Clinical focus

Grief & bereavement

Everything on the hub tagged Grief & bereavement: researchers, groups, current studies, resources and published literature together.

1052 results

Researchers

Callie Daniels-Howell
International Children's Palliative Care Network · United States
Najiya P
National institute of mental health and neuroscience · India

Filter the directory by Grief & bereavement →

Research groups

Stanford QoLA Lab
United States

Published literature

Accurate empathy: Mapping and navigating the world of adolescent loss, grief, and traumaCounseling Adolescents through Loss, Grief, and Trauma by Pamela A. Malone. New York, NY: Routledge, 2016. 184 pp. (ISBN: 978-041587055). $44.95 (paperback)
Phiri S, Tweya H, van Lettow M, Rosenberg N, Trapence C, Kapito-Tembo A, Kaunda-Khangamwa B, Kasende F, Kayoyo V, Cataldo F, Stanley C, Gugsa S, Sampathkumar V, Schouten E, Chiwaula L, Eliya M, Chimbwandira F, Hosseinipour M · J Acquir Immune Defic Syndr. · 2017
A comparison of continuing bonds over time in bereaved parents and siblings after the death of a child
Akard T, Dietrich M, Baudino M, Stone A · Journal of Pain and Symptom Management · 2016
Acute and Posttraumatic Stress in Family Members of Children With a Prolonged Stay in a PICU: Secondary Analysis of a Randomized Trial
Erçin-Swearinger H, Lindhorst T, Curtis J, Starks H, Doorenbos A · Pediatr Crit Care Med · 2022
Adaptation and Feasibility of the interRAI Family Carer Needs Assessment in a Pediatric Setting
Stochitoiu I, Vadeboncoeur C · Health Services Insights · 2020
A Dutch clinical practice guideline for paediatric palliative care: a systematic review and recommendations on psychosocial care including preloss and bereavement care
van Teunenbroek K, Mulder R, Verhagen A, Kremer L, Falkenburg J, Honig-Mazer P, van den Bergh E, Kars M, Verheijden J, Rippen H, Borggreve B, Kochen E, Michiels E, van Roosmalen T, van Wageningen N, M W, Berkhout L, Karen G, Looijestijn J, Knoester H, Haag A, Gijsbertsen-Kool A · BMC Palliative Care · 2025
A Dutch paediatric palliative care guideline: a systematic review and evidence-based recommendations for symptom treatment
van Teunenbroek K, Mulder R, Ahout I, Bindels-de Heus K, Delsman-van Gelder C, Galimont-Collen A, de Groot M, Heitink-Polle K, Looijestijn J, Mensink M, Mulder S, Schieving J, Schouten-van Meeteren A, Verheijden J, Rippen H, Borggreve B, Kremer L, Verhagen A, Michiels E · BMC Palliat Care · 2024
Advance care planning: outpatient antenatal palliative care consultation
Carter B · Arch Dis Child Fetal Neonatal Ed. · 2017
Advanced planning in perinatal palliative care-are we making clear end of life plans?
Downie J, Khader A, Campbell M, Murdoch E · Archives of Disease in Childhood · 2016
A Framework for Pediatric Intensivists Providing Compassionate Extubation at Home
Woodruff A, Bingham S, Jarrah R, Bass A, Nageswaran S · Pediatric Critical Care Medicine · 2021
African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study
Côté-Arsenault D, Denney-Koelsch E, McCoy T, Kavanaugh K · Applied Nursing Research · 2019
After an end-of-life decision: Parents' reflections on living with an end-of-life decision for their child
Sullivan J, Gillam L, Monagle P · Journal of Paediatrics and Child Health · 2020
A good resource for parents, but will clinicians use it?: Evaluation of a resource for paediatric end-of-life decision making
Delany C, Xafis V, Gillam L, Hughson J, Hynson J, Wilkinson D · BMC Palliat Care. · 2017
A Grounded Theory Study on the Dynamics of Parental Grief during the Children's End of Life
Kochen E, Grootenhuis M, Teunissen S, Boelen P, Tataranno M, Fahner J, de Jonge R, Houben M, Kars M · Acta Paediatr · 2023
A linguistic study of Chinese Weibo users who lost their only child
Liu M, Liu T, Wang X, Zhao N, Xue J, Zhu T · Death Studies · 2019
Ambiguous Loss: Implications for Perinatal and Neonatal Nurses
Joseph R, Highton M · Neonatal Network · 2025
A Metasynthesis: Uncovering What Is Known About the Experiences of Families With Children Who Have Life-limiting and Life-threatening Illnesses
Bally J, Smith N, Holtslander L, Duncan V, Hodgson-Viden H, Mpofu C, Zimmer M · J Pediatr Nurs · 2018
A Methodologic Approach to Conducting a Statewide Community Needs Assessment of Pediatric Palliative Care and Hospice Resources
Brock K, Allen K, Barton C, Shapiro R, Weintraub B, Wasilewski-Masker K, Escoffery C, Johnson K · Journal of pain and symptom management. · 2020
A Mother's Tears: Contemplating Black Grief
Johnson K · Ann Fam Med · 2022
A Mother's Voice: The Construction of Maternal Identity Following Perinatal Loss
Rossen L, Opie J, O'Dea G · Omega: Journal of Death & Dying · 2026
A Multimodal Mindfulness Training to Address Mental Health Symptoms in Providers Who Care for and Interact With Children in Relation to End-of-Life Care
O'Mahony S, Gerhart J, Abrams I, Greene M, McFadden R, Tamizuddin S, Levy M · The American journal of hospice & palliative care · 2017
An 8-Week Community-Based Resilience Group Intervention for Chinese Parents Who Lost Their Only Child: A Two-Armed Pragmatic Waitlist-Control Trial
Wang A, Zhang W, Li H, Guo Y, Yu N, Zhang J · Psychological Trauma: Theory, Research, Practice & Policy · 2025
Analysis of how nurses cope facing the death of a paediatric patient
Lledó-Morera À, Bosch-Alcaraz A · Enfermeria Intensiva · 2020
An Analysis of John Bowlby’s Mourning Stages in Family Art Therapy as a Way to Help the Family Mourning Process
Seon Ah Y, Sung Hee A, Cho Hee K, Min-Sun K · Journal of Hospice & Palliative Care · 2023
And the Beat Goes On: Heartbeat Recordings through Music Therapy for Parents of Children with Progressive Neurodegenerative Illnesses
Walden M, Elliott E, Ghrayeb A, Lovenstein A, Ramick A, Adams G, Fairchild B, Schreck B · J Palliat Med · 2020
An exploration of women's lived experiences of care and support following perinatal death in South-Western Nigeria: A hermeneutic phenomenological study
Kuforiji O, Mills T, Lovell K · Women and Birth: Journal of the Australian College of Midwives · 2024
Angels in the Clouds: Stillbirth and Virtual Cemeteries on 50 YouTube Videos
Sani L, Laurenti Dimanche A, Bacqué M · Omega: Journal of Death & Dying · 2021
An Interdisciplinary Hospital-Based Committee to Improve Pediatric Bereavement Care
Goldberg J, Duplechain A, Fraser C, Boles J · Hospital pediatrics · 2021
An international study of caregiver-reported burden and quality of life in metachromatic leukodystrophy
Sevin C, Barth M, Wilds A, Afriyie A, Walz M, Dillon A, Howie K, Pang F · Orphanet J Rare Dis · 2022
Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Lykke C, Ekholm O, Schmiegelow K, Olsen M, Sjogren P · Journal of pain and symptom management. · 2019
A Phenomenological Study of Clinical Stillbirth Management for Grieving Mothers
Al-Shuqerat S, Al-Hamdan Z, Bawadi H · Journal of Social Work in End of Life & Palliative Care · 2024
Applying a Positive Youth Development Perspective to Observation of Bereavement Camps for Children and Adolescents
Richardson R, Ferguson P, Maxymiv S · J Soc Work End Life Palliat Care · 2017
A preliminary evaluation of a group compassion-focused intervention for individuals affected by perinatal loss
Hunter R, Pilling A, Warren H, Fox K, McCormack M · Frontiers in Psychiatry · 2025
A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team
Jagt Van Kampen C, Kars M, Colenbrander D, Bosman D, Grootenhuis M, Caron H, Schouten-Van Meeteren A · BMC Palliative Care · 2017
A Qualitative Study Into Parents' Experiences With Loss During Their Child's End-Of-Life: Enduring and Intrusions of Grief
Kochen E, Teunissen S, Boelen P, Grootenhuis M, Houben M, Tataranno M, Fahner J, De Jonge R, Kars M · Palliative Medicine · 2022
A randomised trial of early palliative care for maternal stress in infants prenatally diagnosed with single-ventricle heart disease
Hancock H, Pituch K, Uzark K, Bhat P, Fifer C, Silveira M, Yu S, Welch S, Donohue J, Lowery R, Aiyagari R · Cardiol Young · 2018
A Rapid Review on Shared Decision Making in Pediatric Palliative Care and End-of-Life Care: Implications for Clinical Practice, Research, and Policy
Fisher B, Cormack C, Haskamp A, Hagen K, Logan A · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2024
A Review of Parental Bereavement Interventions: Implications for Clinical
Dias N, Floyd A, Ramkumar R, Horvick S, Haberstroh A, Hendricks-Ferguson V, Fasolino T · Journal of Hospice & Palliative Nursing
Are we looking after our neonatal nursing colleagues? Experiences from an end of life care support study
Banaka M, Barrington H, Holland N, Woodford M, Ponnusamy V · Archives of Disease in Childhood · 2016
'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1
Higgs E, McClaren B, Sahhar M, Ryan M, Forbes R · Journal of Paediatrics and Child Health · 2016
A Sociocultural Approach to Children's Perceptions of Death and Loss
Sungeun Y, Soyeon P · Omega: Journal of Death & Dying · 2017
Assessing Pediatric Resident Needs in Grief and Bereavement Education
Reuman H, Maurer S, Harris K, Brown A · Journal of Pain and Symptom Management · 2024
Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity
Lord S, Moore C, Beatty M, Cohen E, Rapoport A, Hellmann J, Netten K, Amin R, Orkin J · JAMA Network Open · 2020
Assessment of quality of life, grief, and psychosocial need among bereaved caregivers of children with cancer
Josephs I, Xi K, Mannix M, Welch J · Omega: Journal of Death and Dying · 2026
Associations of Losing a Child With the Couple Relationship, Maternal Mental Health, and the Emotional Development of the Subsequent Baby
Nunes Maia G, Ruschel Bandeira D, Centenaro Levandowski D · Omega: Journal of Death & Dying · 2025
A survey of the experiences of families with bereavement support services following a perinatal loss
Inati V, Matic M, Phillips C, Maconachie N, Vanderhook F, Kent A · Aust N Z J Obstet Gynaecol · 2017
A Systematic Literature Review of the Current State of Knowledge Related to Interventions for Bereaved Parents
Dias N, Hendricks-Ferguson V, Wei H, Boring E, Sewell K, Haase J · Am J Hosp Palliat Care · 2019
A systematic review exploring palliative care for families who are forced migrants
Clancy M, Taylor J, Bradbury-Jones C, Phillimore J · Journal of Advanced Nursing · 2020
A Systematic Review of Grief Experiences of Children Who Have Lost a Sibling
Fujita A, Ueki S, Moriguchi H, Hamada Y, Sasazuki M · J Palliat Med · 2025
'A team around the child' professionals' experiences of unmet needs, access and expectations in children's palliative care services, a phenomenological study in the UK
Constantinou G, Cook E, Tolliday E, Randhawa G · Journal of child health care : for professionals working with children in the hospital and community · 2023
Attachment to God as a Mediator of the Relationship Between Religious Affiliation and Adjustment to Child Loss
Frei-Landau R, Tuval-Mashiach R, Silberg T, Hasson-Ohayon I · Psychological Trauma: Theory, Research, Practice & Policy · 2020
Attitude of the medical personnel of a pediatrics department towards patient death
Chong L, Chong P, Chee J · Journal of Palliative Medicine · 2018
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Kim Y, Choi Y, Lee B, Park J, Yun Y · Pediatric Critical Care Medicine · 2018
Availability and Quality of Grief and Bereavement Care in Pediatric Intensive Care Units Around the World, Opportunities for Improvement
Grunauer M, Mikesell C, Bustamante G, Aronowitz D, Zambrano K, Icaza-Freire A, Gavilanes A, Barrera R · Front Pediatr · 2021
Availability of bereavement support following traumatic pediatric death in a large metropolitan area
Divakar A, James K, Mayorga A, Michelson K · Death studies · 2023
A Virtual Children's Hospice in Response to COVID-19: The Scottish Experience
Ellis K, Lindley L · Journal of Pain & Symptom Management · 2020
A Week in the Life: Pediatric Palliative Care through the Eyes of a Medical Student
Williams E, Jarrell J, Rubenstein J · Children (Basel) · 2021
Balancing Protection and Progress in Pediatric Palliative Care Research: Stakeholder Perspectives
Mooney-Doyle K, Pyke-Grimm K, Lanzel A, Montgomery K, Hassan J, Thompson A, Rouselle R, Matheny Antommaria A · Pediatrics · 2022
Barriers and facilitators to the implementation of a paediatric palliative care team
Verberne L, Kars M, Schepers S, Schouten-Van Meeteren A, Grootenhuis M, Van Delden J · BMC Palliative Care · 2018
Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives
Mack J, Currie E, Martello V, Gittzus J, Isack A, Fisher L, Lindley L, Gilbertson-White S, Roeland E, Bakitas M · Journal of the National Comprehensive Cancer Network : JNCCN · 2021
Barriers to the spiritual care of parents taking care of their child with a life-limiting condition at home
Brouwer M, Bas-Douw B, Leget C, Engel M, Teunissen S, Kars M · Eur J Pediatr · 2023
Being there: A scoping review of grief support training in medical education
Sikstrom L, Saikaly R, Ferguson G, Mosher P, Bonato S, Soklaridis S · PLoS One · 2019
Benefits of Respite Services on the Psycho-Emotional State of Families of Children Admitted to Hospice Palliative Care Unit: Preliminary Study on Parents' Perceptions
Hizanu Dumitrache M, Boeriu E, Tanasescu S, Balan A, Oprisoni L, Popa M, Gutu C, Vulcanescu D, Bagiu I, Bagiu R, Dragomir T, Boru C, Avram C, Duceac L · Healthcare (Basel) · 2024
Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer
Sisk B, Keenan M, Schulz G, Bakitas M, Currie E, Gilbertson-White S, Lindley L, Roeland E, Mack J · Journal of adolescent and young adult oncology · 2022
Bereaved mothers' and fathers' perceptions of a legacy intervention for parents of infants in the NICU
Akard T, Duffy M, Hord A, Randall A, Sanders A, Adelstein K, Anani U, Gilmer M · J Neonatal Perinatal Med · 2018
Bereaved mothers' attitudes regarding autopsy of their stillborn baby
Human M, Goldstein R, Groenewald C, Kinney H, Odendaal H · South African journal of obstetrics and gynaecology · 2017
Bereaved mothers' experience of expressing and donating breast milk: An interpretative phenomenological study
Ward G, Adair P, Doherty N, McCormack D · Maternal & Child Nutrition · 2023
Bereaved Parent Perspectives and Recommendations on Best Practices for Legacy Interventions
Love A, Greer K, Woods C, Clark L, Baker J, Kaye E · Journal of Pain and Symptom Management · 2022
Bereaved Parent Perspectives on End-of-Life Conversations in Pediatric Oncology
Robert R, Razvi S, Triche L, Bruera E, Moody K · Children (Basel) · 2022
Bereaved parent preferences on quality end-of-life care for children with cancer in the South
Martinez I, Currie E, Davis E, Kumar R, Lawhon V, Snaman J, Tefera R, Bhatia S, Rosenberg A, Johnston E · Cancer · 2024
Bereaved Parents as Communication Workshop Facilitators for Clinicians Caring for Seriously Ill Children
Van Breemen C, Lusney N, Hermansen A, Vang L · Palliative Medicine Reports · 2025
Bereaved Parents' Change in Mental Health during a Dyadic Diary
Buyukcan-Tetik A, Topal M, Deryalar B, Ergun T, Aydin E, Aykutoglu B · Journal of Loss & Trauma · 2024
Bereaved parents experience of a hospital memorial service
Kobler K, Barnes M · Journal of Pain and Symptom Management · 2016
Bereaved parents' experiences of research participation
Butler A, Hall H, Copnell B · BMC palliative care · 2018
Bereaved Parents' Health Status During the First 6 Months After Their Child's Death
Dias N, Brandon D, Haase J, Tanabe P · Am J Hosp Palliat Care · 2017
Bereaved Parents, Hope, and Realism
Kaye E, Kiefer A, Blazin L, Spraker-Perlman H, Clark L, Baker J · Pediatrics · 2020
Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved
Hjorth E, Kreicbergs U, Sejersen T, Jeppesen J, Werlauff U, Rahbek J, Lovgren M · J Child Neurol · 2018
Bereaved Parents' Narratives of Their Child Who Died of Cancer: A Qualitative Study
Lucas C, Herold B, Montello M, Snaman J · Pediatrics · 2026
Bereaved Parents' Perceptions of Infant Suffering in the NICU
Fortney C, Baughcum A, Moscato E, Winning A, Keim M, Gerhardt C · Journal of pain and symptom management. · 2019
Bereaved Parents' Perspective on Communication of Transition to Palliative Care in Pediatric Oncology - Hungarian Experience
Foldesi E, Zorgo S, Nyiro J, Hegedus K, Hauser P · Pediatric Blood and Cancer · 2022
Bereaved Parents' Perspectives on Financial Toxicity at End of Life for Children with Cancer: A Qualitative Study
Alexander A, Martinez I, Tefera R, Beauchemin M, Lawhon V, Nichols A, Rosenberg A, Bhatia S, Johnston E · The Journal of pediatrics · 2025
Bereaved parents' views on end-of-life care for children with cancer: Quality marker implications
Johnston E, Molina J, Martinez I, Dionne-Odom J, Currie E, Crowl T, Butterworth L, Chamberlain L, Bhatia S, Rosenberg A · Cancer. · 2020
Bereaved Siblings' Advice to Health Care Professionals Working With Children With Cancer and Their Families
Lovgren M, Bylund-Grenklo T, Jalmsell L, Wallin A, Kreicbergs U · J Pediatr Oncol Nurs · 2016
Bereavement and end of life care issues of children with cancer and their families
Khan Ghazi E, Waheed R, Abbas A, Anam B · Pediatric Blood and Cancer · 2016
Bereavement follow-up: Listening and learning
Subramanian G, Consterdine K, Ryan C · Pediatric Critical Care Medicine · 2018
Bereavement Groups for Parents Who Have Lost a Child: A Qualitative Study of Parental Experiences in a Danish Context
Beck M, Missel M, Bergenholz H, van Manen M · Scandinavian journal of caring sciences · 2026
Bereavement in paediatric oncology: programme evaluation
Podda M, Nigro O, Barretta F, Schiavello E, Grampa P, Luksch R, Terenziani M, Ferrari A, Casanova M, Spreafico F, Meazza C, Biassoni V, Chiaravalli S, Bergamaschi L, Colombo V, Puma N, Gattuso G, Sironi G, Clerici C, Lombardi M, Forzini G, Massimino M · BMJ Supportive and Palliative Care · 2026
Bereavement Needs Assessment of a Growing Pediatric Palliative Care Program
Collette J, Autrey A, James C, Vaden A · Journal of Pain and Symptom Management · 2024
Bereavement, Palliative, and End-of-Life Education Needs Assessment
Jaisankar B, Henley K, Balakumar N, Ponton O · Critical Care Medicine · 2024
Bereavement support effectiveness for parents of infants and children: a systematic review
Ainscough T, Fraser L, Taylor J, Beresford B, Booth A · BMJ Support Palliat Care · 2019
Bereavement Support for Siblings after Neonatal Loss: an Online Survey of U.S. Training Centers
Tillhof K, Krawzak K, Batza J, Feltman D · American journal of perinatology · 2022
Beyond last words: Communicating with dying children who have trouble speaking
Russell C, Bouffet E, Brownstone D, Kaise C · Psycho-Oncology · 2016
Beyond treatment: Understanding family experiences in pediatric palliative care
Del Villar Guerra P, Andres de Alvaro M, Garcia Miralles L, Tamayo-Morales O, Ramos Pollo D · Palliative & supportive care · 2024
Bibliotherapy and Bereavement: Harnessing the Power of Reading to Enhance Family Coping in Pediatric Palliative Care
Rusch R, Greenman J, Scanlon C, Horne K, Jonas D · Journal of social work in end-of-life & palliative care · 2020
Big Thoughts in Little Jars: Memory Days for Families Where a Child has Died
McParland J, O’Gorman B, Victor J, Portnoy S · Clinical Child Psychology and Psychiatry · 2026
Bittersweet: a qualitative exploration of mothers' experiences of raising a single surviving twin
Jordan A, Smith P, Rodham K · Psychology, Health & Medicine · 2018
Bittersweet encounters. A qualitative exploration of parents’ unexplainable grief experiences after child loss
De Clercq E, Vokinger A, Pedraza E, Raguindin P, Tinner E, von Bueren A, Scheinemann K, Bergstraesser E, Michel G · Death Studies · 2025
Black, White, and Hispanic Children's Health and Function 2-13 Months After Sibling Intensive Care Unit Death
Youngblut J, Brooten D, Del-Moral T, Cantwell G, Totapally B, Yoo C · J Pediatr · 2019
Building community through song: The therapeutic hospice choir
Gosine J, Travasso R · British Journal of Music Therapy · 2018
Cancer-bereaved siblings' positive and negative memories and experiences of illness and death: A nationwide follow-up
Eilertsen M, Lovgren M, Wallin A, Kreicbergs U · Palliat Support Care · 2017
Can Parents Refuse a Potentially Lifesaving Transplant for Severe Combined Immunodeficiency?
