Published literature
Effect of the COVID-19 pandemic response on intrapartum care, stillbirth, and neonatal mortality outcomes in Nepal: a prospective observational studyKc A, Gurung R, Kinney M, Sunny A, Moinuddin M, Basnet O, Paudel P, Bhattarai P, Subedi K, Shrestha M, Lawn J, Målqvist M · Lancet Glob Health · 2020
Ethical Considerations in Ever-Expanding Utilization of ECLS: A Research AgendaClark J, Baden H, Berkman E, Bourget E, Brogan T, Di Gennaro J, Doorenbos A, McMullan D, Roberts J, Turnbull J, Wilfond B, Lewis-Newby M · Front Pediatr · 2022
How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature ReviewMayland C, Sunderland K, Taylor P, Powell P, Turner N, Cox V, Gillman C, Cooper M, Zeigler L, Flemming K, Fraser L · Palliative Medicine · 2022
Life Duration of Pediatric Patients with Cancer Enrolled on Concurrent Hospice Care: A Retrospective Decedent StudyWeaver M, Jalfon R, Zeng E, Kalyanasundaram S, Kaye E, Salek M, Cowfer B, Johnson L, Mamer T, Mandrell B, Lindley L, Levine D · Journal of Palliative Medicine · 2026
Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available toolsMayland C, Sunderland K, Cooper M, Taylor P, Powell P, Zeigler L, Cox V, Gilman C, Turner N, Flemming K, Fraser L · Palliat Med · 2022
Mortality in Dravet syndromeCooper M, McIntosh A, Crompton D, McMahon J, Schneider A, Farrell K, Ganesan V, Gill D, Kivity S, Lerman-Sagie T, McLellan A, Pelekanos J, Ramesh V, Sadleir L, Wirrell E, Scheffer I · Epilepsy Res · 2016
Mortality, length of stay, bloodstream and respiratory viral infections in a pediatric intensive care unitHon K, Luk M, Fung W, Li C, Yeung H, Liu P, Li S, Tsang K, Li C, Chan P, Cheung K, Leung T, Koh P · J Crit Care · 2017
Neonatal deaths: Prospective exploration of the causes and process of end-of-life decisionsHellmann J, Knighton R, Lee S, Shah P, Andrews W, Payot A, Bullied B, Chiu A, Dow K, Doctor S, Coughlin K, McMillan D, Ojah C, Peliowski A, Piedboeuf B, Riley P, Rouvinez-Bouali N, Dabowal T, Watts J, Osiovich H · Archives of Disease in Childhood: Fetal and Neonatal Edition · 2016
Place of death of children with complex chronic conditions: cross-national study of 11 countriesHakanson C, Ohlen J, Kreicbergs U, Cardenas-Turanzas M, Wilson D, Loucka M, Frache S, Giovannetti L, Naylor W, Rhee Y, Ramos M, Teno J, Beernaert K, Deliens L, Houttekier D, Cohen J · European Journal of Pediatrics. · 2017
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral centerBaker J, Rai S, Liu W, Srivastava K, Kane J, Zawistowski C, Burghen E, Gattuso J, West N, Althoff J, Funk A, Hinds P · Journal of Palliative Medicine · 2009
Race, Ethnicity, and Social Determinants of Health in PICU Mode of Death: Single-Center Retrospective Cohort StudyAlladin A, Pfeiffer B, Nino P, Mosal S, Nares M, Alba-Sandoval M, Solano J, Gelman B, Cantwell G, Jeyapalan A · Critical Care Explorations · 2026
Survival and causes of death in extremely preterm infants in the Netherlandsvan Beek P, Groenendaal F, Broeders L, Dijk P, Dijkman K, van den Dungen F, van Heijst A, van Hillegersberg J, Kornelisse R, Onland W, Schuerman F, van Westering-Kroon E, Witlox R, Andriessen P · Arch Dis Child Fetal Neonatal Ed · 2020
The Bucharest international European Society for Organ Transplantation consensus on paediatric controlled donation after circulatory determination of deathWeiss M, Siebelink M, Cavazzoni E, Figini M, Kazzaz Y, Nadalin S, Nakagawa T, Scales A, Dominguez-Gil B, Oniscu G, Cillo U, Martin D · Transplant International · 2026
The rights of the dying child and the duties of healthcare providers: the "Trieste Charter"Benini F, Vecchi R, Lazzarin P, Jankovic M, Orsi L, Manfredini L, Drigo P, Sellaroli V, Gangemi M, Spizzichino M, Orzalesi M · Tumori · 2017
The use of drugs with a life-shortening effect in end-of-life care in neonates and infantsProvoost V, Cools F, Bilsen J, Ramet J, Deconinck P, Vander Stichele R, Vande Velde A, Van Herreweghe I, Mortier F, Vandenplas Y, Deliens L · Intensive Care Medicine · 2006
Trend analysis of mortality rates and causes of death in children under 5 years old in Beijing, China from 1992 to 2015 and forecast of mortality into the future: an entire population-based epidemiological studyCao H, Wang J, Li Y, Li D, Guo J, Hu Y, Meng K, He D, Liu B, Liu Z, Qi H, Zhang L · BMJ Open · 2017
Trends and Causes of Neonatal Mortality in Canadian Neonatal Intensive Care UnitsStritzke A, Bhullar H, Ruth C, Lodha A, Beltempo M, Shah P, Pillay T, Wong J, Stavel M, Sherlock R, Mehrem A, Toye J, Ting J, Fajardo C, Harabor A, Strueby L, Seshia M, Louis D, Ruth C, Yi A, Mukerji A, Da Silva O, Augustine S, Lee K, Ng E, Lemyre B, Bitar E, Bizgu V, Nouraeyan N, Barrington K, Lapointe A, Ethier G, Drolet C, Zeid M, St-Hilaire M, Bertelle V, Masse E, Costa P, Makary H, Aziz A, de Carvalho Nunes G, Alburaki W, Hudson J, Afifi J, Kajetanowicz A, Chang C, Piedboeuf B · Journal of Pediatrics · 2026
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)Rose L, McKim D, Leasa D, Nonoyama M, Tandon A, Bai Y, Amin R, Katz S, Goldstein R, Gershon A · PLoS ONE · 2019
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