Verhagen A · BMC Palliative Care · 2015
Palliative and end-of-life care for infants and their families in the NICU: Building a program of research
Fortney C · Journal of pediatric nursing. · 2019
Palliative Care Family Support in Neonatology
Currie E, Navaneethan H, Weaver M · Principles of Neonatology · 2023
Palliative care for pediatric intensive care patients and families
Rothschild C, Derrington S · Current opinion in pediatrics · 2020
Palliative Care in Children With Heart Disease Treated in an ICU
Delgado-Corcoran C, Wawrzynski S, Bennett E, Green D, Bodily S, Moore D, Cook L, Olson L · Pediatr Crit Care Med · 2020
Palliative Care Involvement and End-of-Life Care Intensity Among Adolescents and Young Adults with Nonmalignant Illnesses: A Population-Based Cohort Study in Ontario, Canada
Abdelaal M, Parsons H, al-Awamer A, Mosher P, Lapenskie J, Fung S, Yoo S, Tanuseputro P, Downar J · Journal of Palliative Medicine · 2025
Palliative extubation: five-year experience in a pediatric hospital
Affonseca C, Carvalho L, Quinet R, Guimaraes M, Cury V, Rotta A · J Pediatr (Rio J) · 2019
Palliative home-based care to pediatric cancer patients: characteristics and healthcare delivered
Noriega Í, García-Salido A, Martino R, Herrero B · Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer · 2022
Palliative medicines for children – a new frontier in paediatric research
Jamieson L, Wong I, Craig F, Christiansen N, Brombley K, Tuleu C, Harrop E · Journal of Pharmacy and Pharmacology · 2017
Palliative Sedation Therapy in Pediatrics: An Algorithm and Clinical Practice Update
Cuviello A, Johnson L, Morgan K, Anghelescu D, Baker J · Children · 2022
Palliative team involvement in end-of-life care for Jewish and Muslim children in Jerusalem: A unique clinical and cultural context
Shack A, Fried I, Siedner-Weintraub Y · Palliative & Supportive Care · 2024
Parent experience of advance care planning: reconstructing meaning - grounded theory
Bennett H, Duke S, Richardson A · BMJ Support Palliat Care · 2023
Parents' acceptance and regret about end of life care for children who died due to malignancy
Das K, Khanna T, Arora A, Agrawal N · Supportive Care in Cancer. · 2019
Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey
Beernaert K, Lovgren M, Jeppesen J, Werlauff U, Rahbek J, Sejersen T, Kreicbergs U · J Child Neurol · 2019
Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions
DeCourcey D, Silverman M, Oladunjoye A, Balkin E, Wolfe J · The Journal of Pediatrics · 2017
Patterns of palliative care service consultation in a sample of critically ill ICU patients at high risk of dying
Seaman J, Barnato A, Sereika S, Happ M, Erlen J · PLoS Negl Trop Dis. · 2016
Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research
Lindley L, Keim-Malpass J, Svynarenko R, Cozad M, Mack J, Hinds P · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. · 2020
Pediatric End-of-life Care Barriers and Facilitators: Perception of
Khraisat O, Alakour N, O'Neill T · Indian Journal of Palliative Care (INDIAN J PALLIAT CARE), 199-206
Pediatric End-of-Life Decision-Making in Mainland China: Case-Based Analysis of Illness Narratives
Zhao Y, Zhang J, Low W · The American journal of hospice & palliative care · 2026
Pediatric intensive care nurses' perspectives on the quality of dying and death among hospitalized children: A Cross-Sectional Study
Khozani N, Truog R, Shoghi M · Journal of Research Development in Nursing and Midwifery · 2026
Pediatric palliative care: Competency and educational needs assessment in pediatricians of a developing country
Ul-Ain R, Faizan M, Mohamed A · Pediatric Hematology Oncology Journal · 2021
Pediatric Palliative Transport in Critically Ill Children: A Single Center's Experience and Parents' Perspectives
Menon A, Mok Y, Loh L, Lee J · J Pediatr Intensive Care · 2020
Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital
Trowbridge A, Bamat T, Griffis H, McConathey E, Feudtner C, Walter J · Academic pediatrics. · 2019
Pediatric Resident Perception and Participation in End-of-Life Care
Niehaus J, Palmer M, LaPradd M, Haskamp A, Hatton A, Scanlon C, Hill A · American Journal of Hospice and Palliative Care · 2020
Perceptible Signs of End of Life in Pediatric Intensive Care Patients
Pierron C, Levy M, Mattioni V, Poncelet G, Le Bourgeois F · J Palliat Med · 2022