Nickels A, Myers G, Johnson L, Joshi A, Sharp R, Lantos J · Pediatrics · 2016
Care after death in children's hospices: recommendations for moving and handling, and for managing physiological deterioration
Tatterton M, Honour A, Billington D, Kirkby L, Lyon J, Lyon N, Gaskin J · Nursing children and young people. · 2022
Care at End of Life Influences Grief: A Nationwide Long-Term Follow-Up among Young Adults Who Lost a Brother or Sister to Childhood Cancer
Lövgren M, Sveen J, Nyberg T, Eilegård Wallin A, Prigerson H, Steineck G, Kreicbergs U · Journal of Palliative Medicine · 2017
Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study
Pinto Taylor E, Doolittle B · Journal of Palliative Care · 2019
Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With Cancer
Currie E, Johnston E, Bakitas M, Roeland E, Lindley L, Gilbertson-White S, Mack J · Journal of palliative care · 2021
Caregivers' perception of teenagers' dignity in end of life stages: A phenomenological study
Mohammadi F, Oshvandi K, Khodaveisi M, Fatemeh C, Tehrani T, Khalili A, Kyle H · Nurs Ethics · 2022
Care of the Bereaved Mother
Rocio Guzman I · Care Of The Bereaved Mother · 2018
Care with love: Parents' experiences in caring their child with cancer under palliative care
Nafratilova M, Allenidekania A, Wanda D · Pediatric Blood and Cancer · 2018
Caring for Critically Ill Children With Suspected or Proven Coronavirus Disease 2019 Infection: Recommendations by the Scientific Sections' Collaborative of the European Society of Pediatric and Neonatal Intensive Care
Rimensberger P, Kneyber M, Deep A, Bansal M, Hoskote A, Javouhey E, Jourdain G, Latten L, MacLaren G, Morin L, Pons-Odena M, Ricci Z, Singh Y, Schlapbach L, Scholefield B, Terheggen U, Tissières P, Tume L, Verbruggen S, Brierley J · Pediatr Crit Care Med · 2021
Challenges in preloss care to parents facing their child's end-of-life: A qualitative study from the clinicians perspective
Kochen E, Teunissen S, Boelen P, Jenken F, de Jonge R, Grootenhuis M, Kars M · Acad Pediatr · 2021
Challenges in preloss care to parents facing their child's end-of-life: A qualitative study from the health care professionals' perspective
Kochen E, Teunissen S, Boelen P, Jenken F, De Jonge R, Grootenhuis M, Kars M · Palliative Medicine · 2021
Challenges of paediatric palliative care in the intensive care unit during the COVID-19 pandemic
Hasanpour M, Pouraboli B, Mohammadpour M, Tahmasebi M, Sabeti F · Int J Palliat Nurs · 2021
Challenges to code status discussions for pediatric patients
Kruse K, Batten J, Constantine M, Kache S, Magnus D · PLoS ONE · 2017
Change in maternal income status following stillbirth, neonatal death and severe neonatal morbidity
Jairam J, Brown H, Diong C, Berger H, Guan J, Cohen E, Ray J · Matern Health Neonatol Perinatol · 2026
Changes in Clinical Course Before and After Do-Not-Resuscitate Order Placement in a Pediatric Intensive Care Unit Setting
Ennamuri S, Abramson E, Mauer E, Gerber L, Nellis M · Journal of palliative medicine. · 2020
Changes in Parental Hopes for Seriously Ill Children
Hill D, Nathanson P, Carroll K, Schall T, Miller V, Feudtner C · Pediatrics · 2018
Changes in Relationships in Bereaved Families: Perspectives of Mothers
Kim M, Sang J, Yi J, Sung J, Howey W · Omega: Journal of Death & Dying · 2023
Changes in Siblings Over Time After the Death of a Brother or Sister From Cancer
Akard T, Skeens M, Fortney C, Dietrich M, Gilmer M, Vannatta K, Barrera M, Davies B, Wray S, Gerhardt C · Cancer Nursing · 2019
Characteristics of a Perinatal Palliative Care Program Over 10 years
Doherty M, Dumond L, Williams R, Stoppels N · Journal of Pain and Symptom Management · 2018
Childhood Bereavement and Lower Stress Resilience in Late Adolescence.
Kennedy B, Chen R, Valdimarsdottir U, Montgomery S, Fang F, Fall K · The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2018
Children's fears 2-13 months after sibling NICU/PICU/emergency department death
Roche R, Brooten D, Youngblut J · J Am Assoc Nurse Pract · 2019
Children's Health Care Utilization and Cost in the Last Year of Life: A Cohort Comparison with and without Regional Specialist Pediatric Palliative Care
Lysecki D, Gupta S, Rapoport A, Rhodes E, Spruin S, Vadeboncoeur C, Widger K, Tanuseputro P · Journal of Palliative Medicine · 2022
Children's palliative care in low- and middle-income countries
Downing J, Powell R, Marston J, Huwa C, Chandra L, Garchakova A, Harding R · Archives of Disease in Childhood · 2016
Children's Palliative Care; the identified Learning Needs of Paediatricians
Whitla L, Devins M, Molloy E, Twomey M, O'Reilly M, Balfe J · Irish Medical Journal · 2020
Collaboration of an Obstetrical Residency Program With a Community Hospice/Bereavement Agency to Implement an Obstetrician Specific Educational Curriculum to Improve Care to Bereaved Families and Support Staff During Difficult Delivery Situations
Parker K, Gerken K, Huckaby A, Gutek A, Freytag A, Buderer N, Rice M, Craig M, Cacciotti M, Stausmire J · American Journal of Hospice & Palliative Medicine · 2026
Communicating after the Death of a Child: Bereaved Parent Insights on the GRIEV_ING Framework
Baker L, Gagne-Loparo K, Stern N, Rouchou B, Remy A, Anderson I · Journal of Palliative Medicine · 2025
Community Hospice Nurses' Perspectives on Needs, Preferences, and Challenges Related to Caring for Children With Serious Illness
Porter A, Zalud K, Applegarth J, Woods C, Gattas M, Rutt E, Williams K, Baker J, Kaye E · JAMA network open · 2021
Compassionate deactivation of ventricular assist devices in pediatric patients
Hollander S, Axelrod D, Bernstein D, Cohen H, Sourkes B, Reddy S, Magnus D, Rosenthal D, Kaufman B · Journal of Heart & Lung Transplantation · 2016
Compassionate Design: Applying Design Thinking Principles to Pediatric End-of-Life Care (FR452)
Thienprayoon R, Lane J, Grossoehme D · Journal of Pain and Symptom Management · 2019
Compassionate Design: Utilizing Design Thinking to Preserve Sanctity, Dignity, and Personhood When Children Die
Grossoehme D, Mark M, Lane B, Rednour A, Thienprayoon R · Pediatr Qual Saf · 2020
Compassionate extubation in the home: It takes a team
Brown E, Thorn C, Cowell D · Journal of Pain and Symptom Management · 2016
Complicated Grief Following the Traumatic Loss of a Child: A Systematic
Champion Mpsych M, Kilcullen Mpsych P · Omega: Journal of Death & Dying · 2023
Comprehensive grief care for children and families: Policy and practice implications
Griese B, Burns M, Farro S, Silvern L, Talmi A · Am J Orthopsychiatry · 2017
Concerns of Parents with Children Receiving Home-Based Pediatric Palliative Care
Tutelman P, Lipak K, Adewumi A, Fults M, Humphrey L, Gerhardt C · Journal of pain and symptom management. · 2020
Congenital Cardiothoracic Surgeons and Palliative Care: A National Survey Study
Morell E, Thompson J, Rajagopal S, Blume E, May R · Journal of palliative care. · 2019
Congruent Communication: Addressing culture and care for a seriously ill Rohingya infant
Treat L, Macauley R · Journal of Pain and Symptom Management · 2022
Considerations for Practice in Supporting Parental Bereavement in the Neonatal Intensive Care Unit-a Systematic Review
Lakhani J, Mack C, Kunyk D, Kung J, van Manen M · Journal of Palliative Care · 2024
Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement
Cambonie G, Desage C, Thaller P, Lemaitre A, de Balanda K, Combes C, Gavotto A · BMC palliative care · 2023
Continuing bonds following stillbirth: protective and risk factors associated with parental bereavement adaptation
Jones E, Crawley R, Brierley-Jones L, Kenny C · Journal of Reproductive & Infant Psychology · 2023
Continuing bonds in parents after a loss in pregnancy, or a death at or shortly after birth: A population-based study
Brintow M, Prinds C, O'Connor M, Moller S, Henriksen T, Mork S, Hvidtjorn D · Death Stud · 2024
Conversations About End-of-Life Decisions in Neonatology: Do Doctors and Parents Implement Shared Decision-Making?
Schouten E, Beyer M, Flemmer A, de Vos M, Kuehlmeyer K · Front Pediatr · 2022
Cooling facilities in paediatric palliative care: a ritual form of mourning? A scoping literature review
De Clercq E, Vokinger A, Pedraza E, von Bueren A, Tinner E, Michel G · Mortality · 2025
Coping mechanisms used by nurses caring for dying children: a literature review
Barton H · Nursing children and young people · 2026
Coping with cystic fibrosis: An analysis from the sibling's point of view
Milo F, Ranocchiari S, Lucidi V, Tabarini P · Child: Care, Health and Development · 2021
Coregulatory Responsive Strategies in Bereaved Parents
Barboza J, Seedall R · Journal of Loss and Trauma · 2025
Counseling for personal care options at neonatal end of life: A quantitative and qualitative parent survey Psychosocial
Shelkowitz E, Vessella S, O'Reilly P, Tucker R, Lechner B · BMC Palliative Care · 2015
COVID-19: Impact on Pediatric Palliative Care
Scott H, Coombes L, Braybrook D, Roach A, Hardardottir D, Bristowe K, Ellis-Smith C, Higginson I, Gao W, Bluebond-Langner M, Farsides B, Murtagh F, Fraser L, Harding R · Journal of Pain and Symptom Management. · 2022
Critical care nurses' experiences of caring for a dying child: A qualitative evidence synthesis
Thomas R, Phillips M, Hamilton R · Journal of Nursing Scholarship · 2018
Cultivating Gratitude in Bereaved Families: Understanding the Impact of the Bereavement Workshop on the Families of Deceased Patients in the Pediatric Palliative Care Program
Cuervo-Suarez M, Molina-Gomez K, Bolanos-Lopez J, Pereira L, Devia A, Nieto N, Correa I, Alvarez Saa T, Garcia-Quintero X · Illness, Crisis & Loss · 2024
Cultural and Spiritual Approaches to Infant Death in Palliative Care: A Systematic Review
Cuartero-CastaÑEr M, Ribot M, Morcillo V, Gelabert S · Revista de Cercetare si Interventie Sociala · 2025
Cultural differences on baby loss experiences: A comparison of the US and New Zealand
Minton E, Krszjzaniek E, Wang C, Fox A, Anthony C · Death Studies · 2026
Culturally and linguistically diverse men’s grief experiences following perinatal death in Australia
Pearson T, Due C, Obst K · Omega: Journal of Death and Dying · 2025
Cultural or Spiritual End-of-Life Practice Preference Assessment and Documentation: Identifying Current Practice in Pediatric Hospice
Combs K, Stamm R, Thienprayoon R, Foster K, Behm K, Rozcicha L · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2025
Current Grief Support in Pediatric Palliative Care
Schuelke T, Crawford C, Kentor R, Eppelheimer H, Chipriano C, Springmeyer K, Shukraft A, Hill M · Children (Basel) · 2021
Death and Dying in Hospitalized Pediatric Patients: A Prospective Multicenter, Multinational Study
Nicoll J, Dryden-Palmer K, Frndova H, Gottesman R, Gray M, Hunt E, Hutchison J, Joffe A, Lacroix J, Middaugh K, Nadkarni V, Szadkowski L, Tomlinson G, Wensley D, Parshuram C, Farrell C · J Palliat Med · 2021
Death of a Child Prior to Midlife, Dementia Risk, and Racial Disparities
Umberson D, Donnelly R, Xu M, Farina M, Garcia M · Journals of Gerontology. Series B, Psychological Sciences and Social Sciences · 2019
Death of an Infant: Accessing the Voices of Bereaved Mothers to Create Healing
Hawthorne D, Joyner R, Gaucher E, Liehr P · J Clin Nurs · 2020
Decision aids available for parents making end-of-life or palliative care decisions for children: A scoping review
Medeiros C, Buckley L, Metcalfe K, Narayanan U, Widger K · Journal of Paediatrics and Child Health. · 2020
Decision-making at the limit of viability: an overview
Lemos A, Soares H, Guimaraes H · Minerva pediatrica. · 2020
Decision-making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study
Abdin S, Heath G, Neilson S, Byron-Daniel J, Hooper N · Child: care, health and development. · 2022
Decisions for long-term ventilation for children: perspectives of family members
Edwards J, Panitch H, Nelson J, Miller R, Morris M · Ann Am Thorac Soc · 2019
Defining a "Good Death" in the Pediatric Intensive Care Unit
Broden E, Deatrick J, Ulrich C, Curley M · American Journal of Critical Care · 2020
Defining Legacy: The Perceptions of Pediatric Health Care Providers
Boles J, Jones M, Dunbar J, Cook J · Clin Pediatr (Phila) · 2020
Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer
Helton G, Wolfe J, Snaman J · Journal of Pain & Symptom Management · 2020
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Surkan P, Sakyi K, Strobino D, Mehra S, Labrique A, Ali H, Ullah B, Wu L, Klemm R, Rashid M, West K, Christian P · Ann Epidemiol · 2016
Describing the Impact of Physician End-of-Life Communication Training on Simulated Stress Using a Novel Stress Marker
Wolfe A, Hinds P, du Plessis A, Gordish-Dressman H, Soghier L · American Journal of Hospice and Palliative Medicine® · 2025
Descriptive study on nurses' coping with the death of a pediatric patient
Legorburu Brezmes L · Enfermeria intensiva · 2025
Developing a culturally relevant bereavement needs assessment tool (CANCOPE-PI) for caregivers of children with cancer in India: a participatory research approach
Suresh V, Mittal A, Venketeswaran M, Radhakrishnan V, Veeraiah S, Ayloor Seshadri R · Research Involvement & Engagement · 2026
Developing an Infrastructure for Bereavement Outreach in a Maternal-Fetal Care Center
Cole J, Budney A, Howell L, Moldenhauer J · Fetal Diagnosis and Therapy · 2020
Developing a perinatal memory-making program at a children's hospital
Miller L, Lindley L, Mixer S, Fornehed M, Niederhauser V · Mcn · 2014
Developing a toolkit to support parents' involvement in child death review: an experience-based co-design study
Garstang J, Spry J, Routledge G, Pease A, Shaw K, Kenyon S · Archives of disease in childhood · 2024
Development and Assessment of a Measure of Parent and Child Needs in Pediatric Palliative Care
Donnelly J, Downing K, Cloen J, Fragen P, Gupton A, Misasi J, Michelson K · J Pain Symptom Manage · 2017
Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers
Linnemann R, O'Malley P, Friedman D, Georgiopoulos A, Buxton D, Altstein L, Sicilian L, Lapey A, Sawicki G, Moskowitz S · Journal of Cystic Fibrosis · 2016
Development and Feasibility Evaluation of a Family-Centred Neonatal End-of-Life Care Protocol
Kim E, Kim S, Kim S, Kim S, Ahn S, Lee H · J Clin Nurs · 2024
Development and implementation of a bereavement follow-up intervention for grieving fathers: an action research.
