Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 3726–3750 of 4332 publications
Pediatric primary care involvement in end-of-life care for children
Objectives
To examine the relationship between pediatric primary care involvement and hospice and home health care use at end of life.
Methods
California Medicaid data were used to estimate the relationship between pediatric primary care involvement and use o…
Perinatal palliative care after a stillbirth - Midwives experiences of using Cubitus baby
In Sweden, around 450 babies are stillborn every year. Usually, the parents stay at the hospital a couple of days after the birth and they can have the baby in their room. Due to the importance to keep a dead body cold it has, until recently, been a routine to…
Physician-assisted dying for children is conceivable for most Dutch paediatricians, irrespective of the patient's age or competence to decide
Aim: Paediatricians caring for severely ill children may receive requests for physician-assisted dying (PAD). Dutch euthanasia law only applies to patients over 12 who make well-considered requests. These limitations have been widely debated, but little is kno…
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Introduction: Despite significant advances in disease treatment, resources for the pediatric palliative care (PPC) for children with serious illnesses are limited in South Korea. The obstacles to provide optimal PPC include inadequate funding, shortage of spec…
Place of death of children with complex chronic conditions: cross-national study of 11 countries
Cross-national understanding of place of death is crucial for health service systems for their provision of efficient and equal access to paediatric palliative care. The objectives of this population-level study were to examine where children with complex chro…
Posttraumatic growth in hospitalized children and adolescents
Objectives: This presentation will describe the phenomenon of posttraumatic growth through a review of the literature on complex developmental trauma and salutogenesis. A description of a multidisciplinary approach to support posttraumatic growth (PTG) will al…
Practice patterns of palliative radiation therapy in pediatric oncology patients in an international pediatric research consortium
Background/Objectives: The practice of palliative radiation therapy (RT) is based on extrapolation from adult literature. We evaluated patterns of pediatric palliative RT to describe regimens used to identify opportunity for future pediatric-specific clinical …
Prediction of Perceived Empathy Based on Emotional Schemas and Resilience in Mothers with Physically-Disabled Children
journal of Rehabilitation - فصلنامه علمي پژوهشي توانبخشي
Preferences of advanced cancer patients for communication on anticancer treatment cessation and the transition to palliative care
The aim of this study was to clarify advanced cancer patients' communication preferences regarding ending anticancer treatment and transitioning to palliative care, and to explore variables associated with these preferences. Participants were 106 Japanese canc…
Preparing Pediatric Healthcare Professionals for End-of-Life Care Discussions: An Exploratory Study
BACKGROUND: Preparedness to initiate end-of-life (EoL) discussions is a confronting and daunting task for all healthcare professionals. We conducted a group interview to explore healthcare professionals' experiences of preparing for EoL discussions with the pa…
Prevalence and management of dystonia in a paediatric palliative care cohort
Objectives: Dystonia and seizures can be common, unpredictable and distressing neurological symptoms in paediatric palliative care. Emergency seizure management is increasingly under joint neurology and palliative care, often incorporated into "passport type" …
Primary palliative care in neonatal intensive care
This article explores the 2014 Institute of Medicines recommendation concerning primary palliative care as integral to all neonates and their families in the intensive care setting. We review trends in neonatology and barriers to implementing palliative care i…
Productivity in Pediatric Palliative Care: Measuring and Monitoring an Elusive Metric
CONTEXT: Workforce productivity is poorly defined in healthcare. Particularly in the field of pediatric palliative care (PPC), the absence of consensus metrics impedes aggregation and analysis of data to track workforce efficiency and effectiveness. Lack of un…
Profile of children with developmental disabilities attending a complex pain clinic of a children's hospital in Australia
AIM: To document the profile and management of children with developmental disabilities (DD) attending an outpatient complex pain clinic at a Children's Hospital in Sydney, Australia. METHODS: Children with DD from 2011 to 2014 were identified from a clinic da…
Provider Perspectives on Use of Medical Marijuana in Children With Cancer
BACKGROUND: Although medical marijuana (MM) may have utility in the supportive care of children with serious illness, it remains controversial. We investigated interdisciplinary provider perspectives on legal MM use in children with cancer.METHODS: We sent a 3…