Published literature
A Dutch paediatric palliative care guideline: a systematic review and evidence-based recommendations for symptom treatmentvan Teunenbroek K, Mulder R, Ahout I, Bindels-de Heus K, Delsman-van Gelder C, Galimont-Collen A, de Groot M, Heitink-Polle K, Looijestijn J, Mensink M, Mulder S, Schieving J, Schouten-van Meeteren A, Verheijden J, Rippen H, Borggreve B, Kremer L, Verhagen A, Michiels E · BMC Palliat Care · 2024
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatmentsFrance E, Uny I, Turley R, Thomson K, Noyes J, Jordan A, Forbat L, Caes L, Silveira Bianchim M · Cochrane Database of Systematic Reviews · 2023
A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of lifeGreenfield K, Holley S, Schoth D, Harrop E, Howard R, Bayliss J, Brook L, Jassal S, Johnson M, Wong I, Liossi C · Palliative Medicine. · 2020
A new palliative and pain educational model for pediatric residentsBenini F, De Zen L, Amarri S, Bignamini E, Bolognani M, Catalano I, Jankovic M, Manfredini L, Salata M, Zanin A, Corsello A, Barbi E, Marseglia G, Baraldi E · Italian Journal of Pediatrics · 2025
AquaScouts: ePROs Implemented as a Serious Game for Children With Cancer to Support Palliative CareHoffmann S, Schraut R, Kröll T, Scholz W, Belova T, Erhardt J, Gollmer D, Mauck C, Zacharioudakis G, Meyerheim M, Bonotis P, Kakalou C, Chatzimina M, Karamanidou C, Sander A, Didi J, Graf N, Natsiavas P · Front Digit Health · 2021
Canadian surveillance study of complex regional pain syndrome in childrenBaerg K, Tupper S, Chu L, Cooke N, Dick B, Doré-Bergeron M, Findlay S, Ingelmo P, Lamontagne C, Mesaroli M, Oberlander T, Poolacherla R, Spencer A, Stinson J, Finley G · PAIN · 2021
Caring for Critically Ill Children With Suspected or Proven Coronavirus Disease 2019 Infection: Recommendations by the Scientific Sections' Collaborative of the European Society of Pediatric and Neonatal Intensive CareRimensberger P, Kneyber M, Deep A, Bansal M, Hoskote A, Javouhey E, Jourdain G, Latten L, MacLaren G, Morin L, Pons-Odena M, Ricci Z, Singh Y, Schlapbach L, Scholefield B, Terheggen U, Tissières P, Tume L, Verbruggen S, Brierley J · Pediatr Crit Care Med · 2021
Children and adolescent solid tumours and high-intensity end-of-life care: what can be done to reduce acute care admissions?Podda M, Schiavello E, Clerici C, Luksch R, Terenziani M, Ferrari A, Casanova M, Spreafico F, Meazza C, Biassoni V, Chiaravalli S, Puma N, Bergamaschi L, Gattuso G, Sironi G, Nigro O, Massimino M · BMJ Support Palliat Care · 2021
Clinical Reasoning Behind Antibiotic Use in PICUs: A Qualitative StudyFontela P, Gaudreault J, Dagenais M, Noël K, Déragon A, Lacroix J, Razack S, Rennick J, Quach C, McNally J, Carnevale F, Group o · Pediatric Critical Care Medicine · 2022
Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and familiesKaye E, Woods C, Kennedy K, Velrajan S, Gattas M, Bilbeisi T, Huber R, Lemmon M, Baker J, Mack J · Br J Cancer · 2021
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort studyKorzeniewska-Eksterowicz A, Brzezinska O, Dryja U, Matczak D, Sopilnyak A, Szuszkiewicz E, Przysło Ł, Szmyd K, Jabłońska K, Krych P, Wojtków-Zielińska A, Wąsińska E, Niedźwiecki M · Palliative Medicine · 2024
Customised pediatric palliative care: Integrating oncological and palliative care prioritiesPodda M, Schiavello E, Visconti G, Clerici C, Armiraglio M, Casiraghi G, Ambroset S, Grossi A, Rizzi B, Lonati G, Massimino M · Acta Paediatrica, International Journal of Paediatrics · 2021
