Methodology

Commentary

Everything on the hub tagged Commentary: researchers, groups, current studies, resources and published literature together.

121 results

Published literature

A call for equity-informed pediatric palliative care in Canada

Bailey L, Goodman K · Paediatrics & Child Health · 2026

A Call for Psychosocial and Palliative Care Training Standards for Pediatric Hematology-Oncology Physicians, A Reply to: Communication, Documentation, and Training Standards in Pediatric Psychosocial Oncology

Force L, Rosenberg A · Pediatric Blood & Cancer

A call to action: the need to recognize the importance of sleep for children and adolescents in pediatric palliative care

Mercante A, Owens J · Sleep · 2025

A Case Report in Pediatric Palliative Care: Beliefs of Rebirth

Yazdani V, Hanna M, Yu Q, Mohr G · Journal of Pain & Symptom Management · 2025

Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps

Kirch R, Reaman G, Feudtner C, Wiener L, Schwartz L, Sung L, Wolfe J · CA Cancer J Clin. · 2016

An innovative hybrid palliative care fellowship program: empowering pediatricians and enhancing care for children in resource-limited settings

Palat G, Doherty M, Brown S, Shah A · Archives of Disease in Childhood · 2023

An Interprofessional Approach to Developing Family Psychosocial Support Programs in a Pediatric Oncology Healthcare Setting

Turner E, Sirrine E, Crabtree V, Elliott D, Carr A, Elsener P, Parris K · Cancers · 2025

An Intuitive Approach to Understanding Infant Death

Kautz W · Journal of Prenatal & Perinatal Psychology & Health

A Parent's Perspective on Systemic Gaps in Supporting Complex Pediatric Care at Home

Cole A · Journal of Patient Experience · 2025

A Unique Approach to Interdisciplinary Programmatic Palliative Care Development: Extending Into the Realm of Pediatric Palliative Oncology

Uber A, Adams R, Marcus S, Otto M, Shaw T, Cuviello A · Pediatric Blood and Cancer · 2025

Benefits of Early Referral to Pediatric Palliative Care for a Child With a Rare Disease

Vadeboncoeur C, McHardy M · Pediatrics · 2018

Blended Pediatric/Adult Palliative Care for Young Adult With Autism and Pancreatic Cancer

Adelmann M, Davidoff K, Kiser S, Ritchie C · Journal of Pain & Symptom Management · 2025

Building capacity to treat childhood cancer in Papua New Guinea: 'It's a multidisciplinary village'

Raj T, Harrison J, Wakefield C, Daur B, Felmingham B, Casey M, McLoone J, Sullivan M, Staffieri S, Anga G · Journal of global health · 2025

Challenges and dilemmas in providing continuous pediatric palliative care in Varazdin County - two narrative case presentations

Dumbovic N, Martinec I, Vincek J · Paediatria Croatica · 2025

Children's palliative care and public health: position statement

Downing J, Randall D, McNamara-Goodger K, Ellis P, Palat G, Ali Z, Hunt J, Kiman R, Friedel M, Neilson S · BMC Palliative Care · 2025

Children's palliative care in South Africa: An urgent need for an evidence base

Campbell L · Southern African Journal of HIV Medicine · 2011

Children's palliative care now! Highlights from the second ICPCN conference on children's palliative care, 18-21 May 2016, Buenos Aires, Argentina

Downing J, Kiman R, Boucher S, Nkosi B, Steel B, Marston C, Lascar E, Marston J · ecancermedicalscience · 2016

Cleft lip repair in trisomy 18: ethical considerations for aesthetic surgery in a life-limiting paediatric disease

Landeen K, Patel K, Tanious M · BMJ case reports · 2026

Communication of Early Integration of Palliative Care for Children With Cancer in Latin America: The Care as a Vessel Metaphor

Garcia-Quintero X, Cleves D, Cuervo M, McNeil M, Salek M, Robertson E, Gomez W, Baker J, Kaye E · JCO Glob Oncol · 2023

COMMUNITY PAEDIATRIC MEDICATION LISTS FOR CHILDREN WITH COMPLEX AND PALLIATIVE CARE NEEDS

Gaskell C, Crampton R, Martin A, Heckford E, Williams A, Wiltshire S, Taylor S · BMJ Paediatrics Open · 2025

Considering Parental Requests to Withdraw Life-Sustaining Care in Seriously Ill Children: A Case Report and Ethical Analysis

