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Health Policy

Everything on the hub tagged Health Policy: researchers, groups, current studies, resources and published literature together.

66 results

Researchers

Brandon Maser
University of Toronto · Canada
Cinara
Center for Research and Implementation in Palliative Care · Brazil
Jolanta
Shooting Star Children's Hospices · United Kingdom
Najiya P
National institute of mental health and neuroscience · India
Rebecca Singer Cohen
Johns Hopkins School of Nursing · United States

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Published literature

A Comparison of Young Adults With and Without Cancer in Concurrent Hospice Care: Implications for Transitioning to Adult Health Care
Mooney-Doyle K, Keim-Malpass J, Svynarenko R, Lindley L · Journal of Adolescent and Young Adult Oncology · 2022
Advancing paediatric cancer care in Jordan: a strategic 10-year roadmap
Rihani R, Awidi A, Barbar M, Mustafa M, Tutunji L, Rayyan Y, Mansour A, Abdel-Razeq H, Sultan I · The Lancet Child and Adolescent Health · 2025
Analysis of health administration data to inform health service planning for paediatric palliative care
Bowers A, Bradford N, Chan R, Herbert A, Yates P · BMJ Support Palliat Care · 2020
Assisted dying in the UK: please don't ignore the impact on children and young people
Fraser L, Downie J · Archives of Disease in Childhood · 2025
A structured comparison and reflection on international position statements and professional guidance for the management of periviable infants
Peterson J, Southwood G, Smith D, Johnstone E, Mahaveer A · Frontiers in pediatrics · 2025
At the boundaries of life: Suffering and decision-making in children with life-threatening conditions (1-12 years)
Brouwer M · 2021
Challenges and Incentives for Integrating Person-Centred Outcome Measures Into Routine Paediatric Palliative Care: Health, Social Care and Commissioner Perspectives
Scott H, Coombes L, Braybrook D, Roach A, Harardottir D, Bristowe K, Ellis-Smith C, Chambers L, Bluebond-Langner M, Farsides B, Murtagh F, Harding R · Palliative Medicine · 2022
Clinician views on and ethics priorities for authorizing medical cannabis in the care of children and youth in Canada: a qualitative study
Gunning M, Rotenberg A, Kelly L, Crooks B, Oberoi S, Rapoport A, Rassekh S, Illes J · CMAJ open · 2022
Comprehensive grief care for children and families: Policy and practice implications
Griese B, Burns M, Farro S, Silvern L, Talmi A · Am J Orthopsychiatry · 2017
Considering medical assistance in dying for minors: the complexities of children's voices
Singh H, Macdonald M, Carnevale F · Journal of Medical Ethics · 2020
Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limits
Wilpers A, Kobler K, Schafer R, Wilpers M, Zeme M, Batten J, Canty L, Lorch S · Health affairs scholar · 2025
Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions
Ekberg S, Bowers A, Bradford N, Ekberg K, Rolfe M, Elvidge N, Cook R, Roberts S, Howard C, Agar M, Deleuil R, Fleming S, Hynson J, Jolly A, Heywood M, Waring S, Rice T, Vickery A · J Paediatr Child Health · 2021
Extremely Preterm Babies-Legal Aspects and Palliative Care at the Border of Viability
Dettmeyer R · Children (Basel) · 2022
Guidance on forgoing life-sustaining medical treatment
Weise K, Okun A, Carter B, Christian C, Katz A, Laventhal N, MacAuley R, Moon M, Opel D, Statter M, Davies D, Dell M, Diekema D, Klipstein S, Elster N, Rivera F, Feudtner C, Boss R, Hauer J, Humphrey L, Klick J, Linebarger J, Parker S, Lord B, Imaizumi S, Guinn-Jones M, Flaherty E, Gavril A, Idzerda S, Laskey A, Legano L, Leventhal J, Fortson B, MacMillan H, Stedt E, Hurley T · Pediatrics · 2017
How are agency and autonomy understood in children’s palliative and end-of-life care?: A narrative review
Campbell S, Delaney L, Rovensky N, Kent R, Matthiesen A, Carnevale F, Macdonald M · Palliative Care and Social Practice · 2026
Implementation of Polish guidelines on futile therapy protocols in pediatric intensive care units: a multicenter retrospective review