Customized pediatric palliative care: Integrating oncological and palliative care prioritiesPodda M, Schiavello E, Visconti G, Clerici C, Armiraglio M, Casiraghi G, Ambroset S, Grossi A, Rizzi B, Lonati G, Massimino M · Acta paediatrica (Oslo, Norway : 1992) · 2020
Death and Dying in Hospitalized Pediatric Patients: A Prospective Multicenter, Multinational StudyNicoll J, Dryden-Palmer K, Frndova H, Gottesman R, Gray M, Hunt E, Hutchison J, Joffe A, Lacroix J, Middaugh K, Nadkarni V, Szadkowski L, Tomlinson G, Wensley D, Parshuram C, Farrell C · J Palliat Med · 2021
Death One Hour After Terminal Extubation (DONATE): A Multisite Cohort StudyWinter M, Zhou A, Laksana E, Aczon M, Ledbetter D, Avesar M, Fainberg N, Hsu S, McCrory M, Morrow K, O'Brien C, Pringle C, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, Wetzel R · Critical Care Medicine · 2024
Definition and Assessment of Paediatric Breakthrough Pain: A Qualitative Interview StudyDawson E, Greenfield K, Carter B, Bailey S, Anderson A, Rajapakse D, Renton K, Mott C, Hain R, Harrop E, Johnson M, Liossi C · Children (Basel) · 2024
Education in Palliative and End-of-Life Care-Pediatrics: Curriculum use and disseminationPostier A, Wolfe J, Hauser J, Remke S, Baker J, Kolste A, Dussel V, Bernadá M, Widger K, Rapoport A, Drake R, Chong P, Friedrichsdorf S · J Pain Symptom Manage · 2021
Effects of a primary palliative care intervention on quality of life and mental health in cystic fibrosisFriedman D, Linnemann R, Altstein L, Georgiopoulos A, Islam S, Bach K, St John A, Fracchia M, Neuringer I, Lapey A, Sicilian L, Moskowitz S, Yonker L · Pediatr Pulmonol · 2019
Efficacy of Traditional, Complementary, and Integrative Medicine in Pain and Psychological Distress Management for Pediatric Palliative Patients: A Systematic Review and Meta-Analysis of Randomized Controlled TrialsWu X, Lam C, Chu Y, Deng W, Chan C, Au K, Man S, Li C, Zhong C, Ho L, Cheung Y · Journal of Pain and Symptom Management · 2025
End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United KingdomPapworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hain R, Subramanian G, Haynes A, Fraser L · NIHR open research · 2022
End-of-Life Course and Subspecialty Palliative Care Involvement for Children on Mechanical Circulatory Support: Five-Center Retrospective Cohort Study from the United States, 2015-2020Vazquez Colon Z, Robinson L, Lopez-Colon D, Joong A, Waldman E, Delgado-Corcoran C, May L, Cousino M, Peng D, Lukich S, Blume E, Machado D, M Moynihan K · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025
End-of-Life transfusion support at hospice and pediatric oncology unit: Bridging the gap between benefits and therapeutic allianceNigro O, Podda M, Pellegatta F, Schiavello E, Clerici C, Catalano I, Visconti G, Albarini M, Luksch R, Terenziani M, Ferrari A, Casanova M, Biassoni V, Meazza C, Spreafico F, Gattuso G, Sironi G, Puma N, Bergamaschi L, Chiaravalli S, Massimino M · Tumori · 2023
Enhancing Expert Panel Discussions in Pediatric Palliative Care: Innovative Scenario Development and Summarization With ChatGPT-4Almazyad M, Aljofan F, Abouammoh N, Muaygil R, Malki K, Aljamaan F, Alturki A, Alayed T, Alshehri S, Alrbiaan A, Alsatrawi M, Temsah H, Alsohime F, Alhaboob A, Alabdulhafid M, Jamal A, Alhasan K, Al-Eyadhy A, Temsah M · Cureus · 2023
