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Technology

Everything on the hub tagged Technology: researchers, groups, current studies, resources and published literature together.

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Researchers

Najiya P
National institute of mental health and neuroscience · India

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Published literature

Actual Solidarity through Virtual Support: A Pilot Descriptive Study of an Online Support Group for Bereaved Parents
Weaver M, Jurgens A, Neumann M, Schalley S, Kellas J, Navaneethan H, Tullis J · J Palliat Med · 2021
A pilot study of the effectiveness of home teleconsultations in paediatric palliative care
Bradford N, Young J, Armfield N, Bensink M, Pedersen L, Herbert A, Smith A · Journal of Telemedicine & Telecare · 2012
Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation
Rudolf I, Pieper K, Nolte H, Junge S, Dopfer C, Sauer-Heilborn A, Ringshausen F, Tummler B, von Jan U, Albrecht U, Fuge J, Hansen G, Dittrich A · JMIR mHealth and uHealth · 2019
Attitudes and Needs of Health Care Providers Toward Artificial Intelligence-Assisted Pediatric Palliative Care: Mixed Methods Study
Cai S, Guo Q, Wang Z, Wang R, Zhou X, Peng X · Journal of Medical Internet Research · 2026
Bereaved Parent Perspectives on the Benefits and Burdens of Technology Assistance among Children with Complex Chronic Conditions
Bogetz J, Revette A, DeCourcey D · J Palliat Med · 2021
Caregiver Preferences for AI-Supported Telemedicine in Pediatric Palliative Care: A Discrete Choice Experiment
Godoy Junior C, Penarrubia-San-Florencio L, Ricart S, Vilarrubi S, Roure M, Ruiz-Herguido C, Valls-Esteve A, Pilli L, Uyl-de Groot C, Redekop W, Kirsten van Deen W · Journal of palliative care · 2026
Clinician Perspectives on Compassionate Deactivation of Pediatric Ventricular Assist Devices
Pyke-Grimm K, Brown M, Youssef A, Spengler M, Hollander S, Feudtner C, Char D · ASAIO Journal · 2025
Compassionate Deactivation of Pediatric Ventricular Assist Devices: A Review of 14 Cases
Hollander S, Kaufman B, Bui C, Gregori B, Murray J, Sacks L, Ryan K, Ma M, Rosenthal D, Char D · J Pain Symptom Manage · 2021
Consulting With First Nations Communities to Develop Text-Based Support for Grieving Fathers
Hammond C, Adams M, Fletcher R · Health Expect · 2025
Continuation of Potentially Inappropriate Life-Sustaining Therapies: Provider Perspectives
DePew R, Bonnet K, Schlundt D, Turnbull J, Propper R · Journal of pain and symptom management · 2025
COVID-19 Pandemic Restrictions and the Use of Technology for Pediatric Palliative Care in the Acute Care Setting
Bettini E · J Hosp Palliat Nurs · 2020
Decisions around long-term ventilation for children: Perspectives of directors of pediatric home ventilation programs
Edwards J, Morris M, Nelson J, Panitch H, Miller R · Annals of the American Thoracic Society · 1539
Digital Clinical Communication for Families and Caregivers of Children or Young People With Short- or Long-Term Conditions: Rapid Review
Armoiry X, Sturt J, Phelps E, Walker C, Court R, Taggart F, Sutcliffe P, Griffiths F, Atherton H · J Med Internet Res · 2018
Digital decision aid for prenatal counseling in imminent extreme premature labor: development and pilot testing
van den Heuvel J, Hogeveen M, Lutke Holzik M, van Heijst A, Bekker M, Geurtzen R · BMC medical informatics and decision making · 2022
Digital Health Perspectives and Opportunities in Pediatric Palliative Care: Results From a Focus Group
Prendin A, Mellucci C, Strini V, Cerrone V, Andretta V, Damiani G, Specchia M · Nursing Forum · 2026
Digital storytelling as a memory-making intervention for children and families in paediatric palliative care in Ireland: an adaptation study