Aho A, Astedt-Kurki P, Tarkka M, Kaunonen M · Journal of clinical nursing · 2011
Development and Implementation of an End-of-Life Curriculum for Pediatric Residents
Wilson P, Herbst L, Gonzalez-Del-Rey J · The American journal of hospice & palliative care · 2018
Development and pilot testing of a coping kit for parents of hospitalized children
Hill D, Carroll K, Snyder K, Mascarenhas M, Erlichman J, Patterson C, Barakat L, Feudtner C · Academic Pediatrics · 2018
Development of an Institution-Wide Pediatric End-of-Life Summit
Edson J, Abecassis L, Beke D, McGorman T · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2023
Difficult conversations: Discussing prognosis with children with cystic fibrosis
Saunders J, Prieur M, Walter M, Borowitz D, Dellon E · Journal of Pain and Symptom Management · 2016
Digital storytelling as a memory-making intervention for children and families in paediatric palliative care in Ireland: an adaptation study
Safarifard R, Molati A, Corcoran Y, Kiernan G, Courtney E, Mitchell J, Akard T, Moore G, Lambert V · Frontiers in public health · 2025
Dignity in the Pediatric Population: A Systematic Review
Silverstein A, Easton V, Barrows C, Sawyer K, Coughlin R, Mali N, Kessler A, Robinson M, Sirrine E, Spears M, Wrigley J, Baker J, Kaye E · Journal of pain and symptom management · 2024
Dignity Therapy in Pediatrics: A Case Series
Schuelke T, Rubenstein J · Palliat Med Rep · 2020
Discussing Death as a Possible Outcome of PICU Care
Gilleland J, Parshuram C · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2018
Diversity of Parent Emotions and Physician Responses During End-of-Life Conversations
Prins S, Linn A, van Kaam A, van de Loo M, van Woensel J, van Heerde M, Dijk P, Kneyber M, de Hoog M, Simons S, Akkermans A, Smets E, de Vos M · Pediatrics · 2023
Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limits
Wilpers A, Kobler K, Schafer R, Wilpers M, Zeme M, Batten J, Canty L, Lorch S · Health affairs scholar · 2025
"Don't bother about me". The grief and mental health of bereaved adolescents
Andriessen K, Mowll J, Lobb E, Draper B, Dudley M, Mitchell P · Death Stud · 2018
Dying child and nurses' mourning
Zartaloudi A., Lekas C., Koutelekos I., Evangelou E., Kyritsi E. · European Psychiatry · 2021
Early Bereavement Psychosocial Outcomes in Parents of Children Who Died of Cancer With a Focus on Social Functioning
Snaman J, Mazzola E, Helton G, Feifer D, Morris S, Clark L, Baker J, Wolfe J · JCO Oncology Practice · 2023
Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the "Baby, Attachment, Comfort Interventions"
Callahan K, Steinwurtzel R, Brumarie L, Schechter S, Parravicini E · Journal of perinatology : official journal of the California Perinatal Association. · 2019
Early Parental Loss and Intimate Relationships in Adulthood: A Nationwide Study
Hoeg B, Johansen C, Christensen J, Frederiksen K, Dalton S, Dyregrov A, Boge P, Dencker A, Bidstrup P · Dev Psychol · 2018
Educational Priorities for Providing End-of-Life Care: Parent Perspectives
Arora G, Caliboso M, Baird J, Rusch R, Greenman J, Obregon D, Serwint J · Pediatrics · 2021
Effectiveness of a Family-Caregiver Training Program in Home-Based Pediatric Palliative Care
Chocarro González L, Rigal Andrés M, de la Torre-Montero J, Barceló Escario M, Martino Alba R · Children (Basel) · 2021
Effect of Legacy-Making on Anticipatory Grief and Coping Among Mothers of Children with Cancer: A Randomized Clinical Trial
Moghaddam F, Farahani A, Firoozi M, Khabazkhoob M, Beykmirza R, Barasteh S, Rassouli M · Seminars in Oncology Nursing · 2026
Effects of a primary palliative care intervention on quality of life and mental health in cystic fibrosis
Friedman D, Linnemann R, Altstein L, Georgiopoulos A, Islam S, Bach K, St John A, Fracchia M, Neuringer I, Lapey A, Sicilian L, Moskowitz S, Yonker L · Pediatr Pulmonol · 2019
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Plaza Fornieles M, Garcia-Marcos Barbero P, Galera Minarro A, Barbieri G, Bellavia N, Bermudez Cortes M, Navarro Mingorance A · Anales de Pediatria. · 2019
Emotional Labor in Pediatric Palliative Care: A Scoping Review
Costa A, Barros L, Diogo P · Nursing Reports · 2025
Empathy and the Public Perception of Stillbirth and Memory Sharing: An Australian Case
Keeble C, Loi N, Thorsteinsson E · Frontiers in Psychology · 2018
Empowering bereaved parents in the development of a comprehensive bereavement program
Snaman J, Levine D, Baker J · Journal of Pain and Symptom Management · 2016
Empowering Bereaved Parents Through the Development of a Comprehensive Bereavement Program
Snaman J, Kaye E, Levine D, Cochran B, Wilcox R, Sparrow C, Noyes N, Clark L, Avery W, Baker J · Journal of Pain and Symptom Management. · 2017
Enabling Children and Young People to Take Patient and Public Involvement Roles in Paediatric Palliative Care Research
Coombes L, Roach A, Leyden D, Scott H, Braybrook D, Harardottir D, Ellis-Smith C, Bristowe K, Harding R · Palliative Medicine · 2022
Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
House T, Wightman A · Current Opinion in Nephrology & Hypertension · 2023
End-of-Life and Bereavement Care in Pediatric Intensive Care Units
Suttle M, Jenkins T, Tamburro R · Pediatric Clinics of North America. · 2017
End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom
Papworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hain R, Subramanian G, Haynes A, Fraser L · NIHR open research · 2022
End-of-Life Care for Newborn Infants: A Multicenter Real-Life Prospective Study
Mariani G, Contrera P, Virasoro M, Portela M, Urquizu Handal M, Avila A, Fernandez A, Fernandez Riera P, Cardigni G, Vain N · Neonatology · 2024
End-of-life care in a pediatric intensive care unit: The impact of the development of a palliative care unit
Bobillo-Perez S, Segura S, Girona-Alarcon M, Felipe A, Balaguer M, Hernandez-Platero L, Sole-Ribalta A, Guitart C, Jordan I, Cambra F · BMC Palliative Care · 2020
End-of-life care in paediatrics
Rosengarten L, Carr E · British journal of nursing (Mark Allen Publishing) · 2020
End of life care in paediatric settings: UK national survey
Bedendo A, Papworth A, Beresford B, Phillips B, Vasudevan C, Lake Walker G, Weatherly H, Feltbower R, Hinde S, Hewitt C, Murtagh F, Noyes J, Hackett J, Hain R, Oddie S, Subramanian G, Haynes A, Fraser L · BMJ supportive & palliative care · 2025
End-of-life care of children with diffuse intrinsic pontine glioma
Hasan F, Weingarten K, Rapoport A, Bouffet E, Bartels U · J Neurooncol · 2018
End-of-life decision making in critical illness: Perspectives of Asian parents
Fu K, Chiong Y, Ngiam N · Palliative & supportive care · 2022
End-of-Life Dreams and Visions in Pediatric Patients: A Case Study
Levy K, Grant P, Kerr C · Journal of Palliative Medicine · 2020
End-of-life issues in the paediatric intensive care unit
Medani S, Brierley J · Paediatrics and Child Health · 2021
End-of-life medical decision-making for children in custody: A collaborative, multi-stakeholder practical approach
Carroll R, Hirst E, Hudson M, Shaw M, Deutsch S · Child Abuse and Neglect · 2020
End of Life Outside of "Business Hours": A Retrospective Review Evaluating Time of Death and Provider Time at End of Life
Hardy-Gomez M, Grossoehme D, Strasshofer D, Brown M, Friebert S · Journal of Palliative Medicine · 2021
End of Life Therapeutic Videography in Pediatrics: Feasibility and Acceptability
Hirsh C, Grossoehme D, Tsirambidis H, Richner G, Friebert S · Omega · 2022
Engaging Bereaved Parent Educators in Pediatric End-of-Life Workshops: A Trauma-Informed Onboarding
Solstad K, Shu D, McManimon K, Remke S, O'Conner-Von S, Woll A, Miller J, Shapiro M, Scheurer J · Journal of pain and symptom management · 2026
Enhancing Community Education on Family Caregiver Well-being Through Partnership
Bakula D, Crump N, Smith T, Goodwin E · Pediatrics · 2025
Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program
Lewis F, Loggers E, Phillips F, Palacios R, Tercyak K, Griffith K, Shands M, Zahlis E, Alzawad Z, Almulla H · Journal of palliative medicine · 2020
Enhancing Expert Panel Discussions in Pediatric Palliative Care: Innovative Scenario Development and Summarization With ChatGPT-4
Almazyad M, Aljofan F, Abouammoh N, Muaygil R, Malki K, Aljamaan F, Alturki A, Alayed T, Alshehri S, Alrbiaan A, Alsatrawi M, Temsah H, Alsohime F, Alhaboob A, Alabdulhafid M, Jamal A, Alhasan K, Al-Eyadhy A, Temsah M · Cureus · 2023
Enhancing Quality of Life in Pediatric Palliative Care: Insights, Challenges, and Future Directions—A Systematic Review
Riera-Negre L, Rossell M, Verger S · Health & Social Care in the Community · 2024
Enhancing the Resilience of Bereaved Parents: Practical Experiences and Needs Perceived by Healthcare Professionals
Cheng L, Cai S, Zhou X, Zhai X · Journal of Advanced Nursing (John Wiley & Sons, Inc.) · 2026
Epidemiology of death in paediatric intensive care units (PICUS) in a developing country
Zainal Abidin A, Lum L, Gan C, Tang S, Chuah S, Teh K, Jalil R, Ho A, Isa M · Pediatric Critical Care Medicine · 2018
Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review
Weaver M, Heinze K, Bell C, Wiener L, Garee A, Kelly K, Casey R, Watson A, Hinds P, Pediatric Palliative Care Special Interest Group at Children's National Health S · Palliative Medicine · 2016
Ethical, Cultural, Social, and Individual Considerations Prior to Transition to Limitation or Withdrawal of Life-Sustaining Therapies
Kirsch R, Balit C, Carnevale F, Latour J, Larcher V · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2018
Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review
Rosenberg A, Wolfe J, Wiener L, Lyon M, Feudtner C · JAMA Pediatr · 2016
Ethics in pediatric palliative care
Torun T, Gocken C · Anestezi Dergisi · 2017
Evaluating the reliability and validity of a new pediatric palliative care needs assessment tool
Michelson K, Downing K, Rudnik M, Cloen J, Donnelly J · Journal of Pain and Symptom Management · 2016
Evaluation of a grandparent bereavement support group in a Pediatric Palliative Care Hospice
Arnone M, Dumond L, Yazdani N, El-Baroudi R, Pouliot A, Modanloo S · Progress in Palliative Care. · 2021
Evaluation of a Quality Improvement Intervention to Improve Pediatric Palliative Care Consultation Processes
Stoyell J, Jordan M, Derouin A, Thompson J, Gall S, Jooste K, Keskinyan V, Lakis K, Lee Y, Docherty S · Am J Hosp Palliat Care · 2021
Evaluation of service user-led workshops in children's palliative care education
Pavey J, Kembrey J, Beringer A · Nurs Child Young People · 2023
Evidence for Impact: Evaluating Core Treatment Goals in Pediatric Palliative Inpatient Care
Schmidt P, Wager J, Warrender G, Garske D, Beissenhirtz A, Zernikow B, Kubek L · Children · 2025
Experience-based co-design informed development of a toolbox to help optimise primary care support during transition from children's hospice care: HOPSCOTCH study protocol
Chapman E, Mitchell S, Fraser L, Wozencroft J, Morris B, Peat G, Charles T, Elverson J, Carder P, Tallowin K, Magnusson J, Ziegler L · BMJ Open · 2025
Experience of Families During Admission of Their Minors to a Paediatric Intensive Care Unit: A Phenomenological Study
Rubio-Garrido P, Bazo-Hernandez L, Enrich-Font A, Jimenez-Herrera M · Scandinavian journal of caring sciences · 2025
Experience of parents who have suffered a perinatal death in two Spanish hospitals: a qualitative study
Camacho-Avila M, Fernandez-Sola C, Jimenez-Lopez F, Granero-Molina J, Fernandez-Medina I, Martinez-Artero L, Hernandez-Padilla J · BMC Pregnancy Childbirth · 2019
Experience of Perinatal Death From the Father's Perspective
Lizcano Pabon L, Moreno Fergusson M, Palacios A · Nursing Research · 2019
Experience of sibling death in childhood and risk of psychiatric care in adulthood: a national cohort study from Sweden
Rostila M, Berg L, Saarela J, Kawachi I, Hjern A · Eur Child Adolesc Psychiatry · 2019
Experiences of children with trisomy 18 referred to pediatric palliative care services on two continents
Mullin J, Wolfe J, Bluebond-Langner M, Craig F · Am J Med Genet A · 2019
Experiences of Family Caregivers of Children Aged 1-23 Months Who Have Received Pediatric Palliative Care: A Systematic Review With Qualitative Metasynthesis
Sánchez J, Sánchez M, Mota Romero E, Burgos A, Montoya Juárez R, Montoro C, Puente Fernández D · J Nurs Scholarsh · 2025
Experiences of Pediatric Palliative Care Among Bereaved Parents Who Lost a Child With Leukemia in South Korea
Oh S, Min H, Choi S, Hwang H, Kim S · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2023
Experiences of pregnancy loss in fathers of existing children: A qualitative study
Gershfeld-Litvin A, Ressler I, Avidan O · Death Studies · 2025
Experiences of pregnancy loss in Israeli first-time expecting fathers: A qualitative study
Gershfeld-Litvin A, Ressler I, Bar Yosef Y · Psychology of Men & Masculinities · 2024
Explore the Bereavement Needs of Families of Children With Cancer From the Perspective of Health Caregivers: A Qualitative Study
Pakseresht M, Rassouli M, Rejeh N, Rostami S, Barasteh S, Molavynejad S · Front Psychol · 2021
Exploring and Supporting Parents' Stories of Loss in the NICU: A Narrative Study
Lakhani J, Mack C, Kunyk D, van Manen M · Qualitative health research · 2023
Exploring challenges and opportunities in paediatric bereavement care: a qualitative study from a tertiary care hospital in Pakistan
Hussain H, Altaf S, Khalid A, Hashmi S, Rehman N, Bharuchi V, Rahman F, Shafi A, Syed A, Fadoo Z, Mushtaq N, Resham S · BMC palliative care · 2026
Exploring Parental Needs in the Year Following Perinatal Loss
Berry S, Nilson R, Verhoff C · MCN: The American Journal of Maternal Child Nursing · 2026
Exploring the impact of healthcare workers communication with women who have experienced stillbirth in Malawi, Tanzania and Zambia. A grounded theory study
Actis Danna V, Lavender T, Laisser R, Chimwaza A, Chisuse I, Kasengele C, Kimaro D, Kuzenza F, Lyangenda K, Mwamadi M, Shayo H, Tuwele K, Wakasiaka S, Bedwell C · Women & Birth · 2023
Exploring the spiritual needs of families with seriously ill children
Ferrell B, Wittenberg E, Battista V, Walker G · Int J Palliat Nurs · 2016
Expressing Condolences to a Family after the Death of a Child #443
Wiener L, Lichtenthal W, Weaver M · J Palliat Med · 2022
Facilitators and barriers to parent-child communication in pediatric palliative care: An integrative review
Zhang M, Li H, Li F, Zhang Y · International Journal of Nursing Sciences · 2024
Facing the loss of siblings in childhood: Interactions and dynamics between bereaved siblings and their parents
Wallace Chi Ho C, Grace Suk Man L, Miranda Mei Mui L, Molin Kwok Yin L, Clare Tsz Kiu Y, Jody Ka-Wing W · Journal of pediatric nursing · 2022
Factors affecting the grieving process after perinatal loss
Kishimoto M, Yamaguchi A, Niimura M, Mizumoto M, Hikitsuchi T, Ogawa K, Ozawa N, Tachibana Y · BMC Women's Health · 2021
Factors associated with mental health service use among families bereaved by pediatric cancer
Hill K, Olsavsky A, Barrera M, Gilmer M, Fairclough D, Akard T, Compas B, Vannatta K, Gerhardt C · Palliative & supportive care · 2022
Factors associated with quality of life in children receiving pediatric palliative care
Lee J, Kim M, Kim C, Moon Y, Choi Y · J Pain Symptom Manage · 2021
Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi-site longitudinal survey study
Kaye E, Smith J, Zhou Y, Bagatell R, Baker J, Cohn S, Diller L, Glade Bender J, Granger M, Marachelian A, Park J, Rosenberg A, Shusterman S, Twist C, Mack J · Cancer · 2023
Factors involved in posttraumatic growth in mothers experiencing fetal and infant death
Casey S, Schneider A · Omega: Journal of Death and Dying · 2026
Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review
Hamel M, Beltran S · The American journal of hospice & palliative care · 2022
Family attitudes toward genomic sequencing in children with cardiac disease
Gal D, Deuitch N, Tang R, Magnus D, Char D · Journal of Investigative Medicine · 2020
Family Caregiver Partnerships in Palliative Care Research Design and Implementation
Weaver M, Wiener L, Moon M, Gordon B, Kelly K, Hinds P · Pediatrics · 2021
Family-Centered Culture Care: Touched by an Angel
Hernandez J · The Journal of clinical ethics · 2019
Family characteristics and childcare patterns associated with early social functioning in cancer-bereaved parents
Snaman J, Chen L, Mazzola E, Helton G, Feifer D, Broden E, McCarthy S, Rosenberg A, Baker J, Wolfe J · Cancer · 2024
Family Experiences Deciding For and Against Pediatric Home Ventilation
Boss R, Henderson C, Raisanen J, Jabre N, Shipman K, Wilfond B · Journal of Pediatrics · 2021
Family experiences with palliative care for children at home: a systematic literature review
Winger A, Kvarme L, Løyland B, Kristiansen C, Helseth S, Ravn I · BMC Palliat Care · 2020
Family experiences with palliative care in freestanding paediatric hospices: a scoping review