Damps M, Rybojad B, Byrska-Maciejasz E, Gajda M, Mierzewska-Schmidt M, Bartkowska-Sniatkowska A, Zielinska M, Kubica-Cielinska A, Pagowska-Klimek I, Aftyka A, Wiktor L, Duda I · Scientific Reports · 2026
Improving the regulation of medical cannabis in Canada to better serve pediatric patients
Huntsman R, Kelly L, Alcorn J, Appendino J, Bélanger R, Crooks B, Finkelstein Y, Gilpin A, Lewis E, Litalien C, Jacobs J, Moore-Hepburn C, Oberlander T, Rassekh S, Repetski A, Rieder M, Shackelford A, Siden H, Szafron M, Jong G, Vaillancourt R · CMAJ · 2021
Indi Gregory: A Wider Perspective on Children's Best Interests at the End-of-life
De Sabbata K, Pearson A · Med Law Rev · 2024
Infant Organ Donation after Death by Circulatory Criteria: A Literature Scoping Review
St Louis J, Weiss M, Al-Ayass S, Tierney S, Wright A, Dhanani S, Widger K · Pediatric Critical Care Medicine · 2025
'It Was a Shared Duty': Bereaved Fathers' Perspectives, Experiences and Practices in Relation to their Partner's Lactation after Infant Death
Noble-Carr D, Carroll K, Copland S, Waldby C · Breastfeeding Review · 2022
Life Duration of Pediatric Patients with Cancer Enrolled on Concurrent Hospice Care: A Retrospective Decedent Study
Weaver M, Jalfon R, Zeng E, Kalyanasundaram S, Kaye E, Salek M, Cowfer B, Johnson L, Mamer T, Mandrell B, Lindley L, Levine D · Journal of Palliative Medicine · 2026
Listening to Young People on Childhood Death: A Youth-Focused Participatory Approach to Children's Palliative and End-of-Life Research and Policymaking
Campbell S, Rovensky N, Kent R, Delaney L, Carnevale F, Macdonald M · Children and Society · 2026
Medicaid‑Insured Children with Medical Complexity in a Rural State
Bohnhoff J, Bodnar C, Graham J, Knudson J, Fox E, Leary C, Cater L, Noonan C · Academic Pediatrics · 2025
Medical assistance in dying: A paediatric perspective
Davies D · Paediatrics and Child Health · 2018
Medical assistance in dying in pediatrics: a retrospective case study of clinical interactions and implications for team training
Martisella M, Marquis M, Stypulkowski A, Payot A, Bourque C, Bouthillier M · Paediatrics & Child Health · 2026
Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013
Keim-Malpass J, Cozad M, Svynarenko R, Mack J, Lindley L · J Spec Pediatr Nurs · 2021
Navigating a child's best interest: the essential role of palliative care
Craig F · The Lancet Child and Adolescent Health · 2023
Neonatal euthanasia in the context of palliative and EoL care
Verhagen A · Semin Fetal Neonatal Med · 2023
Neonatal euthanasia is unsupportable: the Groningen protocol should be abandoned
Kon A · Theoretical Medicine & Bioethics · 2007
Opportunities for Palliative Care in Public Health
De Lima L, Pastrana T · Annu Rev Public Health · 2016
Paediatric ethics: a repudiation of the Groningen protocol
Kodish E · Lancet · 2008
Paediatric euthanasia in Canada: New challenges for end of life care
Lamb C · Paediatr Child Health · 2021
Paediatric palliative care and paediatric euthanasia: clarifying a moral continuum
Joren C, Verhagen A, Lantos J · The Lancet Child and Adolescent Health · 2026
Paediatric palliative care should focus on living as well as dying
Kreicbergs U · Acta Paediatrica, International Journal of Paediatrics. · 2018
Parent and medical team disagreements in the UK: universal lessons in the origins and resolution in conflict
Mackintosh K, McConnell P · J Anesth Analg Crit Care · 2022
Pediatric palliative care (PPC) access in Chile: Private practice health insurance law implementation
Rojas N, Rosas A, Araya E, Varela J, Lopez P, Gallastegui A · Pediatric Blood and Cancer · 2017
Perinatal palliative care in Poland: current legal status, organization, standards and guidelines
Urbanska K, Jarosz-Lesz A, Wasek-Buko M, Naworska B, Drosdzol-Cop A · Palliative Medicine in Practice · 2025
Physician-hastened death in young children: Getting to underlying assumptions
Liao L, Chan D · Paediatrics and Child Health (Canada) · 2016
Protection of children's rights to access palliative medical services: Legal problems