Safarifard R, Molati A, Corcoran Y, Kiernan G, Courtney E, Mitchell J, Akard T, Moore G, Lambert V · Frontiers in public health · 2025
Disparities in specialist palliative care for Taiwanese children and young adults impacted by local digital development and noncancer diagnoses
Lin S, Kao C, Chen H, Mudiyanselage S, Lu H, Huang M · Journal of Hospital Medicine · 2025
DMD-YOUNG: paediatric palliative care for children with a slowly progressive neuromuscular disorder in transition to adulthood
Annexstad E, Ramberg C, Rosenberger A, Nordstrom M · Neuromuscular Disorders · 2024
Electronic nursing documentation in paediatric palliative care: a scoping review
Beghe A, Mancin S, Cacciapaglia E, Piccolomini G, Trombetta M, Bonotti G, Tognetti E, Cattani D, Dacomi A, Lopane D, Crippa C, Coldani C, Tomaiuolo G, Iadeluca A, Mazzoleni B · International journal of palliative nursing · 2025
Electronic Patient Reported Outcomes Measures (e-PROMs) in Pediatric Palliative Oncology Care: A Scoping Review
Rusconi D, Basile I, Rampichini F, Colombo S, Arba L, Pancheri M, Consolo L, Lusignani M · Journal of palliative care · 2024
Enhancing Expert Panel Discussions in Pediatric Palliative Care: Innovative Scenario Development and Summarization With ChatGPT-4
Almazyad M, Aljofan F, Abouammoh N, Muaygil R, Malki K, Aljamaan F, Alturki A, Alayed T, Alshehri S, Alrbiaan A, Alsatrawi M, Temsah H, Alsohime F, Alhaboob A, Alabdulhafid M, Jamal A, Alhasan K, Al-Eyadhy A, Temsah M · Cureus · 2023
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain
Birnie K, Killackey T, Backlin G, Gavin F, Harris C, Jordan I, Kim L, Marianayagam J, Swidrovich J, Lalonde C, Tunji-Ajayi L, Oberlander T, Kirby-Allen M, Lambert S, Siden H, Swidrovich J, Noel M, Lalloo C, Stinson J · Healthcare Quarterly (Toronto, Ont.) · 2022
Ethical Challenges in Neonatal Life Support
Singh S, Buddington S, Huseynova R · Newborn: Official Journal of the Global Newborn Society · 2025
Ethical Considerations in Ever-Expanding Utilization of ECLS: A Research Agenda
Clark J, Baden H, Berkman E, Bourget E, Brogan T, Di Gennaro J, Doorenbos A, McMullan D, Roberts J, Turnbull J, Wilfond B, Lewis-Newby M · Front Pediatr · 2022
Ethical Issues around Death and Withdrawal of Life Support in Neonatal Intensive Care
Pant S · Indian Journal of Pediatrics · 2022
Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach
Garani-Papadatos T, Natsiavas P, Meyerheim M, Hoffmann S, Karamanidou C, Payne S · Front Digit Health · 2022
Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients
LeBeau K, Collins S, Zori G, Walker D, Marchi E, Pomeranz J, Hart M · Palliative & supportive care · 2023
Evaluating virtual reality for anxiety reduction in children and adolescents with life-limiting conditions: a randomized pilot study
Sebova A, Fajnerova I, Drnkova L, Hrdlickova L · BMC palliative care · 2026
Experience of caregivers and healthcare professionals using a telemedicine programme in a paediatric palliative care unit
Carrasco A, Cantero M, Pinero J, Rodriguez A · International journal of palliative nursing · 2024
Exploring learners' perspectives of a pediatric palliative care tele-mentoring and education program (project Echo) in a resource-limited setting
Evans E, Doherty M, Modanloo S, Rowe J, Newhook D, Archibald D · Paediatrics and Child Health (Canada) · 2020
Exploring parents' perspectives on health technology to support communication in home-based pediatric palliative care: a qualitative study
Martinsen L, Holmen H, Steindal S, Winger A · BMC palliative care · 2026
Factors associated with family decision-making after pediatric out-of-hospital cardiac arrest
