Country

Germany

Everything on the hub tagged Germany: researchers, groups, current studies, resources and published literature together.

16 results

Published literature

12 years of specialized pediatric palliative inpatient care: description of patients' characteristics

Kosolapova A, Vlajnic D, Kubek L, Becker-Emden C, Garske D, Reuther M, Wiesmann D, Wager J, Zernikow B, Schmidt P · Frontiers in Pediatrics · 2026

Aspects of palliative care in child neurology

Nolte-Buchholtz S, Von Der Hagen M · Neuropediatrics · 2016

Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview

Pang F, Shapovalov Y, Howie K, Wilds A, Calcagni C, Walz M · Molecular Genetics and Metabolism · 2020

Challenges in Pediatric Advance Care Discussions Between Health Care Professionals and Parents of Children with a Life-Limiting Condition: A Qualitative Pilot Study

Hein K, Monz A, Daxer M, Heitkamp N, Knochel K, Jox R, Borasio G, Fuhrer M · Journal of Pain and Symptom Management · 2018

End-of-life decisions for extremely preterm infants - a matter of language, gender and education?

Buhrer C · Acta Paediatrica, International Journal of Paediatrics · 2017

[Evaluation of Specialised Paediatric Palliative Home Care in Lower Saxony, Germany - A Qualitative Study on Parents' Perspectives]

Kremeike K, Mohr A, Nachtmann J, Reinhardt D, Geraedts M, Sander A · Int J Neurosci · 2016

Improved terminal care in pediatric intensive care units

Abel R · Padiatrische Praxis · 2016

Let My Child Decide: Qualitative Interview Study With Mothers and Fathers Continuing Pregnancy After a Severe Life-Limiting Diagnosis of their Unborn Child

Hein K, Schramm A, Flaig F, Rabenhorst D, Domenico Borasio G, Führer M · Journal of Pain and Symptom Management · 2018

Needs of parents in bereavement care after perinatal loss of their preterm infant in the NICU

Rehfeldt I, Doll A, Thierfelder I, Tegethoff D · Pflege · 2016

Parental Ethical Decision Making and Implications for Advance Care Planning: A Systematic Review and Secondary Analysis of Qualitative Literature from England and Wales, Germany, and the Netherlands

Neefjes V · Journal of palliative medicine · 2023

Prevalence and Mortality of Life-Threatening and Life-Shortening Diseases in Children and Adolescents in Germany

Burgio N, Jennessen S · Clinical pediatrics · 2024

Prolonged Grief, Posttraumatic Stress, and Depression Among Bereaved Parents: Prevalence and Response to an Intervention Program

Baumann I, Kunzel J, Goldbeck L, Tutus D, Niemitz M · Omega (Westport) · 2020

Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates

Schneider K, Roll S, Tissen-Diabate T, Buhrer C, Garten L · JAMA Network Open · 2024

[Special pediatric care for dying children. IMPaCCT determines the standards for pediatric palliative care in Germany]

Zernikow B · Der Schmerz · 2008

Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers

Mora D, Jong M, Quandt S, Arcury T, Kristoffersen A, Stub T · BMC Complementary Medicine and Therapies · 2023

Translation and cultural adaptation of the Italian version of the Paediatric Palliative Screening Scale

De Zen L, Peri F, Catalano I, Gabrielli M, Rizzi B, Valente E, Zamagni G, Recchia A, Visconti G, Pellegatta F · European Journal of Pediatrics · 2024

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