Dorman J, Raffin Bouchal S, daSilva Curiel K, Miller M · BMJ Support Palliat Care · 2022
Family Involvement in Learning From Expected Child Deaths: A Qualitative Study of UK Parents
Garstang J, Pease A, Shaw K, Spry J, Routledge G, Kenyon S · Child: care, health and development · 2025
Family perspectives and experiences on implementing telehealth in pediatric palliative care: a qualitative approach
Peñarrubia-San-Florencio L, Junior C, Ricart S, Vilarrubí S, Ruiz-Herguido C, Esteve A, Meca-Santamaria J, Blanco-Blanco J, Valls L · European Journal of Pediatrics · 2025
Father’s experience of fetal death: A secondary analysis
McDonough M, Leone-Sheehan D, Kellogg M · Death Studies · 2026
Fathers' grief in action
Denhup C · Archives of Psychiatric Nursing · 2026
Feasibility, Acceptability, and Effectiveness of Adding an Evidence-Based Parent/Caregiver Program for Bereaved Families to Usual Community-Based Services
Sandler I, Wolchik S, Sandler J, Tein J, Gaffney D, Zhang N, Porter M · Omega: Journal of Death & Dying · 2025
Feasibility of Group Intervention for Bereaved Siblings after Pediatric Cancer Death
Greenwald N, Barrera M, Neville A, Hancock K · J Psychosoc Oncol · 2016
Fifteen-minute consultation: supporting bereaved parents at the time of a child's death
Laurent S, Samuel J, Dowling T · Arch Dis Child Educ Pract Ed · 2016
Finding their voice: Advance care planning for children and young adults without decision-making capacity
Downing A, Dombrowski D, Battista V · Journal of Pain and Symptom Management · 2016
First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic review
Pollock D, Bailey H, Hasanoff S, Munn Z, Valenzuela C, Stern C, Price C, Marriott R, Gliddon J, Lewis C, Michie C, Bowie M, Penny M, Reibel T, Warland J, Farrant B, White S, Shepherd C · Women & Birth · 2024
[First requests for a regional pediatric palliative care team: A prospective and observational study]
Marty L, Bernard F, Pierre M, Bringuier-Branchereau S, Sirvent N, Ribrault A · Archives De Pediatrie: Organe Officiel De La Societe Francaise De Pediatrie · 2017
Forgiveness as a factor of adjustment in bereaved parents
Záhorcová L, Halama P, Enright R · Journal of Loss and Trauma · 2019
Formal and informal support strategies among bereaved parents and children: Met and unmet needs of families following the death of a child
Claridge A, Tenhulzen K, Mattson G, Stevens M, McCarthy A, McClendon L · Death Studies · 2026
Forming our grief rhythm: The relational window of tolerance for bereaved parents
Barboza J, Seedall R, Hooghe A, Kaplow J, Bradshaw S · Family Process · 2025
From Fear to Confidence: Changing Providers' Attitudes about Pediatric Palliative and Hospice Care
Vesel T, Beveridge C · Journal of Pain and Symptom Management · 2018
From mourning to memorialising - A lasting connection through remembrance: The role of memory making in preserving the identity of parenthood amongst women who have suffered a perinatal bereavement
Payne E, Silverio S, Fellows R, Heywood L, Burgess K, Storey C, Oza M, Kent-Nye F, Haddad L, Sampson A, Knighting K · Women & Birth · 2025
From self-compassion to compassionate action: reflecting on ending life of stillbirth care in nursing
Lin C, Liu Y, Chiang H · Scandinavian Journal of Caring Sciences · 2021
Gaps in pediatric oncologic end of life care as recounted by the bereaved parents in Isarel
Schwartz-Attias I, Ash S, Ofir R, Ben Gal Y, Broitman M, Saeb M, Hornik-Lurie T · Journal of Pediatric Nursing · 2024
Gasping in Dying Children: Health Care Professionals' Feelings and Knowledge
Pierron C, Maillard A, Farnoux C, Grimaud M, Bourgeois F · J Palliat Med · 2023
Gender Differences in Depressive Symptoms Following Child Death in Later
Mellencamp K · Journals of Gerontology Series B: Psychological Sciences & Social
Goals of Care Among Parents of Children Receiving Palliative Care
Feudtner C, Beight L, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Bogetz J, Kang T, Hall M, Nye R, Wolfe J · JAMA pediatrics · 2023
Going Straight to the Source: A Pilot Study of Bereaved Parent-facilitated Communication Training for Pediatric Subspecialty Fellows
Snaman J, Kaye E, Cunningham M, Sykes A, Levine D, Mahoney D, Baker J · Pediatrics · 2018
Good death term in the aspect of paediatric palliative care nursing
Ozkan S, Tas Arslan F · Cogent Medicine. Conference: 11th Annual Excellence in Pediatrics Conference. Denmark. · 2019
"Good-Parent Beliefs": Research, Concept, and Clinical Practice
Weaver M, October T, Feudtner C, Hinds P · Pediatrics · 2020
Grief and Bereavement in Fathers After the Death of a Child: A Systematic Review
McNeil M, Baker J, Snyder I, Rosenberg A, Kaye E · Pediatrics · 2021
Grief and growth in bereaved siblings: Interactions between different sources of social support
Howard Sharp K, Russell C, Keim M, Barrera M, Gilmer M, Foster Akard T, Compas B, Fairclough D, Davies B, Hogan N, Young-Saleme T, Vannatta K, Gerhardt C · School Psychology Quarterly · 2018
Grief in critical care nurses after pediatric suffering and death
Groves K, Adewumi A, Gerhardt C, Skeens M, Suttle M · Annals of Palliative Medicine · 2022
Grief reactions and coping strategies of trainee doctors working in paediatric intensive care
ffrench-O'Carroll R, Feeley T, Crowe S, Doherty E · BJA: The British Journal of Anaesthesia · 2019
Grief reactions of couples to perinatal loss: a one-year prospective follow-up
Tseng Y, Cheng H, Chen Y, Yang S, Cheng P · J Clin Nurs · 2017
Grieving Children' Death in an Intensive Care Unit: Implementation of a Standardized Process
Delgado-Corcoran C, Wawrzynski S, Mansfield K, Fuchs E, Yeates C, Flaherty B, Harousseau M, Cook L, Epps J · Journal of palliative medicine · 2024
Grieving Parents' Meaning-Making Narration in Relation to Value Orientations: A Cross-Cultural Study
Xiu D, Maercker A, Killikelly C, Yang Y, Jia X · Transcultural Psychiatry · 2023
Grieving the Loss of a Child and the Use of Online Social Support: An Exploratory Survey Study
Clarkson G, Sheikh N, Johnson L · J Psychosoc Nurs Ment Health Serv · 2024
Grieving the loss of a child in times of COVID-19
Hooghe A, Claeys A, Thompson B, Neimeyer R, Rober P · Couple and Family Psychology: Research and Practice · 2021
Guidance for Pediatric End-of-Life Care
Linebarger J, Johnson V, Boss R, Section On H, Palliative M, Collura C, Humphrey L, Miller E, Williams C, Rholl E, Ajayi T, Lord B, McCarty C · Pediatrics · 2022
Having Therapeutic Conversations With Fathers Grieving the Death of a Child
Martinez A, Castiglione S, Dupuis F, Legault A, Proulx M, Carnevale F · Omega: Journal of Death & Dying · 2021
Healing the Hearts of Bereaved Parents: Impact of Legacy Artwork on Grief in Pediatric Oncology
Schaefer M, Wagoner S, Young M, Madan-Swain A, Barnett M, Gray W · Journal of Pain and Symptom Management · 2020
Health Care Professionals' Awareness of a Child's Impending Death
Kobler K, Bell C, Kavanaugh K, Gallo A, Corte C, Vincent C · Qualitative Health Research · 2020
Healthcare professionals' confidence in providing perinatal bereavement care for women and their families in low- and middle-income countries
Jacob D, Lavender T, Goshomi U, Chilinda I, Smith D, Mills T · African Journal of Midwifery & Women's Health · 2026
Health care professionals' experiences with pre-loss care in pediatrics; goals, strategies, obstacles and facilitators
Kochen E, Boelen P, Teunissen S, Jenken F, de Jonge R, Grootenhuis M, Kars M · J Pain Symptom Manage · 2020
Healthcare professionals' perspectives of providing end-of-life care for infants, children and young people in acute settings: A multi-site qualitative study
McLorie E, Hackett J, Barrett L, Peat G, Weatherly H, Hinde S, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hewitt C, Hain R, Subramanian G, Haynes A, Papworth A, Fraser L, Murtagh F · Palliative medicine · 2025
Healthcare Satisfaction and Unmet Needs Among Bereaved Parents in the NICU
Baughcum A, Fortney C, Winning A, Dunnells Z, Humphrey L, Gerhardt C · Advances in neonatal care : official journal of the National Association of Neonatal Nurses. · 2019
Health professionals' experiences of grief associated with the death of pediatric patients: a systematic review
Barnes S, Jordan Z, Broom M · JBI Database System Rev Implement Rep · 2020
Healthy siblings' perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis
Rajendran P, Jarasiunaite-Fedosejeva G, Isbir G, Shorey S · Palliative Medicine · 2023
Helping Families Cope with the Severe Stress of Dravet Syndrome
Camfield P, Camfield C, Nolan K · Can J Neurol Sci · 2016
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Wiener L, Tager J, Mack J, Battles H, Bedoya S, Gerhardt C · Pediatric Blood and Cancer · 2020
HELPING THE HELPERS - SUPPORT IN CHILD BEREAVEMENT FOR PAEDIATRIC HEALTH CARE STAFF
Smith N, Callow E, Shefler A · Archives of Disease in Childhood · 2024
"Holding back my own emotions": Evaluation of an online education module in pediatric end-of-life care
Rawlings D, Winsall M, Yin H, Devery K · J Child Health Care · 2022
Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
van der Geest I, Bindels P, Pluijm S, Michiels E, van der Heide A, Pieters R, Darlington A, van den Heuvel-Eibrink M · Journal of Pain and Symptom Management. · 2017
Home Based Pediatric Palliative Care in the UK: Lessons to Learn?
Waldman E, Hemsley J, Comac M, McCulloch R · Journal of Pain and Symptom Management · 2025
Home-Based Specialized Pediatric Palliative Care: A Systematic Review and Meta-Analysis
Hammer N, Bidstrup P, Brok J, Devantier M, Sjøgren P, Schmiegelow K, Larsen A, Kurita G, Olsen M, Larsen H · Journal of Pain and Symptom Management · 2023
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making
Papadatou D, Kalliani V, Karakosta E, Liakopoulou P, Bluebond-Langner M · Palliat Med · 2020
Homestead together: Pediatric palliative care telehealth support for rural children with cancer during home-based end-of-life care
Weaver M, Shostrom V, Neumann M, Robinson J, Hinds P · Pediatric Blood & Cancer · 2021
Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty
Nevin S, Beavis E, Macintosh R, Palmer E, Sachdev R, Le Marne F, Bye A, Nunn K · Journal of Paediatrics & Child Health · 2022
Hospital admissions into paediatric palliative care: A retrospective study
de Noriega I, Barcelo M, Perez M, Puertas V, Garcia-Salido A, Martino R · Anales de Pediatria. · 2019
Hospital-Based Perinatal Bereavement and Palliative Care: A Descriptive Study to Measure Patient Satisfaction and Care Provided
Mueller D, Drury H, Shepherd J, Monroe M, Davies C · Journal of Nursing Administration · 2025
Hospital or Home? Where Should Children Die and How Do We Make that a Reality?
Johnston E, Martinez I, Currie E, Brock K, Wolfe J · Journal of Pain and Symptom Management · 2019
How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review
Mayland C, Sunderland K, Taylor P, Powell P, Turner N, Cox V, Gillman C, Cooper M, Zeigler L, Flemming K, Fraser L · Palliative Medicine · 2022
How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive care
Spijkers A, Akkermans A, Smets E, Schultz M, Cherpanath T, van Woensel J, van Heerde M, van Kaam A, van de Loo M, Willems D, de Vos M · Intensive Care Medicine · 2022
How do neonatal units support siblings following loss?-a national survey
Henderson R, Minchella S, Vasudevan C · Archives of Disease in Childhood · 2017
How to move forward in shared decision-making in pediatric palliative care
Joren C, Aris-Meijer J, Verhagen A, Lantos J · Current Problems in Pediatric and Adolescent Health Care · 2024
How to Open the Door: A Qualitative, Observational Study on Initiating Advance Care Discussions with Parents in Pediatric Palliative Care
Daxer M, Monz A, Hein K, Heitkamp N, Knochel K, Borasio G, Führer M · J Palliat Med · 2021
'I can't tell my child they are dying'. Helping parents have conversations with their child
Aldridge J, Shimmon K, Miller M, Fraser L, Wright B · Arch Dis Child Educ Pract Ed · 2017
Identifying Key Areas to Improve Care for Families Around the Time of Stillbirth or Neonatal Death: A Survey of Maternity Services in Australia
Loughnan S, Horey D, Wojcieszek A, Andrews C, Gautam R, Carty M, Ellwood D, Forbes M, Gordon A, Jennings B, Lohan A, Laporte J, Seeho S, Shand A, Boyle F, Flenady V · Australian & New Zealand Journal of Obstetrics & Gynaecology · 2026
Identifying Opportunities to Provide Family-centered Care for Families With Children With Type 1 Spinal Muscular Atrophy
Murrell D, Crawford C, Jackson C, Lotze T, Wiemann C · Journal of Pediatric Nursing · 2018
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Broden E, Hinds P, Werner-Lin A, Curley M · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. · 2022
'I feel like my house was taken away from me': Parents' experiences of having home adaptations for their medically complex, technology-dependent child
Mitchell T, Bray L, Blake L, Dickinson A, Carter B · Health & social care in the community. · 2022
If only I could turn back time-Regret in bereaved parents
Sim C, Heuse S, Weigel D, Kendel F · Pediatric Blood and Cancer · 2020
"If We Build It, Will They Come?" A Cohort Study of Family Utilization of a Pediatric-Specific Inpatient Hospice Facility (GP709)
Berkel C, Bernatavicius W, Berger K, Shaw T · Journal of Pain and Symptom Management · 2020
"I have to be strong": A qualitative study of parental bereavement experiences in Uganda following the death of their baby
Stevenson G, Namukwaya S, Katongole J, Tumukunde V, Blencowe H, Seeley J, Tann C, Lawn J, Elbourne D, Medvedev M · Women & Birth · 2025
Impact of a Massage Therapy Intervention for Pediatric Palliative Care Patients and Their Family Caregivers
Weekly T, Riley B, Wichman C, Tibbits M, Weaver M · Journal of Palliative Care · 2019
Impact of Caring for Terminally Ill Children on Physicians: A Systematic Scoping Review
Ngiam L, Ong Y, Ng J, Kuek J, Chia J, Chan N, Ho C, Abdurrahman A, Kamal N, Cheong C, Ng C, Tan X, Tan L, Chin A, Mason S, Jumat M, Chiam M, Krishna L · American Journal of Hospice and Palliative Care · 2020
Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer
Kenney A, Tutelman P, Fisher R, Lipak K, Barrera M, Gilmer M, Fairclough D, Akard T, Compas B, Davies B, Hogan N, Vannatta K, Gerhardt C · J Clin Psychol Med Settings · 2021
Impact of Pediatric Primary Palliative Care Education and Mentoring in Practice
Lafond D, Perko K, Fisher D, Mahmood L, Hinds P · J Hosp Palliat Nurs · 2021
Impact of Specialized Pediatric Palliative Care: A Systematic Review
Marcus K, Santos G, Ciapponi A, Comande D, Bilodeau M, Wolfe J, Dussel V · Journal of pain and symptom management. · 2019
Impact of Specialized Pediatric Palliative Care on Bereaved Parents' Mental and Physical Health
Delgado-Corcoran C, Meeks H, Wawrzynski S, Markovitz B, Harman B, Masih J, Li K, Harousseau M, Moore D, Wilkes J, Ames S · Journal of Pain and Symptom Management · 2026
Impacts on Caregivers of Witnessing Terminal Lucidity in Children
Kothe K, Tassell-Matamua N, Woollacott M, Nahm M, Roe C, Greyson B, Mutis M, Evrard R · Omega · 2025
Implementation and Delivery of a Comprehensive Bereavement Program in Pediatric Palliative Oncology
Jani Y, Lange A, Naylor M, Lee K, Radbill L, Brock K · Children · 2026
Implementation and Evaluation of a Pediatric Palliative Care Curriculum for Adult-Track HPM Fellows
Flynn E, Murray C, Sinha C, Luhanga U · Journal of Pain and Symptom Management · 2024
Improving and validating children's nurses communication skills with standardized patients in end of life care
Kenny G, Cargil J, Hamilton C, Sales R · Journal of Child Health Care · 2016
Improving family grief outcomes: A scoping review of family-based interventions before and after the death of a child
Hoeg B, Guldin M, Hogh J, Volkmann J, Wolfe J, Larsen H, Bidstrup P · Palliative Medicine · 2024
Improving Pediatric Residency End-Of-Life Education: A Quality Improvement Approach
Spratt K, Cirotski D, Vallely J, Mehta A · Journal of Pain and Symptom Management · 2024
Improving Pediatric Residents' Comfort and Facility with End-of-Life Care with a Just-In-Time Online Module
Jenkins R, Nicholson A, Ernest E, Foreman K, Cicozi K, Humphrey L · Journal of Pain and Symptom Management · 2024
Improving perinatal palliative care through e-learning
Daniels A, Mancini A, Downing J · Palliative Medicine · 2021
‘I’m tired of justifying why my life has stopped’: A qualitative analysis of the experiences and support needs of young people caring at the end of life and into bereavement
Harrop E, Abbott Z, Hopewell-Kelly N, Goss S, Byrne C, Bayliss J, Jones K, Clabburn O, Warren R, Penny A, Leadbitter H · Palliative Care and Social Practice · 2026
Incorporating bereaved parents as facilitators and educators in teaching principles of palliative and end-of-life care
Snaman J, Kaye E, Levine D, Clark L, Wilcox R, Cunningham M, Baker J · Journal of Pain and Symptom Management · 2018
Incorporating Bereaved Parents as Faculty Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care.