Frelinger J, Tan J, Klein M, Newth C, Ross P, Winter M · Resuscitation · 2024
Feasibility, Acceptability, and Impact of Using Virtual Reality Social Support for Adolescents Living with Serious Illness
Alexander S, St Louis J, Rapoport A, Horan R, Korenblum C, Weingarten K, Widger K · Journal of palliative medicine · 2026
Feasibility and Acceptability of Remote Music Therapy for Cognitively Impaired Children Receiving Palliative/Complex Care and Their Families
Akard T, Dietrich M, Gilmer M, Lense M, Hills T, Hendricks-Ferguson V · Journal of palliative medicine · 2026
Feasibility of Implementing an Electronic Patient-Reported Outcome-Based Digital Health Platform in Pediatric Oncology and Palliative Care: Insights From the MyPal4Kids Multicenter Observational Study
Meyerheim M, Radova L, Burns-Gebhart A, Mergen M, Natsiavas P, Bonotis P, Karamanidou C, Payne S, Downing J, Ling J, Sander A, Mirzaie K, Dokutur S, Vaculikova J, Lokaj P, Rohleder O, Graf N · JMIR Cancer · 2026
Future roles of artificial intelligence in early pain management of newborns
Salekin M, Mouton P, Zamzmi G, Patel R, Goldgof D, Kneusel M, Elkins S, Murray E, Coughlin M, Maguire D, Ho T, Sun Y · Paediatric and Neonatal Pain
Gastrostomy tube insertion in children with developmental or acquired disorders: a register-based study
Backman E, Sjogreen L · Developmental Medicine and Child Neurology. · 2020
Healthcare for children depend on medical technology and parental quality of life in Japan
Matsuzawa A, Arai J, Shiroki Y, Hirasawa A · Pediatr Int · 2022
Healthcare personnel's perspectives on health technology in home-based pediatric palliative care: a qualitative study
Schroder J, Riiser K, Holmen H · BMC Palliative Care · 2024
Healthcare utilization and costs of pediatric home mechanical ventilation in Canada
Nonoyama M, Katz S, Amin R, McKim D, Guerriere D, Coyte P, Wasilewski M, Zagorski B, Rose L · Pediatr Pulmonol · 2020
Health Technologies and Infrastructures for Supporting Home-Based Pediatric Palliative Care: Scoping Review
Steindal S, Winger A, Riiser K, Bjornerud E, Chen W, Holmen H · Journal of Medical Internet Research · 2025
Home mechanical ventilation for children with severe neurological impairment: Parents' perspectives on clinician counselling
Bogetz J, Munjapara V, Henderson C, Raisanen J, Jabre N, Shipman K, Wilfond B, Boss R · Dev Med Child Neurol · 2022
How can telehealth be used to enhance the quality of care in home-based pediatric palliative care: protocol for a systematic literature review
Adlung C, Niehot C, van Capelle C · medRxiv · 2025
Initiating technology dependence to sustain a child's life: a systematic review of reasons
Alexander D, Quirke M, Berry J, Eustace-Cook J, Leroy P, Masterson K, Healy M, Brenner M · J Med Ethics · 2021
Integrating Electronic Patient-Reported Outcomes and Palliative Care in Pediatric Advanced Cancer: The PediQUEST Response Multisite Randomized Controlled Trial
Dussel V, Orellana L, Requena M, Avery M, Becker D, Ullrich C, Feudtner C, Freedman J, Kang T, Waldman E, Gerhardt C, Bakitas M, Baker J, Friedrichsdorf S, Rosenberg A, Wolfe J · Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2026
Leveraging AI-Powered Cultural Intelligence to Enhance Pediatric Critical Care Nurses' Competencies in End-of-Life Care
Hemdan Abdelhamed Morsi T, Abdelgawad Said D, Mohamed Adam Tozer S, Mohamed Ibrahim Nassar H · Egyptian Journal of Health Care · 2026
Living With Loss: Study Protocol for a Randomized Controlled Trial Evaluating an Internet-Based Perinatal Bereavement Program for Parents Following Stillbirth and Neonatal Death
Loughnan S, Boyle F, Ellwood D, Crocker S, Lancaster A, Astell C, Dean J, Horey D, Callander E, Jackson C, Shand A, Flenady V · Trials · 2022