Hauptman L, Arnolds M, Brownson R, Marks A · Journal of Pain & Symptom Management · 2026

Culinary arts as reinforcement for paediatric end-of-life suffering

Nguepy Keubo F, Chmielewska K, Nguepy Djoka Tchoumbe R · Revue de l'infirmiere · 2018

Cultural sensitivity and emotional resilience education improve infant health and wellbeing in end-of-life care in neonatal intensive care units

Taylor E, Tatterton M · Evidence-Based Nursing · 2026

Developing and adapting the Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum for Aotearoa (New Zealand)

Aburn D, Moeke-Maxwell D, Gott P, Drake D, Raphael D · Journal of pain and symptom management · 2025

Developing a perinatal memory-making program at a children's hospital

Miller L, Lindley L, Mixer S, Fornehed M, Niederhauser V · Mcn · 2014

Developing Community-Based Palliative Care for Children: A Community Case Study from an Urban Informal Settlement in Bangladesh

Chowdhury M, Bezzahou M, Khanom M, Doherty M · Health Serv Insights · 2023

Development of paediatric palliative care in Uganda

Igulu Bandese N · Supportive Care in Cancer · 2019

Diagnostic Uncertainty and Continuity in Pediatric Oncology: A Caregiver's Perspective

AlRoomi A · Journal of Patient Experience · 2026

Disposition Decisions in Cases of Medical Complexity and Health Inequity

Shapiro J, Anspacher M, Madrigal V, Lantos J · Pediatrics · 2022

End-of-Life and Bereavement Care in Pediatric Intensive Care Units

Suttle M, Jenkins T, Tamburro R · Pediatric Clinics of North America. · 2017

End-of-Life Care: Consensus Statement by Indian Academy of Pediatrics

Mishra S, Mukhopadhyay K, Tiwari S, Bangal R, Yadav B, Sachdeva A, Kumar V · Indian Pediatr · 2017

End of life care experience at the peadiatic oncology unit at the uganda cancer institute: What role can oncology nurses play?

Mulyowa I · Pediatric Blood and Cancer · 2018

End-of-life care in Brazilian pediatric intensive care units: challenges and opportunities

Rotta A, Alibrahim O · J Pediatr (Rio J) · 2023

End-of-life decisions for extremely preterm infants - a matter of language, gender and education?

Buhrer C · Acta Paediatrica, International Journal of Paediatrics · 2017

End of life in pediatric oncology: how clinical practice leads to research

Pritchard M, Davies B · Journal of Pediatric Oncology Nursing · 2002

End-of-life research as a priority for pediatric oncology

Hinds P, Pritchard M, Harper J · Journal of Pediatric Oncology Nursing · 2004

Engaging Bereaved Parent Educators in Pediatric End-of-Life Workshops: A Trauma-Informed Onboarding

Solstad K, Shu D, McManimon K, Remke S, O'Conner-Von S, Woll A, Miller J, Shapiro M, Scheurer J · Journal of pain and symptom management · 2026

Ethical decision making in neonatal units--the normative significance of vitality

Brinchmann B, Nortvedt P · Medicine, Health Care & Philosophy · 2001

Ethical Framework for Risk Stratification and Mitigation Programs for Children With Medical Complexity

Feudtner C, Schall T, Nathanson P, Berry J · Pediatrics · 2018

Ethical issues in neonatal intensive care units

Liu J, Chen X, Wang X · Journal of Maternal-Fetal and Neonatal Medicine · 2016

Ethics and patient and public involvement with children and young people

Mitchell S, Slowther A, Coad J, Akhtar S, Hyde E, Khan D, Dale J · Archives of disease in childhood. Education and practice edition · 2019

Family Experience in a Regional Participant Contact Registry for Research on Intellectual Disability

Conners F, Phillips B, Rhodes J, Hamilton J · Intellectual and Developmental Disabilities · 2014

First pediatric organ donation after circulatory determination of death in Singapore: Facing challenges in the absence of a local practice guideline

Thong W, Chong P, Koh P, Loh W, Tay S · Pediatr Transplant · 2020

From the C-Suite to the Living Room Couch: Making the Case for Home-Based Pediatric Palliative Care

Lastrapes K, Bell L, King Q, Spilman C, Frenchman E · Journal of Pain and Symptom Management · 2026

Gabapentin for the treatment of pain manifestations in children with severe neurological impairment: A single-centre retrospective review