Snaman J, Kaye E, Spraker-Perlman H, Levine D, Clark L, Wilcox R, Barnett B, Sykes A, Lu Z, Cunningham M, Baker J · The American journal of hospice & palliative care · 2018
Independent non-medical prescribing in children's hospices in the UK: a practice snapshot
Tatterton M · International Journal of Palliative Nursing · 2017
Indicators for clinical activity in palliative care: The experience of a regional resources team of paediatric palliative care
Bouffay C, Rollin A, Marcault A, Remy C, Castaing M, Filion S, Petillard E, Fournie F, Schell M · Medecine Palliative · 2017
Influence of culture and spiritual tradition on support for families of children dying in intensive care units
Ju S, Ito J, Lin A, Grefe D, Baird J, Barber R · Journal of pediatric nursing · 2025
Information and Communication Needs of Parents in Infant End-of-Life: A Qualitative Study
Sadeghi N, Hasanpour M, Heidarzadeh M · Iran Red Crescent Med J · 2016
Informing simulation-based research design: The experiences of bereaved parents and actors
Vemuri S, O'Neill J, Hynson J, Gillam L · Palliative Medicine · 2021
Injustice and inequality in the provision of perinatal palliative care
Lin M, Bertaud S, Wilkinson D · Seminars in Perinatology · 2025
Integrating palliative care into school communities
Paul S, Cree V, Murray S · Palliative Medicine · 2016
Intensity of Vasopressor Therapy and In-Hospital Mortality for Infants and Children: An Opportunity for Counseling Families
Aziz K, Boss R, Yarborough C, Raisanen J, Neubauer K, Donohue P · Journal of Pain and Symptom Management · 2021
International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS
Benini F, Pappadatou D, Bernadá M, Craig F, De Zen L, Downing J, Drake R, Freidrichsdorf S, Garros D, Giacomelli L, Lacerda A, Lazzarin P, Marceglia S, Marston J, Muckaden M, Papa S, Parravicini E, Pellegatta F, Wolfe J · J Pain Symptom Manage · 2022
Interpretative Phenomenological Analysis of Mothers' Experience of Caring for Their Child Dying of Cancer at Home
Kirakosyan V, Bacque M · Comprehensive child and adolescent nursing · 2025
Interventions for Children of Parents With Cancer From the Time of Cancer Diagnosis Through Bereavement: Two Systematic Reviews
Malinowski P, Pozo‐Kaderman C, Muriel A, Hanania J, Pirl W, Dorste A, Rotman C, Jankauskaite G, Joyce E, Morris S · Psycho-Oncology · 2025
Interventions for siblings, extended family, and community members after pediatric death
Pachalla S, Witting C, James K, Michelson K · Journal of Loss and Trauma · 2020
Interventions Performed in Children With Immunocompromised Conditions in the Pediatric Intensive Care Unit Within 48 Hours of Death
Kegel A, Espinoza J, Rahrig A, Schade-Wills T, Rowan C · Journal of palliative medicine · 2024
Introduction to a novel social media-based meaning intervention for caregivers of children and adolescents receiving palliative care
Levy K, Grant P, Byrwa D, Depner R, Tenzek K · Journal of Pain and Symptom Management · 2018
"It's a Different Conversation": Qualitative Analysis of Pediatric Home-based Hospice/Palliative Care Visits' Perceived Value
Grossoehme D, Sellers J, Accordino S, Smith S, Jenkins R, Richner G, Moore-Forbes Y, Friebert S · Pediatr Qual Saf · 2023
"It's a Heavy Thing to Carry:" Internal Medicine and Pediatric Resident Experiences Caring for Dying Patients
Gibbon L, Buck L, Schmidt L, Bogetz J, Trowbridge A · The American journal of hospice & palliative care · 2023
"It seemed I was having a conversation with him": Posthumous Dignity Therapy case series
Julião M, Simões C, Chochinov H · Palliative & supportive care · 2025
“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J · Journal of Pain and Symptom Management · 2023
"I Used to Feel my Child Was...the Property of the Hospital": An Examination of an Ethic of Care for Pediatric Home-Based Hospice and Palliative Care
Aultman J, Gilliland M, Bish B, Smith S, Friebert S, Grossoehme D · Journal of Palliative Medicine · 2025
Journeys Through the Terrain of Grief: Bereaved Parents' Narratives Across Time
Parrish M, Nolte L, Duff S · Illness, Crisis & Loss · 2026
Keeping all options open: Parents' approaches to advance care planning
Beecham E, Oostendorp L, Crocker J, Kelly P, Dinsdale A, Hemsley J, Russell J, Jones L, Bluebond-Langner M · Health Expect · 2016
Key factors in parental end-of-life decision making for surgical necrotizing enterocolitis: A Delphi study
Verhoeven R, Kooi E, Obermann-Borst S, Labrie N, Geurtzen R, Verhagen A, Hulscher J · Early Human Development · 2025
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Kamrath H, Osterholm E, Stover-Haney R, George T, O'Connor-Von S, Needle J · Journal of Palliative Medicine · 2019
"Leave No Question Unanswered": Nurses' Role in Preparing Children's Families During End-of-Life Care
Arciprete E, Eche-Ugwu I, DeCourcey D, Rosenberg A, Snaman J · American journal of critical care : an official publication, American Association of Critical-Care Nurses · 2025
Legacy Artwork in Pediatric Oncology: The Impact on Bereaved Caregivers' Psychological Functioning and Grief
Schaefer M, Spencer S, Barnett M, Reynolds N, Madan-Swain A · Journal of Palliative Medicine · 2019
Legacy at the Bedside: A Nurse-Led Evidence-Based Framework for Memory-Making in the Pediatric Intensive Care Unit
Torrez K, Ursua K, Phillips H, Lilitwat W · Journal of Hospice & Palliative Nursing · 2026
Legacy Building in Pediatric End-of-Life Care through Innovative Use of a Digital Stethoscope
Andrews E, Hayes A, Cerulli L, Miller E, Slamon N · Palliat Med Rep · 2020
Let's Talk About It: Supporting Family Communication during End-of-Life Care of Pediatric Patients
Marsac M, Kindler C, Weiss D, Ragsdale L · Journal of Palliative Medicine · 2018
Life after Loss: Parent Bereavement and Coping Experiences after Infant Death in the Neonatal Intensive Care Unit
Currie E, Christian B, Hinds P, Perna S, Robinson C, Day S, Bakitas M, Meneses K · Death Studies · 2018
Life and Medical Ethics in Pediatric Neurosurgery
Yamasaki M · Neurol Med Chir (Tokyo) · 2016
Limiting and Withdrawing Life Support in the PICU: For Whom Are These Options Discussed?
Keele L, Meert K, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Morrison W, Funai T, Holubkov R, Dean J, Pollack M, Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research N · Pediatric Critical Care Medicine · 2016
Listening to Parents of Children With Cancer-Between Life and its end
Manor-Binyamini I, Schreiber-Divon M · J Patient Exp · 2022
Living-loss: A narrative synthesis review of the grief process in parents
Alimohamadi A, Ghasemzadeh M, Fooladi F, Abdolmohamadi K, Killikelly C, Janghorbanian Z · Journal of Pediatric Nursing · 2024
Living with a child who has a life-limiting condition: The functioning of well-siblings and parents
Jaaniste T, Cuganesan A, Chin W, Tan S, Coombs S, Heaton M, Cowan S, Aouad P, Potter D, Smith P, Trethewie S · Child Care Health Dev · 2021
Living with Loss: study protocol for a randomized controlled trial evaluating an internet-based perinatal bereavement program for parents following stillbirth and neonatal death
Loughnan S, Lancaster A, Crocker S, Astell C, Griffin A, Wojcieszek A, Boyle F, Ellwood D, Dean J, Horey D, Callander E, Jackson C, Seeho S, Shand A, Flenady V · Journal of Loss & Trauma · 2025
Location of end-of-life care of children with cancer: A systematic review of parent experiences
Noyes M, Herbert A, Moloney S, Irving H, Bradford N · Pediatric Blood and Cancer. · 2022
Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States
Akard T, Burley S, Root M, Dietrich M, Cowfer B, Mooney-Doyle K · Palliat Med Rep · 2021
Long-term grief experiences of parents who lost a child to cancer- Results from a multicenter cross-sectional study
Raguindin P, Pedraza E, Vokinger A, De Clercq E, von Bueren A, Scheinemann K, Tinner E, Bergstraesser E, Michel G · Palliative Medicine · 2026
Long-term nurse-parent relationships in paediatric palliative care: a narrative literature review
Brimble M, Anstey S, Davies J · International journal of palliative nursing · 2019
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
Bronsema A, Theißen T, Oechsle K, Wikert J, Escherich G, Rutkowski S, Bokemeyer C, Ullrich A · BMC Palliat Care · 2022
Losing a child with a severe developmental intellectual disability: Israeli mothers' accounts
Mahat-Shamir M, Huri-Rotman S · The American journal of orthopsychiatry · 2025
Losing Thomas & Ella: A Father's Story (A Research Comic)
Weaver-Hightower M · J Med Humanit · 2017
Maintaining family life balance while facing a child's imminent death-A mixed methods study
Eskola K, Bergstraesser E, Zimmermann K, Cignacco E · J Adv Nurs. · 2017
Making Meaning After the Death of a Child
Clancy S, Lord B · Child and Adolescent Psychiatric Clinics of North America · 2018
Making sense of pediatric death: An exploratory qualitative study of emotion management strategies applied by the pediatric intensive care unit interprofessional team
Albrecht L, Ryan M, Ta E, Foster J, Buckley L, Ferguson H, Lyons K, van Beinum A, Dryden-Palmer K · Palliative care and social practice · 2025
Managing Ambiguity: Nurses Caring for the Mother of a Stillborn Baby
Nurse N · Managing Ambiguity: Nurses Caring For The Mother Of A Stillborn Baby · 2018
Managing Expectations: Understanding Parents’ Perceptions of Their Child’s Serious Illness
Kelly K, Mooney-Doyle K, Waldron M, Knafl K · Journal of Family Nursing · 2025
Mapping Hospital-Based Lactation Care Provided to Bereaved Mothers: A Basis for Quality Improvement
Noble-Carr D, Carroll K, Waldby C · Breastfeeding Medicine: The Official Journal of the Academy of Breastfeeding Medicine · 2021
Maternal-fetal surgery as part of pediatric palliative care
De Bie F, Tate T, Antiel R · Seminars in Fetal and Neonatal Medicine · 2023
Maternal mourning: pain and coping with the loss of a baby
Lopes B, Borges P, Grden C, Coradassi C, Sales C, Damasceno N · Revista Da Rede De Enfermagem Do Nordeste · 2017
Meaning and coping orientation of bereaved parents: Individual and dyadic processes
Albuquerque S, Buyukcan-Tetik A, Stroebe M, Schut H, Narciso I, Pereira M, Finkenauer C · PLoS One. · 2017
Meaningful Display of Legacy Items Among Families Experiencing a Perinatal, Neonatal, or Infant Death
Smith V, Kaushik R, Rodriguez M, Vandermeer R · Journal of Pain and Symptom Management · 2024
Meaning-Making Among Parents of Children With Severe Neurologic Impairment in the PICU
Bogetz J, Oslin E, O'Donnell M, Barton K, Yi-Frazier J, Watson R, Rosenberg A · Pediatrics · 2024
Meaning-making Coping in Finnish Parents Following the Traumatic Death of a Child
Mohamed Hussin N, Aho A · Illness, Crisis & Loss · 2025
Measuring Pediatric Palliative Care Quality: Challenges and Opportunities
Boyden J, Bogetz J, Johnston E, Thienprayoon R, Williams C, McNeil M, Patneaude A, Widger K, Rosenberg A, Ananth P · J Pain Symptom Manage · 2023
Measuring the Impact of the Home Health Nursing Shortage on Family Caregivers of Children Receiving Palliative Care
Weaver M, Wichman B, Bace S, Schroeder D, Vail C, Wichman C, Macfadyen A · J Hosp Palliat Nurs. · 2018
Medical assistance in dying and minors-views of the Canadian pediatrician
Catena G, Davies D · Paediatrics and Child Health (Canada) · 2019
Memory making during bereavement care following the death of a child: A survey exploring parental experiences
Luitingh T, Prentice T, Rowe J, Rotin L, Heywood M, Vemuri S · Palliative medicine · 2026
Memory making in neonatal end-of-life care
Thornton R, Harms L, Nicholson P · Journal of Paediatrics and Child Health · 2018
Memory-Making in Neonatal End-of-Life Care
Thornton R, Harms L, Nicholson P · Journal of Pain and Symptom Management · 2018
Mock No Code: A simulation curriculum for responding to patients with varying goals of care
Manrriquez A, Chen H, Klein M, Rake A, Greenman J, Winter M, Arora G · Journal of pain and symptom management · 2026
Modes of Death Within a Children's Hospital
Trowbridge A, Walter J, McConathey E, Morrison W, Feudtner C · Pediatrics · 2018
Moral Distress and Pediatric Palliative Care
Jeong S, Knackstedt A, Linebarger J, Carter B · Children · 2024
Mothers’ Grief, Forgiveness, and Posttraumatic Growth After the Loss of a Child
Martinčeková L, Klatt J · OMEGA-Journal of Death and Dying · 2017
Mothers of angels: (re)living the death of the child as a coping strategy
Gramazio Soares L, Kuchla É, de Azevedo Mazza V, Gramazio Soares L, Raimondo Ferraz M, Padilha Mattei A · Anna Nery School Journal of Nursing / Escola Anna Nery Revista de Enfermagem · 2020
Mothers' perspectives of the experience and impact of caring for their child with a life-limiting neurodevelopmental disability
Courtney E, Kiernan G, Guerin S, Ryan K, McQuillan R · Child Care Health Dev · 2018
Narrative Diaries in Paediatric Palliative Care: A Scoping Review
Marinetto A, Carraro C, Santini A, Lazzarin P, Benini F, Zanin A · Acta Paediatrica, International Journal of Paediatrics · 2025
National survey of sibling support services in children's hospitals
Mooney-Doyle K, Franklin Q, Burley S, Root M, Akard T · Progress in Palliative Care. · 2022
Navigating birth plans: illuminating neonatal provider perspectives in prenatally diagnosed complex fetal anomalies
Kadden D, Palmaccio-Lawton S, Herrmann L, Nee K · Journal of Perinatology · 2026
Navigating the interplay between feelings of failure and newfound kindness: a qualitative study exploring the experiences of cancer bereaved fathers
Vokinger A, Pedraza E, Raguindin P, Tinner E, von Bueren A, Scheinemann K, Bergstraesser E, Michel G, De Clercq E · BMC psychology · 2026
Navigating the Terrain of Moral Distress: Experiences of Pediatric End of Life Care and Bereavement during COVID-19
Wiener L, Rosenberg A, Pennarola B, Fry A, Weaver M · Palliat Support Care · 2021
Needs of parents in bereavement care after perinatal loss of their preterm infant in the NICU
Rehfeldt I, Doll A, Thierfelder I, Tegethoff D · Pflege · 2016
Neonatal end-of-life decision-making almost 20 years after the EURONIC study: A French survey
Boize P, Borrhomee S, Michel P, Betremieux P, Hubert P, Moriette G · Arch Pediatr · 2019
Neuropalliative Medicine in Pediatric Neurology
Treat L · Continuum (Minneapolis, Minn.) · 2025
Nurses' Experiences in End-of-Life Care in the PICU: A Qualitative Systematic Review
Mu P, Tseng Y, Wang C, Chen Y, Huang S, Hsu T, Florczak K · Nursing science quarterly · 2019
Nurses' Experiences of End-of-life Photography in NICU Bereavement Support
Martel S, Ives-Baine L · Journal of Pediatric Nursing · 2018
Nurses' experiences of managing vulnerability when working with seriously ill children
Nugent A, Donohue G, Higgins A · Nurs Child Young People · 2022
Nurses' experiences of providing palliative care for children with life-limiting conditions
Reid B, Brogan P · International journal of palliative nursing · 2024
Nursing interventions for perinatal bereavement care in neonatal intensive care units: A scoping review
Paraiso Pueyo E, Gonzalez Alonso A, Botigue T, Masot O, Escobar-Bravo M, Lavedan Santamaria A · International nursing review · 2021
Nursing Perspective of Providing Palliative Care to the Children—A Narrative Review
Agrawal U, Sarin J, Garg R · Journal of Health & Allied Sciences NU · 2024
One Size Doesn't Fit All in Early Pediatric Oncology Bereavement Support
Helton G, Beight L, Morris S, Wolfe J, Snaman J · Journal of pain and symptom management · 2022
Oxford Textbook of Palliative Care for Children
Hain R, Goldman A, Rapoport A, Rapoport M, Meiring M · 2021
P-75 ‘cold bedrooms, cooling blankets, and cuddle cots’ provided by children’s hospices: mapping practice
Hackett J, Beresford B, Fraser L · BMJ Supportive & Palliative Care · 2018
Paediatric end-of-life care at home
Larsen S, Bording I, Bjergegaard M, Buchreitz J, Mouritzen B, Brix L, Jespersen B, Neergaard M · International journal of palliative nursing · 2023
Paediatric end-of-life care - symptoms and problems: parent assessment
Lykke C, Ekholm O, Olsen M, Sjogren P · BMJ supportive & palliative care. · 2021
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Benedetti F, Agosto C, Divisic A, Rusalen F, Moro N, Pellizzon M, Ometto M, Grigolon E, Lazzarin P, Benini F · European Respiratory Journal · 2019
Paediatric palliative care in cancer
Downing J, Daniels A, McNeil M, Ndagire M, Palat G, Rassam R, Baker J · ecancermedicalscience · 2024
Paediatric palliative care in the NICU: A new era of integration
Bertaud S, Montgomery A, Craig F · Seminars in Fetal and Neonatal Medicine · 2023
Palliative and Critical Care: Their Convergence in the Pediatric Intensive Care Unit
Buang S, Loh S, Mok Y, Lee J, Chan Y · Front Pediatr · 2022
Palliative and end of life care for a child: understanding parents' coping strategies
Darlington A, Randall D, Leppard L, Koh M · Acta Paediatrica · 2020
Palliative and End-of-Life Disparities for Pediatric Hispanic, Spanish-Preferring Patients With Cancer
El-Atoum B, Gradick K, Parker K, Moore D, Fluchel M, Sanchez-Birkhead A · Journal of Pediatric Hematology/Oncology · 2025
Palliative care considerations and practices for adolescents and young adults with cancer
Upshaw N, Roche A, Gleditsch K, Connelly E, Wasilewski-Masker K, Brock K · Pediatric Blood and Cancer. · 2020
Palliative Care Engagement for Pediatric Ventricular Assist Device Patients: A Single-Center Experience
Kaufman B, Chen S, Murray J, Cohen H, Sourkes B, Rosenthal D, Hollander S · ASAIO Journal · 2020
Palliative Care Family Support in Neonatology
Currie E, Navaneethan H, Weaver M · Principles of Neonatology · 2023
Palliative care for adolescents and young adults with advanced illness: A scoping review
Abdelaal M, Avery J, Chow R, Saleem N, Fazelzad R, Mosher P, Hannon B, Zimmermann C, Al-Awamer A · Palliative Medicine · 2022
Palliative Care for Children and Adolescents with Non-curative Brain Tumors: A Scoping Review
Bakhtary M, Sharma P, Raspin S, Vemuri S, McCarthy M · Journal of palliative medicine · 2025
Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review
Kim E, Kim S, Ahn S, Lee H · Journal of hospice and palliative nursing · 2024
Palliative care for pediatric intensive care patients and families
Rothschild C, Derrington S · Current opinion in pediatrics · 2020
Palliative Care for Pediatric Urology
Li O, Lee R, Boss R, Wang M · J Pain Symptom Manage · 2024
Palliative Care in Duchenne Muscular Dystrophy: A Study on Parents' Understanding
Sadasivan A, Warrier M, Polavarapu K, Preethish-Kumar V, Nair M, Keerthipriya M, Vengalil S, Sagar J, Kishore T, Nalini A, Thomas P · Indian J Palliat Care · 2021
Palliative care in pediatric Leukemia: The value added to care
Nair M · Pediatric Hematology Oncology Journal · 2025
Palliative Care in SMA Type 1: A Prospective Multicenter French Study Based on Parents' Reports
Hully M, Barnerias C, Chabalier D, Le Guen S, Germa V, Deladriere E, Vanhulle C, Cuisset J, Chabrol B, Cances C, Vuillerot C, Espil C, Mayer M, Nougues M, Sabouraud P, Lefranc J, Laugel V, Rivier F, Louvier U, Durigneux J, Napuri S, Sarret C, Renouil M, Masurel A, Viallard M, Desguerre I · Frontiers in Pediatrics · 2020
Palliative care integration in pediatric cardiac intensive care units: A novel champion-based model
Moynihan K, Kaye E, Bailey V, Wolfe J, Thiagarajan R, Snaman J · Critical Care Medicine · 2019
Palliative Care Needs Assessment for Pediatric Complex Care Providers
DiDomizio P, Millar M, Olson L, Murphy N, Moore D · Journal of Pain and Symptom Management · 2022
Palliative Care Outcomes for Critically ill Children After Rapid Whole Genome Sequencing
Perofsky K, Doshi A, Boulil Z, Beauchamp Walters J, Lee E, Dimmock D, Kingsmore S, Coufal N · Journal of Intensive Care Medicine · 2024
Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey
Pedraza E, Raguindin P, Hendriks M, Vokinger A, De Clercq E, Rüesch K, Hjorth L, von Bueren A, Tinner E, Bergstraesser E, Wiener L, Michel G · EJC Paediatric Oncology · 2023
Palliative Communication in the Pediatric Intensive Care Unit
Davis S, Nunn M · Critical care nursing clinics of North America · 2023
Parental agency in pediatric palliative care
Szabat M · Nursing inquiry · 2023
Parental Authority and the Weight of Assent: Navigating Moral Dilemmas in Adolescent End of Life Care
Heifner A, Ortiz M, Major-Kincade T, O'Connor C · Journal of bioethical inquiry · 2025
Parental bereavement - impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review
Vig P, Lim J, Lee R, Huang H, Tan X, Lim W, Lim M, Lee A, Chiam M, Lim C, Baral V, Krishna L · BMC Palliat Care · 2021
Parental Bereavement: Looking beyond Grief
Dias N, Docherty S, Brandon D · Death Stud · 2017
Parental experiences in end-of-life decision-making in allogeneic pediatric stem cell transplantation: "Have I been a good parent?"
