Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–22 of 22 publications
Development and Execution of a Pediatric Hospice and Palliative Medicine Fellowship in Latin America
Background: Pediatric hospice and palliative medicine (PHPM) is a growing subspecialty worldwide; however, formal graduate medical education pathways remain limited in low- and middle-income countries, including most of Latin America, constraining workforce de…
Effectiveness of an Educational Program on Nurses' Competence Regarding Palliative Care of Children with Cancer in Mosul City
Introduction: Pediatric palliative care is essential for improving the quality of life of children with cancer and their families. Nurses play a critical role in delivering this care; however, many lack adequate training and competence in pediatric palliative …
Impact of Palliative Care Educational Program on Knowledge and Attitude Regarding Pediatric Palliative Care Among Healthcare Professionals Working in Nepal
ABSTRACT There is a critical and persistent unmet need for pediatric palliative care (PPC) services in low- and middle-income countries (LMICs), with the lack of specialized training among healthcare professionals (HCPs) identified as a major barrier. This stu…
Milestones and Horizons: Highlights from the 4th International Children's Palliative Care Network Conference in Manila, Philippines
The International Children's Palliative Care Network (ICPCN) held its 4th international conference in Manila, Philippines (12th-15th November 2025), in partnership with The Ruth Foundation. The conference, 'Milestones & Horizons,' marked ICPCN's 20th anniversa…
Pediatric Palliative care: Evaluation of knowledge, experience and confidence among physicians in a university outpatient setting
Background Pediatric Palliative Care (PPC) is essential for improving the quality of life of children with life-threatening or life-limiting conditions and their families. Despite its growing relevance, PPC remains underexplored in medical education and clinic…
Physician Perceptions Toward Palliative Care Integration in Childhood Cancer Care in Asia Pacific
PURPOSE: Palliative care (PC) integration in pediatric oncology improves outcomes, yet access to PC in the Asia Pacific (AP) region remains limited. This study aimed to understand physician perceptions of PC integration in childhood cancer care across AP., MET…
Adaptation of the perinatal bereavement care confidence scale into Turkish and examination of its psychometric features
The aim of the research is to adapt the Perinatal Bereavement Care Confidence Scale (PBCCS) into Turkish and to test whether it is a valid and reliable measurement tool in Türkiye by assessing its psychometric features. The sampling of this methodological rese…
Reducing inequity in the provision of children's palliative care in low- and middle- income countries: A focus on education and research
There are over 21 million children and their families globally who need palliative care,1 yet estimates suggest that less than 10% can access it. The greatest need for palliative care in children is in low- and middle-income countries, where 98% of the demand …
Teaching of Medical Ethics Regarding Children, Death and Dying, and Research at the Uniformed Services University of the Health Sciences (USUHS) During Its First Fifty Years
Introduction: The first class at USUHS took its initial course in medical ethics in 1977. I directed this course until recently when COVID first emerged. In this piece, I review what these students were taught during the first 3 of 8 class sessions involving c…
Defining the Boundaries of Palliative Care in Pediatric Oncology
Context: Although palliative care (PC) continues to be integrated into pediatric oncological care, only a minority of patients with cancer receive a formal PC consult.
The effect of web-based pediatric palliative care education on the palliative care knowledge level and practices of nursing students
PURPOSE: This study is aimed to investigate the effect of web-based pediatric palliative care education on nursing students' knowledge level and practices related to palliative care.