Shevchuk O, Shevchuk A, Holovash O, Mykhailenko O, Ivanytsia A · Wiadomosci lekarskie (Warsaw, Poland : 1960) · 2025
Quality of Living and Dying: Pediatric Palliative Care and End-of-Life Decisions in the Netherlands
Brouwer M, Maeckelberghe E, De Weerd W, Verhagen E · Cambridge Quarterly of Healthcare Ethics · 2018
Reflections on charlie gard and the best interests standard from both sides of the atlantic ocean
Ross L · Pediatrics · 2020
Repeal of the affordable care act will negatively impact children at end of life
Keim-Malpass J, Lindley L · Pediatrics · 2017
Shared decision-making in pediatric palliative care in the Netherlands
Em M, Cy J, Mc K, Jl A, Aae V · Current Problems in Pediatric and Adolescent Health Care · 2024
Should the Dutch Law on Euthanasia Be Expanded to Include Children?
Verhagen A, Buijsen M · Camb Q Healthc Ethics · 2022
Structural and Organizational Dimensions of Compassion Fatigue in Pediatric Oncology Nursing: A Qualitative Study
Galanti T, Santoriello M, Cortini M, Di Tullio E, Di Febbo A, Fantinelli S, Mincione G · International Journal of Environmental Research & Public Health [Electronic Resource] · 2026
Synthesis of health promotion concepts in children's palliative care
Bennett V, Hain R, Pritchard A, Noyes J · Int J Palliat Nurs · 2021
The age limit for euthanasia requests in the Netherlands: a Delphi study among paediatric experts
de Keijzer S, Widdershoven G, Verhagen A, Pasman H · Journal of medical ethics · 2023
The Belgian euthanasia law and its impact on the practises of Belgian paediatric palliative care teams.
Friedel M, Terwangne B, Brichard B, Ruysseveldt I, Renard M · International journal of palliative nursing · 2018
The Effect of Pediatric Palliative Care Policy on Hospice Utilization Among California Medicaid Beneficiaries
Lindley L · Journal of Pain and Symptom Management · 2016
The proliferation of perinatal hospices in states with reproductive restrictions or abortion bans
Weaver M, Zhou Y, Williams A, Chana T, Lindley L · Journal of Perinatology · 2026
The rights of the dying child and the duties of healthcare providers: the "Trieste Charter"
Benini F, Vecchi R, Lazzarin P, Jankovic M, Orsi L, Manfredini L, Drigo P, Sellaroli V, Gangemi M, Spizzichino M, Orzalesi M · Tumori · 2017
The role of the courts in disagreements over the care of seriously ill babies
Griffith R · British journal of nursing · 2017
The Tragic Case of Charlie Gard
Lantos J, Children’s Mercy Bioethics Center C · JAMA Pediatrics · 2017
The Use of Concurrent Home Hospice for Pediatric Heart Failure Patients Awaiting Heart Transplant on Milrinone and/or Ventricular Assist Device
Burnette A, Henderson H, Adams V, Savage A · Journal of Heart and Lung Transplantation · 2020
Transfusion Use Among Children with Hematologic Malignancies Receiving Concurrent Hospice Care
Weaver M, Jalfon R, Liang J, Mamer T, Johnson L, Kaye E, Salek M, Cowfer B, Superdock A, Li Y, Levine D · Journal of Pain & Symptom Management · 2026
Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children
Laird J, Cozad M, Keim-Malpass J, Mack J, Lindley L · Health Affairs · 2020
What if the baby doesn't survive? Health-care decision making for ill newborns in Ethiopia
Onarheim K, Sisay M, Gizaw M, Moland K, Miljeteig I · Soc Sci Med · 2017
When a child is sick: the role of social tourism in palliative and end-of-life care
Hunter-Jones P, Sudbury-Riley L, Al-Abdin A, Menzies L, Neary K · Annals of Tourism Research · 2020
Why Palliative Care for Children is Preferable to Euthanasia
Carter B · The American Journal of Hospice & Palliative Care · 2016
“Yes if… No but…” : a qualitative study of pediatric palliative care professionals and collaborators’ perspectives on medical assistance in dying
Martisella M, Marquis M, Perron C, Bourque C, Bouthillier M · BMC Medical Ethics · 2026

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Resources

Research Communication for Policy Engagement external ↗
This course helps you to think about how to use research to create change and contribute to policy.

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