Long-Term Non-invasive Ventilation in Children: Current Use, Indications, and Contraindications
Praud J · Front Pediatr · 2020
Long-Term Ventilation in Children with Medical Complexity: A Challenging Issue
Caldarelli V, Porcaro F, Filippo P, Attanasi M, Fainardi V, Gallucci M, Mazza A, Ullmann N, Grutta S · Children · 2022
Mechanical ventilation in children with life-limiting conditions
Gaboli M, Pecellin I, Garrido M, Cantero E, Carro C, Rodriguez L, Valencia J · European Respiratory Journal · 2016
Monitoring of physiologic features and treatment aspects of children on home invasive mechanical ventilation
Chawla J, Tan H · Pediatr Pulmonol · 2024
MyPal-Child study protocol: an observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients
Meyerheim M, Karamanidou C, Payne S, Garani-Papadatos T, Sander A, Downing J, Stamatopoulos K, Ling J, Payne C, Scarfò L, Lokaj P, Maramis C, Graf N · BMJ Open · 2021
Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach
Busse T, Jux C, Kernebeck S, Dreier L, Meyer D, Zenz D, Zernikow B, Ehlers J · Children (Basel) · 2021
Noninvasive Ventilation in Palliative Care and Ethical Dilemma
Krivec U, Caggiano S · Frontiers in Pediatrics · 2020
Parents and carers' experiences of seeking health information and support online for long-term physical childhood conditions: a systematic review and thematic synthesis of qualitative research
Treadgold B, Teasdale E, Muller I, Roberts A, Coulson N, Santer M · BMJ Open · 2020
Parents spend an average of nine hours a day providing palliative care for children at home and need to maintain an average of five life-saving devices
Lazzarin P, Schiavon B, Brugnaro L, Benini F · Acta Paediatr · 2017
Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians
Kernebeck S, Jux C, Busse T, Meyer D, Dreier L, Zenz D, Zernikow B, Ehlers J · Children (Basel) · 2022
Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study
Busse T, Jux C, Kernebeck S, Dreier L, Meyer D, Zenz D, Zernikow B, Ehlers J · Children (Basel) · 2021
Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
Kernebeck S, Busse T, Jux C, Meyer D, Dreier L, Zenz D, Zernikow B, Ehlers J · Children (Basel) · 2021
Pediatric palliative podcasting as a tool to reach families
Moore D, Bills O · Pediatrics · 2019
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Evan E, Sandesara A, Mock K · Journal of Pain and Symptom Management · 2020
Perceptions of Interprofessional Practitioners Regarding Pediatric Palliative Transports
Swasey H, Morrill D, Mott S, Engstrand S, Connor J · Am J Crit Care · 2024
Personalize the Patient Initiative: A Demedicalized Medical Chart Cover Page for Children Receiving Palliative Care
Serena K, Piva J, Andreolio C, Carvalho P, Rocha T · Rev Bras Ter Intensiva. · 2018
Project ECHOTM pediatric palliative care: Impact of tele-mentoring and education series in nepal
Lynch-Godrei A, Doherty M, Sapkota S, Rowe J, Aryal G · Palliative Medicine · 2021
Reaching the Unreached: Providing Quality Care to HIV-Infected Children through Telemedicine-An Innovative Pilot Initiative from Maharashtra, India
Manglani M, Gabhale Y, Lala M, Balakrishnan S, Bhuyan K, Rewari B, Setia M · Int J Pediatr · 2020
Regional Pediatric Education and Assistance Collaborative for Hospice Nurses (REACH): A Tele-Educational Intervention
Aglio T, Bobelis A, Autrey A, Hills T, Superdock A, Madni A, Bien K, Mali N, Kaye E · Journal of Hospice & Palliative Nursing · 2026
Retrieval-Augmented Generation (RAG) AI for End-of-Life Support in Pediatric HCT: Bridging Information Gaps for Patients and Caregivers on Palliative Care