Epilepsy in Paediatric Palliative Care: Prevalence, Clinical Correlations and the Development of a Consensus-Based Seizure Management ProtocolHizanu Dumitrache M, Salim C, Plesea-Condratovici A, Mindru D, Duceac Covrig M, Elkan E, Cristescu Budala C, Gurzu I, Moraru P, Matasaru M, Matei M, Duceac L · Medicina (Kaunas, Lithuania) · 2026
Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi-site longitudinal survey studyKaye E, Smith J, Zhou Y, Bagatell R, Baker J, Cohn S, Diller L, Glade Bender J, Granger M, Marachelian A, Park J, Rosenberg A, Shusterman S, Twist C, Mack J · Cancer · 2023
Future roles of artificial intelligence in early pain management of newbornsSalekin M, Mouton P, Zamzmi G, Patel R, Goldgof D, Kneusel M, Elkins S, Murray E, Coughlin M, Maguire D, Ho T, Sun Y · Paediatric and Neonatal Pain
Gastrointestinal Symptoms in Children With Life-Limiting Conditions Receiving Palliative Home CareHauch H, Kriwy P, Hahn A, Dettmeyer R, Zimmer K, Neubauer B, Brill S, Vaillant V, de Laffolie J, Schaefer K, Tretiakowa I, Hach M, Sibelius U, Berthold D · Front Pediatr · 2021
Goals of Care Rated by Parents of Children Receiving Pediatric Palliative Care: A Cohort Study Over Two Years (RP409)Feudtner C, Beight L, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Hays R, Kang T, Hall M, Nye R, Wolfe J · Journal of Pain and Symptom Management · 2022
Guidelines regarding ineffective maintenance of organ functions (futile therapy) in paediatric intensive care unitsBartkowska-Śniatkowska A, Byrska-Maciejasz E, Cettler M, Damps M, Jarosz K, Mierzewska-Schmidt M, Migdał M, Ożóg-Zabolska I, Piotrowski A, Rawicz M, Świder M, Tałałaj M, Zielińska M · Anaesthesiol Intensive Ther · 2021
Healthcare professionals' perspectives of providing end-of-life care for infants, children and young people in acute settings: A multi-site qualitative studyMcLorie E, Hackett J, Barrett L, Peat G, Weatherly H, Hinde S, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower R, Phillips B, Hewitt C, Hain R, Subramanian G, Haynes A, Papworth A, Fraser L, Murtagh F · Palliative medicine · 2025
How doctors manage conflicts with families of critically ill patients during conversations about end-of-life decisions in neonatal, pediatric, and adult intensive careSpijkers A, Akkermans A, Smets E, Schultz M, Cherpanath T, van Woensel J, van Heerde M, van Kaam A, van de Loo M, Willems D, de Vos M · Intensive Care Medicine · 2022
Improving the regulation of medical cannabis in Canada to better serve pediatric patientsHuntsman R, Kelly L, Alcorn J, Appendino J, Bélanger R, Crooks B, Finkelstein Y, Gilpin A, Lewis E, Litalien C, Jacobs J, Moore-Hepburn C, Oberlander T, Rassekh S, Repetski A, Rieder M, Shackelford A, Siden H, Szafron M, Jong G, Vaillancourt R · CMAJ · 2021
International consensus on sleep problems in pediatric palliative care: Paving the wayMercante A, Owens J, Bruni O, Nunes M, Gringras P, Li S, Papa S, Kreicbergs U, Wolfe J, Zernikow B, Lacerda A, Benini F, Li A, Wolfson A, Marinetto A, Santini A, Zanin A, Kuhn B, Angelhoff C, Santos C, Goh D, Verrillo E, Zhou E, Ferreira E, Bergstraesser E, Pizza F, Nilsson F, Plazzi G, Wang G, Traslaviña G, Moreira G, Siden H, Hauch H, Huijer H, Catalano I, Narang I, Avagnina I, Lopez J, Wille J, Mindell J, Bogetz J, Downing J, Hauer J, Streuli J, Baker J, Spruyt K, Chan K, Soster L, Oliveira L, Ragsdale L, Nobili L, Matlen L, Nosetti L, De Zen L, Strambi L, Stenmarker M, Lopes M, Blankenburg M, Rios M, Bernadá M, Farquhar M, Frühwald M, Gradisar M, Simakajornboon N, Lazzarin P, Chong P, Ferri R, Martino-Alba R, Findling R, Ferreira R, Bin-Hasan S, Kudchadkar S, Mercadante S, Amarri S, Keenan S, Noce S, de Oliveira Iglesias S, Fagondes S, Suh S, Sheldon S, Sejersen T, Ceranoglu T, Crabtree V, Castronovo V · Sleep Medicine · 2024
Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available toolsMayland C, Sunderland K, Cooper M, Taylor P, Powell P, Zeigler L, Cox V, Gilman C, Turner N, Flemming K, Fraser L · Palliat Med · 2022
'My Life Is a Mess but I Cope': An Analysis of the Language Children with Life-limiting and Life Threatening Illnesses Use to Describe their Own ConditionBristowe K, Braybrook D, Scott H, Coombes L, Harardottir D, Roach A, Ellis-Smith C, Fraser L, Downing J, Murtagh F, Harding R · Palliative Medicine · 2023
Neither the “Devil’s Lettuce” nor a “Miracle Cure:” The Use of Medical Cannabis in the Care of Children and YouthGunning M, Rotenberg A, Anderson J, Balneaves L, Brace T, Crooks B, Hall W, Kelly L, Rassekh S, Rieder M, Virani A, Ware M, Zaslawski Z, Siden H, Illes J · Neuroethics · 2022
Noticing and responding to end-of-life suffering in the PICU: A co-designed conceptual framework for nursing practiceBroden Arciprete E, Michelson K, Feder S, Marr J, Al-Roub N, Gouda S, Jones A, Schopen A, Tapper A, Pasek T, Kelly R, Morris L, Olszewski A, Gallagher C, Taylor J, McCarthy S, Snaman J, Ananth P · Intensive & critical care nursing · 2026
Opioids in Palliative CareSalazar-Trujillo N, Torres-Méndez R, Molina-Covarrubias J · Opioids: Pharmacology, Abuse, and Addiction · 2022
Oral morphine versus transmucosal diamorphine for breakthrough pain in children: methods and outcomes: UK (DIPPER study) consensusHarrop E, Liossi C, Jamieson L, Gastine S, Oulton K, Skene S, Howard R, Johnson M, Boyce K, Mitchell L, Jassal S, Anderson A, Hain R, Hills M, Bayliss J, Soman A, Laddie J, Vickers D, Mellor C, Warlow T, Wong I · BMJ Support Palliat Care · 2021
Pain Assessment and Management in Pediatric Intensive Care Units Around the World, an International, Multicenter StudyGrunauer M, Mikesell C, Bustamante G, Cobo G, Sanchez S, Roman A, Icaza-Freire A, Gavilanes A, Wang N · Frontiers in Pediatrics · 2021
Pain Squad+ smartphone app to support real-time pain treatment for adolescents with cancer: protocol for a randomised controlled trialJibb L, Nathan P, Breakey V, Fernandez C, Johnston D, Lewis V, McKillop S, Patel S, Sabapathy C, Strahlendorf C, Victor J, Moretti M, Nguyen C, Hundert A, Cassiani C, El-Khechen Richandi G, Insull H, Hamilton R, Fang G, Kuczynski S, Stinson J · BMJ Open · 2020
Palliative Care in SMA Type 1: A Prospective Multicenter French Study Based on Parents' ReportsHully M, Barnerias C, Chabalier D, Le Guen S, Germa V, Deladriere E, Vanhulle C, Cuisset J, Chabrol B, Cances C, Vuillerot C, Espil C, Mayer M, Nougues M, Sabouraud P, Lefranc J, Laugel V, Rivier F, Louvier U, Durigneux J, Napuri S, Sarret C, Renouil M, Masurel A, Viallard M, Desguerre I · Frontiers in Pediatrics · 2020
Palliative care services in paediatric oncology centres across Europe: A cross-sectional surveyPedraza E, Raguindin P, Hendriks M, Vokinger A, De Clercq E, Rüesch K, Hjorth L, von Bueren A, Tinner E, Bergstraesser E, Wiener L, Michel G · EJC Paediatric Oncology · 2023
Pediatric palliative care parents' distress, financial difficulty, and child symptomsBoyden J, Hill D, Nye R, Bona K, Johnston E, Hinds P, Friebert S, Kang T, Hays R, Hall M, Wolfe J, Feudtner C · J Pain Symptom Manage · 2021