Mekelenkamp H, Lankester A, Bierings M, Smiers F, Vries M, Kars M, de Vries M · Pediatric Blood & Cancer · 2020
Parental experiences of perinatal loss, with a focus on hospice provision: A thematic analysis
Latham R, Williams K, Guest K, Paize F, Lotto R · Palliative & supportive care · 2026
Parental experiences with a hospital-based bereavement program following the loss of a child to cancer
Berrett-Abebe J, Levin-Russman E, Gioiella M, Adams J · Palliat Support Care · 2016
Parental Financial Support Needs After the Death of a Child From Cancer
Snaman J, Herold B, Umaretiya P, Johnston E · Pediatric Blood and Cancer · 2025
Parental Grief and Bereavement: Exploring the Impact of Collaboratively Created Films on Audience Members
Burke J, Checo G, Agarwal A, Hawley B, Scheunemann L, Grassmyer C, Hackwelder T, Leinbach M, Pentz M, Weber A, Indralingam R, Baumann S · Health Promotion Practice · 2026
Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey
Snaman J, Kaye E, Torres C, Gibson D, Baker J · Pediatr Blood Cancer · 2016
[Parental mourning after a perinatal loss]
de Mezerac I, Caeymaex L · Archives de Pediatrie. · 2017
Parental needs in infant's end of life and bereavement in NICU: A qualitative study
Hassanpour M, Sadeghi N, Heidarzadeh M · Journal of Pain and Symptom Management · 2016
Parental Posttraumatic Growth After Pediatric Hematopoietic Stem Cell Transplant
Beckmann N, Dietrich M, Hooke M, Gilmer M, Akard T · J Hosp Palliat Nurs · 2021
Parental Relationships following the Loss of a Child
Dyregrov A, Gjestad R, Dyregrov K · Journal of Loss and Trauma · 2020
Parental support needs during pediatric resuscitation: A systematic review
Ghavi A, Hassankhani H, Powers K, Arshadi-Bostanabad M, Namdar-Areshtanab H, Heidarzadeh M · International Emergency Nursing · 2022
Parent and Provider Perspectives of a Hospital-Based Bereavement Support Program in Pediatric Palliative Care
Gundry A, Elvidge N, Donovan L, Bunker K, Herbert A, Bradford N · Journal of Pain and Symptom Management · 2023
Parent-Clinician Communication and Prolonged Grief in Parents Whose Child Died from Cancer
Ouyang N, Baker J, Ananth P, Knobf M, Snaman J, Feder S · Journal of pain and symptom management · 2024
Parent Distress and the Decision to Have Another Child After an Infant's Death in the NICU
Keim M, Fortney C, Shultz E, Winning A, Gerhardt C, Baughcum A · Journal of obstetric, gynecologic, and neonatal nursing: JOGNN · 2017
Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies
Ashcraft L, Asato M, Houtrow A, Kavalieratos D, Miller E, Ray K · Patient · 2019
Parent experience of neonatal encephalopathy: The need for family-centered outcomes
Lemmon M, Donohue P, Parkinson C, Northington F, Boss R · Journal of Child Neurology · 2017
Parent Grief 1-13 Months After Death in Neonatal and Pediatric Intensive Care Units
Youngblut J, Brooten D, Glaze J, Promise T, Yoo C · J Loss Trauma · 2017
Parenting Surviving Children After the Death of a Child from Cancer: An Interpretative Phenomenological Analysis
Haylett W, Tilley D, Spencer B, Hwang S, Akard T · Journal of Child and Family Studies · 2021
Parent Perceptions of Infant Symptoms and Suffering and Associations With Distress Among Bereaved Parents in the NICU
Clark O, Fortney C, Dunnells Z, Gerhardt C, Baughcum A · Journal of Pain and Symptom Management · 2021
Parent Priorities in End-of-Life Care for Children With Cancer
Ananth P, Lindsay M, Mun S, McCollum S, Shabanova V, de Oliveira S, Pitafi S, Kirch R, Ma X, Gross C, Boyden J, Feudtner C, Wolfe J · JAMA network open · 2023
PARENTS 2 study protocol: pilot of Parents' Active Role and ENgagement in the review of Their Stillbirth/perinatal death
Bakhbakhi D, Siassakos D, Storey C, Heazell A, Lynch M, Timlin L, Burden C · BMJ Open · 2018
Parents’ advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups
Hjorth E, Kreicbergs U, Sejersen T, Werlauff U, Rahbek J, Lövgren M · Journal of Child Health Care · 2021
Parents' and nurses' experiences of end-of-life care in intensive care for children: A systematic review
Bloomer M, Butler A, Brooks L, Coventry A, McKeever S, Ranse K, Rowe J, Thomas S, Thornton R · Australian Critical Care · 2025
Parents as Advocates for Pediatric Palliative Care
Lord B, Morrison W, Goldstein R, Feudtner C · Pediatrics · 2021
Parents' descriptions of labouring with an antepartum fetal death: Findings from the Birthing in Grief study
Warland J, Pollock D, Collier A, Horey D, Boyle F · Australian & New Zealand Journal of Obstetrics & Gynaecology · 2024
Parents' experience of extended viewing in a paediatric hospice: a qualitative study
Smith P, Teasdale E, Sheppard-Law S · International Journal of Palliative Nursing · 2023
Parents' Experiences About Support Following Stillbirth and Neonatal Death
Camacho Ávila M, Fernández Medina I, Jiménez-López F, Granero-Molina J, Hernández-Padilla J, Hernández Sánchez E, Fernández-Sola C · Advances in Neonatal Care · 2020
Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries
Horey D, Boyle F, Cassidy J, Cassidy P, Erwich J, Gold K, Gross M, Heazell A, Leisher S, Murphy M, Ravaldi C, Siassakos D, Storey C, Vannacci A, Wojcieszek A, Flenady V · Birth (Berkeley, Calif.) · 2021
Parents' experiences of paediatric end-of-life care in the UK: a multisite qualitative study
Peat G, McLorie E, Barrett L, Weatherly H, Hinde S, Lake Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hewitt C, Hain R, Subramanian G, Haynes A, Fraser L, Murtagh F, Hackett J · BMJ supportive & palliative care · 2025
Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study
Barrett L, Peat G, McLorie E, Weatherly H, Hinde S, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hewitt C, Hain R, Subramanian G, Haynes A, Murtagh F, Hackett J, Fraser L · BMC Palliative Care · 2025
Parents, Grandparents and Siblings: A Pilot Psychological Intervention Study in Pediatric Palliative Care
Nogueira A, Ribeiro M · Contemporary Family Therapy: An International Journal · 2024
Parents' perspectives on conflict in paediatric healthcare: A scoping review
Parsons E, Darlington A · Archives of Disease in Childhood · 2021
Parents' views on what facilitated or complicated their grief after losing a child to cancer
Pohlkamp L, Sveen J, Kreicbergs U, Lövgren M · Palliat Support Care · 2020
Parents: Wish I had done, wish I had not done, and coping after child NICU/PICU death
Brooten D, Youngblut J, Caicedo C, Dankanich J · J Am Assoc Nurse Pract · 2019
Participation in Online Research Examining End-of-Life Experiences: Is It Beneficial, Burdensome, or Both for Parents Bereaved by Childhood Cancer?
Tager J, Battles H, Bedoya S, Gerhardt C, Young-Saleme T, Wiener L · Journal of Pediatric Oncology Nursing · 2019
Partnering with caregivers in bereavement research: Why it matters and best practices
McCarthy S, Snaman J, Umaretiya P, Johnston E · Pediatrics · 2025
Partnering With Parents to Dismantle "Good-Death" Narratives
Broden E, McCarthy S, Snaman J · JAMA Pediatr · 2024
Patients' priorities in a reminiscence and legacy intervention in palliative care
Hesse M, Forstmeier S, Ates G, Radbruch L · Palliat Care Soc Pract · 2019
Pediatric Cardiac Critical Care Transport and Palliative Care: A Case Series
Garcia X, Frazier E, Kane J, Jones A, Brown C, Bryant T, Prodhan P · The American journal of hospice & palliative care · 2020
Pediatric Critical Care Transport as a Conduit to Terminal Extubation at Home: A Case Series
Noje C, Bernier M, Costabile P, Klein B, Kudchadkar S · Pediatric Critical Care Medicine · 2017
Pediatric End-of-Life Care in Rural America: A Systematic Review
Stone W, Keim-Malpass J, Cozad M, Fornehed M, Lindley L · Am J Hosp Palliat Care · 2021
Pediatric End-of-Life Care Skills Workshop: A novel, deliberate practice approach
Scheurer J, Norbie E, Bye J, Villacis-Calderon D, Heith C, Woll A, Shu D, McManimon K, Kamrath H, Goloff N · Acad Pediatr · 2022
Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States
Bogetz J, Anderson A, Holland M, Macauley R · J Pain Symptom Manage · 2022
Pediatric Oncology Providers' Perceptions of a Palliative Care Service: The Influence of Emotional Esteem and Emotional Labor
Szymczak J, Schall T, Hill D, Walter J, Parikh S, DiDomenico C, Feudtner C · Journal of Pain and Symptom Management. · 2018
Pediatric palliative care across continents: Communication and shared-decision-making
Joren C, Aris-Meijer J, Verhagen A, Lantos J · Current Problems in Pediatric and Adolescent Health Care · 2023
Pediatric palliative care at home by Home Care Unit: how home nurses feel?
Bertrand A, Veyet V, Goy F, Cervos M, Schell M · Support Care Cancer · 2021
Pediatric Palliative Care in the Multi-Cultural Context: Findings from a workshop conference
Rosenberg A, Bona K, Coker T, Feudtner C, Houston K, Ibrahim A, Macauley R, Wolfe J, Hays R · J Pain Symptom Manage · 2019
Pediatric Palliative Care of a Transgender Adolescent
Seachrist K, Somers E, Petras L, Didden E, Deci S, Tomboc P, Kidd K · Pediatrics · 2024
Pediatric palliative care parents' distress, financial difficulty, and child symptoms
Boyden J, Hill D, Nye R, Bona K, Johnston E, Hinds P, Friebert S, Kang T, Hays R, Hall M, Wolfe J, Feudtner C · J Pain Symptom Manage · 2021
Pediatric Palliative Care Simulation Improves Resident Learning Outcomes: an 11-Year Review
Hirsh C, Richner G, Brown M, Grossoehme D, Harrell B, Friebert S · Journal of pain and symptom management · 2024
Pediatric palliative care utilization by decedent children: A nationwide population-based study, 2002-2017
Wu W, Lu F, Tang C, Chao F, Yu T · Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2023
Pediatric Perioperative DNR Orders: A Case Series in a Children’s Hospital
Brown S, Antiel R, Blinman T, Shaw S, Neuman M, Feudtner C · Journal of Pain and Symptom Management · 2019
Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital
Trowbridge A, Bamat T, Griffis H, McConathey E, Feudtner C, Walter J · Academic pediatrics. · 2019
Pediatric Resident's Knowledge and Attitudes Towards Spiritual Assessment and Care: An Educational Intervention. (FR408C)
Delaney C, Moehling K, Maurer S · Journal of Pain and Symptom Management · 2020
Perceived impact of pediatric palliative care: caregiver's perspective
Ribeiro A, Hafe M, Torgal J, Azevedo I, Guerra P · Minerva pediatrics · 2024
Perceptible Signs of End of Life in Pediatric Intensive Care Patients
Pierron C, Levy M, Mattioni V, Poncelet G, Le Bourgeois F · J Palliat Med · 2022
Perinatal Bereavement in Racially, Culturally, and Gender Diverse Families
Nurse-Clarke N, Freedle A, Bindeman J, Jarvis J, Sember J · MCN: The American Journal of Maternal Child Nursing
Perinatal Bereavement Photography: A Mixed-Methods Study on Posttraumatic Growth in Parents
Vivekananda K, McDowell C, Knipe K · Illness, Crisis & Loss · 2025
Perinatal hypoxic-ischaemic encephalopathy: a national survey of end-of-life decisions and palliative care
Arnaez J, Herranz-Rubia N, Garcia-Alix A · BMJ supportive & palliative care. · 2019
Perinatal Palliative Care: A qualitative study evaluating the perspectives of pregnancy counselors
Flaig F, Lotz J, Knochel K, Borasio G, Führer M, Hein K · Palliative Medicine · 2019
Pictures as mementos after perinatal death: a case study
Jesus R, Benute G, Bertolassi N, Barbosa T, Bolibio R, Figueiredo F, Setubal M, Gibelli M, Gomes A, Ferreira R, Francisco R, Bernardes L · International Journal of Palliative Nursing · 2022
Pilot Study of a Bereavement Referral Program for Parents Following Perinatal Death
Michelson K, Hayes A, Barrera L, James K, Miller C, Guzman Z, Torres N, McNicholas A, Becker A · Journal of Pain and Symptom Management · 2026
'Place bonding' in children's hospice care: a qualitative study
Dunbar H, Carter B, Brown J · BMJ supportive & palliative care · 2020
Policy and care in tandem: structuring youth volunteerism for psychological benefits in pediatric palliative care
Wang Q, Zhang J, Zhang Z, Shen Y, Ma Y, Wu Z, Hall B · BMC Palliative Care · 2025
Positioning comfort measures in antenatal counselling for periviable infants
Carroll K, Thorvilson M, Collura C · Sociology of Health & Illness · 2025
Postponed Withholding: Balanced Decision-Making at the Margins of Viability
Syltern J, Ursin L, Solberg B, Støen R · Am J Bioeth · 2021
Posttraumatic Growth in Bereaved Parents: A Multidimensional Model of Associated Factors
Albuquerque S, Narciso I, Pereira M · Psychol Trauma · 2017
Post-Traumatic Growth in Finnish Parents After the Traumatic Death of a Child
Mohamed Hussin N, Vesala S, Peltomäki R, Aho A · Journal of Social Work in End of Life & Palliative Care · 2024
Predicting grief intensity after recent perinatal loss
Hutti M, Myers J, Hall L, Polivka B, White S, Hill J, Kloenne E, Hayden J, Grisanti M · J Psychosom Res · 2017
Predictors of improvement in parental stress after the first three months at home with a medically fragile infant
Postier A, Foster L, Remke S, Simpson J, Friedrichsdorf S, Brearley S · Maternal and Child Health Journal · 2024
Pre-loss personal factors and prolonged grief disorder in bereaved mothers
Goldstein R, Petty C, Morris S, Human M, Odendaal H, Elliott A, Tobacco D, Angal J, Brink L, Kinney H, Prigerson H · Psychol Med · 2018
Preparing for Good Grief: Grief and Loss in the Hospice and Palliative Context (P07)
Remke S, Shukraft A, Supiano K, Wladkowski S · Journal of Pain and Symptom Management · 2020
Preparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process
Broden E, Eche-Ugwu I, DeCourcey D, Snaman J · Journal of Pain and Symptom Management · 2024
Preparing Nurses for Palliative Care in the NICU
Ferrell B, Thaxton C, Murphy H, Fortney C · Advances in Neonatal Care (Lippincott Williams & Wilkins) · 2020
Primary palliative care: Skills for all clinicians
Sreedhar S, Kraft C, Friebert S · Current Problems in Pediatric and Adolescent Health Care · 2020
Prioritization of Pediatric Palliative Care Field-Advancement Activities in the United States: Results of a National Survey
Feudtner C, Faerber J, Rosenberg A, Kobler K, Baker J, Bowman B, Wolfe J, Friebert S · J Pain Symptom Manage · 2021
Productivity in Pediatric Palliative Care: Measuring and Monitoring an Elusive Metric
Kaye E, Abramson Z, Snaman J, Friebert S, Baker J · J Pain Symptom Manage · 2017
Professional Bereavement Photography in the Setting of Perinatal Loss: A Qualitative Analysis
Ramirez F, Bogetz J, Kufeld M, Yee L · Glob Pediatr Health · 2019
Prognostic Disclosure to Dying Adolescents Against Parental Wishes: A Point-Counter Point Debate
Tanious M, Goodrich G, Pedigo V, Ozark S, Arenth J · HEC Forum · 2024
Prolonged grief and insomnia symptoms in cancer-bereaved parents: a latent class analysis
Sveen J, Eisma M, Pohlkamp L, Kreicbergs U, Lenferink L · BMC Psychiatry · 2026
Prolonged Grief, Autobiographical Memory, and Its Interaction With Value Orientations in China and Switzerland
Xiu D, Maercker A, Yang Y, Jia X · Journal of Cross Cultural Psychology · 1369
Protective and risk factors associated with psychological distress in cancer-bereaved parents: A cross-sectional study
Rasouli O, Aarseth Bø M, Reinfjell T, Moksnes U, Eilertsen M · European Journal of Oncology Nursing · 2021
Protective Factors Associated With the Loss of a Child due to Oncological Illness: Systematic Review
Gonzalez-Biber M, Rueda-Extremera M, Gomez-Martinez S, Cantero-Garcia M · Omega - Journal of Death & Dying · 2026
Provider Perceptions on Bereavement Following Newborn Death: A Qualitative study from Ethiopia and Ghana
Rent S, Bakari A, Deribessa S, Abayneh M, Shayo A, Bockarie Y, Moyer C, Kukora S · The Journal of Pediatrics · 2022
Provider Perspectives on Palliative and Complex Care Team Collaboration
Johnson M, Friedrich A, DiDomizio P · Journal of Pain and Symptom Management · 2025
Providing pediatric palliative care in non-urban areas of illinois: Challenges identified and recommendations for process improvement
Downing K, Michelson K, Murday P, Arsala E · Journal of Pain and Symptom Management · 2018
Providing Support for Neonatal Intensive Care Unit Health Care Professionals: A Bereavement Debriefing Program
Hawes K, Goldstein J, Vessella S, Tucker R, Lechner B · American journal of perinatology. · 2020
Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice Nurses
Kaye E, Gattas M, Kiefer A, Reynolds J, Zalud K, Li C, Lu Z, Baker J · Journal of Pain and Symptom Management · 2018
Psychedelic-Assisted Therapies and Pediatric Palliative Care: New Tools for Hope and Healing (TH118A)
Waldman E, Adrian C, Spence D · Journal of Pain & Symptom Management · 2023
Psychological Domains of Care of Pediatric Palliative Care Within Pediatric Oncology
Park H, Brock K, Lee K, Korsah K, Radbill L · Psycho-Oncology · 2025
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Thompson A, Kentor R, Schaefer M, McCarthy S · Journal of pain and symptom management · 2024
