Published literature
A global call to action for disability inclusion in health researchAnderson A, Martin R, DeCormier Plosky W, Ned L, Swenor B, Bailie J, Mathias K, Maggo J, Omino M, Russell A, Lawson A, Brown A, Bierer B, Shariq S, Mwifadhi M, Deane K, Philip S, Shepherd V, Walsh N, McHugh G · Nature Medicine · 2025
A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancerGranek L, Veldhuijzen van Zanten S, Lysecki D, Rapoport A, Datoo N, Hasan F, Gupta S, Wiener L, Widger K, Chan A, Kassam A, Fergus K, McCullogh E, Johnston D · Palliat Support Care · 2026
Early Versus Late Pediatric Palliative Care in Oncology: A Systematic Review of Outcomes, Disparities, and Implementation BarriersRezaei F, Salamat F, Vejdani H, Moslemi Najarcolaie F, Gharibi Z, Shirali R, Okhli A, Esmi A, Kordian A · Galen Medical Journal · 2025
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic PainBirnie K, Killackey T, Backlin G, Gavin F, Harris C, Jordan I, Kim L, Marianayagam J, Swidrovich J, Lalonde C, Tunji-Ajayi L, Oberlander T, Kirby-Allen M, Lambert S, Siden H, Swidrovich J, Noel M, Lalloo C, Stinson J · Healthcare Quarterly (Toronto, Ont.) · 2022
Prevalence and Trajectory of Household Material Hardship Among Children With Advanced CancerWright S, Paul M, Mendez S, Jones E, Lokko L, Heneghan C, Purol N, Arnold M, Aziz-Bose R, Kelly C, Pruitt S, Wolfe J, Bona K, Umaretiya P · Pediatric Blood and Cancer · 2026
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral centerBaker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Race, Ethnicity, and Social Determinants of Health in PICU Mode of Death: Single-Center Retrospective Cohort StudyAlladin A, Pfeiffer B, Nino P, Mosal S, Nares M, Alba-Sandoval M, Solano J, Gelman B, Cantwell G, Jeyapalan A · Critical Care Explorations · 2026
Racial Disparities in Palliative Care at End-of-life in Children with Advanced Heart Disease in the SouthTurner H, Davis E, Martinez I, Anshumani S, Boresino S, Buckingham S, Caudill C, Dai C, Mendoza E, Moynihan K, Puttock L, Tefera R, Bhatia S, Johnston E · The Journal of Pediatrics · 2024
Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative studyPapworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hain R, Subramanian G, Haynes A, Fraser L · BMC Palliative Care · 2023
Social Determinants of Health And End-Of-Life Circumstances in A Quaternary Children's HospitalJamieson T, Liu J, Goldberg S, Ting J, Fox M, Rosenberg A, Heneghan C, Kwan S, Schicho F, Vitali S, Kheir J, Johnston E, Thiagarajan R, Weller E, Ward V, Moynihan K · Journal of pain and symptom management · 2026
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