Clinical focus

Equity

Everything on the hub tagged Equity: researchers, groups, current studies, resources and published literature together.

72 results

Researchers

Jolanta
Shooting Star Children's Hospices · United Kingdom
Najiya P
National institute of mental health and neuroscience · India
Rebecca Singer Cohen
Johns Hopkins School of Nursing · United States

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Published literature

Addressing bias and disparities in periviable counseling and care
Tucker Edmonds B, Schmidt A, Walker V · Semin Perinatol · 2022
A Difficult and Loving Decision: Disparities in Pediatric End-of-Life Care
Liu A · Academic medicine : journal of the Association of American Medical Colleges · 2025
A global call to action for disability inclusion in health research
Anderson A, Martin R, DeCormier Plosky W, Ned L, Swenor B, Bailie J, Mathias K, Maggo J, Omino M, Russell A, Lawson A, Brown A, Bierer B, Shariq S, Mwifadhi M, Deane K, Philip S, Shepherd V, Walsh N, McHugh G · Nature Medicine · 2025
A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancer
Granek L, Veldhuijzen van Zanten S, Lysecki D, Rapoport A, Datoo N, Hasan F, Gupta S, Wiener L, Widger K, Chan A, Kassam A, Fergus K, McCullogh E, Johnston D · Palliat Support Care · 2026
A Systematic Review of Race/Ethnicity and Parental Treatment Decision-Making.
Harris V, Links A, Walsh J, Schoo D, Lee A, Tunkel D, Boss E · Clinical Pediatrics · 2018
"Between Wings of Hope and Fear": Muslim Parents' Experiences with the American Health Care System
Kolmar A, Kamal A, Steinhauser K · Journal of palliative medicine. · 2022
Centering Community Voices: Evaluating Stakeholder Engagement in Pediatric Palliative Care Research
Murray C, Walker E, Savage M, Johnson K · Journal of Pain and Symptom Management · 2025
Children's palliative care in low- and middle-income countries
Downing J, Powell R, Marston J, Huwa C, Chandra L, Garchakova A, Harding R · Archives of Disease in Childhood · 2016
Co-Design & Collaboration: Global Pediatric Palliative Care Research to Address Care Inequities
Salek M, Reyna M, De Campos D, Caneba J, Zhou X, García-Quintero X, McNeil M · Journal of pain and symptom management · 2025
Culture Humility: Supporting Families With Limited English Proficiency in Pediatric Palliative Care
Azambuja D, Grekov K, Xenakis L, Ullrich C · Journal of pain and symptom management · 2025
Disposition Decisions in Cases of Medical Complexity and Health Inequity
Shapiro J, Anspacher M, Madrigal V, Lantos J · Pediatrics · 2022
Early Versus Late Pediatric Palliative Care in Oncology: A Systematic Review of Outcomes, Disparities, and Implementation Barriers
Rezaei F, Salamat F, Vejdani H, Moslemi Najarcolaie F, Gharibi Z, Shirali R, Okhli A, Esmi A, Kordian A · Galen Medical Journal · 2025
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain
Birnie K, Killackey T, Backlin G, Gavin F, Harris C, Jordan I, Kim L, Marianayagam J, Swidrovich J, Lalonde C, Tunji-Ajayi L, Oberlander T, Kirby-Allen M, Lambert S, Siden H, Swidrovich J, Noel M, Lalloo C, Stinson J · Healthcare Quarterly (Toronto, Ont.) · 2022
Estimating the global need for palliative care for children: A cross-sectional analysis
Connor S, Downing J, Marston J · J Pain Symptom Manage · 2016
Exploring Pediatric Code Status, Advance Care Planning, and Mode of Death Disparities at End of Life
Makinde K, Silverstein A, Peckham-Gregory E, Kim E, Casas J · Journal of pain and symptom management · 2024
Gender imbalance in pediatric palliative care research samples.
Macdonald M, Chilibeck G, Affleck W, Cadell S · Palliative medicine · 2010
Gulburra (to understand): Aboriginal Ability Linker’s person-centred care approach
Gibson C, Chatfeild K, O’Neill-Baker B, Newman T, Steele A · Disability and Rehabilitation · 2021
Household income determines access to specialized pediatric chronic pain treatment in Germany
Ruhe A, Wager J, Hirschfeld G, Zernikow B · BMC Health Serv Res · 2016
Incremental cost analysis of pediatric hospice care in rural and urban Appalachia
Svynarenko R, Cozad M, Keim-Malpass J, Lindley L · The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2023
Inequities in Pediatric Palliative Care: Where Are the Consults?*
Suttle M · Pediatric Critical Care Medicine · 2022
Injustice and inequality in the provision of perinatal palliative care
Lin M, Bertaud S, Wilkinson D · Seminars in Perinatology · 2025
"It Seems Like a Bad Thing": US South Asian Youths' Perspectives About the Use of Hospice Care
Khosla N · The American journal of hospice & palliative care · 2023
Mapping of Children's Palliative Care Development Globally in 2023
Downing J, Chambers L, Daniels A, Ling J, Hamzah E, Luyirika E, Okhuysen-Cawley R, Doherty M, Baker J · Children · 2025
Mapping Pediatric Palliative Care Development in the WHO-European Region: Children Living in Low-to-Middle-Income Countries Are Less Likely to Access It
Arias-Casais N, Garralda E, Pons J, Marston J, Chambers L, Downing J, Ling J, Rhee J, de Lima L, Centeno C · Journal of Pain & Symptom Management · 2020
Migrant Families’ Experiences in Pediatric Oncology: A Scoping Review
Rakic M, Sandri A, Gysin O, Rost M · European Journal of Oncology Nursing · 2025