Pediatric Palliative Symptom Categories for (e)PROM in specialized pediatric palliative home careHocher R, Ruthke N, Busse T, Ghori S, Krumpelmann S, Messerschmidt C, Nathrath M, Vaillant V, Voelker T, Voelzke A, Zimmermann J, Deckers M · Journal of pain and symptom management · 2026
Perspectives of pediatric oncologists and palliative care physicians on the therapeutic use of cannabis in children with cancerOberoi S, Protudjer J, Rapoport A, Rassekh S, Crooks B, Siden H, Decker K, Ananth P, Chapman S, Balneaves L, Vanan M, Kelly L · Cancer Reports
Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported DataFeudtner C, Nye R, Hill D, Hall M, Hinds P, Johnston E, Friebert S, Hays R, Kang T, Wolfe J, Pediatric Palliative Care Research Network Shared Data and Research (PPCRN SHARE) Project Group · JAMA Network Open · 2021
Practice patterns of palliative radiation therapy in paediatric oncology patients amongst an international paediatric research consortiumRao A, Ermoian R, Alcorn S, Figueiredo M, Chen M, Dieckmann K, MacDonald S, Ladra M, Kobyzeva D, Nechesnyuk A, Nilsson K, Winey B, Villar R, Terezakis S · Pediatric Blood and Cancer · 2016
Relationship between parental distress and proxy symptom reports in pediatric palliative careHill D, Nye R, Boyden J, Johnston E, Hinds P, Friebert S, Bogetz J, Kang T, Hall M, Wolfe J, Feudtner C · Journal of pain and symptom management · 2025
Scoping review of symptoms in children with rare, progressive, life-threatening disordersPawliuk C, Widger K, Dewan T, Brander G, Brown H, Hermansen A, Grégoire M, Steele R, Siden H · BMJ Supportive & Palliative Care · 2019
Self-Reported Health Outcomes of Children and Youth with 10 Chronic DiseasesForrest C, Schuchard J, Bruno C, Amaral S, Cox E, Flynn K, Hinds P, Huang I, Kappelman M, Krishnan J, Kumar R, Lai J, Paller A, Phipatanakul W, Schanberg L, Sumino K, Weitzman E, Reeve B · The Journal of Pediatrics · 2022
Social Determinants of Health And End-Of-Life Circumstances in A Quaternary Children's HospitalJamieson T, Liu J, Goldberg S, Ting J, Fox M, Rosenberg A, Heneghan C, Kwan S, Schicho F, Vitali S, Kheir J, Johnston E, Thiagarajan R, Weller E, Ward V, Moynihan K · Journal of pain and symptom management · 2026
Society of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of LifeDerrington S, Broden Arciprete E, Lin M, Oczkowski S, Alladin A, Anani U, Borchik A, Collins C, Delgado-Corcoran C, Dickerman M, Harrod C, Henner N, Kon A, Lewis-Newby M, Lord B, Masters A, McCarthy S, Moynihan K, Munoz-Blanco S, Rissman L, Roberts K, Schlegel A, Schopen A, Siegel L, Swasey H, Wawrzynski S, Zorko D, DeCourcey D · Pediatric Critical Care Medicine · 2026
Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year periodZernikow B, Szybalski K, Hubner-Mohler B, Wager J, Paulussen M, Lassay L, Jorch N, Weber C, Schneider D, Janssen G, Oommen P, Kuhlen M, Brune T, Wieland R, Schundeln M, Kremens B, Langler A, Prokop A, Kiener R, Niehues T, Rose M, Baumann-Kohler M, Poppelmann M, Thorer H, Irnich M, Sinha K, Wolfe J, Schmidt P · Palliative Medicine · 2018
Subcutaneous Drug Administration in Pediatric Palliative Home Care: A Multicenter Prospective StudyRiva de la Hoz B, de Miguel M, Gorbe C, Tristancho-Perez A, Garcia-Palop B, Corro B, Nogue-Pujadas E, Bosch-Peligero M, Zurbano R, Yunquera-Romero L, Garcia-Lopez I · Journal of Pain & Symptom Management · 2026