Collins A, Mannion R, Broderick A, Hussey S, Devins M, Bourke B · BMJ Paediatrics Open · 2019

Hospice Care in India-A Pediatrician's Perspective

Nair M, Ghoshal A · South Asian Journal of Cancer · 2023

Humanising Child Death: The Creation and Subsequent Development of Children's Palliative Care as a Distinct Clinical, Educational and Research Speciality

Noyes J · Journal of advanced nursing · 2026

[IMPaCCT: standards of paediatric palliative care]

Craig F, Abu-Saad Huijer H, Benini F, Kuttner L, Wood C, Feraris P, Zernikow B · Der Schmerz · 2008

Improving the regulation of medical cannabis in Canada to better serve pediatric patients

Huntsman R, Kelly L, Alcorn J, Appendino J, Bélanger R, Crooks B, Finkelstein Y, Gilpin A, Lewis E, Litalien C, Jacobs J, Moore-Hepburn C, Oberlander T, Rassekh S, Repetski A, Rieder M, Shackelford A, Siden H, Szafron M, Jong G, Vaillancourt R · CMAJ · 2021

Integrating palliative care in pediatrics

Weinstein S, Walton O · Current Pain & Headache Reports · 2004

Integrating palliative care to improve the care of children living with HIV in Indonesia

Limardi S, Saunders R, Tasia Y, Hong P · Progress in Palliative Care · 2019

Integrating Pediatric Palliative Care into the School and Community

Davis K · Pediatric Clinics of North America · 2016

Issues in adolescent and young adult oncology in a developing country like India

Gupta S, Jafa E, Bansal A · Indian Journal of Medical and Paediatric Oncology · 2020

Key factors affecting dying children and their families

Hinds P, Schum L, Baker J, Wolfe J · Journal of Palliative Medicine · 2005

Lessons Learned Establishing the Palliative Care Research Cooperative's Qualitative Data Repository

Meghani S, Mooney-Doyle K, Barnato A, Colborn K, Gillette R, Harrison K, Hinds P, Kirilova D, Knafl K, Schulman-Green D, Pollak K, Ritchie C, Kutner J, Karcher S · Journal of Pain and Symptom Management · 2024

Loading phenobarbital in paediatric home-based terminal care: A case series

Kelly J, Griffin K, Vemuri S, Sacks B, Lee S · Palliative Medicine · 2026

Medical assistance in dying: A paediatric perspective

Davies D · Paediatrics and Child Health · 2018

Models of Care Delivery for Children With Medical Complexity

Pordes E, Gordon J, Sanders L, Cohen E · Pediatrics · 2018

More than medication: perinatal palliative care

Carter B · Acta Paediatr · 2016

Mortality in Dravet syndrome

Cooper M, McIntosh A, Crompton D, McMahon J, Schneider A, Farrell K, Ganesan V, Gill D, Kivity S, Lerman-Sagie T, McLellan A, Pelekanos J, Ramesh V, Sadleir L, Wirrell E, Scheffer I · Epilepsy Res · 2016

Neonatal end of life care in a tertiary care centre in Canada: a brief report

Sankaran K, Hedin E, Hodgson-Viden H · Zhongguo Dangdai Erke Zazhi · 2016

Neonatal euthanasia is unsupportable: the Groningen protocol should be abandoned

Kon A · Theoretical Medicine & Bioethics · 2007

Neonatal palliative care-Alice's journey

Rodger E, Halkett C, Murdoch E · Palliative Medicine · 2016

Not Just Small Adults: The Birth and Early Years of a Pediatric Hospice Program

Macdonell-Yilmaz R, Ritzau J · Journal of Pain and Symptom Management · 2024

Nurturing hope: pioneering paediatric palliative care in Pakistan

Resham S, Qamar J, Altaf S · The Lancet. Child & adolescent health · 2024

Opening end-of-life discussions: how to introduce Voicing My CHOiCESTM, an advance care planning guide for adolescents and young adults

Zadeh S, Pao M, Wiener L · Palliative & Supportive Care · 2015

Outcome Measurement for Children and Young People

Harding R, Wolfe J, Baker J · J Palliat Med · 2017

Paediatric ethics: a repudiation of the Groningen protocol

Kodish E · Lancet · 2008

Paediatric euthanasia in Canada: New challenges for end of life care

Lamb C · Paediatr Child Health · 2021

Paediatric palliative care and paediatric euthanasia: clarifying a moral continuum

