Published literature
Evaluating the impact of national education in pediatric palliative care: the Quality of Care Collaborative AustraliaSlater P, Herbert A, Baggio S, Donovan L, McLarty A, Duffield J, Pedersen L, Duc J, Delaney A, Johnson S, Heywood M, Burr C · Adv Med Educ Pract · 2018
Fifteen years of shared care for paediatric oncology, haematology and palliative patients across Queensland: The role of Regional Case ManagersSlater P, Hastings Y, Nicholson J, Noyes M, Benitez L, Pollock K, Peacock R, Cox A, Gunning R, Caris K, Petersen D, Henry C, Spanner R, Beckett K, Chisholm C · The Australian journal of rural health · 2023
First Nations Peoples' perceptions, knowledge and beliefs regarding stillbirth prevention and bereavement practices: A mixed methods systematic reviewPollock D, Bailey H, Hasanoff S, Munn Z, Valenzuela C, Stern C, Price C, Marriott R, Gliddon J, Lewis C, Michie C, Bowie M, Penny M, Reibel T, Warland J, Farrant B, White S, Shepherd C · Women & Birth · 2024
Identifying Key Areas to Improve Care for Families Around the Time of Stillbirth or Neonatal Death: A Survey of Maternity Services in AustraliaLoughnan S, Horey D, Wojcieszek A, Andrews C, Gautam R, Carty M, Ellwood D, Forbes M, Gordon A, Jennings B, Lohan A, Laporte J, Seeho S, Shand A, Boyle F, Flenady V · Australian & New Zealand Journal of Obstetrics & Gynaecology · 2026
Influence of multi-party consultations on child involvement in clinical encounters: An observational study of paediatric palliative careEkberg S, Danby S, Pitt E, Ekberg K, Watts J, Weinglass L, Bluebond-Langner M, Langner R, Bradford N, Yates P, Fleming S, Delaney A, Duffield J, Herbert A · Patient Education and Counseling · 2026
Involving Nonspeaking and Speaking Children in Clinical Encounters: An Observational Study of Real-World Clinical EncountersEkberg S, Danby S, Watts J, Weinglass L, Cooke R, Nelson M, Pitt E, Ekberg K, Bluebond-Langner M, Langner R, Bradford N, Yates P, Delaney A, Duffield J, Orr A, Fleming S, Scully M, Ryan S, Herbert A · Journal of paediatrics and child health · 2026
Living With Loss: Study Protocol for a Randomized Controlled Trial Evaluating an Internet-Based Perinatal Bereavement Program for Parents Following Stillbirth and Neonatal DeathLoughnan S, Boyle F, Ellwood D, Crocker S, Lancaster A, Astell C, Dean J, Horey D, Callander E, Jackson C, Shand A, Flenady V · Trials · 2022
Mortality in Dravet syndromeCooper M, McIntosh A, Crompton D, McMahon J, Schneider A, Farrell K, Ganesan V, Gill D, Kivity S, Lerman-Sagie T, McLellan A, Pelekanos J, Ramesh V, Sadleir L, Wirrell E, Scheffer I · Epilepsy Res · 2016
Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challengesNevin S, Kelada L, Elvidge K, Maack M, Hilton G, Kershaw J, Ros E, Briggs N, Farrar M, Wakefield C · Journal of Pediatric Psychology · 2026
Quality of care collaborative for paediatric palliative care in Australia (QuoCCA)Herbert A, Irving H, Pedersen L, Baggio S, Delaney A, Donovan L, McLarty A, Duc J, Slater P, Johnson S, Trethewie S, Ryan S, Hynson J, Duffield J, Fleming S, Heywood M, Phillips M, Momber S, Burr C · Pediatric Blood and Cancer · 2017
Research priorities for childhood chronic conditions: a workshop reportLopez-Vargas P, Tong A, Crowe S, Alexander S, Caldwell P, Campbell D, Couper J, Davidson A, De S, Fitzgerald D, Haddad S, Hill S, Howell M, Jaffe A, James L, Ju A, Manera K, McKenzie A, Morrow A, Odgers H, Pinkerton R, Ralph A, Richmond P, Shaw P, Singh-Grewal D, van Zwieten A, Wake M, Craig J · Archives of Disease in Childhood · 2018
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