Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 3751–3775 of 4332 publications
Providing Pediatric Palliative Care Education Using Problem-Based Learning
BACKGROUND: The Institute of Medicine and the American Academy of Pediatrics has called for improvement in education and training of pediatricians in pediatric palliative care (PPC). Given the shortage of PPC physicians and the immediate need for PPC medical e…
Quality of care collaborative for paediatric palliative care in Australia (QuoCCA)
Background: Geography and population distribution present challenges to the care of children with life-limiting conditions (LLC) within Australia. Children and young people have unique needs in relation to the provision of palliative care within Australia. Obj…
Quality of paediatric hospice care for children with and without multiple complex chronic conditions
Redefined Boundaries: When Palliative Care Hits Home
A personal narrative is presented which explores the author's experience as Master of Social Work (MSW) at the Division of Comfort and Palliative Care at Children's Hospital in Los Angeles, California.
Refinement of a Conceptual Model for Adolescent Readiness to Engage in End-of-Life Discussions
BACKGROUND: Adolescents living with incurable cancer require ongoing support to process grief, emotions, and information as disease progresses including treatment options (phase 1 clinical trials and/or hospice/palliative care). Little is known about how adole…
Regional paediatric palliative care model improves the quality of life of children on long-term ventilation at home
In the last 20 years, the prevalence of children on domiciliary long-term ventilation (LTV) has increased in many countries and in Italy it is now 4.3/100,000 (1). The complex management of these patients' conditions requires highly specialised expertise that …
Regional paediatric palliative care network model improves the quality of life of children on long-term ventilation at home
In the last 20 years, the prevalence of children on domiciliary long-term ventilation (LTV) has increased in many countries, and in Italy it is now 4.3 of the 100 000. The complex management of these patients’ conditions requires highly specialised expertise t…
Reiki Therapy for Symptom Management in Children Receiving Palliative Care: A Pilot Study
BACKGROUND: Pain may be reported in one-half to three-fourths of children with cancer and other terminal conditions and anxiety in about one-third of them. Pharmacologic methods do not always give satisfactory symptom relief. Complementary therapies such as Re…
Relationships between oncohematopediatrics, mothers and children in communicating bad news
We present a study about the relations between pediatric oncological haematologists, mothers, and children in sharing bad news (BN) in a public hospital in Rio de Janeiro. The text emphasizes the intertwining of technique and emotions for the treatment of chil…
Reticence in disclosure of HIV infection and reasons for bereavement: impact on perinatally infected adolescents' mental health and understanding of HIV treatment and prevention in Johannesburg, South Africa
Survival rates of perinatally infected HIV-positive adolescents (PIA) are increasing in sub-Saharan Africa. There is a gap in understanding how disclosure and bereavement have an impact on PIA beliefs and understanding of their HIV infection and its management…
[Retrospective study of children referred from paediatric intensive care to palliative care: Why and for what]
INTRODUCTION: The creation of paediatric palliative care units (PPCU) could optimise the management of children with palliative focus after admission to a paediatric intensive care unit (PICU). This study describes the clinical and epidemiological characterist…
Revealing the impact of loss: Exploring mental health through the use of drawing/writing with HIV positive adolescents in Johannesburg
The article presents a study with aim, Revealing the Impact of Loss: Exploring Mental Health Through the Use of Drawing/Writing With HIV Positive Adolescents in Johannesburg. This study examined the use of drawings completed by perinatally infected adolescents…
Seizure management in end of life care for children
Objective: Controlling seizures in children approaching death is often challenging. The evidence base to guide best practice is limited. We aimed to compare our current practice against the guidance for seizure management produced by the Association of Paediat…
Self-assessment for competency and educational needs among pediatric resident on end-of-life care
Purpose: There is lack of standardized resident' curriculum or training for the rapidly emerging field of pediatric end of life care. Goal: To assess pediatric residents' perception of their clinical competence with end of life care and their education needs. …
Shifting disease burden in low and middle-income countries: a 14-year survival analysis of childhood mortality in Bangladesh
BACKGROUND: The objective of this study is to compare all-cause mortality and drowning-specific mortality rates and survival times among birth cohorts of children from rural Bangladesh over a 14-year period. METHOD: Seven birth cohorts of children aged 12-59 m…
Sick leave among parents of children with cancer - a national cohort study
BACKGROUND: Due to psychological distress and an increased care burden, parents of children diagnosed with cancer may face a higher risk of sickness absence from work. The objective of this study was to examine the association of childhood cancer with parents'…
Single-Center Experience Providing Palliative Care to Pediatric Patients with End-Stage Renal Disease
Background: End-stage renal disease (ESRD) affects nearly 1400 new children each year in the United States. Morbidity and mortality rates remain high for pediatric patients with ESRD, including those that have received a renal transplant. Objective: To better …