Joren C, Verhagen A, Lantos J · The Lancet Child and Adolescent Health · 2026

Paediatric palliative care in Aotearoa New Zealand-current state and future direction

Aburn G, Gott M, Moeke-Maxwell T, Drake R · The New Zealand medical journal · 2024

Paediatric Palliative Care in a Reference Centre of Inherited Metabolic Diseases

Saraiva B, Santos S, Ferreira A, Paiva M · Endocrine, metabolic & immune disorders drug targets · 2023

Paediatric palliative care in Denmark should be strengthened

Jespersen B, Clausen N, Sjogren P · Ugeskrift for laeger · 2014

Palliative care for children with comorbid autism spectrum disorders

Williams C, Atmore K · Journal of Pain and Symptom Management · 2016

[Palliative Care in the Delivery Room]

Garten L, von der Hude K · Z Geburtshilfe Neonatol · 2016

Palliative care in the neonatal intensive care unit: An Indian

Ghoshal A, Damani A, Muckaden M · Journal of Neonatal Nursing (J NEONAT NURS), 75-81 Apr2017; 23 (2): (7p)

Palliative Care. Workforce Development

Ash K, Yates P · Australian Nursing & Midwifery Journal · 2016

Parental autonomy and children's health: a patriarchal dilemma in the Middle East, with particular emphasis on Kuwait

Al Majed B · Medical law review · 2025

Partnering with families of children with medical complexity to evaluate interventions

Fayed N, Gardecki M, Cohen E · CMAJ · 2018

Pediatric advanced care team (Pact): A model for caritas baby hospital in bethlehem, palestine and a paradigm for developing nations

Clark P, Musleh W, Grana D, Grana J, Sa'di H, Barham H, Simone C, Siegele P · Internet Journal of Pediatrics and Neonatology · 2020

Pediatric palliative care: A comprehensive model of care for children with life-threatening conditions and their families

Salas Arrambide M, Gabaldon Poc O, Mayoral Miravete J, Gonzalez Perez-Yarza E, Amayra Caro I · Anales de Pediatria · 2004

Pediatric palliative care: Comprehensive support for children

Gomez Garcia W · Acta Medica International · 2016

Pediatric Palliative Care for Children With Severe Neurological Impairment and Their Families

Bogetz J, Lemmon M · Journal of Pain and Symptom Management. · 2021

Pediatric palliative care in Canada

Marquis M, Payot A · Current Problems in Pediatric and Adolescent Health Care · 2023

Pediatric Palliative Care Initiative in Cambodia

Celiker M, Pagnarith Y, Akao K, Sophearin D, Sorn S · Front Public Health · 2017

Pediatric palliative care in kelantan: A community engagement model

Taib F, Rostenberghe H, Muhammad N · Bangladesh Journal of Medical Science · 2016

Pediatric Palliative Surgical Oncology: Principles, Practice, and Evolving Roles

Piché N, Le H · Surgical Oncology Clinics · 2026

Perinatal palliative care in Poland: current legal status, organization, standards and guidelines

Urbanska K, Jarosz-Lesz A, Wasek-Buko M, Naworska B, Drosdzol-Cop A · Palliative Medicine in Practice · 2025

Physician-hastened death in young children: Getting to underlying assumptions

Liao L, Chan D · Paediatrics and Child Health (Canada) · 2016

Primary palliative care in the neonatal intensive care setting: What is possible? what is necessary?

English N, Ferrell B, Marc-Aurele K · Journal of Pain and Symptom Management · 2016

Prognostic Disclosures to Children: A Historical Perspective

Sisk B, Bluebond-Langner M, Wiener L, Mack J, Wolfe J · Pediatrics · 2016

Rearranging the toes on my baby: Full-time physicians making routine visits as part of the hospice home care team

Von Gunten C · Journal of Pain and Symptom Management · 2016

Recruiting bereaved parents for research after infant death in the neonatal intensive care unit

Currie E, Roche C, Christian B, Bakitas M, Meneses K · Appl Nurs Res · 2016

Respite services for children with life-limiting conditions and their families in Ireland

Hill K · Nursing Children and Young People · 2016

Responding to Parental Requests for Potentially Nonbeneficial Treatment in Life-Threatening Situations: Technical Report

Levine D, Laventhal N, Macauley R · Pediatrics · 2026

[Special pediatric care for dying children. IMPaCCT determines the standards for pediatric palliative care in Germany]

Zernikow B · Der Schmerz · 2008

Storyboarding as an aid to learning about death in children's nursing

Dexter Y · Nurs Child Young People · 2016

Storyboarding used as an aid to explore grief

Nurs Stand · 2016

Supporting the Grieving Child and Family

Schonfeld D, Demaria T · Pediatrics · 2016

Symptom management: how can specialist paediatric palliative care teams help?