Psychologists in pediatric palliative care: Clinical care models within the United States
Hildenbrand A, Amaro C, Gramszlo C, Alderfer M, Levy C, Ragsdale L, Wohlheiter K, Marsac M · Clinical Practice in Pediatric Psychology · 2021
Psychosocial well-being of siblings of pediatric patients in palliative home care
Dinkelbach L, Köhler M, Galushko M, Pieper L, Kuhlen M, Danneberg M, Dechert O, Trocan L, Janßen G · J Pain Symptom Manage · 2023
Qualitative Analysis of Family-centered Care for Children with Cancer in Palliative Wards: An Evaluation of Needs and Barriers in Resource-limited Settings
Margaretha S, Mulatsih S, Effendy C, Kusnanto H · Open Access Macedonian Journal of Medical Sciences · 2021
Racial Inequalities in Pediatric Hospice Care
Latremouille G, Anderson K, Herbst L, Whitford B, Nee K · Journal of Pain & Symptom Management · 2025
Racial Inequities in Palliative Referral for Children with High-Intensity Neurologic Impairment
Jones M, Simpson S, Beck A, Cortezzo D, Thienprayoon R, Corley A, Thomson J · The Journal of pediatrics · 2024
Recognising uncertainty: an integrated framework for palliative care in perinatal medicine
Wilkinson D, Bertaud S, Mancini A, Murdoch E · Archives of disease in childhood. Fetal and neonatal edition · 2024
Reconsidering early parental grief following the death of a child from cancer: a new framework for future research and bereavement support
Snaman J, Morris S, Rosenberg A, Holder R, Baker J, Wolfe J · Supportive Care in Cancer · 2020
Recruiting bereaved parents for research after infant death in the neonatal intensive care unit
Currie E, Roche C, Christian B, Bakitas M, Meneses K · Appl Nurs Res · 2016
Reflecting on palliative care for children, young people and their families: a revised model
McNeilly P, McCloskey S, Peacock V, Price J · International journal of palliative nursing · 2022
Regional paediatric palliative care network model improves the quality of life of children on long-term ventilation at home
Rusalen F, Agosto C, Brugnaro L, Benini F · Acta Paediatrica (Oslo, Norway: 1992) · 2017
Regret and unfinished business in parents bereaved by cancer: A mixed methods study
Lichtenthal W, Roberts K, Catarozoli C, Schofield E, Holland J, Fogarty J, Coats T, Barakat L, Baker J, Brinkman T, Neimeyer R, Prigerson H, Zaider T, Breitbart W, Wiener L · Palliative Medicine · 2020
Relationship between parental distress and proxy symptom reports in pediatric palliative care
Hill D, Nye R, Boyden J, Johnston E, Hinds P, Friebert S, Bogetz J, Kang T, Hall M, Wolfe J, Feudtner C · Journal of pain and symptom management · 2025
RELATIONSHIP BETWEEN RESPONSE TO STRESS & MEANING MAKING AND THE EFFECTS ON GRIEF AFTER CHILD DEATH
Suttle M, Gerhardt C, Fults M, Shultz E · Critical Care Medicine · 2016
Relationships and Resources Supporting Children With Serious Illness and Their Parents
Bogetz J, Revette A, Partin L, DeCourcey D · Hosp Pediatr · 2022
Research poems: exploring the experience of parents of children who have died in the paediatric intensive care unit
Gonzalez-Gil M, Alcon-Najera S, Oter-Quintana C · Enfermeria clinica · 2025
Research progress on hospice care preferences of parents of children with cancer
Cai W, Tao L, Zhang Y, He Y, Huang S · Chinese Journal of General Practitioners · 2025
Resilience as a predictive factor towards a healthy adjustment to grief after the loss of a child to cancer
Vegsund H, Reinfjell T, Moksnes U, Wallin A, Hjemdal O, Eilertsen M · PLoS One · 2019
Resolving Scottish paediatric end-of-life conflicts
Sivers S, Downie M · Med Leg J · 2022
Respecting Spirituality During Extubations: Holding Space for Miracles and Legacy with Reactive Comfort Plans
Morvant A, Mauser D, Moriarty J, Norvell M, Baker J, Ammon E · Journal of Pain and Symptom Management · 2024
Retrospective Pediatric Telepalliative Care Experience
Schmitt S, Ebby C, Doshi A, Bower K, Marc-Aurele K · J Palliat Med · 2021
[Retrospective study of children referred from paediatric intensive care to palliative care: Why and for what]
García-Salido A, Santos-Herranz P, Puertas-Martín V, García-Teresa M, Martino-Alba R, Serrano-González A · Anales De Pediatria (Barcelona, Spain: 2003) · 2017
Revealing the impact of loss: Exploring mental health through the use of drawing/writing with HIV positive adolescents in Johannesburg
Woollett N, Brahmbhatt H, Dodd K, Booth M, Berman H, Cluver L · Children and Youth Services Review · 2017
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Cortezzo D, Vawter-Lee M, Shoaib A, Venkatesan C · Frontiers in Pediatrics · 2023
Role of Sense of Coherence in Mediating the Relationship Between End-of-Life Caregiving Burden and Bereavement Depressive-Symptom Trajectory
Wen F, Chou W, Hou M, Su P, Shen W, Chen J, Chang W, Tang S · The journal of nursing research : JNR · 2026
Ronan and the Endless Sea of Stars: A Graphic Memoir
Anspacher M · Journal of Palliative Medicine · 2026
Rural Perinatal Loss: A Needs Assessment
Domogalla J, McCord J, Morse R · Omega (Westport) · 2020
Safety in Pediatric Hospice and Palliative Care: A Qualitative Study
Pestian T, Thienprayoon R, Grossoehme D, Friebert S, Humphrey L · Pediatr Qual Saf · 2020
Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn
Thornton R, Nicholson P, Harms L · J Obstet Gynecol Neonatal Nurs · 2019
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Kukora S, Krenz C, DeVries R, Spector-Bagdady K · Acta Paediatrica, International Journal of Paediatrics · 2024
Sharing in the community of having lost a child
Beck M, van Manen M · Medical humanities · 2025
Shifting sands: How parents engage with the idea of their child's death
Katz N, Hynson J, Gillam L · Palliative & Supportive Care · 2026
Should the Dutch Law on Euthanasia Be Expanded to Include Children?
Verhagen A, Buijsen M · Camb Q Healthc Ethics · 2022
Sibling Grief over Perinatal Loss—A Retrospective Qualitative Study
Bornemisza A, Javor R, Erdos M · Journal of Loss and Trauma · 2022
Silences, voices and losses: maternal experience in communicating bad news in a neonatal Intensive Care Unit
Almeida M, de Vasconcelos M, Pedrosa C, Peixoto A, Tavares C · Interface: Communication, Health, Education · 2026
Silent Mourning: Infant Death and Caring for Iranian Parents Under the Influence of Religious and Socio-cultural Factors
Fadaei Z, Mirlashari J, Nikbakht Nasrabadi A, Ghorbani F · Journal of religion and health · 2023
Single Center Utilization of Prenatal Palliative Care in Patients with Critical Congenital Heart Disease: Missed Opportunities?
Tredway H, Moynihan K, Bloomhardt H, Snaman J, Purol N, Hoganson D, Ronai C · Circulation · 2024
Social Media Consequences of Pediatric Death
Buxton D, Vest T · Child and Adolescent Psychiatric Clinics of North America · 2018
Social support and prolonged grief disorder symptoms in parents who lost their only child from urban and rural China
Song C, Fu Z, Li W, Yu Y, Ma J, Li X, Wang J · Psychological Trauma: Theory, Research, Practice, and Policy · 2023
"Somebody Hug the Interpreter": Enhancing Pediatric Palliative Care Partnership with Medical Interpreters
Wise A, Frechette E, Porter A, Snaman J · Journal of Pain and Symptom Management · 2024
Spanish adaptation of the Perinatal Grief Intensity Scale
Fernández-Alcántara M, Madrid-Valero J, Esteban-Burgos A, Congost-Maestre N, Oliver-Roig A, Cabañero-Martínez M · Journal of Reproductive and Infant Psychology · 2025
Specialised outpatient paediatric palliative care team–parent collaboration: narrative interviews with parents
Schütze D, Engler F, Ploeger C, Ulrich L, Hach M, Seipp H, Kuss K, Bösner S, Gerlach F, van den Akker M, Erler A, Engler J · BMJ Supportive & Palliative Care · 2022
Specialised palliative care for children and adolescents and their families. [Danish]
Lykke C, Ekholm O, Sjogren P · Ugeskrift for laeger · 2022
Specialist paediatric palliative care program development in the standard-of-care era Open Access
Lysecki D, Callen J, Humphreys J, Sutherland K, Halderen C, Meer S, Zuniga-Villanueva G · Paediatrics & Child Health (1205-7088) · 2025
Specialist paediatric palliative care services: what are the benefits?
Mitchell S, Morris A, Bennett K, Sajid L, Dale J · Archives of Disease in Childhood · 2017
Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review
Zuniga-Villanueva G, Widger K, Medeiros C, Trenholm M, Streuli J · American Journal of Perinatology · 2020
Spirituality and religious coping are related to cancer-bereaved siblings’ long-term grief
Lövgren M, Sveen J, Steineck G, Wallin A, Eilertsen M, Kreicbergs U · Palliative and Supportive Care · 2017
Spiritual Needs of Families With Bereavement and Loss of an Infant in the Neonatal Intensive Care Unit: A Qualitative Study
Sadeghi N, Hasanpour M, Heidarzadeh M, Alamolhoda A, Waldman E · J Pain Symptom Manage · 2016
Stillbirth memento photography
Tovey R, Turner S · J Vis Commun Med · 2020
Storytelling to support legacy making for bereaved parents of children with cancer
Paul T, Daniels S, Love A, Hart K, Kaye E · Pediatric Blood and Cancer · 2024
Story time with pediatric palliative care: A community self-care strategy
Haskamp A, Scanlon C, Hill A, Hatton A · Journal of Pain and Symptom Management · 2018
Strengths, Gaps, and Opportunities: Results of a Statewide Community Needs Assessment of Pediatric Palliative Care and Hospice Resources
Johnson K, Allen K, West W, Williams-Kirkwood W, Wasilewski-Masker K, Escoffery C, Brock K · Journal of Pain and Symptom Management · 2020
Sudden Unexpected Death in Childhood in Greater Manchester (United Kingdom): A Five-Year Review (2015–2020)
Quinn S, Dierckx E, Long T, Rowland A · Comprehensive Child & Adolescent Nursing · 2022
SUDEP awareness and effect on parental trauma, grief, and coping after the death of a child: A qualitative investigation
Latzer I, Friedman D, Williams D, Lapham G, Kukla A, Karnieli-Miller O, Pearl P · Neurology · 2026
Supported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU
Butler A, Pasek T, Clark T, Broden E · Pediatric Critical Care Medicine · 2024
Support Experiences and Wishes of Bereaved Parents After the Loss of Their Child to Cancer
Vokinger A, Pedraza E, Tinner E, von Bueren A, Scheinemann K, Bergstraesser E, Michel G, De Clercq E · Pediatric Blood and Cancer · 2024
Supporting and Contextualizing Pediatric ECMO Decision-Making Using a Person-Centered Framework
Aultman J, Raimer P, Grossoehme D, Nofziger R, Ba A, Friebert S · The Journal of clinical ethics · 2023
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Smith N, Bally J, Holtslander L, Peacock S, Spurr S, Hodgson-Viden H, Mpofu C, Zimmer M · Journal for specialists in pediatric nursing : JSPN · 2018
Supporting parental caregivers of seriously ill children: findings from a feasibility and acceptability study of a hope intervention
Burles M, Bally J, Holtslander L, Zimmer M, Hodgson-Viden H · Children's Health Care · 2023
Supporting the Grieving Child and Family
Schonfeld D, Demaria T · Pediatrics · 2016
Survey highlights the need for specific interventions to reduce frequent conflicts between healthcare professionals providing paediatric end-of-life care
Archambault-Grenier M, Roy-Gagnon M, Gauvin F, Doucet H, Humbert N, Stojanovic S, Payot A, Fortin S, Janvier A, Duval M · Acta Paediatr · 2017
Surviving Siblings' Illnesses, Treatments/Health Services over 13 Months after a Sibling's Death
Brooten D, Youngblut J, Roche R, Caicedo C, Page T · Journal of child and family studies · 2018
Taiwanese fathers' experiences following the death of a child to cancer
Huang H, Huang H, Chen S, Lee T · Death Studies · 2026
TAKING MEMORY MAKING TO THE NEXT LEVEL WITH THE USE OF RESIN
Aspinall E, Kelly M · BMJ Supportive and Palliative Care · 2022
Talking about desire to die: Talking past each other? A framework analysis of interview triads with patients, informal caregivers, and health professionals
Bostrom K, Dojan T, Tholking T, Gehrke L, Rosendahl C, Voltz R, Kremeike K · Palliative & supportive care · 2025
Talking to parents about their preferences for their child's place of death: A prospective study
Henderson E, Peake J, Al-Khabbaz E, Langner R, Dinsdale A, Craig F, Bluebond-Langner M · Archives of Disease in Childhood · 2018
Teachers communicating about life-limiting conditions, death and bereavement
Robinson S, Ekins A, Durrant I, Summers K · Pastoral Care in Education · 2018
The AAP Resilience in the Face of Grief and Loss Curriculum
Serwint J, Bostwick S, Burke A, Church A, Gogo A, Hofkosh D, King M, Linebarger J, McCabe M, Moon M, Osta A, Rana D, Sahler O, Smith K, Rivera F, Baldwin C · Pediatrics. · 2016
The Alluring, Enduring, and Troubling Concept of a "Good Death" in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J · Journal of Pain and Symptom Management · 2024
The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review
Weaver M, Mooney-Doyle K, Kelly K, Montgomery K, Newman A, Fortney C, Bell C, Spruit J, Kurtz Uveges M, Wiener L, Schmidt C, Madrigal V, Hinds P · J Palliat Med · 2019
The Butterfly Effect: Supporting Pediatric Trainee Bereavement Through a Condolence Card Project
Rabinowitz D, Korus R, Eastland S, Bloomhardt H · Hospital Pediatrics · 2023
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
de Sena J, Melo C, de Vasconcelos A, Teixeira L, Ruiz E, Alves R · Psicooncologia · 2023
The case for investigating the palliative needs of children in foster care: A call to action
Cohen R, Wright R · Journal of Clinical and Translational Science · 2025
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Haynes S, Kelly N, Turnbull J, Griffin H, Connolly A, Dorsett C, Brown J, Wolff A · Archives of Disease in Childhood · 2019
The codesign of an interdisciplinary team-based intervention regarding initiating palliative care in pediatric oncology
Hill D, Walter J, Casas J, DiDomenico C, Szymczak J, Feudtner C · Supportive Care in Cancer. · 2018
"the doctor is in": The role of child psychiatrists in pediatric palliative care
Battista V, Hwang J, Mosher P, Muriel A · Journal of Pain and Symptom Management · 2016
The effects of animal-assisted interactions on quality of life in children with life-threatening conditions and their parents
Walker H, Miller M, Cowfer B, Akard T, Gilmer M · International Journal of Palliative Nursing · 2021
The effects of peer support on post-traumatic stress reactions in bereaved parents
Aho A, Malmisuo J, Kaunonen M · Scand J Caring Sci · 2017
The enactment stage of end-of-life decision-making for children
Sullivan J, Gillam L, Monagle P · Palliat Support Care · 2018
The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer
Dos Santos M, Szylit R, Deatrick J, Mooney-Doyle K, Wiegand D · Journal of family nursing · 2020
The experience of men following stillbirth: the case of Israeli bereaved fathers
Glaser Chodik N, Baum N · Journal of reproductive and infant psychology · 2025
The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis
Polita N, de Montigny F, Neris R, Alvarenga W, Silva-Rodrigues F, Leite A, Nascimento L · Journal of Pediatric Oncology Nursing · 2020
The experiences of parents of children in pediatric palliative care: A qualitative study
Karakul A, Kıratlı D, Ardahan Akgül E, Çelik T · Journal of Pediatric Nursing · 2022
The experiences of pediatric social workers providing end-of-life care
Muskat B, Brownstone D, Greenblatt A · Social Work in Health Care · 2017
The experiences of physicians, nurses, and social workers providing end-of-life care in a pediatric acute-care hospital
Muskat B, Greenblatt A, Anthony S, Beaune L, Hubley P, Newman C, Brownstone D, Rapoport A · Death Stud · 2019
The FATHER Model of Loss and Grief After Child's Life-Limiting Illness
Postavaru G, Hamilton J, Davies S, Swaby H, Michael A, Swaby R, Mukaetova-Ladinska E · Pediatrics · 2023
The fragile spirituality of parents whose children died in the pediatric intensive care unit
Falkenburg J, van Dijk M, Tibboel D, Ganzevoort R · Journal of health care chaplaincy · 2020
"The good death": Experience of parents who have suffered the loss of a child in a pediatric intensive care unit. A phenomenological study
Alcon-Najera S, Ortiz-Pizarro R, Pena-Melendez E, Sanchez-Gallego A, Gonzalez-Gil M · Journal of pediatric nursing · 2025
The impact of a sibling's life-limiting genetic condition on adult brothers and sisters
Brown E, Coad J, Franklin A · American Journal of Medical Genetics Part A · 2017
The impact of stillbirth on bereaved parents: A qualitative study
Nuzum D, Meaney S, O'Donoghue K · PLoS One · 2018
The Impacts of Legacy-Making Interventions in the Pediatric Palliative Care Setting
Martins N, Dinis A, Nogueira A · Journal of palliative medicine · 2025
The Importance of Parental Connectedness and Relationships With Healthcare Professionals in End-of-Life Care in the PICU
Falkenburg J, Tibboel D, Ganzevoort R, Gischler S, van Dijk M · Pediatr Crit Care Med · 2018