Palliative care allocation among critically ill children is highly variable in the United States
O'Keefe S, Maddux A, Bennett K, Youngwerth J, Czaja A · Critical Care Medicine · 2019
Palliative Care in High and Low Resource Countries
Kebudi R, Cakir F, Silbermann M · Curr Pediatr Rev · 2021
Pediatric End-of-Life Care in Rural America: A Systematic Review
Stone W, Keim-Malpass J, Cozad M, Fornehed M, Lindley L · Am J Hosp Palliat Care · 2021
Pediatric Oncology, Palliative Care and Low- or Middle- Income Countries: A Call for Action
Siddiqui M, Nohra L, Saleh M, Thakkar K, Trivedi R, Moujally S, Deeb H, Nicolas G, Emmanuel N · Glob Pediatr Health · 2023
Pediatric Palliative Care of a Transgender Adolescent
Seachrist K, Somers E, Petras L, Didden E, Deci S, Tomboc P, Kidd K · Pediatrics · 2024
Perceptions of discrimination among Mexican American families of seriously ill children
Davies B, Larson J, Contro N, Cabrera A · Journal of Palliative Medicine · 2011
Perinatal Bereavement in Racially, Culturally, and Gender Diverse Families
Nurse-Clarke N, Freedle A, Bindeman J, Jarvis J, Sember J · MCN: The American Journal of Maternal Child Nursing
Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer
Wright S, Paul M, Mendez S, Jones E, Lokko L, Heneghan C, Purol N, Arnold M, Aziz-Bose R, Kelly C, Pruitt S, Wolfe J, Bona K, Umaretiya P · Pediatric Blood and Cancer · 2026
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
Baker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Race, Ethnicity, and Social Determinants of Health in PICU Mode of Death: Single-Center Retrospective Cohort Study
Alladin A, Pfeiffer B, Nino P, Mosal S, Nares M, Alba-Sandoval M, Solano J, Gelman B, Cantwell G, Jeyapalan A · Critical Care Explorations · 2026
Racial and Ethnic Disparities in Medical Complexity and In-Hospital Death Among US-Born VLBW Infants
Hannan K, Bourque S, Palmer C, Tong S, Hwang S · Hosp Pediatr · 2022
Racial Disparities in Palliative Care at End-of-life in Children with Advanced Heart Disease in the South
Turner H, Davis E, Martinez I, Anshumani S, Boresino S, Buckingham S, Caudill C, Dai C, Mendoza E, Moynihan K, Puttock L, Tefera R, Bhatia S, Johnston E · The Journal of Pediatrics · 2024
Racial Disparities in the Provision of Pediatric Psychosocial End-of-Life Services: A Systematic Review
Kara M, Foster S, Cantrell K · Journal of palliative medicine · 2022
Racial Inequalities in Pediatric Hospice Care
Latremouille G, Anderson K, Herbst L, Whitford B, Nee K · Journal of Pain & Symptom Management · 2025
Racism in Pediatric Serious Illness and Palliative Care: A Scoping Review of Qualitative Research
Karbeah J, Murray C, Nakamura C, Brahmbhatt H, Cattaneo E, Frye H, Shen E, Kavalieratos D, Johnson K · Journal of pain and symptom management · 2024
Recommendations for Improving Equitability of Care for Pediatric Oncology
Zahreddine A, Ghobreel N, Doumit M · Seminars in Oncology Nursing · 2025
Reducing inequity in the provision of children's palliative care in low- and middle- income countries: A focus on education and research
Downing J, Brand T, Daniels A, El-Khoury J, Gafer N, Palat G, Riga O, Szylit R, Garcia-Quintero X · Palliative Medicine · 2025
Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study
Papworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hain R, Subramanian G, Haynes A, Fraser L · BMC Palliative Care · 2023
Shades of Care: Understanding the Needs of Racially and Ethnically Diverse Paediatric Patients, their Families, and Health Care Providers in North America
Ladha R, Neiterman E · Journal of child health care : for professionals working with children in the hospital and community · 2023
Social Determinants of Comfort: A New Way of Conceptualizing Pediatric End-of-Life Care
Mooney-Doyle K, Mendola A, Naumann W, Svynarenko R, Lindley L · J Hosp Palliat Nurs · 2022
Social Determinants of Health And End-Of-Life Circumstances in A Quaternary Children's Hospital
Jamieson T, Liu J, Goldberg S, Ting J, Fox M, Rosenberg A, Heneghan C, Kwan S, Schicho F, Vitali S, Kheir J, Johnston E, Thiagarajan R, Weller E, Ward V, Moynihan K · Journal of pain and symptom management · 2026
Te Whare Kaiao-an Indigenous-informed paediatric palliative care framework for Aotearoa New Zealand
Aburn G, Moeke-Maxwell T, Gott M, Drake R, Raphael D · The New Zealand medical journal · 2026
Towards culturally competent paediatric oncology care. A qualitative study from the perspective of care providers
Suurmond J, Lieveld A, van de Wetering M, Schouten-van Meeteren A · European journal of cancer care · 2017
"We Feel Alone and Not Listened To": Parents' Perspectives on Pediatric Serious Illness Care in Somali, Hmong, and Latin American Communities
Needle J, Sey L, Ahmed A, Batres R, Jinhee C, de la Parra P, Pergament S, Culhane-Pera K · Annals of Family Medicine · 2024
When a Child Dies: Racialized Father's Experiences of Objectification During Hospital Care
Kongnetiman-Pansa L, Haines-Saah R · Omega (Westport) · 2024
Who Will Speak for Me? Disparities in Palliative Care Research with "unbefriended" Adolescents Living with HIV/AIDS
Lee B, Houston P, Rana S, Kimmel A, D'Angelo L, Lyon M · Journal of Palliative Medicine · 1135

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