Perinatal Palliative Care Service: Developing a Comprehensive Care Package for Vulnerable Babies with Life Limiting Fetal Conditions
Tewani K, Jayagobi P, Chandran S, Anand A, Thia E, Bhatia A, Bujal R, Khoo P, Quek B, Tagore S, Chua M · J Palliat Care · 2021
Physicians' attitudes in relation to end-of-life decisions in Neonatal Intensive Care Units: a national multicenter survey
Chatziioannidis I, Iliodromiti Z, Boutsikou T, Pouliakis A, Giougi E, Sokou R, Vidalis T, Xanthos T, Marina C, Iacovidou N · BMC Med Ethics · 2020
Place of death in children and young people with cancer and implications for end of life care: A population-based study in England, 1993-2014
Gao W, Verne J, Peacock J, Stiller C, Wells C, Greenough A, Higginson I · BMC Cancer · 2016
Places of Farewell: A Scoping Review Exploring Factors Influencing the Choice of Place of Death for Children when Death is Expected
Davis G, Gaskin K, Molnar G, Bentley J · Compr Child Adolesc Nurs · 2024
Preferences regarding end-of-life care among adolescents and young adults with cancer: results from a comprehensive multicenter survey in Japan
Hirano H, Shimizu C, Kawachi A, Ozawa M, Higuchi A, Yoshida S, Shimizu K, Tatara R, Horibe K · Journal of pain and symptom management. · 2019
Preferred place of death in paediatric, teenage and young adult haemato-oncology patients: a retrospective review
Stilwell P, Bhatt A, Mehta K, Carter B, Bisset M, Soanes L, Shankar A · BMJ supportive & palliative care. · 2020
Primary Caregivers Caring for a Child at End of Life in Saudi Arabia
Hafez S, Snethen J, Taani M, Ngui E, Ellis J, Baothman A · Palliat Med Rep · 2022
Providing Support for Neonatal Intensive Care Unit Health Care Professionals: A Bereavement Debriefing Program
Hawes K, Goldstein J, Vessella S, Tucker R, Lechner B · American journal of perinatology. · 2020
Psychological distress and social support among community paediatric palliative care programme caregivers: longitudinal analysis
Wong E, Au-Doung P, Chu Y, Wong S, Li C, Cheung Y · BMJ supportive & palliative care · 2023
Quality measures for end-of-life care for children with cancer: A modified Delphi approach
Johnston E, Martinez I, Wolfe J, Asch S · Cancer · 2021
Reimagining a children's palliative care educational programme for registered nurses in response to the COVID-19 pandemic
Kennedy M, Loftus M, Lafferty T, Hilliard C, Reaper-Reynolds S, O'Donnell C · Nurse Educ Today · 2022
Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy
Costantini M, Sleeman K, Peruselli C, Higginson I · Palliative Medicine · 2020
Role of Sense of Coherence in Mediating the Relationship Between End-of-Life Caregiving Burden and Bereavement Depressive-Symptom Trajectory
Wen F, Chou W, Hou M, Su P, Shen W, Chen J, Chang W, Tang S · The journal of nursing research : JNR · 2026
Shared decision-making in pediatric palliative care
Stroh J, Carter B · Current Problems in Pediatric and Adolescent Health Care · 2023
Shifting and intersecting needs: Parents' experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit
Broden E, Werner-Lin A, Curley M, Hinds R · Intensive Crit Care Nurs · 2022
Silent wounds: violence and adverse experiences in parents caring for terminally ill children in palliative care
Orozco J, Mendoza M, Martinez M, Pelaez-Ballestas I, de Lara A, Pedraza M · BMC palliative care · 2026
Symptoms and management of children with incurable cancer in mainland China
Ye Z, Zhang Z, Liang M, Liu X, Sun Z, Zhao J, Hu G, Yu Y · Eur J Oncol Nurs · 2019
Teaching of Medical Ethics Regarding Children, Death and Dying, and Research at the Uniformed Services University of the Health Sciences (USUHS) During Its First Fifty Years
Howe E · Military medicine · 2025
Teamwork and conflicts in paediatric end-of-life care
Verhagen A · Acta Paediatrica, International Journal of Paediatrics · 2018
Telling the truth to dying children-End-of-life communication with families
Lovgren M, Melin-Johansson C, Udo C, Sveen J · Acta Paediatr · 2019
Ten years of experience with pediatric palliative extubation in a Brazilian pediatric hospital: a retrospective analysis
Affonseca C, de Carvalho L, Abrantes M, Anchieta L · SSRN · 2026
The Belgian euthanasia law and its impact on the practises of Belgian paediatric palliative care teams.