Holland C, Nohavicka L, Harrop E · Archives of Disease in Childhood: Education and Practice Edition · 2026

Tele-advocacy and Bioethics During the Pandemic: A Telehealth Approach in Perinatal-neonatal Care for Mitigating Ethical and Moral Tensions at a Safety-net Hospital

Perugu S, Rehan V · Journal of Neonatology · 2026

The Day Two Talk: Early Integration of Palliative Care Principles in Pediatric Oncology

Waldman E, Levine J · J Clin Oncol · 2016

"the doctor is in": The role of child psychiatrists in pediatric palliative care

Battista V, Hwang J, Mosher P, Muriel A · Journal of Pain and Symptom Management · 2016

The first regional interdisciplinary paediatric palliative care (PPC) workshop for the Eastern Mediterranean Region: a groundbreaking collective step for PPC integration

Rassam R, Lion R, Cherkaoui S, Hessissen L, Garcia-Quintero X, Najjar L, Noun D, Hanna J, Yamout R, Resham S, Habaiba K, Al-Nassan A, El-Khoury J, Rayala S, Alotaibi Q, Gafer N, Troisi G, Downing J, Rasul S, Jeha S, Abraham M, McNeil M · ecancermedicalscience · 2025

“The gender gap in caring for children with medical complexity”

Werner K · Journal of Perinatology · 2023

The integration of palliative care in Dr Congo "a Model of Sustainability": A field study

Mubeneshayi Kananga A · Journal of Global Oncology · 2018

The Limits of "Life-Limiting"

Macauley R · Journal of Pain & Symptom Management · 2019

The role of the courts in disagreements over the care of seriously ill babies

Griffith R · British journal of nursing · 2017

The spectrum of children's palliative care needs-a useful tool?

Azim H · Archives of Disease in Childhood · 2016

The Spirit of "Ubuntu" in Children's Palliative Care

Marston J · Journal of Pain and Symptom Management · 2015

Thoughtfulness and Grace: End-of-Life Decision Making for Children With Severe Developmental Disabilities

Jones P · The American journal of bioethics : AJOB · 2016

Through the nurse's lens: Bereavement photography and creative interventions in nursing care

Cockerell K, Geist R, Gary A · Nursing · 2026

Top Ten Tips Palliative Care Clinicians Should Know About Delivering Specialty-Aligned Palliative Care

Leiter R, Bischoff K, Carey E, Gelfand S, Iyer A, Jain N, Kramer N, Lally K, Landzberg M, Lever N, Newport K, O`Donnell A, Patel A, Sciacca K, Snaman J, Tulsky J, Rosa W, Lakin J · Journal of Palliative Medicine

Trisomy 13 and 18: Selecting the road previously not taken

McCaffrey M · Am J Med Genet C Semin Med Genet · 2016

True Resilience: A Look Inside COVID's Effect on Children with Medical Complexity and Their Families

Mitchell S · Curr Pediatr Rep · 2021

Unmet palliative care needs of a child with cancer in Indonesia

Vassileva S, Pangarso A, Mulatsih S, Sitaresmi M, Kaspers G, Mostert S · Psycho-oncology · 2023

When paediatricians and families can't agree

Wallis C · Archives of disease in childhood · 2018

When to say when: Helping the team and family recognize when death is inevitable after pediatric bone marrow transplant

Levine D, Johnson L, Ullrich C, Baker J · Journal of Pain and Symptom Management · 2016

Why Are There So Few Ethics Consults in Children's Hospitals?

Carter B, Brockman M, Garrett J, Knackstedt A, Lantos J · HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2018

Why Do Neonatologists in Scandinavian Countries and the Netherlands Make Life-and-death Decisions So Different?

Verhagen A · Pediatrics · 2018

Why Palliative Care for Children is Preferable to Euthanasia

Carter B · The American Journal of Hospice & Palliative Care · 2016

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