Supporting the needs of adolescents and young adults: Integrated palliative care and psychiatry clinic for adolescents and young adults with cancerAbdelaal M, Mosher P, Gupta A, Hannon B, Cameron C, Berman M, Moineddin R, Avery J, Mitchell L, Li M, Zimmermann C, Al-Awamer A · Cancers · 2021
Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric studyHully M, Barnerias C, Chabrol B, Vuillerot C, Sabouraud P, Cuisset J, Cances C, Ropars J, Rivier F, Isapoff A, Desguerre I · Developmental Medicine and Child Neurology · 2019
Symptom management care pathway adaptation process and specific adaptation decisionsVettese E, Sherani F, King A, Yu L, Aftandilian C, Baggott C, Agarwal V, Nagasubramanian R, Kelly K, Freyer D, Orgel E, Bradfield S, Kyono W, Roth M, Klesges L, Beauchemin M, Grimes A, Tomlinson G, Dupuis L, Sung L · BMC cancer · 2023
Symptom Trajectories and Mortality Among Children Receiving Palliative Care: A Prospective Cohort StudyFeudtner C, Boyden J, Hill D, Hinds P, Johnston E, Friebert S, Bogetz J, Kang T, Hall M, Nye R, Wolfe J · Journal of Pain and Symptom Management · 2024
The radiotherapy utilization rate in pediatric tumors: An analysis of 13,305 patientsBishr M, Zaghloul M, Elmaraghi C, Galal A, Abdelaziz M, Elghazawy H, Shaheen H, Ramzy E, Mesbah A, Eissa S, Hegazy R, Hamza A, Elkhateeb N, Mousa A · Radiotherapy and Oncology · 2021
Towards new perspectives: International consensus guidance on dystonia in pediatric palliative careMercante A, Nardocci N, Fernandez-Alvarez E, Lumsden D, Hauer J, Bernada M, Drake R, Kreicbergs U, Palomo-Carrion R, Gemma M, Coubes P, Fasano A, Lin J, Benini F · European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society · 2025
Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative studyNamisango E, Bristowe K, Murtagh F, Downing J, Powell R, Abas M, Lohfeld L, Ali Z, Atieno M, Haufiku D, Guma S, Luyirika E, Mwangi-Powell F, Higginson I, Harding R · Palliative Medicine · 2020
Trajectories in Intensity of Medical Interventions at the End of Life: Clustering Analysis in a Pediatric, Single-Center Retrospective Cohort, 2013-2021Liesse K, Malladi L, Dinh T, Wesp B, Kam B, Turturice B, Pyke-Grimm K, Char D, Hollander S · Pediatric Critical Care Medicine · 2024
Understanding Sleep Challenges in Pediatric Palliative Care: A Patient-Focused Scoping Review and Implications for PracticeVarallo G, Mercante A, Baldini V, Gnazzo M, Testoni C, Benini F, Amarri S, Scorza M, Rubichi S, Pizza F, Plazzi G · J Clin Med · 2026
What matters to children and families facing advanced cancer? Identification of priority outcomes to improve paediatric palliative care in Turkey and JordanBoufkhed S, Yurdusen S, Alarjeh G, Ahmed F, Alrjoob W, Sengelen M, Cemaloglu M, Aydin B, Kutluk T, Shamieh O, Harding R · Palliative Medicine · 2021
When a Child Dies in the PICU Despite Ongoing Life SupportLewis-Newby M, Clark J, Butt W, Dryden-Palmer K, Parshuram C, Truog R · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2018
Withdrawal of Life-Sustaining Treatment in Children Managed in Nine PICUs in the United States: A Secondary Analysis of the Death One Hour After Terminal Extubation (DONATE) Dataset, 2009-2021Shah S, Laksana E, Aczon M, Avesar M, Burkiewicz K, Chandnani H, Fainberg N, Hsu S, McCrory M, Hodge K, Pringle C, Ross P, Shah J, Siegel L, Tripathi S, Morrison W, Wetzel R, Winter M · Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025
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