Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–19 of 19 publications
Perceived Challenges to Effective Pediatric Palliative Care in India: A Systematic Review
Pediatric palliative care aims to improve the quality of life for children with life-threatening diseases. The requirements and approach to pediatric palliative care differ greatly from adult palliative care. Palliative care has been introduced and grown in In…
Addressing Racism in Pediatric Serious Illness: Insights for Clinical Care and Advocacy
Inequitable care across racial groups has been a reality throughout the history of modern medicine. These inequities extend to children living with serious illness and impact their experiences within the healthcare system as well as their health outcomes. Whil…
Measuring Pediatric Palliative Care Quality: Challenges and Opportunities
Pediatric palliative care (PPC) programs vary widely in structure, staffing, funding, and patient census, resulting in inconsistency in service provision. Improving the quality of palliative care for children living with serious illness and their families requ…
Quality indicators for transition from paediatric to adult care for adolescents with chronic physical and mental illness: protocol for a systematic review
INTRODUCTION: Transition from paediatric to adult care is a complex process, which poses significant challenges for adolescents with chronic physical and mental illnesses. For many, transfer to adult care is associated with poor health and psychosocial outcome…
Key constituents for integration of care for children assisted with long-term home ventilation: a European study
BACKGROUND: The number of children requiring long-term home ventilation has consistently increased over the last 25 years. Given the growing population of children with complex care needs (CCNs), this was an important area of focus within the Models of Child H…
Primary palliative care: Skills for all clinicians
The number of children with life-threatening and life-limiting conditions is increasing, requiring an individualized approach and additional supportive care. The American Academy of Pediatrics has called for pediatric palliative care to be available to all chi…
Pediatric Palliative Care in Practice: Perspectives between Acute and Long-term Healthcare Teams
AIM: To explore and compare acute and long-term care professionals' perspectives about pediatric palliative care. METHODS: Focus group interviews were conducted in 2016-2017 with professionals from acute (Emergency Department, Intensive Care Unit) and long-ter…
The National Palliative Care Registry: A Decade of Supporting Growth and Sustainability of Palliative Care Programs
Background: Palliative care program service delivery is variable, and programs often lack data to support and guide program development and growth. Objective: To review the development and key features of the National Palliative Care Registry ("the Registry") …