Friedel M, Terwangne B, Brichard B, Ruysseveldt I, Renard M · International journal of palliative nursing · 2018
The Chameleon Project: A children's end of life care quality improvement project
Wolff A, Dorsett C, Haynes S, Whitehouse W, Clements H, Griffin H, Chhaochharia A, Connolly A, Kelly N, Turnbull J, Deorukker S, Hill S, Batey N, Douglas E, Sheikh N, Bifani E, Lovegrove S, Webb K, Manning J · Developmental Medicine and Child Neurology · 2020
The emergence of personal growth amongst healthcare professionals who care for dying children
Beaune L, Muskat B, Anthony S · Palliat Support Care · 2017
The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer
Dos Santos M, Szylit R, Deatrick J, Mooney-Doyle K, Wiegand D · Journal of family nursing · 2020
The experiences of pediatric social workers providing end-of-life care
Muskat B, Brownstone D, Greenblatt A · Social Work in Health Care · 2017
The fragile spirituality of parents whose children died in the pediatric intensive care unit
Falkenburg J, van Dijk M, Tibboel D, Ganzevoort R · Journal of health care chaplaincy · 2020
The Fraught Notion of a "Good Death" in Pediatrics
Moore B · J Med Philos · 2022
The Impact of Pediatric Palliative Care Involvement in the Care of Critically Ill Patients without Complex Chronic Conditions
Spraker-Perlman H, Tam R, Bardsley T, Wilkes J, Farley L, Moore D, Sheetz J, Baker J · J Palliat Med · 2018
The quality of nursing care in dying children from the nurses' point of view in Iran: A cross-sectional study
Ahmadi-Forg F, Sattari M, Hasani H · Heliyon · 2024
The relationship between the nursing environment and delivering culturally sensitive perinatal hospice care
Mixer S, Lindley L, Wallace H, Fornehed M, Wool C · International Journal of Palliative Nursing · 2015
The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J · Journal of Pediatric Nursing · 2023
The Use of Simulation to Improve Resident Communication and Personal Experience at End-of-Life Care
Nellis M, Howell J, Ching K, Bylund C · Journal of Pediatric Intensive Care · 2017
Treatment limitation and advance planning: Hospital-wide audit of paediatric death
Audigé M, Gillam L, Stark Z · J Paediatr Child Health · 2020
Use of subcutaneous fluids in palliative care with children: a case study
Smith A, Jane Brimble M · Nurs Child Young People · 2020
Using Quality Improvement Science to Create a Navigator in the Electronic Health Record for the Consolidation of Patient Information Surrounding Pediatric End-of-Life Care
Casas J, Jeppesen A, Peters L, Schuelke T, Magdoza N, Hesselgrave J, Loftis L · J Pain Symptom Manage · 2021
Vulnerability of Inexperience: A Qualitative Exploration of Physician Grief and Coping after Impactful Pediatric Patient Deaths
Wolfe A, Hinds P, Arnold R, Soghier L, Tompkins R · Journal of Palliative Medicine · 2022
Weighing Distress and Benefit: Understanding the Research Participation Experiences of Bereaved Parents of Children With Complex Chronic Conditions
Deming R, Wolfe J, DeCourcey D · J Pain Symptom Manage · 2020
What Does 'Good' Palliative Care Look Like for Children and Young People? A Qualitative Study of Parents' Experiences and Perspectives
Fields D, Fraser L, Taylor J, Hackett J · Palliat Med · 2023
What information do parents need when facing end-of-life decisions for their child? A meta-synthesis of parental feedback
Xafis V, Wilkinson D, Sullivan J · BMC palliative care · 2015
What’s Wrong With Advance Care Planning?
Morrison R, Meier D, Arnold R · JAMA · 2021
When Technology Fails: Community-Based Pediatric Hospice
Ryan J, Haas K, Kramer N, Vizzachero N, Butler S, Waechtler E · Journal of Pediatric Nursing · 2016
Whispers of Comfort: Filipino Pediatric Palliative Nurses’ Insights on Holistic Care at New Hope Foundation, China
Clenuar R · International Journal of Research and Innovation in Applied Science · 2026
Whom are we seeking to protect? Extremely preterm babies and moral distress
Prentice T, Gillam L, Davis P, Janvier A · Semin Perinatol · 2021

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