Published literature
African Hospital-Based Paediatric Palliative Oncology Care Independent of Economic Indicators: An International Society of Paediatric Oncology (SIOP) Global Mapping Programme SurveyMauree A, Myezo K, Ranasinghe N, Challinor J, Bandini R, Burns K, Eyal K, Downing J, Pritchard-Jones K, Bouffet E, Geel J · Pediatric blood & cancer · 2025
A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation studyNamisango E, Murtagh F, Bristowe K, Downing J, Powell R, Atieno M, Sandham M, Ali Z, Meiring M, Mwangi-Powell F, Abbas M, Fraser L, Higginson I, Harding R · Health & Quality of Life Outcomes · 2025
Delphi Method to Develop a Palliative Care Tool for Children and Families in Sub-Saharan AfricaChinyundo K, Casas J, Bank R, Abenawe C, Gaolebale B, Nakirulu A, Maifale-Mburu G, Hesselgrave J, Butia M, Bakulumpagi D, Nassanga I, Higgins J, Hockenberry M · J Pain Symptom Manage · 2022
Exploring the impact of healthcare workers communication with women who have experienced stillbirth in Malawi, Tanzania and Zambia. A grounded theory studyActis Danna V, Lavender T, Laisser R, Chimwaza A, Chisuse I, Kasengele C, Kimaro D, Kuzenza F, Lyangenda K, Mwamadi M, Shayo H, Tuwele K, Wakasiaka S, Bedwell C · Women & Birth · 2023
Exploring the Palliative Care Needs of Children in Refugee Settlements in UgandaDowning J, Santiago T, Opia V, Oziti G, Namukwaya E, Nabirye L, Maku S, Nalutaaya F, Bagasha P, Smith C, Ikong H, Venkatesh C, Howarth K, McGeough K, Grant L, Leng M · Palliative Medicine · 2023
Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countriesNamisango E, Bristowe K, Murtagh F, Downing J, Powell R, Atieno M, Abas M, Ali Z, Luyirika E, Meiring M, Mwangi-Powell F, Higginson I, Harding R · Palliative Medicine · 2022
Integrating a palliative approach into the healthcare provided by the French-African Pediatric Oncology Group's pilot units. Insights from a 3-year training programEdan C, Yao A, Hessissen L, Moreira C, Viallard M, Poulain P, Calmanti S, Thinlot C, Aubier F, Doucot M, Gagnepain-Lacheteau A, Patte C · Archives de Pediatrie · 2021
Palliative Care Services within a Pediatric Hematology-Oncology Program in a Low-Resource SettingSilverstein A, Butia M, Bank R, Manda G, Nyasulu C, Mwango N, Makuti S, Chikasema M, Torrey S, Hesselgrave J, Casas J, Thambo L, Msekandiana A, Chiume M, Ozuah N, Huibers M · J Pain Symptom Manage · 2022
Pediatric Oncology Clinical Trials and Collaborative Research in Africa: Current Landscape and Future Perspectivesvan Heerden J, Zaghloul M, Neven A, de Rojas T, Geel J, Patte C, Balagadde-Kambugu J, Hesseling P, Tchintseme F, Bouffet E, Hessissen L · JCO global oncology · 2020
Too vulnerable? Successful practices for conducting research with children and young people who have life-limiting or life-threatening illnessNamisango E, Friedel M, Yurdusen S, Alrjoub W, Braybrook D, Alarjeh G, Roach A, Boufkhed S, Farsides B, Coombes L, Harding R · Palliative medicine · 2025
Using the Pediatric Oncology Facility Integrated Local Evaluation (PrOFILE) Tool to Evaluate and Improve Pediatric Oncology Systems in Cameroon: A Focus on National, Facility, and Financing ContextsAfungchwi G, Pondy-Ongotsoyi A, Sona M, Kouya F, Ndonku A, Frambo A, Mapoko B, Youwa P, Waindim Y, Omotola A, Friedrich P, Bhakta N, Ndom P · Pediatric Blood and Cancer · 2026
Vulnerability and agency across treatment-seeking journeys for acutely ill children: how family members navigate complex healthcare before, during and after hospitalisation in a rural Kenyan settingZakayo S, Njeru R, Sanga G, Kimani M, Charo A, Muraya K, Sarma H, Uddin M, Berkley J, Walson J, Kelley M, Marsh V, Molyneux S · Int J Equity Health · 2020
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