The Intervention Areas of the Psychologist in Pediatric Palliative Care: A Retrospective Analysis
Santini A, Avagnina I, Marinetto A, De Tommasi V, Lazzarin P, Perilongo G, Benini F · Front Psychol · 2022
The Long Road to Farewell: The Needs of Families With Dying Children
Cacciatore J, Thieleman K, Lieber A, Blood C, Goldman R · Omega · 2019
The loss of a child, bereavement and the search for meaning: A systematic review of the most recent parental interventions
Pelacho-Rios L, Bernabe-Valero G · Current Psychology (New Brunswick, N.J.) · 2022
Themes in the Management of Pediatric Brain Death Contestation: Exploratory Qualitative Work From Multidisciplinary Health Professionals in the United States
Andrist E, Firn J, Kirschen M, Sederstrom N, Kon A, Fowler J, Wolfe A, McIlroy M, Kiragu A, Morrison W, Tegtmeyer K, Agarwal K, Pope T, Vercler C, Winiarski D, McGowan N, Leber S, Carroll C, Flori H · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025
The Most Important Aspects for a Good Death: Perspectives from Parents of Children with Cancer
Kim J, Park B · INQUIRY: The Journal of Health Care Organization, Provision, and Financing · 2021
The most painful estrangement: Death at birth
Cacciatore J · Seminars in Perinatology · 2024
The mother's risk of premature death after child loss across two centuries
Valdimarsdottir U, Lu D, Lund S, Fall K, Fang F, Kristjansson T, Guethbjartsson D, Helgason A, Stefansson K · Elife · 2019
The Network of Pediatric Palliative Care Educators: Cultivating Community in Interprofessional Education
Brock K, Trowbridge A, Arora G, Patneaude A, Van Breemen C, Goloff N · Journal of Pain and Symptom Management · 2025
The Pediatric Palliative Improvement Network: a national healthcare learning collaborative
Thienprayoon R, Jones E, Humphrey L, Ragsdale L, Williams C, Klick J · J Pain Symptom Manage · 2021
The perinatal bereavement of a twin: Support from pregnancy until telling the surviving twin
Letot J, Bayle B · Neuropsychiatrie de l'Enfance et de l'Adolescence · 2025
The Photographs of Meaning Program for Pediatric Palliative Caregivers and Its Impact on Meaning, Well-Being, and Perceived Social Support
Levy K, Grant P, Depner R, Tenzek K, Beaupin L, Pailler M, Brewer-Spritzer E · Palliat Med Rep · 2020
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Levy K, Grant P, Depner R, Tenzek K, Pailler M, Beaupin L, Breier J, Byrwa D · American Journal of Hospice & Palliative Medicine · 2019
The profile and support needs of parents in paediatric palliative care: comparing cancer and non-cancer groups
Aoun S, Gill F, Phillips M, Momber S, Cuddeford L, Deleuil R, Stegmann R, Howting D, Lyon M · Palliat Care Soc Pract · 2020
The provision of spiritual and pastoral care following stillbirth in Ireland: a mixed methods study
Nuzum D, Meaney S, O'Donoghue K · BMJ Support Palliat Care · 2016
Therapeutic Alliance Between Bereaved Parents and Physicians in the PICU
Suttle M, Hall M, Pollack M, Berg R, McQuillen P, Mourani P, Sapru A, Carcillo J, Startup E, Holubkov R, Dean J, Notterman D, Meert K · Pediatr Crit Care Med · 2020
“There is nothing I can’t face now”: Coping with child loss among bereaved parents in Ghana
Asare G, Annor F, Yendork J · Omega: Journal of Death and Dying · 2025
The relationship between bereaved parental knowledge of events and satisfaction with care
Suttle M, Gerhardt C, Fults M, Shultz E · Critical Care Medicine · 2016
"There's Just No Way to Help, and They Did." Parents Name Compassionate Care as a New Domain of Quality in Pediatric Home-Based Hospice and Palliative Care
Thienprayoon R, Grossoehme D, Humphrey L, Pestian T, Frimpong-Manso M, Malcolm H, Kitamura E, Jenkins R, Friebert S · Journal of Palliative Medicine · 2019
The Rhythm of Connection: Describing the Heartbeats Intervention for Patients and Families Receiving Paediatric Palliative Care
Evans H, Ralph M, Jaaniste T, Wakefield C, Sansom-Daly U · Children (Basel, Switzerland) · 2025
The Role of Attachment in Perinatal Loss: A Systematic Review
Santamaría-Gutiez R, González-Sala F, Lacomba-Trejo L · Journal of Loss & Trauma · 2025
The role of palliative care in critical congenital heart disease
Mazwi M, Henner N, Kirsch R · Semin Perinatol · 2017
The Role of Pediatric Palliative Care Following Nonaccidental Trauma
Henderson T, Graff A, Thorvilson M · J Palliat Med · 2023
The Role of Perinatal Palliative Care in Fetal Neurology
Rent S, Lemmon M, Ellestad S, Bidegain M · Am J Perinatol · 2021
The silent grief of grandmothers after an out-of-order death-An interpretative phenomenological analysis
Robertson J, Cutrer-Párraga E, Caldarella P, Yorgason J, Young T, Gjini E, Stuart S, Tueller S · Death Stud · 2025
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review
Engel M, Brouwer M, Jansen N, Leget C, Teunissen S, Kars M · Palliative Medicine · 2023
The spiritual needs and care of children and young people with life-threatening or life-shortening conditions, and parents (SPARK): a mixed-method investigation
Beresford B, Richardson N, Mukherjee S, Nye R, Aldridge J, Atkin K, Clayton M, Gibson F, Hackett J, Hain R, Arshad M, Nash P, Phillips B · Health & Social Care Delivery Research · 2025
The suffering in silence of older parents whose child died of cancer: A qualitative study
Van Humbeeck L, Dillen L, Piers R, Grypdonck M, Van Den Noortgate N · Crit Care Med. · 2016
The unique grief of grandparents
Cole E · Nursing Standard · 2018
The Unmet Needs of Parents in Pediatric Palliative Care: A Qualitative Systematic Review
Senanayake P, Oldroyd J · Journal of Palliative Medicine · 2025
The Unspeakable Nature of Death & Dying During Childhood: A Silenced Phenomenon in Pediatric Care
Campbell S, Moola F, Gibson J, Petch J, Denburg A · Omega (Westport) · 2022
The weight of words: Language and ethics in pediatric palliative care
Sherburne H, Schiltz B · Palliative & supportive care · 2025
Timing of Palliative Care Consultation and End-of-Life Care Intensity in Pediatric Patients With Advanced Heart Disease: Single-Center, Retrospective Cohort Study, 2014-2022
Songer K, Wawrzynski S, Olson L, Harousseau M, Meeks H, Moresco B, Delgado-Corcoran C · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2024
To Disclose or Not to Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric Disclosure
Martinez I, Hoppmann A, Perna S, Byrd P, Wolfe J, Aye J, Johnston E · J Pain Symptom Manage · 2021
Top Ten Tips Palliative Care Clinicians Should Know About Their Work's Intersection with Clinical Ethics
Weaver M, Boss R, Christopher M, Gray T, Harman S, Madrigal V, Michelson K, Paquette E, Pentz R, Scarlet S, Ulrich C, Walter J · J Palliat Med · 2021
Towards new perspectives: International consensus guidance on dystonia in pediatric palliative care
Mercante A, Nardocci N, Fernandez-Alvarez E, Lumsden D, Hauer J, Bernada M, Drake R, Kreicbergs U, Palomo-Carrion R, Gemma M, Coubes P, Fasano A, Lin J, Benini F · European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society · 2025
Training in Expression of Authentic Condolences in Healthcare: A Pilot Study
Aglio T, Porter A, Bien K, Clark L, Hashmi S, Kaye E · J Palliat Med · 2022
Transitional Objects to Faciliate Grieving Following Perinatal Loss
LeDuff 3, Bradshaw W, Blake S · Adv Neonatal Care · 2017
Trauma-Informed Care: Pediatric Intensive Care Nurses at the Root of Children’s Safety and Trust
McDowell B, Pasek T, Perlick C, Kostie K · Critical Care Nurse · 2022
Trauma to Transformation: the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore
Dutta O, Tan-Ho G, Choo P, Low X, Chong P, Ng C, Ganapathy S, Ho A · BMC Palliative Care · 2020
Treatment limitation and advance planning: Hospital-wide audit of paediatric death
Audigé M, Gillam L, Stark Z · J Paediatr Child Health · 2020
Trisomy 18 and the possibility of choice: The importance of Perinatal Hospice's support
Visconti D, Esposito V, Brugnoli F, Gallitelli V, Corsano B, Papacci P, Pellegrino M, De Santis M, Lanzone A, Noia G · European Journal of Pediatrics · 2025
Truth telling in the setting of cultural differences and incurable pediatric illness: A review
Rosenberg A, Starks H, Unguru Y, Feudtner C, Diekema D · JAMA Pediatrics · 2017
"Trying to Find North": Fathers Voice the Nature of Their Bereavement
Denhup C · Omega: Journal of Death & Dying · 2026
Types of Challenges and Barriers in Accessing Paediatric Palliative Care in Romania: A Qualitative Study Based on Focus Groups Guided by a Semi-Structured Discussion Guide
Hizanu Dumitrache M, Stafie L, Plesea-Condratovici A, Mindru D, Salim C, Elkan E, Duceac Covrig M, Matei M, Dinu C, Duceac L · Medicina (Kaunas, Lithuania) · 2025
Understanding How Bereaved Parents Cope With Their Grief to Inform the Services Provided to Them
Stevenson M, Achille M, Liben S, Proulx M, Humbert N, Petti A, Macdonald M, Cohen S · Qualitative Health Research · 2017
Understanding of Pediatric Palliative Care Among Medical Language Interpreters
Mohanty A, Large B, Bustamante I, Shaw T, Cuviello A · Journal of Pain & Symptom Management · 2025
Understanding the Bereavement Process: Voices of Bereaved Parents
Calderwood K, Alberton A · Illness, Crisis & Loss · 2021
Understanding the Intersection of Pediatric Palliative Care and Child Abuse Pediatrics (GP716)
Cleveland R, Keefer P · Journal of Pain and Symptom Management · 2020
Understanding Why Parents Say Yes or No to Organ Donation When Their Child Dies: Mixed-Methods Study
Crane E, Scales A, McLaughlin L, Hollinger R, Mildner R, Noyes J · Journal of advanced nursing · 2025
“Understanding why she had to leave me”: The roles of religion and spirituality in narratives of parents grieving the loss of a child to cancer
Superdock A, Trejo M, Yang Y, Torres C, Blazin L, Baker J, Spraker-Perlman H, Kaye E · Death Studies · 2024
Unraveling EPSDT and Pediatric Hospice Care: An Exploratory Policy Analysis
Lindley L, Weaver M · The American journal of hospice & palliative care · 2022
Unseen, Unrelenting, and Uncertain: Caregiver-Identified Targets for Pediatric Palliative Care
Porter A, Layshock M, Bogetz J, McLachlan L, Weill S, Snaman J, Houtrow A, Noll R, Rosenberg A, Schenker Y, Yu J · Journal of Pain and Symptom Management · 2025
Unspoken
Lalisan A, Woodman K, Silverstein A · Journal of pain and symptom management · 2025
Using the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) in a community setting: Does it facilitate best interests decision-making?
Eli K, Bernstein C, Harlock J, Huxley C, Walsh J, Blanchard H, Hawkes C, Perkins G, Turner C, Griffiths F, Slowther A · Journal of Medical Ethics: Journal of the Institute of Medical Ethics · 2025
Using web-based training to optimize pediatric palliative care knowledge transfer
Nadeau M, Bilodeau K, Daoust L · Canadian Oncology Nursing Journal / Revue canadienne de soins infirmiers en oncologie · 2020
Value-Based Factors Contributing to End-of-Life Decision-Making in a Pediatric Intensive Care Unit
Richner G, Grossoehme D, Friebert S, Forbes M, Page-Goertz C, Aultman J · Journal of palliative medicine · 2025
Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis
Donovan L, Wakefield C, Russell V, Fardell J, Mallitt K, Hetherington K, Cohn R · Death Studies · 2019
Virtual Bereavement Support Program in a Children's Hospice Care Center During COVID-19 Pandemic and Beyond
Allan-Wiseman S, Yazdani N, Modanloo S · Journal of social work in end-of-life & palliative care · 2024
Virtual reality as a tool to promote healthcare providers wellbeing in pediatric palliative care
Marinetto A, De Tommasi V, Rosa M, Santini A, Carraro C, Rosato I, Lazzarin P, Benini F, Zanin A · BMC health services research · 2025
Virtual Support for Bereaved Parents: Acceptability, Feasibility, and Preliminary Efficacy of HOPE Group
Drouin K, Hayes A, Archer E, Miller E, Hildenbrand A · Journal of palliative medicine · 2024
Visualizing social support in home pediatric palliative care using network maps
Lindemann D, Borasio G, Fuhrer M, Wasner M · Palliat Med · 2019
Voices of Children with Cancer and Their Siblings in the Family Talk Intervention
Ayoub M, Lövgren M, Kreicbergs U, Udo C · Children · 2025
"We Absolutely Had the Impression That It Was Our Decision"-A Qualitative Study with Parents of Critically Ill Infants Who Participated in End-of-Life Decision Making
Beyer M, Kuehlmeyer K, Mang P, Flemmer A, Führer M, Marckmann G, de Vos M, Schouten E · Children (Basel) · 2022
Web-based psychoeducational intervention for bereaved parents
Grossoehme D, Friebert S, Hendricks-Ferguson V, Jenkins R, Richner G, Carst N, Schmidt S, Duellman L, Schoemann A, Dias N · International Journal of Palliative Nursing · 2025
“We Have Learned to Speak with Our Eyes”: Reflections of the Pediatric Palliative Care Process on Family Life
Ünlü İ, Ulucan Şahin C, Karataş M, Cantekin Ö · Karya Journal of Health Science · 2024
“We’re going to get through this together”: patient, parent, and oncologist recommendations for providing emotional support in advanced childhood cancer
Christianson C, Mehler S, Reeves C, Farner H, Brinkman T, Baker J, Hinds P, Mack J, Kaye E · Journal of Psychosocial Oncology · 2025
"We're teetering on unsteady ground" parents' experiences of accessing 24/7 paediatric end-of-life care: a qualitative study
Barrett L, Fraser L, Ziegler L, Jarvis S, Picton S, Hackett J · BMC Palliative Care · 2025
"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition
Kittelsen T, Castor C, Lee A, Kvarme L, Winger A · Int J Qual Stud Health Well-being · 2024
"What about Your Social Worker?" Professionals and Families' Perceptions of Pediatric Palliative Care Social Work: A Qualitative Study
Hernandez Moscoso B, Torralba Rosello J · Journal of social work in end-of-life & palliative care · 2025
What constitutes 'good quality care' from the perspectives of children and young people with life-limiting and life-threatening conditions?
Braybrook D, Coombes L, Scott H, Haroardottir D, Bristowe K, Fraser L, Harding R · Archives of Disease in Childhood · 2023
What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents
Braybrook D, Coombes L, Scott H, Harardottir D, Roach A, Bariuan J, Ellis-Smith C, Downing J, Murtagh F, Bluebond-Langner M, Fraser L, Harding R, Bristowe K · The patient · 2025
What do parents value regarding pediatric palliative and hospice care in the home setting?
Boyden J, Ersek M, Deatrick J, Widger K, LaRagione G, Lord B, Feudtner C · Journal of Pain and Symptom Management · 2020
What impedes timely pediatric palliative care consults? A preliminary report
Marell P, Gupta S, Goloff N, Sherva K · Pediatrics · 2019
What I really need right now is to hear from other parents with a child like mine
Lord B, Duncan J, Joselow M, O'Malley P · Journal of Pain and Symptom Management · 2018
When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories
Kochen E, Jenken F, Boelen P, Deben L, Fahner J, van den Hoogen A, Teunissen S, Geleijns K, Kars M · BMC Palliat Care · 2020
When a Child Dies in the PICU Despite Ongoing Life Support
Lewis-Newby M, Clark J, Butt W, Dryden-Palmer K, Parshuram C, Truog R · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2018
When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care
Zimmermann K, Bergstraesser E, Engberg S, Ramelet A, Marfurt-Russenberger K, Von der Weid N, Grandjean C, Fahrni-Nater P, Cignacco E, Consortium P · BMC Palliative Care · 2016
Whom are we seeking to protect? Extremely preterm babies and moral distress
Prentice T, Gillam L, Davis P, Janvier A · Semin Perinatol · 2021
Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care
Broden E, Boyden J, Keller S, James R, Mooney-Doyle K · Journal of pain and symptom management · 2024
Who You Gonna Call? Ethical Conundrums in Pediatric End-of-Life Care
Macauley R, Carter B, Collura C · Journal of Pain & Symptom Management · 2025
Why is corneal donation so rare in children's hospices? A survey of multidisciplinary team members attitudes, knowledge, practice, and experience
Giugni C, Cecchi C, Santucci C, Giometto S, Lucenteforte E, Ricci Z · Pediatr Transplant · 2022
Withdrawal of life-sustaining therapy
Jericho B · Curr Opin Anaesthesiol · 2018
Wrapped with love-art therapy in paediatric palliative care
King J · Supportive Care in Cancer · 2018
You are at rock bottom: A qualitative systematic review of the needs of bereaved parents as they journey through the death of their child to cancer
Kenny M, Darcy-Bewick S, Martin A, Eustace-Cook J, Hilliard C, Clinton F, Storey L, Coyne I, Murray K, Duffy K, Fortune G, Smith O, Higgins A, Hynes G · J Psychosoc Oncol · 2020
"You are not alone": Connecting through a bereaved parent mentor program for parents whose child died of cancer
McNeil M, Kiefer A, Woods C, Barnett B, Berry-Carter K, Clark L, Mandrell B, Snaman J, Kaye E, Baker J · Cancer Med · 2022

Filter the literature by Grief & bereavement →