Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 4101–4125 of 4332 publications
Pediatric palliative care in a tertiary level hospital in Bangladesh
Objectives: The study was carried out to explore the demographic profile of the pediatric patients with advanced stage disease and to observe treatment modalities needed for symptom management. Methods: A retrospective observational study was conducted in the …
Pediatric palliative care in kelantan: A community engagement model
Holistic package of palliative care service for children is not available in most places in the South East Asia. This has resulted in unwanted suffering and loss of hope in the unfortunate families. Pediatric palliative care (PPC) is a new subspecialty in Mala…
Pediatric palliative care pilot curriculum: Impact of 'pain cards' on resident education
Background: Prior research has shown that less than 40% of pediatric program directors believe their graduating residents competent in palliative care. While many curricula have been developed to address this need, few have demonstrated improved comfort and/or…
Pediatric Palliative Care Program versus Usual Care and Healthcare Resource Utilization in British Columbia: A Matched-Pairs Cohort Study
BACKGROUND: Evidence on the impact of pediatric palliative care programs (PPCP) on resource utilization is scarce and requires broader measures to include utilization beyond the hospital setting. OBJECTIVE: This research aims to provide a Canadian comparative …
Pediatric palliative care training in fellowship: A national survey of adult palliative medicine fellowship directors and pediatric rotation directors
Objectives * Outline the current state of education and clinical training of adult hospice and palliative medicine (HPM) fellows in pediatric palliative care (PPC). * Compare responses between adult HPM fellowship and pediatric rotation directors regarding the…
Pediatric psychopharmacology: To use or not to use at the end of life
PURPOSE: Psychological symptoms ranging from distress to more debilitating depression and anxiety with worsening somatic symptoms can hamper communication, particularly at the end-of-life. Treatment with psychotropic medications may be useful for symptomatic a…
Pediatric Triage in a Severe Pandemic: Maximizing Survival by Establishing Triage Thresholds
OBJECTIVES: To develop and validate an algorithm to guide selection of patients for pediatric critical care admission during a severe pandemic when Crisis Standards of Care are implemented. DESIGN: Retrospective observational study using secondary data. PATIEN…
Perceptions of Palliative Care in the NICU
BACKGROUND AND PURPOSE: The American Academy of Pediatrics supports palliative care (PC) for all children with life-threatening illnesses. Thus, many neonatal intensive care unit (NICU) patients and their families could benefit from PC. Our study objective was…
Perceptions of the Pediatric Hospice Experience among English- and Spanish-Speaking Families
OBJECTIVE: Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the hospice ex…
Perinatal Decision Making for Preterm Infants with Congenital Heart Disease: Determinable Risk Factors for Mortality
For premature infants with congenital heart disease (CHD), it may be unclear when the burdens of treatment outweigh potential benefits. Parents may thus have to choose between comfort care at birth and medical stabilization until surgical repair is feasible. B…
Physician communication in pediatric end-of-life care: A simulation study
Objective: The objective of this exploratory study is to describe communication between physicians and the actor parent of a standardized 8-year-old patient in respiratory distress who was nearing the end of life. Methods: Thirteen pediatric emergency medicine…
Physician-hastened death in young children: Getting to underlying assumptions
Significant changes are occurring in Canada's health care system regarding physician-hastened death (PHD). In the Netherlands, where the Groningen Protocol is in place, euthanasia in now legal for infants and children. The present article considers whether PHD…
Pilot Evaluation of a Palliative and End-of-Life Communication Intervention for Parents of Children With a Brain Tumor
Providing timely palliative and end-of-life care (PC/EOL) information to parents of children with a serious illness is a national health care priority. The goals of this study were to determine feasibility, acceptability, and parent responses related to a PC/E…
Place of death in children and young people with cancer and implications for end of life care: A population-based study in England, 1993-2014
Background: Efforts to improve end of life care (EoLC) have made tangible impacts on care in adults, including enabling more people to die at their preferred place of death (PoD), usually home or hospices. Little is known how the PoD in children and young peop…
Pocket Reference Card Improves Pediatric Resident Comfort in Caring for Children at End of Life
BACKGROUND: Studies have shown that pediatricians in all stages of training are uncomfortable managing patients at end of life. Our goal was to create and test a portable reference card to improve pediatric resident education in comprehensive care for children…
Practical recommendations for diagnosis and management of respiratory muscle weakness in late-onset Pompe disease
Pompe disease is an autosomal-recessive lysosomal storage disorder characterized by progressive myopathy with proximal muscle weakness, respiratory muscle dysfunction, and cardiomyopathy (in infants only). In patients with juvenile or adult disease onset, resp…
Practice patterns of palliative radiation therapy in paediatric oncology patients amongst an international paediatric research consortium
Background/Objectives: Practice of palliative radiotherapy (RT) for paediatric oncology patients is based on extrapolations from adult palliative RT literature. We evaluated the palliative paediatric RT practice patterns to highlight the various regimens emplo…
Predictors of and trends in high-intensity end-of-life care among children with cancer: A population-based study using health services data
Background: Children with cancer often receive high intensity (HI) medical care at the end-of-life (EOL), possibly increasing already high symptom burdens. Previous EOL studies are limited to single centers or lack detailed clinical data. We determined predict…
Predictors of Intention to Refer to Pediatric Palliative or Hospice Care
The purpose of this descriptive correlational study was to determine whether nurse characteristics, level of comfort with care of the dying, and spirituality predict intention to refer and timing of referral to pediatric palliative/hospice care. The Behavioral…
Premortem interventions in dying children to optimise organ donation: an ethical analysis
A range of interventions in dying patients can improve both the possibility of successful organ donation and the likely long-term success of transplantation. The ethical and legal issues surrounding such interventions, which most frequently occur in the contex…
Primary palliative care in the neonatal intensive care setting: What is possible? what is necessary?
Objectives * Reflect on current neonatal intensive care practice for the seriously ill and or dying neonate. * Explore the role of the primary palliative care clinician. * Discuss palliative educational goals for intensive care clinicians. Introduction: This s…
Prognostic Disclosures to Children: A Historical Perspective
Prognostic disclosure to children has perpetually challenged clinicians and parents. In this article, we review the historical literature on prognostic disclosure to children in the United States using cancer as an illness model. Before 1948, there was virtual…
Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer
BACKGROUND: There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe suboptimal care…