Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 4051–4075 of 4332 publications
New Resources for Pediatric Palliative Care
The National Institute of Nursing Research (NINR) has developed pediatric palliative care informational materials for families of children with serious illnesses (http://1.usa.gov/1rHZs45). The fact sheet, family stories, and resource card highlighting support…
Not there yet: Pediatric palliative care in Canada 2002-2012
Objectives: As a follow-up to a study conducted in 2002, our objective was to obtain an accurate description of programs that provided specialized pediatric palliative care (PPC) in 2012 and the children who received it; explore changes in the programs and car…
Nurse Knowledge, Work Environment, and Turnover in Highly Specialized Pediatric End-of-Life Care
OBJECTIVE: To examine the relationship between nurse knowledge, work environment, and registered nurse (RN) turnover in perinatal hospice and palliative care organizations. METHODS: Using nurse intellectual capital theory, a multivariate analysis was conducted…
Nursing Staff's Perception of Barriers in Providing End-of-Life Care to Terminally Ill Pediatric Patients in Southeast Iran
OBJECTIVE: To determine pediatric nurses' perceptions of intensity, frequency occurrence, and magnitude score of selected barriers in providing pediatric end-of-life (EOL) care. METHOD: A translated modified version of National Survey of critical care Nurses' …
Opinions of members of the National Civil (Family Proceedings) and Criminal Courts in withholding or withdrawing of life support situations in pediatrics
INTRODUCTION: The possibility of sustaining life functions makes it difficult to distinguish between a dying patient and a patient with chances of survival, raising a dilemma for everyone around them. On the one side, continuing with life support techniques th…
Opinions of paediatricians who teach neonatal resuscitation about resuscitation practices on extremely preterm infants in the delivery room
OBJECTIVE: To describe the opinions of paediatricians who teach resuscitation in Brazil regarding resuscitation practices in the delivery room (DR) of preterm infants with gestational ages of 23-26 weeks. METHODS: Cross-sectional study with an internationally …
Opportunities for Palliative Care in Public Health
In May 2014, the World Health Assembly, of the World Health Organization (WHO), unanimously adopted a palliative care (PC) resolution, which outlines clear recommendations to the United Nations member states, such as including PC in national health policies an…
Outcome of childhood malignancies at the university of port Harcourt teaching hospital: A call for implementation of palliative care
Background: Cancers in children are yet to be recognised as an important cause of childhood morbidity and mortality in developing countries where more than 70% of the world annual cases occur. Despite the limited resources and whatever the projected outcome, c…
Outpatient pediatric palliative medicine: Complex lives, comprehensive services
Objectives * Identify the diagnoses and death rate found in an outpatient pediatric palliative care clinic. * Describe the technology and community supports used by children with medical complexity and incurable illness. Original Research Background. Pediatric…
Paediatric palliative care: Aligning guidelines and medical practice
Background/Objectives: Due to advances in the world of medicine, the number of children with life-limiting and life-threatening illnesses has increased steadily. In response to these changes within paediatrics, various guidelines have been published to direct …
Paediatric palliative care: Is it all about communication?-quality improvement project to assess and address background knowledge and training needs of a department
Context This quality improvement project took place in a district general hospital paediatric department. The target population was all doctors in training, consultants, ward nurses and community nurses. Problem Across the general paediatric team, many people …
Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: Results from a London cohort study and international survey
Background. More than 90% of patients with diffuse intrinsic pontine glioma (DIPG) will die within 2 years of diagnosis. Patients deteriorate rapidly during the disease course, which severely impairs their quality of life. To date, no specific research on this…
Palliative care and pediatric surgical oncology
Survival rate for childhood cancer has increased in recent years, reaching as high as 70% in developed countries compared with 54% for all cancers diagnosed in the 1980s. In the remaining 30%, progression or metastatic disease leads to death and in this framew…
Palliative care at home with low resources by a hospice center, Dhaka, Bangladesh
Background: According to Bangladesh Cancer Society the economic burden of new adult cancer patients is 250000/yr., and the total cancer burden is 10, 00000/yr. According to the oncologists and referral hospitals approximately 75% of the cancer patients attendi…
Palliative Care Education in Emergency Medicine Residency Training: A Survey of Program Directors, Associate Program Directors, and Assistant Program Directors
CONTEXT: Emergency Medicine (EM) residents perceive palliative care (PC) skills as important and want training, yet there is a general lack of formal PC training in EM residency programs. A clearer definition of the PC educational needs of EM trainees is a res…
Palliative care for children in the community with static neurological conditions-are we getting it right?
Background It is notoriously difficult to predict life expectancy for children with static neurological conditions (e.g. cerebral palsy). Identifying factors that make a child likely to be life limited and require an early palliative focus to their care is an …
Palliative care for children with comorbid autism spectrum disorders
Objectives * Identify 3 core aspects of development unique to patients with autism spectrum disorders (ASD). * Describe how developmental differences impact symptom assessment and pain behaviors in children with ASD who also have a serious illness. * Develop t…
Palliative care in children with cancer. Experience of a hospital in the center of Mexico
Background/Objectives: To report the experience in palliative care given to our paediatric patients with cancer. Design/Methods: We included in a cohort, patients of Pediatric Oncology of the HMI service that its palliative care. We evaluate clinical and demog…
[Palliative Care in the Delivery Room]
Palliative care in the delivery room is a multiprofessional challenge directed to the dying newborn and the parents as well as to the care-givers. Clinical experience shows that many aspects regarding this unique palliative care situation are not well known an…
Palliative care of children with malignant pontine tumours
Objectives: Children with malignant pontine tumours (MPT) including diffuse intrinsic pontine gliomas face a dismal prognosis. Palliation is challenging with complex issues at the end-of-life. This study describes (1) the clinical course of children dying of M…
Palliative Care Research - A Systematic Review of foci, designs and methods of research conducted in Sweden between 2007 and 2012
BACKGROUND: In 2007, a literature review was undertaken of palliative care research from Sweden during the 1970s-2006, paving the way for a follow-up study to explore the recent developments. The aim was to systematically examine palliative care research from …
Palliative Care. Workforce Development
Palliative care is delivered in almost all settings where healthcare is provided, including neonatal units, paediatric services, acute hospitals, general practices, community settings and aged care services. People who are dying have needs which require that n…
Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model
BACKGROUND: Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the child's age, di…
Parental experiences with a hospital-based bereavement program following the loss of a child to cancer
OBJECTIVE: The death of a child from cancer is an intense and life-changing loss for a parent. Guided by the principles of patient- and family-centered care, hospital-based caregivers developed a program to provide bereavement support for parents through phone…