Siddiqui K, Al-Musa A, Alsaedi H, Ghemlas I, AlAnazi A, Al-Ahmari A, Ramiz S, Sadler K, Virk T, Ayas M, Khan S · Transplantation and Cellular Therapy · 2026
Scandinavian perspectives on life support at the border of viability
Syltern J · Frontiers in Pediatrics · 2024
Short-term Non-invasive Ventilation for Children with Palliative Care Needs
Ker Yang C, Malini, Su Fang N, Chee Chan L · Indian Journal of Palliative Care · 2024
Tele-advocacy and Bioethics During the Pandemic: A Telehealth Approach in Perinatal-neonatal Care for Mitigating Ethical and Moral Tensions at a Safety-net Hospital
Perugu S, Rehan V · Journal of Neonatology · 2026
Telehealth Needs and Concerns of Stakeholders in Pediatric Palliative Home Care
Zimmermann J, Heilmann M, Fisch-Jessen M, Hauch H, Kruempelmann S, Moeller H, Nagel L, Nathrath M, Vaillant V, Voelker T, Deckers M · Children · 1315
Telemedicine in children with medical complexity on home ventilation during the COVID-19 pandemic
Onofri A, Pavone M, De Santis S, Verrillo E, Caggiano S, Ullmann N, Cutrera R · Pediatric Pulmonology · 2021
The effect of web-based pediatric palliative care education on the palliative care knowledge level and practices of nursing students
Akdeniz Kudubes A, Bektas M · Perspectives in psychiatric care. · 2019
The lived experiences of paediatric intensive care unit nurses during the initiation of long-term ventilation
Masterson K, Connolly M, Brenner M · Australian Critical Care · 2026
The role of hospice in the transition from hospital to home for technology‐dependent children—a qualitative study
Price J, McCloskey S, Brazil K · Journal of Clinical Nursing · 2017
The role of hospice in the transition from hospital to home for technology-dependent children-A qualitative study
Price J, McCloskey S, Brazil K · Journal of Clinical Nursing · 2018
The Use of Concurrent Home Hospice for Pediatric Heart Failure Patients Awaiting Heart Transplant on Milrinone and/or Ventricular Assist Device
Burnette A, Henderson H, Adams V, Savage A · Journal of Heart and Lung Transplantation · 2020
The use of telemedicine for home-based palliative care for children with serious illness: a scoping review
Miller K, Baird J, Lira J, Herrera Eguizabal J, Fei S, Kysh L, Lotstein D · J Pain Symptom Manage · 2020
Use of Synchronous Digital Health Technologies for the Care of Children With Special Health Care Needs and Their Families: Scoping Review
Bird M, Li L, Ouellette C, Hopkins K, McGillion M, Carter N · JMIR Pediatr Parent · 2019
Use of Telehealth in Pediatric Palliative Care
Winegard B, Miller E, Slamon N · Telemed J E Health · 2017
Using mobile phones, WhatsApp and phone interviews to explore how children's hospice nurses manage long-term relationships with parents: a feasibility pilot
Jane Brimble M, Anstey S, Davies J, Dunn C, Jones A · Nurse Res · 2022
Using normalization process theory to evaluate providing pediatric palliative care at end-of-life as web-based training intervention for nurses: Study protocol for a randomized controlled trial
Al-Shammari M, Yasir A, Aldoori N, Mohammad H · Journal of Cardiovascular Disease Research · 2021
Using Online Health Communication to Manage Chronic Sorrow: Mothers of Children with Rare Diseases Speak
Glenn A · Journal of Pediatric Nursing · 2015
Virtual Bereavement Support Program in a Children's Hospice Care Center During COVID-19 Pandemic and Beyond
Allan-Wiseman S, Yazdani N, Modanloo S · Journal of social work in end-of-life & palliative care · 2024
"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation
Shipman K, Mercer A, Raisanen J, Jabre N, Vo H, Miles A, Shepard J, Henderson C, Boss R, Wilfond B · Journal of Palliative Medicine · 2023

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