Published literature
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, BelgiumFriedel M, Gilson A, Bouckenaere D, Brichard B, Fonteyne C, Wojcik T, De Clercq E, Guillet A, Mahboub A, Lahaye M, Aujoulat I · BMJ Paediatrics Open · 2019
Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014Friedel M, Brichard B, Fonteyne C, Renard M, Misson J, Vandecruys E, Tonon C, Verfaillie F, Hendrijckx G, Andersson N, Ruysseveldt I, Moens K, Degryse J, Aujoulat I · BMC Palliat Care. · 2018
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of BelgiumAujoulat I, Henrard S, Charon A, Johansson A, Langhendries J, Mostaert A, Vermeylen D, Verellen G, Maton P, Van Overmeire B, Kalenga M, Broux I, Henrion E, Dussart A, Muller M, Cavatorta E, Marechal Y, Vanden Eijnden S, Lecart C, Haumont D, Van Herreweghe I, Vlieghe V, Debauche C, Flausch M, Sepulchre B · BMC Pediatrics · 2018
Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot StudyFriedel M, Brichard B, Boonen S, Tonon C, De Terwangne B, Bellis D, Mevisse M, Fonteyne C, Jaspard M, Schruse M, Harding R, Downing J, Namisango E, Degryse J, Aujoulat I · Journal of palliative medicine. · 2020
Neonatologists and neonatal nurses have positive attitudes towards perinatal end-of-life decisions, a nationwide surveyDombrecht L, Deliens L, Chambaere K, Baes S, Cools F, Goossens L, Naulaers G, Roets E, Piette V, Cohen J, Beernaert K · Acta Paediatr · 2020
Place of death of children with complex chronic conditions: cross-national study of 11 countriesHakanson C, Ohlen J, Kreicbergs U, Cardenas-Turanzas M, Wilson D, Loucka M, Frache S, Giovannetti L, Naylor W, Rhee Y, Ramos M, Teno J, Beernaert K, Deliens L, Houttekier D, Cohen J · European Journal of Pediatrics. · 2017
Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nursesDombrecht L, Cohen J, Cools F, Deliens L, Goossens L, Naulaers G, Beernaert K, Chambaere K, Laroche S, Theyskens C, Vandeputte C, Cornette L, Van de Broek H · Palliative Medicine. · 2019
The use of drugs with a life-shortening effect in end-of-life care in neonates and infantsProvoost V, Cools F, Bilsen J, Ramet J, Deconinck P, Vander Stichele R, Vande Velde A, Van Herreweghe I, Mortier F, Vandenplas Y, Deliens L · Intensive Care Medicine · 2006
Too vulnerable? Successful practices for conducting research with children and young people who have life-limiting or life-threatening illnessNamisango E, Friedel M, Yurdusen S, Alrjoub W, Braybrook D, Alarjeh G, Roach A, Boufkhed S, Farsides B, Coombes L, Harding R · Palliative medicine · 2025
Top Ten Tips Palliative Care Clinicians Should Know About Prognostication in ChildrenBergstraesser E, Thienprayoon R, Brook L, Fraser L, Hynson J, Rosenberg A, Snaman J, Weaver M, Widger K, Zernikow B, Jones C, Schlögl M · J Palliat Med · 2021
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