Clinical focus

Primary Care

Everything on the hub tagged Primary Care: researchers, groups, current studies, resources and published literature together.

35 results

Published literature

Accessibility and challenges of perinatal palliative care in Poland

Tataj-Puzyna U, Szlendak B, Kaptacz I, Sys D, Wegrzynowska M, Baranowska B · Palliative Medicine in Practice · 2023

Addressing bias and disparities in periviable counseling and care

Tucker Edmonds B, Schmidt A, Walker V · Semin Perinatol · 2022

African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study

Côté-Arsenault D, Denney-Koelsch E, McCoy T, Kavanaugh K · Applied Nursing Research · 2019

'Creating a safe space': how perinatal palliative care coordinators navigate care and support for families

Côté-Arsenault D, Denney-Koelsch E, Elliott G · Int J Palliat Nurs · 2021

Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020

Harnden F, Lanoue J, Modi N, Uthaya S, Battersby C · Archives of disease in childhood. Fetal and neonatal edition · 2023

Death talk: Basic linguistic rules and communication in perinatal and paediatric end-of-life discussions

Xafis V, Watkins A, Wilkinson D · Patient Education and Counseling · 2016

Development and integration of a perinatal palliative care program at a tertiary care center

Shah B, May R, White L, Wlodaver A · Journal of Investigative Medicine · 2019

Encouraging Family Physicians to Fill the Gaps in Hospice and Palliative Care for Children

Fan J, Kilpatrick L · Am Fam Physician · 2022

End-of-life decisions in perinatal care: A view from health-care providers in Mexico

Grether P, Lisker R, Loria A, Alvarez-del-Rio A · Salud Publica Mex · 2015

Evaluation of Care Providers' Attitude toward Perinatal Palliative Care and its Challenges in the Selected Teaching Hospitals of Tehran in 2019

Mohammadi A, Tahmasebi M, Mojen L, Rassouli M, Ashrafizadeh H · Indian J Palliat Care · 2021

Experiences from the first 10 years of a perinatal palliative care program: A retrospective chart review

Doherty M, Power L, Williams R, Stoppels N, Dumond L · Paediatrics & Child Health (1205-7088) · 2021

Experiences of general practice of children with complex and palliative care needs and their families: a qualitative study

Mitchell S, Harding S, Samani M, Slowther A, Coad J, Dale J · BMJ Open · 2021

Facilitating home birth in perinatal palliative care: A case report

Bertaud S, Kirven R, Kirven T, Harrop E, Crudgington A, Wilkinson D · Palliative Medicine · 2024

Grasping the meaning of perinatal palliative care for the multiprofessional team

De Godoi Melo F, Zani A, Araujo J, Gallo A, De Oliveira Peripolli M, Probst V · Revista Paulista de Pediatria · 2024

Infant Maternal Perinatal Advanced Care Team: A Pilot Collaboration for Families Facing a Life-Threatening Fetal Diagnosis

Lord S, Williams R, Pollard L, Ives-Baine L, Van Meer S, Goodman K, Mackenzie J, Salminen R, Rapoport A · Journal of Palliative Medicine · 2022

Neurodevelopmental Outcomes of Infants Born at <29 Weeks of Gestation Admitted to Canadian Neonatal Intensive Care Units Based on Location of Birth

Amer R, Moddemann D, Seshia M, Alvaro R, Synnes A, Lee K, Lee S, Shah P · J Pediatr · 2018

Nurses' Perspectives Regarding Challenges of Providing Perinatal/Neonatal End-of-Life Care in a Regional Hospital: An Exploratory Qualitative Study

Kurt A, Akkoc B · Western journal of nursing research · 2024

Palliative care after neonatal intensive care: Contributions of Leonetti Law and remaining challenges

Kuhn P, Dillenseger L, Cojean N, Escande B, Zores C, Astruc D · Archives de Pediatrie · 2017

Palliative care in neonatal period and ethical issues

Turkcapar A · Anestezi Dergisi · 2017

Palliative care in the neonatal intensive care unit

Jackson C, Vasudevan C · Paediatrics & Child Health · 2020

Parents' Descriptions of Neonatal Palliation as a Treatment Option Prior to Periviable Delivery

Jager S, Kavanaugh K, Hoffman S, Laitano T, Jeffries E, Tucker Edmonds B · The Journal of perinatal & neonatal nursing · 2020

Parents' hope in perinatal and neonatal palliative care: a scoping review

Silveira A, Wernet M, Franco L, Dias P, Charepe Z · BMC Palliative Care · 2023

Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)

Evan E, Sandesara A, Mock K · Journal of Pain and Symptom Management · 2020

Perinatal palliative care

Martín-Ancel A, Pérez-Muñuzuri A, González-Pacheco N, Boix H, Espinosa Fernández M, Sánchez-Redondo M, Cernada M, Couce M · An Pediatr (Engl Ed) · 2022

Perinatal Palliative Care: Additional Costs of an Interprofessional Service and Outcome of Pregnancies in a Cohort of 115 Referrals

Buchholtz S, Fangmann L, Siedentopf N, Bührer C, Garten L · Journal of Palliative Medicine · 2023

Perinatal Palliative Care Fellowship: Development of a Novel Subspeciality Track in Palliative Medicine

Vente T, Henner N, Fry J · Journal of Pain and Symptom Management · 2024

Perinatal Palliative Care in the Neonatal Intensive Care Unit

Maher-Griffiths C · Crit Care Nurs Clin North Am · 2022

Primary palliative care skills in caring for surgical patients in the neonatal intensive care unit

Bishop C, Jackson L, Brown A · Seminars in Pediatric Surgery · 2022

Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty

Lord S, Williams R, Pollard L, Ives-Baine L, Wilson C, Goodman K, Rapoport A · Journal of palliative care · 2022

Survey on Neonatal End-of-Life Comfort Care Guidelines Across America

Haug S, Farooqi S, Wilson C, Hopper A, Oei G, Carter B · Journal of Pain and Symptom Management. · 2018

The relationship between the nursing environment and delivering culturally sensitive perinatal hospice care

Mixer S, Lindley L, Wallace H, Fornehed M, Wool C · International Journal of Palliative Nursing · 2015

The Role of Midwives in US Perinatal Palliative Care: A Scoping Review

Schafer R, LoGiudice J, Hargwood P, Wilpers A · Journal of Midwifery & Women's Health · 2024

Uncertainty and Perinatal Post‐Traumatic Stress Disorder in the Neonatal Intensive Care Unit

Malin K, Johnson T, Brown R, Leuthner J, Malnory M, White‐Traut R, Rholl E, Lagatta J · Research in Nursing & Health · 2022

What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change

Houlihan B, Coleman C, Kuo D, Plant B, Comeau M · Pediatrics · 2024

'You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end': A meta-ethnography exploring the experience of parents whose baby is diagnosed antenatally with a life limiting or life-threatening condition

Tatterton M, Fisher M · Palliat Med · 2023

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