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France

Everything on the hub tagged France: researchers, groups, current studies, resources and published literature together.

12 results

Published literature

Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview

Pang F, Shapovalov Y, Howie K, Wilds A, Calcagni C, Walz M · Molecular Genetics and Metabolism · 2020

Children with Down syndrome: Clinical course and mortality-associated factors in a French medical paediatric intensive care unit

Joffre C, Lesage F, Bustarret O, Hubert P, Oualha M · J Paediatr Child Health · 2016

Delivery room practices for extremely preterm infants: The harms of the gestational age label

Janvier A, Lantos J · Archives of Disease in Childhood: Fetal and Neonatal Edition · 2016

End-of-life decisions for extremely preterm infants - a matter of language, gender and education?

Buhrer C · Acta Paediatrica, International Journal of Paediatrics · 2017

Forgoing life support: how the decision is made in European pediatric intensive care units

Devictor D, Latour J, group E · Intensive Care Medicine · 2011

High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database

Revon-Riviere G, Pauly V, Baumstarck K, Bernard C, Andre N, Gentet J, Seyler C, Fond G, Orleans V, Michel G, Auquier P, Boyer L · Cancer. · 2019

Integrating a palliative approach into the healthcare provided by the French-African Pediatric Oncology Group's pilot units. Insights from a 3-year training program

Edan C, Yao A, Hessissen L, Moreira C, Viallard M, Poulain P, Calmanti S, Thinlot C, Aubier F, Doucot M, Gagnepain-Lacheteau A, Patte C · Archives de Pediatrie · 2021

Metronomics during palliative care in paediatric oncology? For sure! But handle me with care

Andre N, Pasquier E · Acta Paediatrica · 2016

Supporting the suffering of caregivers in neonatal palliative care

Merger F, Hamon I · Soins. Pediatrie, puericulture · 2022

Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric study

Hully M, Barnerias C, Chabrol B, Vuillerot C, Sabouraud P, Cuisset J, Cances C, Ropars J, Rivier F, Isapoff A, Desguerre I · Developmental Medicine and Child Neurology · 2019

Termination of pregnancy without feticide: A French national survey. [French]

Chappe H, Betremieux P, Morel V, Huillery M, Le Bouar G · Journal de Gynecologie Obstetrique et Biologie de la Reproduction · 2016

Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views

Fournier V, Belghiti E, Brunet L, Spranzi M · Medicine, Health Care & Philosophy · 2017

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