Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–25 of 43 publications
A Network Meta-Analysis About Effectiveness of Mind-Body Therapies in Pediatric Palliative Care
Objective To evaluate and compare the effectiveness of mind-body therapies for managing symptoms and improving quality of life in children receiving palliative care using a network meta-analysis (NMA). Design A systematic review and network meta-analysis (PRIS…
Challenges and strategies in pediatric oncology palliative care in low-middle income countries: a systematic review
Background Annually, over 400,000 children aged 0-19 are diagnosed with cancer, with low-middle income countries (LMICs) facing lower cure rates and higher mortality. Most Asian nations, especially in Southeast Asia, have limited palliative care services due t…
Current situation, challenges and future trends of pediatric palliative care from a multi-dimensional perspective: a narrative review
Background and Objective: Pediatric palliative care (PPC) provides holistic support for children and adolescents with life-threatening or life-limiting conditions and their families. This narrative review summarizes PPC concepts, current service models, key im…
Empathic Communication in Pediatric Palliative Care: A Mixed-Methods Systematic Review
Background: Effective communication between healthcare providers and parents facing their child's end of life is critical yet complex. A comprehensive synthesis of how empathic communication influences clinical and bereavement outcomes in pediatric palliative …
Global Barriers to Pediatric Palliative Care: A Systematic Review
Pediatric palliative care (PPC) improves quality of life for children with serious illness and families, yet access remains limited, especially in low-income, rural, and historically marginalized communities. This review synthesizes global barriers to PPC acce…
Healthcare professionals' confidence in providing perinatal bereavement care for women and their families in low- and middle-income countries
Background/Aims: Perinatal death has a high burden in low- and middle-income countries. Inadequate care and support from healthcare professionals is a major factor in negative experiences and impacts parents' adjustment after stillbirth and neonatal death. Und…
Palliative care for children with cancer in Cuba: a narrative review and adaptation of the World Health Organization integration model
BackgroundPalliative care for children with cancer represents an urgent health priority in Cuba. The country has a universal and free health system with national coverage, but the systematic provision of specialized pediatric palliative care (PPC) in oncology …
Pediatric Pain Management and Palliative Care in Nigeria: A Scoping Review
ABSTRACT Background Pain is a common experience for pediatric patients, yet it remains inadequately managed, particularly in low-resource settings. Pediatric palliative care (PPC) services are underdeveloped in many low- and middle-income countries, including …
Perceived Challenges to Effective Pediatric Palliative Care in India: A Systematic Review
Pediatric palliative care aims to improve the quality of life for children with life-threatening diseases. The requirements and approach to pediatric palliative care differ greatly from adult palliative care. Palliative care has been introduced and grown in In…
Perinatal and Neonatal Palliative Care: Challenges and Contextual Solutions in Low- and Middle-Income Countries
ABSTRACT - Purpose: - The purpose of this review was to explore the primary obstacles to providing comprehensive, family-centered palliative care during the perinatal and neonatal period, using insights from existing literature and clinical practice. Backgroun…
Study protocol to develop bereavement care package for the Indian healthcare system to support parents of stillborn babies
Background: India is estimated to have the largest number of stillbirths globally. Although the health system in India has made significant strides in maternal and newborn care, the bereavement needs of the parents’ experiencing stillbirth have not received at…
Places of Farewell: A Scoping Review Exploring Factors Influencing the Choice of Place of Death for Children when Death is Expected
Progression of ill health and death trajectories is different for children with a non-oncology diagnosis. As previous research has focused primarily on children with cancer diagnoses, this scoping review explored what factors influence the parent and/or child'…
Components of Perinatal Palliative Care: An Integrative Review
When a severe diagnosis is made before or after birth, perinatal\
External second opinions: building trust between health professionals and families
In medicine, external second opinions are frequently sought to inform decisions around a patient's proposed course of treatment. However, they are also sought in more challenging circumstances such as when disagreement arises between the healthcare team and th…
Ethical challenges for a new generation of early-phase pediatric gene therapy trials
After decades of setbacks, gene therapy (GT) is experiencing major breakthroughs. Five GTs have received US regulatory approval since 2017, and over 900 others are currently in development. Many of these GTs target rare pediatric diseases that are severely lif…
Quality indicators for transition from paediatric to adult care for adolescents with chronic physical and mental illness: protocol for a systematic review
INTRODUCTION: Transition from paediatric to adult care is a complex process, which poses significant challenges for adolescents with chronic physical and mental illnesses. For many, transfer to adult care is associated with poor health and psychosocial outcome…
Recommendations for speech-language pathologists in paediatric palliative care teams (ReSP3CT): An international modified Delphi study
Purpose: There is emerging recognition within the literature that speech-language pathologists (SLPs) have a role in the provision of paediatric palliative care (PPC). SLPs, however, experience unique challenges when working with this vulnerable young cohort o…
A Systematic Review of Race/Ethnicity and Parental Treatment Decision-Making.
Patient race/ethnicity affects health care utilization, provider trust, and treatment choice. It is uncertain how these influences affect pediatric care. We performed a systematic review (PubMed, Scopus, Web of Science, PsycINFO, Cochrane, and Embase) for arti…
Page 1 of 2Next →